new here with questions

[Guest guest]

Liza,

I think your best bet would be to ask the neurosurgeon to order a CT

scan. That will tell him definitely if he has cranio or not. You and

your son will be in my prayers. Please keep us posted.

--- In Plagiocephaly , " loulou879 " <loulou879@y...>

wrote:

> I am so worried right now - I am so glad I found this group. My son

> was born with what looked like a normal head. After one week I

> noticed a prominent ridge above his forehead and the doctors said he

> has overlapping sutures and not to worry. After another week I

> noticed his head becoming flat on the right side and more

overlapping

> sutures in the back. I ran to the doctor again and they said he is

> fine.

>

> I decided to take him to a neurosurgeon because I was so worried

that

> it could be something serious. I was there on Thursday and the

> neurosurgeon said that he has mild plagio and that he " could " have

> fused sagittal sutures. He said we will be approaching this with

> " waitful watching " . I go back in one month to know for sure because

> if it is indeed cranio my sons head will start to grow more in the

> back. The doctor was concerned with his narrow head. He didn't

seem

> too concerned with the flatness just yet so I want to try to

position

> him to help it round out.

>

> I am so worried that I can't sleep. How can I go a month worrying

> like this? What are the chances that it could be cranio? I don't

> understand why he can't tell now if it is fused. Why do we have to

> wait a month? I called my pediatrician again to tell them about the

> visit to the surgeon. He wanted to see my son again - he still

thinks

> his head is fine.

>

> I am trying to be positive about this but it's hard. Have you seen

> good results with repositioning? I think I some improvement since I

> have kept him off the flat side - It seems like the ear that was

> slightly pushed forward looks somewhat better. Is this possible?

> Sorry if I seem a little crazy but I am really scared that this

could

> be serious. Thank you for reading my story. Please pray for me

that

> my son will be ok. He's 8 weeks now. Liza

[Guest guest]

Liza,

I totally unerstand your concern and frustration. First, if it is positional plagio then repo can be very effective at his age. You caught this very early. If it is premautre suture closing you caught that early too. Waiting one month will seem like an eternity, but it doesn't seem out of line with what we hear. I'm suprised they didn't send him for xrays or CT scan but he would really just show signs of positional. My suggestions would be to record his current headshape with pictures. Take a few different angles - aerial shoing both ears and nose, front, back, and each side (check the photos section before and after doc bands for good angles). repeat these pictures every 2 weeks to track progress. 2nd I would visit out files section and the repo folder. It will give you tons of great ideas. If you are interested in some helpful products I would check out the links section repo folder. 3rd does he appear to

have a preference to look one direction? If so I would discuss possible neck muscle tightness with your ped. we have some tips in the torticollis folder (files section) for ways to encourage him to look in the weak direction. I wouldn't try the stretches unless you get your ped to demonstrate them properly for you.

Cranio is very rare. There is a helpful site www.cappskids.org

mom to na

DOC Grad

Tort Resolved

South Carolina

www.thefilyaws.com

loulou879 <loulou879@...> wrote:

I am so worried right now - I am so glad I found this group. My sonwas born with what looked like a normal head. After one week Inoticed a prominent ridge above his forehead and the doctors said hehas overlapping sutures and not to worry. After another week Inoticed his head becoming flat on the right side and more overlappingsutures in the back. I ran to the doctor again and they said he isfine. I decided to take him to a neurosurgeon because I was so worried thatit could be something serious. I was there on Thursday and theneurosurgeon said that he has mild plagio and that he "could" havefused sagittal sutures. He said we will be approaching this with"waitful watching". I go back in one month to know for sure becauseif it is indeed cranio my sons head will start to grow more in

theback. The doctor was concerned with his narrow head. He didn't seemtoo concerned with the flatness just yet so I want to try to positionhim to help it round out. I am so worried that I can't sleep. How can I go a month worryinglike this? What are the chances that it could be cranio? I don'tunderstand why he can't tell now if it is fused. Why do we have towait a month? I called my pediatrician again to tell them about thevisit to the surgeon. He wanted to see my son again - he still thinkshis head is fine. I am trying to be positive about this but it's hard. Have you seengood results with repositioning? I think I some improvement since Ihave kept him off the flat side - It seems like the ear that wasslightly pushed forward looks somewhat better. Is this possible? Sorry if I seem a little crazy but I am really scared that this couldbe

serious. Thank you for reading my story. Please pray for me thatmy son will be ok. He's 8 weeks now. LizaFor more plagio info

[Guest guest]

Liza,

I totally unerstand your concern and frustration. First, if it is positional plagio then repo can be very effective at his age. You caught this very early. If it is premautre suture closing you caught that early too. Waiting one month will seem like an eternity, but it doesn't seem out of line with what we hear. I'm suprised they didn't send him for xrays or CT scan but he would really just show signs of positional. My suggestions would be to record his current headshape with pictures. Take a few different angles - aerial shoing both ears and nose, front, back, and each side (check the photos section before and after doc bands for good angles). repeat these pictures every 2 weeks to track progress. 2nd I would visit out files section and the repo folder. It will give you tons of great ideas. If you are interested in some helpful products I would check out the links section repo folder. 3rd does he appear to

have a preference to look one direction? If so I would discuss possible neck muscle tightness with your ped. we have some tips in the torticollis folder (files section) for ways to encourage him to look in the weak direction. I wouldn't try the stretches unless you get your ped to demonstrate them properly for you.

