Night sweats

[Guest guest]

Hello Ann

Yes, since the onset of this disease (CMT 2) I have horrible night sweats which

soak me, my sheets, pillow case and tee shirt if I wear one to bed. It is very

annoying to say the least. But, I guess there is nothing that can be done about

it. Have you heard of any treatments, etc. that might work?

Mark

[Guest guest]

My son, 10, type 2 gets cold very easily but always wants his fan on so he

doesn't get hot.

Lori

From: [mailto: ] On Behalf Of Ann

Mumford

Sent: Saturday, July 18, 2009 6:03 PM

Subject: Night sweats

Dear all,

Has anyone noticed please if night sweating (soaked sheets etc) is

associated with CMT type 2? Asking for son age 8, although did notice

in husband (who also has CMT) a few years back (not so much recently).

Thanks very much!

Ann

[Guest guest]

Thanks so much, all. No treatments to suggest unfortunately.

Husband expressed concern about son's sweating last night, which I'd noticed

for a while now but not worried about, because I'd always thought " husband

and son are just alike, it must be a CMT symptom " . Husband, I guess

logically, had never really known that he sweats at night, because he's

asleep! Started worrying for a bit, but the list has put my mind at rest -

thanks!

---------------------------------------------

On Sun, Jul 19, 2009 at 1:12 AM, Lori Mattheiss <mattheiss137@...>wrote:

>

>

> My son, 10, type 2 gets cold very easily but always wants his fan on so he

> doesn't get hot.

>

> Lori

>

> From: <%40> [mailto:

> <%40>] On Behalf Of Ann

> Mumford

> Sent: Saturday, July 18, 2009 6:03 PM

> <%40>

> Subject: Night sweats

>

>

> Dear all,

>

> Has anyone noticed please if night sweating (soaked sheets etc) is

> associated with CMT type 2? Asking for son age 8, although did notice

> in husband (who also has CMT) a few years back (not so much recently).

>

> Thanks very much!

>

> Ann

>

>

[Guest guest]

I have night sweats, too. A fan at night helps a lot.

The doctors say it isn't related to CMT. I've been a bit concerned that it was

some kind of lurking typhoid complication (I caught it in Africa a few years

ago).

Does insomnia go with this for you guys?

Jim

[Guest guest]

Hello Ann

So glad seen this my hubby has CMT diagnosed around 6 years old don't know what

type he ahs but he out of family has it the most ever and he is always hot. And

gets night sweats if I don't leave cool bed clothes on and windows open wide

even in winter he ahd all sorts tests done and nothing came up.

So not another condition for him.

He is currently laid up after big toe operation,he also can't tell if his feet

cold/hands or not due to nerve damage. Hope this helps you out.

Melody

[Guest guest]

I have Type 2, no night sweats, except when going through menopause. To cool

off, I would get up, walk to the fridge, open it and stand there a few secs or

go outside for a few secs (even in 30F weather) then go back to sleep. Like

everything else I do, I get into * the solution *.

Many others * without CMT * experience night sweats, some info is at

(Medications play role in night sweats)

http://en.wikipedia.org/wiki/Night_sweats

http://www.medicinenet.com/night_sweats/article.htm

http://www.webmd.com/menopause/guide/8-causes-of-night-sweats

http://www.mayoclinic.com/health/night-sweats/MY00576

Night sweats are a common side effect of many medications, such as:

Antidepressants

Antipyrectics — medications that lower your body's temperature

Hypoglycemic agents — medications that decrease the level of sugar (glucose) in

your blood

Hormone therapy — medications that regulate the amount of hormones in your body

Medical conditions that cause night sweats

Diseases and conditions that can cause night sweats include:

Autonomic neuropathy (damage to your autonomic nerves)

Brucellosis (a bacterial infection)

Carcinoid syndrome (a syndrome resulting from a certain type of cancerous tumor)

Endocarditis (an infection of your heart lining)

HIV/AIDS

Hodgkin's lymphoma (Hodgkin's disease)

Hyperthyroidism (overactive thyroid)

Leukemia

Menopause

Myelofibrosis (a bone marrow disorder)

Non-Hodgkin's lymphoma

Osteomyelitis (a bone infection)

Pheochromocytoma (a rare adrenal gland tumor)

Pyogenic abscess (a pus-filled cavity caused by an infection)

Stroke

Syringomyelia (a fluid-filled cyst in the spinal cord)

Tuberculosis

[Guest guest]

Just my experience here.

