Guest guest Posted April 27, 2009 Report Share Posted April 27, 2009 Talking a lot about how the environment affects the progression of CMT, I think that we should take trips more often to relax and enjoy life with whatever disabilities or health problem we might be struggling with. We only live once. If you are going to book travel such as hotel, flight, car rentals, vacations, condos, activities, etc. you can save money by booking it through this webiste www.shalomtravel.rovia.com It is just a suggestion. I think that anyone would like to save money on a vacation that you plan to take in the future. I will take a trip to Cozumel, Mexico for $40 dlls. I think that is cheap travel because I need to get away of stress from work and of the hospital stress I been getting lately with so many CMT tests that my husband, son and I have been getting. I hope this advice helps in some way. Anita ________________________________ From: <agraham2k@...> Sent: Saturday, April 25, 2009 2:01:54 PM Subject: Re: Your Environment and CMT , If that's what you have experienced, that's wonderful. Continue doing what you are doing! My experience has been very different from yours. I'm no longer able to work due to the pain & fatigue of this disease. I have no detectible responses in any of my peripheral nerves and I'm as weak as 'a 90 years old', I'm told by my doctors. Yet I eat well, take supplements, have minimal stress, and regularly move in the pool for exercise. I find that doing these things only makes a minor difference in how I feel compared to the toll the disease is taking. I do feel better emotionally, but the reality is that I'm still weak and my muscles are continuing to atrophy. The story is the same for the other members of my family who have this disease. They do an even better job at exercise and nutrition than I, yet every year, despite their efforts, they too lose significant muscle mass. CMT does affect us all differently. In my family, for example, I have severe pain and the others have no pain. I'm also much weaker than they are and had to stop working much earlier than they did, but we are all the same in that we are all progressively deteriorating. My family is a positive bunch. We keep our hopes high, continuing with our best efforts to stay strong. And, when we get together, we share the efforts we are all making to stave off this disease, but behind the smiles, we all know there is nothing we can really do about it. Not until there is a cure anyway. To imply otherwise is to place fault and impose guilt on those who don't deserve it. If only I had more control over the disease. That would be great! But I'm certainly not going to stop trying. And I appreciate hearing what works for you. Quote Link to comment Share on other sites More sharing options...
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