Cranio is very rare. There is a helpful site www.cappskids.org

mom to na

DOC Grad

Tort Resolved

South Carolina

www.thefilyaws.com

loulou879 <loulou879@...> wrote:

I am so worried right now - I am so glad I found this group. My sonwas born with what looked like a normal head. After one week Inoticed a prominent ridge above his forehead and the doctors said hehas overlapping sutures and not to worry. After another week Inoticed his head becoming flat on the right side and more overlappingsutures in the back. I ran to the doctor again and they said he isfine. I decided to take him to a neurosurgeon because I was so worried thatit could be something serious. I was there on Thursday and theneurosurgeon said that he has mild plagio and that he "could" havefused sagittal sutures. He said we will be approaching this with"waitful watching". I go back in one month to know for sure becauseif it is indeed cranio my sons head will start to grow more in

theback. The doctor was concerned with his narrow head. He didn't seemtoo concerned with the flatness just yet so I want to try to positionhim to help it round out. I am so worried that I can't sleep. How can I go a month worryinglike this? What are the chances that it could be cranio? I don'tunderstand why he can't tell now if it is fused. Why do we have towait a month? I called my pediatrician again to tell them about thevisit to the surgeon. He wanted to see my son again - he still thinkshis head is fine. I am trying to be positive about this but it's hard. Have you seengood results with repositioning? I think I some improvement since Ihave kept him off the flat side - It seems like the ear that wasslightly pushed forward looks somewhat better. Is this possible? Sorry if I seem a little crazy but I am really scared that this couldbe

serious. Thank you for reading my story. Please pray for me thatmy son will be ok. He's 8 weeks now. LizaFor more plagio info

[Guest guest]

Hi there, don't worry, you do not seem crazed at all. It's totally

understandable. You can and will see great results if you repostion

him now while he's still so young. It is a tiring job and I hope

you don't have to work in the morning, Our site has amazing advice

on repo'ing including some products (Files/Repositioning

Heaquarters). I do not have personal advice on repo as my son

was " banded " at 9 mos old. As for if it is cranio or not, I too

thought my son might've had that. I'm not sure why you can't get

xrays done now (or why we didn't either) but we had regular xrays

done at 4 mos. of age and they ruled out cranio for my son. I've

heard that other babies have had a CT scan but I'm not sure if that

necessary. I know it's hard but try to take it one day at a time.

I am not certain of the incidence of cranio. I think it might be

very rare. Good luck and please keep us posted. This is a great

group and I think you will love it here.

Sue

Colin F., 19 mos.

STARband grad

brachy/rt plagio

Buffalo, NY

--- In Plagiocephaly , " loulou879 " <loulou879@y...>

wrote:

> I am so worried right now - I am so glad I found this group. My

son

> was born with what looked like a normal head. After one week I

> noticed a prominent ridge above his forehead and the doctors said

he

> has overlapping sutures and not to worry. After another week I

> noticed his head becoming flat on the right side and more

overlapping

> sutures in the back. I ran to the doctor again and they said he is

> fine.

>

> I decided to take him to a neurosurgeon because I was so worried

that

> it could be something serious. I was there on Thursday and the

> neurosurgeon said that he has mild plagio and that he " could " have

> fused sagittal sutures. He said we will be approaching this with

> " waitful watching " . I go back in one month to know for sure

because

> if it is indeed cranio my sons head will start to grow more in the

> back. The doctor was concerned with his narrow head. He didn't

seem

> too concerned with the flatness just yet so I want to try to

position

> him to help it round out.

>

> I am so worried that I can't sleep. How can I go a month worrying

> like this? What are the chances that it could be cranio? I don't

> understand why he can't tell now if it is fused. Why do we have to

> wait a month? I called my pediatrician again to tell them about

the

> visit to the surgeon. He wanted to see my son again - he still

thinks

> his head is fine.

>

> I am trying to be positive about this but it's hard. Have you seen

> good results with repositioning? I think I some improvement since

I

> have kept him off the flat side - It seems like the ear that was

> slightly pushed forward looks somewhat better. Is this possible?

> Sorry if I seem a little crazy but I am really scared that this

could

> be serious. Thank you for reading my story. Please pray for me

that

> my son will be ok. He's 8 weeks now. Liza

[Guest guest]

Hi there, don't worry, you do not seem crazed at all. It's totally

understandable. You can and will see great results if you repostion

him now while he's still so young. It is a tiring job and I hope

you don't have to work in the morning, Our site has amazing advice

on repo'ing including some products (Files/Repositioning

Heaquarters). I do not have personal advice on repo as my son

was " banded " at 9 mos old. As for if it is cranio or not, I too

thought my son might've had that. I'm not sure why you can't get

xrays done now (or why we didn't either) but we had regular xrays

done at 4 mos. of age and they ruled out cranio for my son. I've

heard that other babies have had a CT scan but I'm not sure if that

necessary. I know it's hard but try to take it one day at a time.

I am not certain of the incidence of cranio. I think it might be

very rare. Good luck and please keep us posted. This is a great

group and I think you will love it here.

Sue

Colin F., 19 mos.

STARband grad

brachy/rt plagio

Buffalo, NY

--- In Plagiocephaly , " loulou879 " <loulou879@y...>

wrote:

> I am so worried right now - I am so glad I found this group. My

son

> was born with what looked like a normal head. After one week I

> noticed a prominent ridge above his forehead and the doctors said

he

> has overlapping sutures and not to worry. After another week I

> noticed his head becoming flat on the right side and more

overlapping

> sutures in the back. I ran to the doctor again and they said he is

> fine.

>

> I decided to take him to a neurosurgeon because I was so worried

that

> it could be something serious. I was there on Thursday and the

> neurosurgeon said that he has mild plagio and that he " could " have

> fused sagittal sutures. He said we will be approaching this with

> " waitful watching " . I go back in one month to know for sure

because

> if it is indeed cranio my sons head will start to grow more in the

> back. The doctor was concerned with his narrow head. He didn't

seem

> too concerned with the flatness just yet so I want to try to

position

> him to help it round out.