I believe this to be a response to being in pain, which is discomfort not

labeled correctly and thus not understood.

I have a very severe case of CMT X, and I had terrible problems with night

sweating and body heat. It was also the cause of fidgeting while sitting and

excessive movement at night, in addition to the sweating.

Problem is the pain. One is so exhausted at night, that one has to sleep, but

sleeping has phases, and in one of them, a human's muscles are deactivated, to

prevent external physical motion in response to dream scenarios. At this point,

no movement can occur to accommodate the necessary change of position to relieve

the pain. So one sweats profusely.

I believe it is a manifestation of pain, for it went away when I began using

(strong, opiate ) medication for pain.

It might be helpful to explore this line of thought: pain exists, but it is not

recognized as such, nor labeled as such.

Just my two cents worth. I hope it helps.

[Guest guest]

Copious use of talcum powder where dampness exists is my best treatment for day

or night sweats.

I use pure talc as the cornstarch based powders are gleefully and gustily eaten

by any yeast or fungi residing is warm,dark, and damp places places if the body.

Regards.

--Larry

[Guest guest]

I have type 2 CMT and 13 years ago experienced night sweats. I discovered I had

Lymphoma and was fortunate to have made the discovery early. Night sweating is

a symptom of Lymphoma and should not be taken lightly.

Basil

[Guest guest]

Hi and Welcome,

What your feeling is High levels of Estradiol E2 this happens when men have low

T and go on T meds. Dr.'s don't check E2 levels before putting them on TRT and

a lot of older men over 40 all ready have high levels of Estradiol. As they go

up you feel hot and sweat get sore and hard nipples and in time ED sets in with

trouble reaching an orgasm. If you don't have night time and morning wood most

likely your high. I even had Panic Attacks and a lot of anxiety from high

levels. Most of us use arimidex to get levels down. Most of us men on TRT need

to take some thing to keep E2 levels down. The Testosterone we add to the body

some gets converted into E2. Here are some links about this.

http://www.medibolics.com/ArimidexBoostsTestosterone.htm

http://www.smart-drugs.com/ias-estrogen.htm

http://jcem.endojournals.org/cgi/content/full/89/3/1174

http://www.lef.org/magazine/mag2008/nov2008_Dangers-of-Excess-Estrogen-in-the-Ag\

ing-Male_01.htm

I am not sure about how many grams 4 pumps is but if it's 5 grams this is a

starting dose and one other thing can be your levels went lower then what you

started with. What happens is your brain sees the added Testosterone in your

blood and stops sending the LH and FSH messages to your Testis to make the level

of Testosterone you had before you started the gel. So when this stops you can

fall back lower then you started. Lets say you were at 350 before the gel and

the gel took you up 200 points more your brain sees this and your left with only

the 200. I tell men to retest in 2 weeks after starting on gels because of

this. You need to know if the gel is working or the dose is enough. A lot of

Dr.'s that don't know anymore then the Drug Reps tell them put men on gels and

tell them to come back in 2 months some say 4 months. This is dead wrong you

can be sicker at lower levels all that time.

A lot of men older men and even some younger men have high levels or E2 and

Dr.'s don't check for this. What happens is the Estradiol in men is made from

Testosterone and the brain can't tell the difference between them so when E2

levels are high the brain thinks it's Testosterone and slows down sending the LH

and FSH messages to there testis and they end you with low Testosterone. All

they need to do is check there E2 levels and if they are above 30 pg/ml best at

20 take Arimidex to get this down and there Testosteone levels come back up some

200 to 300 points.

It's a bit late for you because you started TRT but still check this if your

high get it down you will feel fine. If your Dr. will not check your E2 levels

or give you Arimidex tell him to call a Drug store they will tell him to sell a

lot of arimidex to men and BCBS pays for it.

Then big problem with getting E2 levels down is going down to low this is just

as bad a being to high here is what I tell men to help them not go to low.

One more thing some men with a Thyroid problem have a thicker skin and the gels

don't get through there skin and they can't get good levels. You need your

Total T levels up onto the upper 1/3 of your labs range to start if you still

don't feel right go on more gel. If you are on 10 grams and still can't get

good levels switch to shots do them your self start with 100 mgs a week. And

keep your Estradiol levels down to about 20 pg/ml and you will feel great you

will get your night time and morning wood back and in time your libido will come

back up.

