New Member

Posted July 20, 2004 · July 20, 2004

, welcome to the group. Glad to have you with us.

Carol

Trisha's Mom

She isn't typical, she's Trisha!

Posted July 20, 2004 · July 20, 2004

Hi ,

Don't know if you remember me or not but we corresponded via email years

ago. I have triplet boys plus one, one of the triplets with DS/ASD and all

three 28 week preemies!! I am also a single parent now too.

Don't post much here because of time constraints and also because my news is

never good. is recovering from his 15th surgery, done in April for

AAI. He had a spinal fusion and his recovery has not been too good. He's

been in a neck brace all this time, out of school (ugh) and for quite a bit

of the time, very helpless. There is still no sign that the graft has taken

and although we just had a CT scan to see if there is any new bone laying

in, the doc has taken off to England until August. has also had a

laundry list of stomach and eating problems, and I never know which things

are attributable to being a preemie, having DS or ASD. He also has a

" cyclical mood disorder " (no one is saying " bipolar " yet but I have little

doubt.) also has almost no communication skills, not potty trained

etc. His preemie brothers are doing remarkably well, one with no effects

whatsoever except allergies and asthma, and the other (the smallest at 2.1)

still needs some therapy supports in pt/ot/speech due to tone issues. All

except are considered gifted. attends a school for Autistic

children and they do have a reverse inclusion program, but because of

's intense needs, he is in a small intense classroom without

inclusion students. He has great peer models at home.

Wondering if you remember me? If you prefer, please reply to my email

ccurran1@... .

Welcome to the group.

Connie

Single mom to (10), Austin(8), (8)DS/ASD, and (8)

New member

Hello, I am , single mom to three children. My two eldest are

twins, Nicala & who are now 7.5 years old. has down

syndrome, adhd, and autism. I also have a 5.75 year old daughter

named . We live in Ontario, Canada. I am surprised at how

many members there are on this list serve, are there really that

many people out there that have children with ds and autism? I have

for so long thought that is was fairly rare. Its nice to know that

there are so many others out there that know what the expreience is

like!

The twins were born at 27 weeks gestation and spent 8 months in the

hospital between the two of them. has suffered very little

medically, his twin sister has had a multitude of medical problems

(eczema, allergies, asthma, pneumonia, lung problems, AA, etc.) but

mentally is fine.

is very low functioning, he was evaluated at around the 2

year old level. He does not communicate and is not toilet trained.

He has been for the past four years fully included in school (he has

always been the only child with a disability in his class). While I

do support inclusion I personally don't agree with it for my son but

have never had a choice in the situation as where I live the

catholic schools offer no other option. The separate system does

offer developmental classes, however in only probably one out of

every 20 schools. will be going to one of these classes next

year and I am very excited and hopeful about this change.

, mom to Nicala & ,ds/adhd/autism (age 7.5) and

" demanda " (age 5.75)

--------------------------------------------------

Checkout our homepage for information, bookmarks, and photos of

our kids. Share favorite bookmarks, ideas, and other information by

including them. Don't forget, messages are a permanent record of the

archives for our list. http://groups.yahoo.com/group/

--------------------------------------------

Posted July 20, 2004 · July 20, 2004

Hi ,

Welcome to the list and the sharpest group of parents ever.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

Posted July 21, 2004 · July 21, 2004

Hi ,

Welcome aboard.

Irma,15,DS/ASD

Re: new member

Hi ,

Welcome to the list and the sharpest group of parents ever.

Charlyne

Mom to Zeb 11 DS/OCD/ASD?