>

> I am so worried that I can't sleep. How can I go a month worrying

> like this? What are the chances that it could be cranio? I don't

> understand why he can't tell now if it is fused. Why do we have to

> wait a month? I called my pediatrician again to tell them about

the

> visit to the surgeon. He wanted to see my son again - he still

thinks

> his head is fine.

>

> I am trying to be positive about this but it's hard. Have you seen

> good results with repositioning? I think I some improvement since

I

> have kept him off the flat side - It seems like the ear that was

> slightly pushed forward looks somewhat better. Is this possible?

> Sorry if I seem a little crazy but I am really scared that this

could

> be serious. Thank you for reading my story. Please pray for me

that

> my son will be ok. He's 8 weeks now. Liza

[Guest guest]

Liza,

As long as you are comfortable with waiting then that's ok. Did you

look at the CAPPS KIDS site, maybe someone there has used this doctor

and can tell you about thier experience. Definitely keep us posted.

CAROLG

> > > I am so worried right now - I am so glad I found this group.

My son

> > > was born with what looked like a normal head. After one week I

> > > noticed a prominent ridge above his forehead and the doctors

said he

> > > has overlapping sutures and not to worry. After another week I

> > > noticed his head becoming flat on the right side and more

> > overlapping

> > > sutures in the back. I ran to the doctor again and they said

he is

> > > fine.

> > >

> > > I decided to take him to a neurosurgeon because I was so

worried

> > that

> > > it could be something serious. I was there on Thursday and the

> > > neurosurgeon said that he has mild plagio and that he " could "

have

> > > fused sagittal sutures. He said we will be approaching this

with

> > > " waitful watching " . I go back in one month to know for sure

because

> > > if it is indeed cranio my sons head will start to grow more in

the

> > > back. The doctor was concerned with his narrow head. He

didn't

> > seem

> > > too concerned with the flatness just yet so I want to try to

> > position

> > > him to help it round out.

> > >

> > > I am so worried that I can't sleep. How can I go a month

worrying

> > > like this? What are the chances that it could be cranio? I

don't

> > > understand why he can't tell now if it is fused. Why do we

have to

> > > wait a month? I called my pediatrician again to tell them

about the

> > > visit to the surgeon. He wanted to see my son again - he still

> > thinks

> > > his head is fine.

> > >

> > > I am trying to be positive about this but it's hard. Have you

seen

> > > good results with repositioning? I think I some improvement

since I

> > > have kept him off the flat side - It seems like the ear that was

> > > slightly pushed forward looks somewhat better. Is this

possible?

> > > Sorry if I seem a little crazy but I am really scared that this

> > could

> > > be serious. Thank you for reading my story. Please pray for

me

> > that

> > > my son will be ok. He's 8 weeks now. Liza

[Guest guest]

Liza,

As long as you are comfortable with waiting then that's ok. Did you

look at the CAPPS KIDS site, maybe someone there has used this doctor

and can tell you about thier experience. Definitely keep us posted.

CAROLG

> > > I am so worried right now - I am so glad I found this group.

My son

> > > was born with what looked like a normal head. After one week I

> > > noticed a prominent ridge above his forehead and the doctors

said he

> > > has overlapping sutures and not to worry. After another week I

> > > noticed his head becoming flat on the right side and more

> > overlapping

> > > sutures in the back. I ran to the doctor again and they said

he is

> > > fine.

> > >

> > > I decided to take him to a neurosurgeon because I was so

worried

> > that

> > > it could be something serious. I was there on Thursday and the

> > > neurosurgeon said that he has mild plagio and that he " could "

have

> > > fused sagittal sutures. He said we will be approaching this

with

> > > " waitful watching " . I go back in one month to know for sure

because

> > > if it is indeed cranio my sons head will start to grow more in

the

> > > back. The doctor was concerned with his narrow head. He

didn't

> > seem

> > > too concerned with the flatness just yet so I want to try to

> > position

> > > him to help it round out.

> > >

> > > I am so worried that I can't sleep. How can I go a month

worrying

> > > like this? What are the chances that it could be cranio? I

don't

> > > understand why he can't tell now if it is fused. Why do we

have to

> > > wait a month? I called my pediatrician again to tell them

about the

> > > visit to the surgeon. He wanted to see my son again - he still

> > thinks

> > > his head is fine.

> > >

> > > I am trying to be positive about this but it's hard. Have you

seen

> > > good results with repositioning? I think I some improvement

since I

> > > have kept him off the flat side - It seems like the ear that was

> > > slightly pushed forward looks somewhat better. Is this

possible?

> > > Sorry if I seem a little crazy but I am really scared that this

> > could

> > > be serious. Thank you for reading my story. Please pray for

me

> > that

> > > my son will be ok. He's 8 weeks now. Liza

[Guest guest]

Welcome to the list. You can't safely chelate until he gets the amalgam filling

removed by a mercury-free dentist using proper protocol. Check the files for

all the discussion as to why metal-free isn't considered a real chelator by many

on the list.

