Guest guest Posted August 6, 2009 Report Share Posted August 6, 2009 I hope no one in the group finds this matter offensive but I get zero help from my doctor or local health service regarding my CMT. I seek advice from fellow sufferers who may have some experience on the matter. I am a 58 year old male, average weight & height in general good health. I was accidently diagnosed with Familia Muscular Atrophy (Now called CMT 1)when I was in my early 20's. My only symptoms prior to formal diagnosis was poor balance, high instep,week grip. Now that I am in my late 50's problems with muscle weakness, inability to do up buttons etc, pronounced gait are m,ore obvious and frustrating but largely ignored by me! The one problem I do have which concerns me is impotence / erectile dysfunction. I have had all the normal test for testerone deficiency etc all normal. I have noticed that I do not appear to respond to normal stimulation of the genital area. I am convinced it is related to my CMT but my physician says CMT only effects hands & feet & spine. Has anyone else in the group encountered similar problems? Did you develope a coping strategy? Did anything help? I would appreciate advice from anyone with direct experience of living with CMT. Quote Link to comment Share on other sites More sharing options...
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