Posted July 26, 2004 · July 26, 2004

welcome laura!!! this is THE PLACE to be concerning ds and autism. we were

all for inclusion when nathan was little but since areoun 2-3rd grade he wasnt

even close to his peers any more and we and other parents with disbled

children at our school kept inputting for a special needs classroom for our

children, and finally when nathan went into 4th grade we got our separate

classroom

with a brand spankin new teacher for us to train , and i swear nathan has a

crush on her has had her for the last 4years and this is to be the last as

he has been in the 5th grade (inclusion in all specials and a few other

classroom activiities except art) for the last 3years, so next year he will be

going to the highschool but they have yet to even get a classroom let alone a

teacher. We keep reminding the principal our agreement for one more year in 5th

grade just delays but the need is still there and must be fulfilled as h e is

not the only level 3 student his age needing a special classroom. We have

never regretted the special ed placemanet nathan has gained by leaps and

bounds, even behavior wise huge differences. I will be calling the school next

month when they get back in offices to schedule a meeting to discuss

transitioning to the highschool, as i want to at least start midyear, after all

the

holidays, to wear he is going at least half a day every day by the end of the

year, so next year wont be such a change, as he has a very hard time with

newbies, and if they cant meet our requirements we may have to send him to the

nighboring town which does have a program for him we just dont want to he loves

being a wildcat,lol and most of the kids there are pretty nice some very

interested in nathan and try to get him involved etc. sorry soo long. shawna,

mom

to nathan w/ds, autism, add/hd ocd/ etc and very SOON to be an official

teenager, uuugh and nicholas 11yrs w/ GAN, add/hd, major depressive disorder,

bipolar, ocd.

Posted September 18, 2004 · September 18, 2004

welcome jennifer!! and joshua, potty training can be quite a trial itself as

many parents here will tell you. I suggest starting him on a potty schedule,

and gradually increasing the rouinte scheduled times to go so he is

scheduled trained for at least the day hours. remember lots of patience and

cant forget the rewarding potty dances, lol, we all know that one here,lol.

There are many ways to try and potty train, choose one at a time and stick

with it for awhile, and after a good few months if not working try a

different method. A few have been potty trained early many not until older

my nathan didnt start actually initaiating going himself until around 9yrs

of age, out side of the schedule and for the most part is also night time

trained, with the occasional accident. shawna.

new member

> I am a mother of a six year old child with Down syndrome. We

> adopted when he was two years old. I am having him tested to

> see if he has ASD too. I am a Speech/Language Pathologist and work

> for a school system. I recently moved to get him into a better

> educational program that would challenge him and help him achieve

> his best potential. spends half a day in the special

> education program and spends the other half of his day fully

> included in the kindergarten class. He currently receives physical

> therapy, occupational therapy and speech therapy both at school and

> privately. We are currently trying to " master " potty training.

> Would be interested in any suggestions to help potty train a 6 year

> old. He has made tremendous gains since we have adopted him. We

> have recently adopted another special needs child. has done

> great with him. He is very loving and plays well with him.

>

> I look forward to being a part of this group.

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and photos

of our kids. Share favorite bookmarks, ideas, and other information by

including them. Don't forget, messages are a permanent record of the

archives for our list. http://groups.yahoo.com/group/

> --------------------------------------------

>

Posted January 2, 2006 · January 2, 2006

I am new to this whole thing, my son is 20 soon to be 21, pardon my ignorance

but what is ABA? I know nothing about this. Thanks

Re: New member

Hi, welcome aboard. At any age is a good start for ABA. I'm a high

fan of ABA. My son started at an older age with ABA and its one of

the best intervention for him.

In order for school to implement it into the classroom, you would

like a CERTIFIED ABA therapist who contracts with the school district

to do an eval and work with your child with a plan to work with the

staff too. Please do have the Neuro-psychologist write up a

recommendation letter and it must include an eval and treatment, well

worded to an educational level for the school district. If impossible

in the classroom, then something worked around the school hours at an

ABA center even its just for 1 hour a day. The school district my son

attends will provide transportation for it which hopefully something

could be worked around something like this. If the ABA center is

willing to work with the school district or vice versa with the

school district contracting with a certified ABA Therapist or at an

ABA center with private sessions which includes parent and teacher

involvement. If great results are shown teacher and staff see

tremendous progress, this would be the beginning of implementing it

into the classroom.

My son does not have ABA done at school, he receives it privately and

I do remove him early from school for it with no problem. I have had

friends kids receiving the combo of ABA with RDI and this too I have

seen great results.

Irma,17,DS/ASD

>

> I'm new to the listserv and am looking forward to learning from

others

> who share our journey. We have a wonderful 8 1/2 year old daughter

> with DS who was recently diagnosed as also having PDD. We are

having

> her MFE (multi-factorial evaluation) done a little early to

determine

> if additional goals (mostly behavioral) need to be added to her

IEP.