S S

Hi,<BR>

<BR>

My name is and I joined this group because my 8.5 year old son is<BR>

ADD-inattentive and has mild AS.  I have been treating him with natural<BR>

supplements and Chiropractic and they have been helping, but both his<BR>

Chiropractor and I believe that that he would benefit most from Chelation.<BR>

Unfortunately he did have his full set of vaccinations (before I knew<BR>

better) and he even has an amalgam filling (again before I knew better), so<BR>

I now believe that his problems are most likely a result of mercury<BR>

poisoning.  His Chiropractor would like do the chelation using a product<BR>

called Metal Free.  Has anyone here ever heard of it?  I am afraid to try a<BR>

product on my son that I have never heard of. It comes in the form of a<BR>

spray that you spray into the mouth and hold it under your tongue for 2<BR>

minuets before swallowing.  He said that the product information recommends<BR>

that you remove any amalgam fillings before using the product because it can<BR>

bind with the metals in the fillings and pull the metals into your body.<BR>

However, he said that it can still be used with the filling if you spray it<BR>

into the back of the mouth behind the fillings.  This didn't sound right to<BR>

me, so I would rather wait until he no longer has the filling before I begin<BR>

any type of chelation.  My other question is, what do you recommend for<BR>

removing a filling in a baby tooth?  The filling is in a baby molar that he<BR>

will eventually lose.  But he was, and still is, very slow to lose his teeth<BR>

and his dentist told me that he may not lose that tooth until he is 10 or<BR>

so.  I don't know if I should have the filling replaced or just have the<BR>

tooth pulled out since it's a baby tooth anyway.<BR>

<BR>

I just joined the group today so I haven't spent a lot of time looking at<BR>

all of the messages but I hope to learn a lot from you all. <BR>

<BR>

Thanks for listening <BR>

<BR>

P.<BR>

<BR>

<BR>

<BR>

[Guest guest]

> I now believe that his problems are most likely a result of mercury

> poisoning. His Chiropractor would like do the chelation using a product

> called Metal Free. Has anyone here ever heard of it?

I have read a few success stories with Metal Free. It is based on a

low dose of ALA, and if you want to go with a less-expensive product,

just go to your local health food store and buy the ALA straight. I

chelated my kids with ALA straight. It worked very well for us.

>>I am afraid to try a

> product on my son that I have never heard of.

Good for you.

>>I would rather wait until he no longer has the filling before I begin

> any type of chelation.

Good.

I can't really give you info on removing a filling from a baby tooth.

If you choose to remove it, be sure to use a dentist who uses proper

protocol.

Dana

[Guest guest]

Replace the filling before chelation of any kind. Do it a safe

way, with a dentists that knows how to place a rubber dam

in the mouth and include oxygen. That way your child doesn't

get more exposure to mercury.

You could try the metal free. I tried it and I felt well on it but

then it increased my estrogen. Maybe because my liver wasn't

doing what it was supposed to do. I then tried ALA and find it

very helpful and never had estrogen issues with it.

Liz D.

> [Original Message]

> From: Packard <mpackard@...>

> < >

> Date: 5/10/2005 4:10:33 AM

> Subject: [ ] New here with questions

>

> Hi,

[Guest guest]

Liza,

Welcome to the group! I'm sorry things are so frustrating for you

right now. We went through a six month " wait and see " period and

now they are both in DOCbands (Logan should get his this week).

This is a great place to ask questions and vent your frustrations.

I highly suggest participating in Chat on Monday and Friday nights

(and I think Monday midday). You can get a lot of info quickly and

you'll meet some great ladies. We are still pretty new to this

whole plagio world and they've helped me a lot. It's good to hear

that your repo is working. When they are that young you can see

results pretty quickly.

Jenn T.

Logan 7 months brachy/plagio/tort pre DOC

Brecken 7 months plagio/tort DOCband 5/2/05

--- In Plagiocephaly , " loulou879 " <loulou879@y...>

wrote:

> I am so worried right now - I am so glad I found this group. My

son

> was born with what looked like a normal head. After one week I

> noticed a prominent ridge above his forehead and the doctors said

he

> has overlapping sutures and not to worry. After another week I

> noticed his head becoming flat on the right side and more

overlapping

> sutures in the back. I ran to the doctor again and they said he is

> fine.

>

> I decided to take him to a neurosurgeon because I was so worried

that

> it could be something serious. I was there on Thursday and the

> neurosurgeon said that he has mild plagio and that he " could " have

> fused sagittal sutures. He said we will be approaching this with

> " waitful watching " . I go back in one month to know for sure

because

> if it is indeed cranio my sons head will start to grow more in the

> back. The doctor was concerned with his narrow head. He didn't

seem

> too concerned with the flatness just yet so I want to try to

position

> him to help it round out.

>

> I am so worried that I can't sleep. How can I go a month worrying

> like this? What are the chances that it could be cranio? I don't

> understand why he can't tell now if it is fused. Why do we have to

> wait a month? I called my pediatrician again to tell them about

the

> visit to the surgeon. He wanted to see my son again - he still

thinks

> his head is fine.

>

> I am trying to be positive about this but it's hard. Have you seen

> good results with repositioning? I think I some improvement since

I

> have kept him off the flat side - It seems like the ear that was

> slightly pushed forward looks somewhat better. Is this possible?

> Sorry if I seem a little crazy but I am really scared that this

could

> be serious. Thank you for reading my story. Please pray for me

that

> my son will be ok. He's 8 weeks now. Liza

[Guest guest]

Liza,

Welcome to the group! I'm sorry things are so frustrating for you

right now. We went through a six month " wait and see " period and

now they are both in DOCbands (Logan should get his this week).

This is a great place to ask questions and vent your frustrations.

I highly suggest participating in Chat on Monday and Friday nights

(and I think Monday midday). You can get a lot of info quickly and

you'll meet some great ladies. We are still pretty new to this

whole plagio world and they've helped me a lot. It's good to hear

that your repo is working. When they are that young you can see

results pretty quickly.

Jenn T.

Logan 7 months brachy/plagio/tort pre DOC

Brecken 7 months plagio/tort DOCband 5/2/05

--- In Plagiocephaly , " loulou879 " <loulou879@y...>

wrote:

> I am so worried right now - I am so glad I found this group. My

son

> was born with what looked like a normal head. After one week I

> noticed a prominent ridge above his forehead and the doctors said

he

> has overlapping sutures and not to worry. After another week I

> noticed his head becoming flat on the right side and more

overlapping

> sutures in the back. I ran to the doctor again and they said he is

> fine.