==========================================================================

What I found is if you go to low taking arimidex, it's the length of time your

to low, if your too low say for 8 weeks it can take your body a longer time to

make more Estradiol. Bottom line is to know how not to go to low. Keep a log on

your dose and how you feel men going to low can't get it up taking Viagra. I

went to low when I first tried Arimidex and did not know about going to low or

how one feels to low, so I was low a good 8 weeks. I did not know I was low

until my next labs.

The best gage I have found to control your Estradiol levels is to gage your

night time and morning wood. At good levels or what I call the sweet spot you

get your night time and morning wood back so strong it will wake you up and you

can hang a coat on it.

Most men do good taking .25 mgs or 1/4 of a 1mg. pill, I use a pill cutter to

cut the small pill in half then I stand it on the cut end and use a single edge

razor to cut this in half. A good way to take arimidex is by how high your

levels are. I tested over 90 pg/ml so we tried doing .5 mgs every other day

after 8 weeks my next set of labs showed it did not move below 90, test said

>90. So we did .5 mgs. every day in about 2 weeks I got some strong night time

and morning wood back after not having them for many yrs.

I kept doing this dose and in 8 weeks my next set of labs said <20 back in the

day labs were like this they did not have to good labs we have today they could

not read lower the 20. My Dr. told me this looks to low to stop taking the

Arimidex. The one thing I noticed was my wood stopped and stopping the Arimidex

my wood came back in about 7 weeks my next test at 8 weeks was 24 pg/ml. So we

went back on the Arimidex but the Dr. told me to take .5 mgs every 3 days I was

on this dose not a week and lost wood. This is when I figured out going to low

you lose wood. And the longer your too low the longer it takes to get levels

back up.

I stopped the arimidex right away and got my wood back in 4 days. I then after

playing with the dose for a time found the best dose is .25mgs every 2 to 3

days.

So lets say your labs are less the 50 pg/ml if your take .5 mgs you can go down

so dam fast your miss the sweet spot of your wood and go to low. It's best with

lower levels 50 and under to do less Arimidex .25mgs every 2 days if later your

lose wood when it comes back go to every 3 days.

I have found estradiol is the hardest hormone to control, it goes up or down

from month to month some times I need .25mgs every 2 days other times I need

..25mgs everyday most of the time I do well on every 3 days.

So between wood and labs I do great and so do most of the men I have told this

to. I keep a log on how much I am taking and how I feel. Doing this and reading

back in my log I was able to tell when I was going to high or to low my Dr. lets

me dose my arimidex by how I feel.

Over the yrs. I have posted this story until I am blue in the face.

Co-Moderator

Phil

> From: robert_vetcher <robert_vetcher@...>

> Subject: night sweats

>

> Date: Friday, October 16, 2009, 1:53 PM

> My T levels and bio T levels are low

> and I am taking Androgel 4 pumps, every morning.  I

> sweat profusely at night and sometimes, in the morning,

> after application, my shirt becomes drenched with sweat

> before going to work, no exageration.  I stopped the

> Androgel to see what would happen and my sweats stopped, but

> my fatigue returned.  My Doctor tells me that the

> literature doesn't support this and I basically told him I

> could care less what the literature says, this is

> reality. 

>

> Any advice besides getting a new Doctor?

>

>

>

> ------------------------------------

>

>

[Guest guest]

>

> My T levels and bio T levels are low and I am taking Androgel 4 pumps, every

morning. I sweat profusely at night and sometimes, in the morning, after

application, my shirt becomes drenched with sweat before going to work, no

exageration. I stopped the Androgel to see what would happen and my sweats

stopped, but my fatigue returned. My Doctor tells me that the literature

doesn't support this and I basically told him I could care less what the

literature says, this is reality.

>

> Any advice besides getting a new Doctor?

>

Night sweats definitely come from your E2 being too high. Before I knew what was

wrong with me, I lived like that for a year or so, soaking the pillow every

night. Has your doctor ever done an ultra sensitive assay on your E2

(estradiol)? I can tell when my E2 goes too high, I start sweating,feel panicky

and anxious and my penis and testicles disappear like I've been swimming in a

cold lake. Major shrinkage!

Anyway, ask about an ultra sensitive assay on your E2,if he refuses and says

it's not necessary,look for someone else.

Jim