> Her Neuro-psychologists has recommended that we have an ABA consult

to

> determine if it will be of benefit. She also has recommended the

> Relationship Development Intervention (RDI) program. We would like

to

> know if anyone has tried to begin an ABA program on an older child

and

> if so, how was it implemented. Our school district does not have

any

> ABA trained teachers/therapist on staff so we don't know if it will

be

> possible to get this added to her IEP. There are a few programs in

our

> community that offer the ABA-based curriculum that are not part of

the

> school systems but most are for younger children. We want to do

what

> is best for our daughter and are trying to weigh the risk/benefit

of an

> ABA-based program vs. keeping her in her current environment (multi-

> handicapped special ed classroom) with some additional IEP goals to

> address the behaviors that interfere with learning. The RDI

program

> also looks promising but is somewhat costly and time-consuming. We

> look forward to your responses on any of these issues.

>

--------------------------------------------------

Checkout our homepage for information, bookmarks, and photos of

our kids. Share favorite bookmarks, ideas, and other information by including

them. Don't forget, messages are a permanent record of the archives for our

list. http://groups.yahoo.com/group/

--------------------------------------------

Posted January 8, 2006 · January 8, 2006

In a message dated 1/8/2006 11:57:38 A.M. Pacific Standard Time,

jacksonsmom99@... writes:

is very social with adults and loves men - he hugs every man he

sees, doesn't matter if he knows them or not!

Adam is the same way,, he loves men, he is drawn to older ones. He will have

a fit if the man he seeks out does not carry him... I wonder why? I am happy

that for respite we were lucky to find a male nurse.

michelle

Posted January 8, 2006 · January 8, 2006

Wow, My son is drawn to males too...has never called me mama, but says dada

all the time, and will sit in the lap of whatever man happens to be there at

the time. Ive often wondered why too.

Posted January 8, 2006 · January 8, 2006

Welcome , You've come to the right place. I was feeling those same

feelings about a year and a half ago and found my way here like a lost puppy!

The women on this list have taught me soooooo much and helped me better

understand what 's behaviors are communicating. is 6 1/2 and I

noticed Autistic like behaviors around age 3 or so but didn't really come to

grips with it til he was around 5.

does alot of the things Nick does too. You sound like a very smart

and involved Mom who's doing a great job with her kids. Hang in there, some

days are worse than others. This list is here to listen, answer questions, and

help you through the tough times. Don't worry too much about what others think

of what you are doing, you have to do what you have to do to keep Nick safe.

Where do you live? I'm in Southeastern Virginia.

Take care,

Jayne

Izzo wrote:

Hi. I'm new here. I think my 6yo son might have ASD. I guess I'm pretty sure

that he does, but I am just really afraid and somewhat upset and overwhelmed to

get yet another diagnosis. He is due for a triennial eval, so we will probably

be getting diagnosed soon. I don't want the diagnosis as I am already assuming

he does and using strategies to compensate, but I think it will help explain to

other people his behavior, help medical professionals understand, and help us in

dealing with the school.

We are really in touch with our local DS group and a lot of kids his age and I

have noticed for quite some time that he is very different than our other

friends with DS. He also has cleft lip and palate and has been diagnosed as

apraxic. We've known about sensory integration issues since he was little. I am

also wondering about auditory processing, but he can't formally be tested for

that until he has a certain amount of language. I guess I'm busy figuring out

his individual diagnoses, and actually all of them together as a whole would put

him on the AS. He has a bone conduction hearing aid for conductive loss after 5

sets of tubes and now permanent holes. We are in the process of getting a

communication device and learning cued speech. We homeschool and get private

mainstream-type services. We also use the neurodevelopmental approach.

Anyway, the post below really got to me. I just joined yesterday and it was

the first time I've heard of anyone else doing this. My son would sit and

" twirl " any kind of cloth item all day long if he had his way. I sat down

yesterday and actually listed all the questionable behaviors he did and I was

actually surprised at how many I listed.

Here they are: Twirls and licks fabric, noses up to the TV, lies on the ground

and runs trucks back and forth staring at the wheels, distracted and

nonproductive in new environment, hot/cold issues which are resolving,

hyposensitive to pain, hypersensitive to tickling, trigeminal stim, cutting

hair, palms of hands. Throwing hearing aid off in a fit if there is background

noise, no fear, inconsistency following directions, inconsistent eye contact,

little spontaneous signing or word approximation but does imitate well, follows

visual directions much better than verbal. Toilet training has been difficult as

he is great with the routine, but doesn't initiate. Self " talk " with throaty

babbling, self " talk " with his unintelligible speech (babbling). He loves to

read books which is great, but I've been watching him closely and sometimes he

just prefers to flip through the pages which could be stim. When we're in a

noisy and/or visually distracting environment (a lot of people, a new

environment, bowling, etc.) he doesn't interact with any one person, but prefers

to run around the room in circles the entire time. When in these environments he

used to shut right down, but now he runs around in circles around everyone, I

think stimming off the sensory overload. He used to love his hands, but doesn't

do that any more. He does chew on his fingers, but it may be when he has fluid

in his ears. He was very oral for a long time, but is getting better. He has his

favorite foods, which are anything carb. He hates mashed potato or hard boiled

eggs for the texture I think.