>

> I decided to take him to a neurosurgeon because I was so worried

that

> it could be something serious. I was there on Thursday and the

> neurosurgeon said that he has mild plagio and that he " could " have

> fused sagittal sutures. He said we will be approaching this with

> " waitful watching " . I go back in one month to know for sure

because

> if it is indeed cranio my sons head will start to grow more in the

> back. The doctor was concerned with his narrow head. He didn't

seem

> too concerned with the flatness just yet so I want to try to

position

> him to help it round out.

>

> I am so worried that I can't sleep. How can I go a month worrying

> like this? What are the chances that it could be cranio? I don't

> understand why he can't tell now if it is fused. Why do we have to

> wait a month? I called my pediatrician again to tell them about

the

> visit to the surgeon. He wanted to see my son again - he still

thinks

> his head is fine.

>

> I am trying to be positive about this but it's hard. Have you seen

> good results with repositioning? I think I some improvement since

I

> have kept him off the flat side - It seems like the ear that was

> slightly pushed forward looks somewhat better. Is this possible?

> Sorry if I seem a little crazy but I am really scared that this

could

> be serious. Thank you for reading my story. Please pray for me

that

> my son will be ok. He's 8 weeks now. Liza

[Guest guest]

Thanks so much for the suggestions, G! I really appreciate such a fast

response to my post. I will check out those groups today. Marilyn

[Guest guest]

Hi Marilyn,

I am on a few different mailing lists that I feel you could benefit from

insight from many of their longtime members.

Yeast-L at: http://maelstrom.stjohns.edu/CGI/wa.exe?SUBED1=yeast-l & A=1

The moderator has lost part of his stomach due to H-Pylori and is very

knowledgeable on the subject.

Silver list at Eskimo at: http://silverlist.org

Colloidal silver is a natural antibiotic and is very good at handling

H-Pylori and any other single cell creature that may have invaded. I

use this all the time for many uses.

Oxyplus at: oxyplus/

Oxygen therapies are also another natural way to fight alot of stomach

conditions. Many different forms Ozonated water, hydrogen peroxide,

aerobic oxygen just to name a few.

Also check out Curezone. It is a wealth of information. The link is at the

bottom of every post on this list.

I would also try the CD diet again to see if it helps again. A lot of those

tests come back false negative.

Just some places to start looking.

G Murray

sahmomof8 wrote:

>I have been having " stomach trouble " most of my life, but much worse

>the last few years. I actually was to the point where I HATED to eat

>but would eat compulsively, just to try and " fix " whatever was

>wrong! Not sure what I thought THAT would accomplish--maybe trying

>to find SOMETHING I could eat without feeling gross afterwards! I

>thought I had Celiac Disease, but that was just ruled out. The

>bloodwork showed the gene that carries CD was present, but the

>levels on the bloodwork, and the biopsy, were negative.

>

>I was diagnosed with IBS last year, but don't like taking meds, so I

>stopped shortly, thinking I could just use diet to fix the problem

>(which actually seemed to work for a while until I got lazy and went

>back to old eating habits).

>

>I seemed to have symptoms of intestinal parasites or yeast, so I

>tried a program I found for this, and it did actually make me feel

>better, but I was SO afraid to eat, and the diet was SO restrictive,

>that I stopped after a few days.

>

>During my biopsy for CD, the doctor did a biopsy of my stomach as

>well as my intestines, and she found I was infected with H. pylori

>and had chronic gastritis. I am now on a strong antibiotic regimen

>for this, for the next two weeks. Ironically, just before the doctor

>called with the diagnosis, I had gotten an order from Hallelujah

>Acres (they promote a raw vegan diet) that contained a book I had

>been wanting to read called " Stop the Medicine " ! It is an EXCELLENT

>book, and I am hoping to find the other two books she mentions she

>would write, but so far, no luck. I hope she ended up writing them,

>as the descriptions seemed really good.

>

>Anyway, here I am, stuck taking strong drugs for two weeks, and then

>hoping they worked. Plus not knowing if I really DO have intestinal

>parasites or yeast problems. Plus not knowing how I got that

>infection in the first place, and whether it will come back, and how

>to prevent this from happening!I am also interested in the raw vegan

>diet, but not sure I can strick to it, and not sure if it is right

>for me. And what about a gluten free diet? I already don't eat much

>dairy.

>

>The book I'm reading mentions the work of Dr. Jensen, who I have

>heard of, but never read anything by. And I am very interested in

>finding someone close to me who is like the doctor the woman in this

>book went to (I believe she was a naturopath, and seemed to REALLY

>know her stuff, as far as heavy metal toxicity, herbs, colonics,

>etc.). I have no idea how to find such a person, though.

>

>Sorry to be so confused and overwhelmed and to have so many

>questions! I hope someone here can answer some of them for me.

>Marilyn

>

>

[Guest guest]

Hi Marilyn,

Try this website and read the articles. I am on my quest to find

some help too. I'm tired of feeling bloated, and sick and tired all

the time. I'm trying colon hydrotherapy, its expensive, but I want

to feel better asap. There are other alternatives and someone here

will probably go into that. This site also helps you find someone in

your area.

http://colonhealth.net/colon_hydrotherapy/chthrapy.htm

Good luck in your quest to feeling better.

