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Can't help you out with the post but I can relate to your frustration regarding

lack of help of your local PCT or GP. Unfortunately it seems to be that, in the

UK at least, CMT isn't that common compared to other conditions and knowledge of

all the complications is limited, not least because all the variations in

symptoms and types.  

 

May I suggest downloading any information that you manage to aquire here but

also when you go to your GP plan on what you're going to say and outline what

you want from them. My own experiences are that CMT may be the root cause but

treatment is likely to be from a different department.

 

Apologies if I'm teaching you to suck eggs!

 

Regards

 

Fiona

Glasgow, Strathclyde

 

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