I've been questioning it for a while, but he is so friendly and sweet. He

loves giving hugs, will say and sign " hi " " bye " and " I love you " all the time,

even to new people. The thing is, though, that when we are playing with his

friends he does prefer to be alone and doesn't really interact with them. He

loves babies though. He does great 1:1, but when not 1:1 or tired will stim, and

when tired will be mad if you take his stim item away.

Anyway, I don't know. I've had people tell me that they don't think he has it

and people tell me to watch it. I have read a lot about autism and do try to

incorporate educational strategies into our program. Actually, many strategies

that help with autism also help for DS anyway, so that is good.

I'm kind of overwhelmed, like I said. I feel like I really need some support

right now with this, but there isn't much locally. I feel like we don't even fit

in too much with our DS group anymore because his behavior is so different. It's

difficult to go to homeschool events (he has a twin brother with no medical or

developmental issues) or any events with him because he doesn't follow

directions well, runs wild if we let him, wanders, gets into dangerous

situations, and throws a sit-down or tantrum if he doesn't want to do something

or doesn't understand. He's getting bigger and it's getting more and more

difficult to deal with him outside the home (as I'm sitting here icing my lower

back from taking them sledding yesterday).

This past summer we moved my office to give him his own room, took out most

toys in it (he dumps and stims in the pile of toys) and reversed the door locks.

I hated to do it and some of our friends and family think we're horrible for

doing it, but I've gotten up in the night to find him wandering around the house

or sleeping on the floor somewhere or in dangerous situations. I worry if there

were a fire or emergency during the night we wouldn't know where he was. During

the day he is fine in the house because it's Nick-proofed and the little toys

with a million pieces are in his brothers room (most of his toys are in the

family room so he can play appropriately and supervised. (Will I ever be able to

have any nice knick knacks ever again?). Our house is very minimalistically

decorated at this time. We did get a fence for the yard for safety reasons

through medicaid, which was a lifesaver, because it was getting to the point

that it was getting so difficult to take him outside even

in the backyard any more.

Thanks for accepting me here and letting me vent. I would welcome any advice,

comments, etc.

" absull@... " wrote:

I have 5 children who have Down syndrome. The oldest Andy, is 25. He had an AV

canal repair at 14 mo and after that he had many signs of ASD. Flapping,lining

up toys(not " playing " with them in a typical manner) Being very pset at changes

in schedule, or being asked to do something different. Not really mixing with

kids. The good news is that he is still very cuddly with us..especially if he

initiates it. He will usually hug back even if we start. Our daughter Kate is

just 14 and JUST getting an ASD diagnosis. I have suspected for a long time her

being on this spectrum. She is in 7th grade and I think in some ways it

actually helps her! She reads music and plays the clarinet in band. She is very

visual. She dances and it helps her to focus and remember the steps. If left

unattended she would sit in her room and " twirl " a piece of cloth all day....and

not come down to eat or drink. Sometimes she is angry when we interupt her

twirling.She is also very affectionate on her own

terms. The other 3 kids are " typical " kids who have Down syndrome...if there is

such a thing.Brigid

Posted January 8, 2006 · January 8, 2006

Yes, that makes sense to me. is very social with adults and loves men -

he hugs every man he sees, doesn't matter if he knows them or not! He's

friendly with other children but doesn't really play appropriately with them.

If someone in our house yells, even just so someone can hear you because you

are in another room, cries. I think it's too loud and overbearing for

him. The worst is if I'm in the bathroom with him and have to yell to someone,

he freaks.

If I yell at him in frustration or anger, which I admit happens sometimes even

though I wish it wouldn't, he has no reaction - if anything he may giggle and

laugh innapropriately. That's the autism rearing it's ugly head.

Hope that helps a little.

Take care,

jayne

Izzo wrote:

I can't get this off of my mind this morning and I have a question maybe you

could answer, or rather a theory I'd appreciate input on.