Diane

> I have been having " stomach trouble " most of my life, but much

worse

> the last few years. I actually was to the point where I HATED to

eat

> but would eat compulsively, just to try and " fix " whatever was

> wrong! Not sure what I thought THAT would accomplish--maybe trying

> to find SOMETHING I could eat without feeling gross afterwards! I

> thought I had Celiac Disease, but that was just ruled out. The

> bloodwork showed the gene that carries CD was present, but the

> levels on the bloodwork, and the biopsy, were negative.

>

> I was diagnosed with IBS last year, but don't like taking meds, so

I

> stopped shortly, thinking I could just use diet to fix the problem

> (which actually seemed to work for a while until I got lazy and

went

> back to old eating habits).

>

> I seemed to have symptoms of intestinal parasites or yeast, so I

> tried a program I found for this, and it did actually make me feel

> better, but I was SO afraid to eat, and the diet was SO

restrictive,

> that I stopped after a few days.

>

> During my biopsy for CD, the doctor did a biopsy of my stomach as

> well as my intestines, and she found I was infected with H. pylori

> and had chronic gastritis. I am now on a strong antibiotic regimen

> for this, for the next two weeks. Ironically, just before the

doctor

> called with the diagnosis, I had gotten an order from Hallelujah

> Acres (they promote a raw vegan diet) that contained a book I had

> been wanting to read called " Stop the Medicine " ! It is an EXCELLENT

> book, and I am hoping to find the other two books she mentions she

> would write, but so far, no luck. I hope she ended up writing them,

> as the descriptions seemed really good.

>

> Anyway, here I am, stuck taking strong drugs for two weeks, and

then

> hoping they worked. Plus not knowing if I really DO have intestinal

> parasites or yeast problems. Plus not knowing how I got that

> infection in the first place, and whether it will come back, and

how

> to prevent this from happening!I am also interested in the raw

vegan

> diet, but not sure I can strick to it, and not sure if it is right

> for me. And what about a gluten free diet? I already don't eat much

> dairy.

>

> The book I'm reading mentions the work of Dr. Jensen, who I have

> heard of, but never read anything by. And I am very interested in

> finding someone close to me who is like the doctor the woman in

this

> book went to (I believe she was a naturopath, and seemed to REALLY

> know her stuff, as far as heavy metal toxicity, herbs, colonics,

> etc.). I have no idea how to find such a person, though.

>

> Sorry to be so confused and overwhelmed and to have so many

> questions! I hope someone here can answer some of them for me.

> Marilyn

[Guest guest]

Dear Regina,

Welcome to the group, sorry you are finding yourself trying to find answers to whats going on with you. While we aren't docs, and can't tell you weither or not you have Flatback, what you describe is a how a lot of us felt at the end of the day as Flatback started to set in. For me it was a gradual, how it came on, the beginning of the day was always better and as the day went on, my body just couldn't keep upright. How it hits one person versus another can differ, some have it come on and get bad relatively quickly, in just months and others like me knew for years something just wasn't right, but couldn't find a doc who knew what it was or how to treat it. On the site there are excellent articles, and information about Flatback, the whys of it, so good to just read, read, read there. The files section is loaded with good info.

While this whole thing can be overwhelming you just have to take it a step at a time. First it's best to see a doc who specializes in post Harrington Rod folks like us. Where are you located? Who did your Harrington Rod surgery and where? What levels are you fused to? You need to be seen to find out just whats going on, and go from there. Most of us have been given the option when diagnosised with Flatback of trying PT and injections, a good first step, and insurances sometimes want that as a first step. Many find some relief with exercise and many find swimming and water work benefical, especially in the earlier stages of it. I was just a mess by the time I got to the doc who finally diagnosised me, bent over, had tons of hip, leg and low back pain, and was very limited in how far I could walk from the pain. Unfortunately there is no real fix for Flatback besides surgery, but sometimes with the things I mentioned before the surgery can be put off for awhile. Lets not get ahead of things, get yourself seen by a good doc, and go from there. A good local ortho who specializes in Spines should be able to recognize Flatback, at least for a diagnosis, but that isn't always true as many members have seen. While the field of doc's dealing with our problems are increasing, many that we have had experience with are in major cities across the country. We don't recommend doc's per say, but many that deal with this are known here, and suggested for opinions. So we look forward to hearing more about you, and your scoliosis story, and we will be of as much help as possible. Know in fact you are not alone, I sure felt that way back in 2000 when I was diagnosised till I found help and support within these groups. I had my last surgery in 2002, and I'm doing very well.

Hope this helps!

Colorado Springs

[ ] new here with questions

Hi I'm new and had a few questions.I had Harrington rod surgery as a teenager in the 80s and am having some problems now and was wondering if it might be flatback. A family doctor suggested that I have it looked at more. I know you guys can't say for sure, but maybe you could give some advice?I've read that many people with flatback lean forward. Does this mean that you can't stand up straight at all ever? Or just that it's really painful and difficult? I tend to be able to stand up mostly straight at some times, but when I am tired I lean forward and it's very painful to maintain a better posture especially at the end of the day. Since I can stand upright a little bit, does it mean I can't possibly have flatback, or is it normal to get worse throughout the day and be leaning heavier at night? Is it possible that physical therapy can help, or does everyone eventually need surgery?And is this something that might get worse over time if I try to ignore it now? In other words, will I continue to start leaning more and more until I can't ever stand straight?Thanks for any information, I'm so glad to find that I'm not the only person out there.Regina

[Guest guest]

Hi, Regina, and welcome.

I don't think anyone here will jump down my throat if I tell you, without a medical license, that what you describe might very well be flatback. When I look at my "before" x-ray it amazes me that I didn't feel that bent over at the time, but boy-howdy, was I!

I'm not sure that flatback always progresses without stopping, but some people have gotten to where they have to look up to see forward.

