Warpath/Soapbox/Change --Re: WARNING..on the warpath

[Guest guest]

Hey group,

Good thread!!

I very much want to reactivate the activist/lobbyist I once was. This dang

sickness has taken more of my brain away than I like to think. I have mostly

gotten my house cleaned up, and might even be giving Carl a call in the next day

or so, now that I have his book.

I know some of us are just too sick to have any extra brain or body energy to

write letters. I have felt that way for oh too long.

I have a unique background that could offer our group some advocacy skills,

if/when I am a little better. In my senior year of high school, I did my

science project AT the CDC with my aunt who worked there. Around the same time,

I was also a member of a PAC (Political Action Committee) for Sierra Club and

lobbied for them a little. Later, I attended a moldy college, and began

teaching in moldy schools. I felt my cognitive skills slipping, and always

thought I was as smart as the smart kids, but always fell a little under the

mark. I even taught vocal sight-reading to high school and middle school

students, and had pretty good " tuning " inside my head for listening to and

making in-tune sounds.

Almost twenty years of marriage, five children, history geography and music

teaching career behind me, I find myself with Double Trouble Mold Susceptible

Genes (a la Shoemaker), some pretty crumby lab numbers to go with, and clearing

up a mold problem in my home. Some days, I can't even get through correctly

preparing a new recipe.

My manifesto for change I wrote to some " moldy " friends included:

My goals for the next five years are:

1. Change building codes to prevent mold growth problems in A/C vents

2. Change ICD-9 codes to include mold illness as an umbrella diagnosis

3. Create a SHORT book for doctors - a technical and medical manual, NOT full

of anecdotal or self-righteous content.

4. Create a SHORT book for patients - DIY get better stuff - Allopathic,

alternative, cutting edge, au naturel, Trad. Chinese Med, etc.

5. Create easy to understand methods for HVAC guys to be the first line of

defense in looking for problems (Carl is doing this stuff already I think).

6. Change Quest and Labcorp codes to create a " Shoemaker Screen " and a

" Shoemaker Panel "

7. To personally be a patient advocate, and meet with corporate

representatives to demonstrate how much money they could save in cutting to the

chase of a quick diagnosis of any of the diagnoses under the EI umbrella. I

want them to SEE the face of the patient on their level in their office.

7. Explore LDN as an immune therapy for mold injured patients, including

children.

8. Continue to pressure the government - all branches - with education and

advocacy.

Having gone to my doctor, and with us progressing along on the Shoemaker

protocol, I know the ground was broken by others before me. Otherwise, my

current treatment would not be possible so close to home.

I really want to do something, but right now, I am researching and advocating

for my own small piece of wellness, however big that may be. If for now, I can

help a couple of friends along the way, so much the better.

Take care,

Jolly ()

>

> It's building relationships and learning the ropes. Without that we

> are just flailing away. Good points, Angel.

>

> Carl Grimes

> Healthy Habitats LLC

>

> -----

> Barb:

>

> Did you READ my note? If you are politically active then you KNOW that

> unless support is there, no one who will spend time to draft one etc.

>

> I am also VERY politically active and can claim to be personal friends

> with some in DC. So I know the 'games' shall we say work. Writing to a

> congressional rep gets a 'generic " thanks for your opinion.

>

> Why do I want a copy? Simple, I need letters to help get Harry to want to

> address adding this to the health care bill now that it's in the hands of

> the Senate.

>

> Have you gotten this far to have someone consdering getting anything

> addressed? Apparently not since this is the first time you are mentioning

> that you are 'active in politics'.

>

> You are semi-correct in reference to their party/area. A bill amendment

> starts in an area and has to gain support to move forward. My friend was

> one of the first co-sponsors of the SNIFF bill years ago in the House and

> it died in sub-committee becasue people did nto contact their local reps

> to garner support for it.

>

> I am also the big " D " but I know that there are the " R " who want to 'save'

> $ etc., and they have to be catered to while getting the agenda to be

> viable/addressed.

>

> So, if you are under the 'conviction' that it is only straight party that is

> your perogative, but, the 'wording' is what gets things done as you very

> well know.

>

> " Nuff said "

>

> Angel

>

> [] Re: WARNING..on the warpath

>

> To Couldcareless,

>

> You shouldn't assume people are not writing their Congress people

> because you didn't get a copy. Why are you asking for a copy?

>

>

>

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