The only reason I have been shooing off the diagnosis of autism and others

have as well is that is very affectionate. He is. I'm thinking, though,

that affection is different from social/emotional. On one hand he is very

affectionate. On the other he doesn't socialize well with other kids. This is

iffy, as this could be developmental as well. BUT...if you yell at him or scare

him he has little reaction whereas a typically developing kid would cry or have

some kind of large emotional reaction. Does this make sense?

Posted January 8, 2006 · January 8, 2006

EXACTLY!

's current favorite game is when I say " time to get up " or something

similar, he'll say " NO " and then you say " yes " and he's says " no " laughs, and

this goes on and on and on and on and on.......

Real cute but tiring and makes us run even later than we usually are in the

morning.

Also, responds just like Trisha, in the examples you've given.

Thanks,

Jayne

Csvillars@... wrote:

In a message dated 1/8/2006 12:00:21 P.M. Eastern Standard Time,

cabevizzo@... writes:

The only reason I have been shooing off the diagnosis of autism and others

have as well is that is very affectionate

Again, just my opinion and I'm not a professional so take it with a grain of

salt. But in my opinion being affectionate and being social is two

different skills. Trisha is very loving on me and sometimes her brother or

someone

she really cares a lot for, but then it's on her terms most of the time.

However, she does not socialize with her peers, she doesn't know how to make a

friend, she doesn't know how to start a conversation, she doesn't know how to

play games with her peers. She doesn't ask about any of her class mates

unless she sees a picture of them and then she just names them when she can.

She

also doesn't know when enough is enough. For instance she likes me to give

her a kiss and then she says yuck and I say no yuck and she will do this over

and over even when I say finish. I have to actually walk away before she

realizes that we aren't playing any more, that is one of many, many samples.

:-)

Carol

Trishasmom

She isn't typical, She's Trisha!

If you always do what you always did, you'll always get what you've always

gotten.

Posted January 8, 2006 · January 8, 2006

made himself very well known at afterschool pickup time because he runs

up to every man and says " HI! " Of course his height has him leaning into them

at their most private area - you can imagine the reactions. 99.9% are very

sweet to him.

Hey, you're lucky you have respite and that it's a man.

Take care,

Jayne

Mitch0519@... wrote:

In a message dated 1/8/2006 11:57:38 A.M. Pacific Standard Time,

jacksonsmom99@... writes:

is very social with adults and loves men - he hugs every man he

sees, doesn't matter if he knows them or not!

Adam is the same way,, he loves men, he is drawn to older ones. He will have

a fit if the man he seeks out does not carry him... I wonder why? I am happy

that for respite we were lucky to find a male nurse.

michelle

Posted January 9, 2006 · January 9, 2006

, it's amazing how much your son sounds like my almost-7-yr

old. I'd say 90% of your description could've been aimed at

:-). And it was actually at his trienniel review last year

that the elephant in the room was finally addressed. Looking back, I

kind of have to laugh at how gently and carefully the school psych.

danced around the " A " word. When he finally got around to listing

Gabe's " austistic-like behaviors " , I felt like saying, " OK, yes! We

all see it now. What are we going to *do* about it?! " It was such a

relief to have it brought out into the open. And then I cried

all the way home ;-).

I have to run and be Taxi Mom again, so I can't write much now, but I

did want to say hello and welcome you to the group. I'm a faithful

lurker but infrequent poster (I should been given more hours to my day

along with that second diagnosis), and unbeknownst to them, this group

has been my lifeline more than once. I hope you find the support and

info you need, too.

Joni and kids in CA, incl. , 7 yrs on Jan. 20!

Posted January 9, 2006 · January 9, 2006

Hello and welcome!! I agree you do sound like you are such a loving

and caring mom!!! It will all be okay cause like you said you are

already doing sooo much for him; ds or autism,I can tell you have

done so much research! I wasnt as on top of things at first even

though I had a diagnosis! I home school most of the time, you

will have to share with me some of your ideas, cause he is only in

school for 1 hr. we are registered as home school and he does the

(very) short day. I just felt this was the way to go for now.

Also, your son probably feels good in his room the way it is! an ot

told me to keep s room very calm and not very stimulating and

I think this is a good thing! I understand you feeling like he

seemed so different than the kids with ds. I have some very close

friends that we were around alot when was beginning this

journey at 3yrs. I felt that way too but it seemed it happened very

slow. I know that I have stayed close with these friends but our

kids are very different.

this group is such a blessing to me, I am glad you found it and hope

it will help you as it has me! take care!! Dawn, s mom 8yrs.