By all means do see a scoliosis specialist, but not just a physiatrist or a kids' surgeon. You may certainly get some relief from conservative care, but even if you never end up having revision surgery, it's important for you to see someone who specializes in correcting the flatback deformity, to be sure you have a completely informed opinion.

I hope you won't need surgery. I hoped I wouldn't, but I did. At any rate, you've come to the right place to find resources and the support of others who have been there.

I hope you benefit from your time among us.

Sharon

[ ] new here with questions

Hi I'm new and had a few questions.I had Harrington rod surgery as a teenager in the 80s and am having some problems now and was wondering if it might be flatback. A family doctor suggested that I have it looked at more. I know you guys can't say for sure, but maybe you could give some advice?I've read that many people with flatback lean forward. Does this mean that you can't stand up straight at all ever? Or just that it's really painful and difficult? I tend to be able to stand up mostly straight at some times, but when I am tired I lean forward and it's very painful to maintain a better posture especially at the end of the day. Since I can stand upright a little bit, does it mean I can't possibly have flatback, or is it normal to get worse throughout the day and be leaning heavier at night? Is it possible that physical therapy can help, or does everyone eventually need surgery?And is this something that might get worse over time if I try to ignore it now? In other words, will I continue to start leaning more and more until I can't ever stand straight?Thanks for any information, I'm so glad to find that I'm not the only person out there.Regina

[Guest guest]

Yes. Read & learn.

Doug

Does it sound like I might have yeast overgrowth? If so,

> what do I do?

>

[Guest guest]

>

> Hi. My name is and I live in North Carolina. I'm 29 years

old

> with a hubby and 3 children. I wonder if I have yeast overgrowth.

> I'm overweight and tired. I'm on antidepressants for depression

and

> anxiety. I crave sweets. I get regular bladder infections, for

which

> I've had every test under the sun and can't find a reason for

them. I

> also get this weird gross thing under my bra underwire and on my

panty

> lines. I get really raw and red. It hurts and itches. But the

SMELL

> is by far the nastiest thing ever. My husband can smell it with my

> clothes ON! Does it sound like I might have yeast overgrowth? If

so, what do I do?

==>Hi . Welcome to our group. Yes, you do have candida and

the best place to start is to read and learn. Start with the article

emailed to you when you joined this group: " Candida Basics by Bee "

If you did not keep it you can read the more lengthy version " How to

Successfully Overcome Candida " on my website:

http://www.healingnaturallybybee.com/articles/menu2.php

Next, print out the article " Curing Candida, How to Get Started " ;

http://www.healingnaturallybybee.com/articles/intro1.php and start

one step at a time.

We are here to help and support you, so after you read please get

back to us with questions and concerns. We are a great group of

people helping others take charge of their health. That starts with

learning!

The best in health, Bee

>

[Guest guest]

Hi Katrina!

Welcome to the group! I too, had a 6 week preemie. Our son suffered severe

reactions to his vaccines and was recently diagnosed on the Autism spectrum. He

is on the road to recovery though because I stopped vaccinating at 6 mo. and

finally went with my gut - I was told by the nurses on call that his reactions

were " normal " . HA! What a lie! Good for you and your decision because preemies

are at the highest risk of Autism!!! At the same time he was going through that,

a rubella vaccine damaged my hearing....thankfully, I have recovered due to

alternative treatment!

I am so sorry about what you had to go through. I know, husbands can be tough -

mine is a retired Marine. Talk about a difficult vax conversation. What did it

for him was telling him that our infant received the same dose as an adult (.5

ml)! He then listened when I showed him the package insert pointing that out.

What about purchasing some DVD's (a lot of men don't like to read)? Tocco

has a new one that's great. I also have a lot of info on my personal blog too.

Our nightmare begins in Sept 2008.

http://www.marytocco.com/

http://vaccinesexposed.blogspot.com

Have you thought about being a nurse in alternative care? I would be very

concerned about the way this country is going with regard to forced

vaccinations. Sheri, the group leader and former peds nurse doesn't even

recommend the field either anymore. Too scary.

Again, welcome!

Dawn

>

> Hi Everyone!

>

> I am new to this group. I have always been opposed to vaccines, but never

really knew why. I got all of my scheduled ones, but it never felt " right " to

me.

>

> While pregnant, I started researching them and grew increasingly uncomfortable

about them. I decided that my little girl would not be getting any vaccines.

>

> Well, she was born 6 weeks premature. The hospital refused to listen to me

when I told them no shots and no eye ointment. They said that it was state law

and they had to do it. That is not entirely correct - I live in TN and they do

allow for parental refusal for religious reasons. But the hospital wouldn't

respect our wishes and gave the Vitamin K and eye ointment anyway. Dakota was

too early and her lungs had not fully developed. She had to be resuscitated

several times and was ultimately transferred to another hospital that night.

>

> She was in the NICU3 for 10 days, getting all sorts of medications. But we

did refuse the Hep B shot and they respected that. Hopefully the medications

that she already had has not harmed her.

>

> Anyway, she is two months old now. We refused vaccinations at the last

appointment. The doctor made us sign a waiver that we would not hold them

liable if she did get sick. They said that they really want us to consider

giving her the RSV shot and the flu shot next fall. Otherwise, they were fine

with our decision and didn't ask too many questions.

>

> *But, they said that since we aren't doing vaccinations and with her being a

preemie, that she is at greater risk for getting sick. They do not want us to

take her in public or allow her exposure to other children for at least a year.

What do you all think of that?

>

> *My husband doesn't fully agree with not doing shots. He's going along with

it so far, but I see strong doubt. I worry that he may try to get them for her

behind my back. Do I have any say in that-to prevent her from getting them if

he were to do that? I sure hope he doesn't, but I have a feeling that it would

be out of my hands if he did.

