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Hi ,

Welcome to the group. This is an amazing group of parents that have a wealth of

information available to share with you at a moments notice. They have been my

saving grace and that extra push I needed sometimes since we received the dual

diagnosis for our son this past November. is 6 and will be in his

sophmore year of kindergarten this fall ( that's my fancy way of saying he's

repeating it!) Without the ladies on this list, I think I'd still be turning

circles wondering where to start. I have so much more I want to do to make

things easier for but I've learned to prioritize and take baby steps or

I'll make myself crazy (or crazier than I am already).

Anyways welcome to the group -

Take care,

Jayne (living in Virginia) married to (USAF)

Mom to (syrinx on T8-T10 vertabrae - we head to the neurosurgeon monday for

some answers hopefully- 13 and becoming a full blown teenager...), Emma ( severe

peanut allergy, 8 and adorable), and ( Ds/PDD-NOS and king of the

vcr/dvd player)

Avena wrote:

Hi, My name is Avena and my husband's name is . We are the proud

parents of two beautiful children with DS. You can see their pictures at our

support groups website www.sharingds.org . just turned 11 and besides

having DS she has just been diagnosed with ADHD,depression and anxiety. Isaiah

is almost 9 and along with the DS, he's just beem diagnosed with mild autism.

I " ve kind of suspected something else was going on with him for a while, but

everything I was seeing was " blamed " on DS. This past year I worked in the self

contained class at our school and began to see that the things that were

different about Isaiah were commom in the kids with autism. When Isaiah's

respite provider mentioned to me that she puts him in the group with the other

kids with autism, I knew I wasn't they only one seeing the difference. After 6

months of waiting to see the developmental pediatrician, we finally got some

answers. Only to be left with more questions.

I asked some question on the DS list, but got no response except for one from

(Maddie's mom) pointing me in this direction. Thank you! I'm very happy to be

a part of this group, and hope to learn and also contribute whenever possible.

Avena

---------------------------------

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Guest guest

so glad Donna, Maddies mom, sent you in this direction, I know you

will realize as you read, how much in common we all have. I think it

is really great that can voice some of her feelings. It

sounds as if you, as her parents, are giving her all the support and

help you can and also for your son. my son is 8yrs old with autism

and ds. these people are wonderful, welcome, Dawn

> Hi, My name is Avena and my husband's name is . We

are the proud parents of two beautiful children with DS. You can

see their pictures at our support groups website

www.sharingds.org . just turned 11 and besides having DS

she has just been diagnosed with ADHD,depression and anxiety.

Isaiah is almost 9 and along with the DS, he's just beem diagnosed

with mild autism.

> I " ve kind of suspected something else was going on with him for a

while, but everything I was seeing was " blamed " on DS. This past

year I worked in the self contained class at our school and began to

see that the things that were different about Isaiah were commom in

the kids with autism. When Isaiah's respite provider mentioned to

me that she puts him in the group with the other kids with autism, I

knew I wasn't they only one seeing the difference. After 6 months

of waiting to see the developmental pediatrician, we finally got

some answers. Only to be left with more questions.

> I asked some question on the DS list, but got no response except

for one from (Maddie's mom) pointing me in this direction. Thank

you! I'm very happy to be a part of this group, and hope to learn

and also contribute whenever possible.

>

> Avena

>

>

> ---------------------------------

> Discover Yahoo!

> Get on-the-go sports scores, stock quotes, news & more. Check it

out!

>

>

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Guest guest

p.s. I think we could also learn so much from you all seeing all

that you have been through!!! again I am glad you are here, hope you

will continue to tell us about the kids, Dawn, s mom

> > Hi, My name is Avena and my husband's name is . We

> are the proud parents of two beautiful children with DS. You can

> see their pictures at our support groups website

> www.sharingds.org . just turned 11 and besides having DS

> she has just been diagnosed with ADHD,depression and anxiety.

> Isaiah is almost 9 and along with the DS, he's just beem diagnosed

> with mild autism.

> > I " ve kind of suspected something else was going on with him for

a

> while, but everything I was seeing was " blamed " on DS. This past

> year I worked in the self contained class at our school and began

to

> see that the things that were different about Isaiah were commom

in

> the kids with autism. When Isaiah's respite provider mentioned to

> me that she puts him in the group with the other kids with autism,

I

> knew I wasn't they only one seeing the difference. After 6 months

> of waiting to see the developmental pediatrician, we finally got

> some answers. Only to be left with more questions.

> > I asked some question on the DS list, but got no response except

> for one from (Maddie's mom) pointing me in this direction. Thank

> you! I'm very happy to be a part of this group, and hope to learn

> and also contribute whenever possible.

> >

> > Avena

> >

> >

> > ---------------------------------

> > Discover Yahoo!

> > Get on-the-go sports scores, stock quotes, news & more. Check

it

> out!

> >

> >

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  • 3 years later...

Hello,

My name is and I am new to this group. I am concerned about the effects of toxins in the enviromnent, and I am personally concerned about Autism and other diseases, three of which I have endured myself. I have been touched by families of Austistic children and adults and have faced Epilepsy, Cancer & Alcoholism personally and recovered thankfully from all three.

All of my experience and research tells me that most of our contemporary diseases have links and probably causes from the stuff in our environment.

To see a quality short film (10 min) on the subject and to read my story, go to http://www.angelvalleyco.com/environment.htm. I am learning more all the time and I would really like some feedback on this film.

Thanks for your help.

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