P.S. how is his brother handling all this? I am sure you all are

there for them both, I can tell you have tackled all the issues,

hang in there.

> I have 5 children who have Down syndrome. The oldest Andy, is

25. He had an AV canal repair at 14 mo and after that he had many

signs of ASD. Flapping,lining up toys(not " playing " with them in a

typical manner) Being very pset at changes in schedule, or being

asked to do something different. Not really mixing with kids. The

good news is that he is still very cuddly with us..especially if he

initiates it. He will usually hug back even if we start. Our

daughter Kate is just 14 and JUST getting an ASD diagnosis. I have

suspected for a long time her being on this spectrum. She is in 7th

grade and I think in some ways it actually helps her! She reads

music and plays the clarinet in band. She is very visual. She dances

and it helps her to focus and remember the steps. If left

unattended she would sit in her room and " twirl " a piece of cloth

all day....and not come down to eat or drink. Sometimes she is angry

when we interupt her twirling.She is also very affectionate on her

own

> terms. The other 3 kids are " typical " kids who have Down

syndrome...if there is such a thing.Brigid

>

Posted January 10, 2006 · January 10, 2006

In a message dated 1/10/2006 11:10:03 A.M. Eastern Standard Time,

researchmail@... writes:

Olivia yells the same thing with emphasis. For example, after my, " Toby, get

your stuff and get in the car. " Olivia adds " TOBY, GET IN THE CAR !!! "

ROTFLOL FLorence. I love that!!!! Maddie, at 12, still cries every time

the dog barks or we yell up the stairs for one of the other kids.

Donna

Posted January 10, 2006 · January 10, 2006

, the fact that my child is affectionate is why most of her

professionals said , " No way " to austism. This kept us from services and supports

(you all) for a very long time.

Jane, instead of crying when someone yells for someone in the house or outside,

Olivia yells the same thing with emphasis. For example, after my, " Toby, get

your stuff and get in the car. " Olivia adds " TOBY, GET IN THE CAR !!! " This

is new and it is though she is asserting herself. She is trainning me to speak

with an " overly lovely " voice. It is hard to keep the sacasim out, but the other

kids think it is funny that I am learning my lesson.

-------------- Original message --------------

Yes, that makes sense to me. is very social with adults and loves men -

he hugs every man he sees, doesn't matter if he knows them or not! He's

friendly with other children but doesn't really play appropriately with them.

If someone in our house yells, even just so someone can hear you because you

are in another room, cries. I think it's too loud and overbearing for

him. The worst is if I'm in the bathroom with him and have to yell to someone,

he freaks.

If I yell at him in frustration or anger, which I admit happens sometimes even

though I wish it wouldn't, he has no reaction - if anything he may giggle and

laugh innapropriately. That's the autism rearing it's ugly head.

Hope that helps a little.

Take care,

jayne

Izzo wrote:

I can't get this off of my mind this morning and I have a question maybe you

could answer, or rather a theory I'd appreciate input on.

The only reason I have been shooing off the diagnosis of autism and others

have as well is that is very affectionate. He is. I'm thinking, though,

that affection is different from social/emotional. On one hand he is very

affectionate. On the other he doesn't socialize well with other kids. This is

iffy, as this could be developmental as well. BUT...if you yell at him or scare

him he has little reaction whereas a typically developing kid would cry or have

some kind of large emotional reaction. Does this make sense?

Posted January 10, 2006 · January 10, 2006

Tori can yell and scream like the best of them. However, if my hubby or I

raise my voice, or if it is loud (kids playing) in the room, she will cover

her ears.

Liz

Re: New member

> , the fact that my child is affectionate is why most of her

> professionals said , " No way " to austism. This kept us from services and

> supports (you all) for a very long time.

>

> Jane, instead of crying when someone yells for someone in the house or

> outside, Olivia yells the same thing with emphasis. For example, after my,

> " Toby, get your stuff and get in the car. " Olivia adds " TOBY, GET IN THE

> CAR !!! " This is new and it is though she is asserting herself. She is

> trainning me to speak with an " overly lovely " voice. It is hard to keep

> the sacasim out, but the other kids think it is funny that I am learning

> my lesson.

>

> -------------- Original message --------------

>

> Yes, that makes sense to me. is very social with adults and loves

> men - he hugs every man he sees, doesn't matter if he knows them or not!

> He's friendly with other children but doesn't really play appropriately

> with them.

