Guest guest Posted September 29, 2008 Report Share Posted September 29, 2008 I am so sorry, I posted this to the wrong goup and do not know how to remove it. Meinda > > Hi, 6 yr old daughter almost recovered fromm PDD-NOS whom we have > been chelating since July 2006. She has had 49 rounds of DMPS and 44 > rounds of ALA along with antivirals, antibacterials and antifungals. > We stopped the DMPS last June and started chelating using 8mg of ALA > alone, three days on and four days off. > > During some rounds she is complaining of not feeling well all over > and points to an area on her forehead that hurts. On Monday after we > end the round she looses her abilities and gets frusterated. > > When we started ALA we used 5mg compounded. Then we switched to > dividing the Kirkman 25mg capsules by three so she was getting > 8.33mg. Recently, we switched back to 8mg compounded thinking that > the dose would be more precise and she might feel better. Some rounds > the side effects seem minimal but recently it seems more noticeable > that she is not feeling well on round. Is some general unwellness > feeling to be expected? If so, how much? > > My first thought is to drop the amount of ALA given. It surprises me > that we would need to drop the amount given after 44 rounds of ALA > but these side effects are happening only on round and Mondays. > Getting her up every three hours during the night does not help with > the tiredness issue either. I have done a few rounds with only > getting her up every four hours in the middle of the night but I feel > better sticking with the three hour recommendation. Should we drop > the amount of ALA? > > Any advice as to how to safely share this with her teacher? Public > thought we were nuts because we wanted them to give her enzymes. I > have shared with the teacher Jacquelyn McCandless's book, Children > with Starving Brains and have informed the teacher that she is on a > timed medicine only on the weekend and Mondays she may not be feeling > as well. Today she had a meltdown after not being able to do her work > and I am feeling mommy guilt. She is a child that wants to please and > is in a typical first grade classroom in a private school. > > Thanks for being there. Melinda > Quote Link to comment Share on other sites More sharing options...
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