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met with the school today

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Hi everyone,

I met with the principle and head of social services today. I brought a page I

typed up with basic CMT info and links to more info from CMTA and NIH. That way

they can educate themselves a little more about what CMT is and how it may

effect my son.

They were very open to any accommodations I asked for and are willing to write

up a 504 plan. I really have limited requests at this point but will need to

revise next year with new school and stair issues. She asked I bring the dr's

report and diagnosis and a list of

accommodations I would like such as books for home, no long term standing,

scribe or keyboard for note taking, exemption from the mile run etc.

I felt it went well and will see what the future holds and s condition

changes. I want to thank everyone on the group that emailed me and gave me

advice and suggestions. I didn't even know what a 504 was a couple weeks ago.

With out you guys I would have been much less prepared in asking for what my son

will need to succeed in school with the least amount of difficulty.

Lori

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