> If someone in our house yells, even just so someone can hear you because

> you are in another room, cries. I think it's too loud and

> overbearing for him. The worst is if I'm in the bathroom with him and

> have to yell to someone, he freaks.

> If I yell at him in frustration or anger, which I admit happens sometimes

> even though I wish it wouldn't, he has no reaction - if anything he may

> giggle and laugh innapropriately. That's the autism rearing it's ugly

> head.

>

> Hope that helps a little.

> Take care,

> jayne

>

> Izzo wrote:

> I can't get this off of my mind this morning and I have a question maybe

> you could answer, or rather a theory I'd appreciate input on.

>

> The only reason I have been shooing off the diagnosis of autism and

> others have as well is that is very affectionate. He is. I'm

> thinking, though, that affection is different from social/emotional. On

> one hand he is very affectionate. On the other he doesn't socialize well

> with other kids. This is iffy, as this could be developmental as well.

> BUT...if you yell at him or scare him he has little reaction whereas a

> typically developing kid would cry or have some kind of large emotional

> reaction. Does this make sense?

>

Posted January 10, 2006 · January 10, 2006

Oh Miss Olivia is too funny. There's always a chuckle to be found somewhere

with these guys.

Which is better, them screaming because you had to raise your voice or them

correcting you and yelling louder? I don't know...LOL!

Of course she's showing her true girl-ness by being a mother hen too.

Take care,

Jayne

researchmail@... wrote:

Jane, instead of crying when someone yells for someone in the house or outside,

Olivia yells the same thing with emphasis. For example, after my, " Toby, get

your stuff and get in the car. " Olivia adds " TOBY, GET IN THE CAR !!! " This

is new and it is though she is asserting herself. She is trainning me to speak

with an " overly lovely " voice. It is hard to keep the sacasim out, but the other

kids think it is funny that I am learning my lesson.

---------------------------------

Yahoo! Photos

Ring in the New Year with Photo Calendars. Add photos, events, holidays,

whatever.

Posted January 11, 2006 · January 11, 2006

Hi Jill,

Welcome to the group. I think you will get some great ideas and suggestions to

try. I have a chow hound so food issues are not my forte. Did you try dstanding

up to toilet train. At 6 he could stand, you could throw cheerios in the bowl

and he could learn to aim at them, flushing could be a good reward.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

Jill Presson wrote:

I am a new member to the list serve. My son is 6 years old and has

been diagnosed with DS-ASD. He will not chew food of any kind. He eats

primarily smashed bananas, smashed pasta with red sauce and oatmeal.

He will use utensils at school but not at home. Does any one have any

suggestions? Also does anyone have any suggestions on toilet training?

He is totally dry in the morningbut he goes into full vetical

extension if I try to sit him on the toilet. If I am able to get him

on it, he will not go. However, he is fascinated with repeatedly

flushing it.

--------------------------------------------------

Checkout our homepage for information, bookmarks, and photos of our

kids. Share favorite bookmarks, ideas, and other information by including them.

Don't forget, messages are a permanent record of the archives for our list.

http://groups.yahoo.com/group/

--------------------------------------------

Posted January 12, 2006 · January 12, 2006

Hi Jill, Welcome, I think most of our kids have eating

issues.My son is 5 and he does not eat at all but will

take a few bites of babyfood at school.I am pushing

for oral motor therapy.I know its sensory

dysfunction.Mic survives on pediasure in the bottle.As

far as potty training I think your doing great! Mic

has no clue about the potty although he comes to me to

change his diaper after its wet.We will get there

sooner or later.Later I imagine.You will learn alot

here and find a great deal of support.Laurie

Posted January 12, 2006 · January 12, 2006

Hi Jill,

My son is a teenager and he is on a diet so I too can't help with the eating

problem. I can say though that even Gene is fussy about what he eats...he just

eats too much of what he likes and I need to hide alot of it!

Re: toilet training. Gene never has stood up to urinate. He has always sat.

The way we toilet trained him when he was about 3 or 4 was to have him wear a

little pad in his pants that was connected to a beeper that was pinned to his

waistband. I think his problem was just connecting that urinating meant get to a

toilet. Once it would go off, I would rush him to the toilet. After a while, he

would stop going immediately when it beeped and wait till he got to the toilet

to finish. I don't think this is an answer for all kids...maybe just for kids

who don't connect urinating with the toilet...but for us it worked.

Lauri