Guest guest Posted June 21, 2009 Report Share Posted June 21, 2009 Hi all, Boy it's sure hot here in the Tampa Bay area, but hey that's Florida. I just wanted to let everyone know that I enjoy reading all the posts and suggestions for what works. I never knew anything or ever heard about Charcot Marie Tooth Disease until my daughter when she was 16 years old had a fall at work and dislocated her knee. She is now 29. Well having to take her to a workers comp doctor and him not doing to much for her knee staying in place, I was frustrated and said to him on the fourth visit, what is it with her knee??? Is it the way she walks, or her funny looking feet, or my walk, does the landing of her feet on the floor have something to do with her knee problem? So then he spent more time with her feet, walk, and even watched me walk. He said to me in his Indian voice I want her tested for CMT, and I said what on earth is that???? So on we went to a pain specialist to have the nerve conduction test done on her, and YEP confirmed Charcot Marie Tooth Disease. So now what, boy did that answer alot of mine and all my sisters questions about our physical limitations. And then really looking and watching my mother's physical limitions, boy it all made sense. So it is a genetic hand me down and I am soooooooooooo surprised that going through life, two pregnancies, two c-sections, doctor's comments on my walk, BUT none of them ever looked into it. WHY, do they not know? Anyhow I found out about AFOs from this site and I have left foot drop. I have tried four different types and have settled down to the plastic for certain shoes and the carbon fiber for certain shoes. I wear only one. Of course it does not help with balance and wearing one for 3 years has defenitley altered my gait. Even walking around the house without it my left foot is really floppy. I use a cane now too. I go to a gym to help with all over body exercises and I can feel a big difference in my leg muscles. I know nothing will cure the drop foot and I have learned to accept it. More later, I'll keep reading all this, it is amazing how mny people have this genetic thing like I do. Thanks to you all. Elaine Quote Link to comment Share on other sites More sharing options...
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