>

> *For me to enter college (nursing), I am told that I need to " prove immunity "

to Measles, Mumps and Rubella. I was vaccinated as a child, but my records were

destroyed in a flood and my old school does not show my immunizations for some

reason. I had bloodwork done, but do not have antibodies for Mumps. Does

anyone know any way around my having to get a shot for this? They say that I

have to have it before they will allow me to start classes.

>

> Thanks everyone!

> ~Katrina

>

[Guest guest]

Katrina,

Where in TN are you located? I am in ville TN and did not have any

problems when I refused Hep and Vit K for my now 5 month old however he also

was not premature which may have been a reason why they reacted differently.

Anyway its just nice to see another person from TN on here. Welcome.

Tina

On Wed, Mar 11, 2009 at 9:23 PM, submissive_tiger_kitten <

princessbootzz@...> wrote:

> Hi Everyone!

>

> I am new to this group. I have always been opposed to vaccines, but never

> really knew why. I got all of my scheduled ones, but it never felt " right "

> to me.

>

> While pregnant, I started researching them and grew increasingly

> uncomfortable about them. I decided that my little girl would not be getting

> any vaccines.

>

> Well, she was born 6 weeks premature. The hospital refused to listen to me

> when I told them no shots and no eye ointment. They said that it was state

> law and they had to do it. That is not entirely correct - I live in TN and

> they do allow for parental refusal for religious reasons. But the hospital

> wouldn't respect our wishes and gave the Vitamin K and eye ointment anyway.

> Dakota was too early and her lungs had not fully developed. She had to be

> resuscitated several times and was ultimately transferred to another

> hospital that night.

>

> She was in the NICU3 for 10 days, getting all sorts of medications. But we

> did refuse the Hep B shot and they respected that. Hopefully the medications

> that she already had has not harmed her.

>

> Anyway, she is two months old now. We refused vaccinations at the last

> appointment. The doctor made us sign a waiver that we would not hold them

> liable if she did get sick. They said that they really want us to consider

> giving her the RSV shot and the flu shot next fall. Otherwise, they were

> fine with our decision and didn't ask too many questions.

>

> *But, they said that since we aren't doing vaccinations and with her being

> a preemie, that she is at greater risk for getting sick. They do not want us

> to take her in public or allow her exposure to other children for at least a

> year. What do you all think of that?

>

> *My husband doesn't fully agree with not doing shots. He's going along with

> it so far, but I see strong doubt. I worry that he may try to get them for

> her behind my back. Do I have any say in that-to prevent her from getting

> them if he were to do that? I sure hope he doesn't, but I have a feeling

> that it would be out of my hands if he did.

>

> *For me to enter college (nursing), I am told that I need to " prove

> immunity " to Measles, Mumps and Rubella. I was vaccinated as a child, but my

> records were destroyed in a flood and my old school does not show my

> immunizations for some reason. I had bloodwork done, but do not have

> antibodies for Mumps. Does anyone know any way around my having to get a

> shot for this? They say that I have to have it before they will allow me to

> start classes.

>

> Thanks everyone!

> ~Katrina

>

>

>

--

Tina D. Shang

ville Online

http://www.rogersvilleonline.com

[Guest guest]

Greetings, Katrina!

Glad you're here. There's a plethora of information available to you in

this group. Not all parents within this list are entirely against vaccines,

but nonetheless, this list itself could keep you reading & researching all

day!

Although you're daughter has already been through so much 'treatment,' it's

a blessing that she won't be vaccinated according to your wishes. I don't

know for sure about your husband being able to take her in for shots - but I

think if his name is on one of the pediatric questionaires asking who may

authorize treatment, then it may be so. I vaguely recall a form like that

at my daughter's first visit (she's soon to be 1 y/o on April 1st). Besides

that, I doubt a pediatrician would double check his bases before calling out

the shots, literally.

My partner was vehemently opposed to the Nth degree when I held off

vaccines, then ultimately declined them. We argued for at least 2 weeks

straight, & then some if the subject arose again. Both his & my family were

against me, but since my family is smarter than his I've been able to

knock some sense into my mother & sister. He's still angry w/ me for my

anti-vax decision! DD actually did have 4 vaccines - 2 for rotavirus & 2

for prevnar (2 & 4 months). His bologne excuse is that he thinks he's had a

hard time bonding w/ her b/c I'm running many parenting decisions.

Sometimes it makes me cry but that's another story. Pointing out the dosage

is a great idea - what got my partner running somewhat in line w/ me was the

difference in vaccine schedules when we were infants versus now; it's

INSANE! Also pointing out 'SIDS' statistics (timing) & vaccine recalls

piqued his interest (whatever 'interest' he has on the anti-vax front).

Sorry to hear that the hospital staff was so much trouble to you. I guess

maybe a birth plan citing your requests may have helped? I should have done

the same thing, but at the time I didn't know any better than the Vitamin K

& eyedrops. Good for you that at least you were in the know about it, but

it must be crushing & angering that the staff pushed you around. Sounds

like no matter how stubborn you were on the matter they were running the

show. Amazing. Their pedigree does nothing to credit them w/ knowing

what's best for YOUR baby.

I, too, signed the pediatric waiver. I'm not nervous about it, b/c if DD

becomes ill she's surely not going to an allopath. I'll try a homeopath or

naturopathic doctor for healing. My pediatrician was a real b***h about it,

nearly shoving the form in my face, giving me all kinds of horror stories

while I read it over. Your pediatrician may be okay w/ the decision now, or

at least act like they are, but I don't doubt it if they put on a different

face later on.

Lastly, I'd just like to comment on your nursing plans. Maybe you'll

encounter some more accomodating & educated counselors w/ your venture, but

I, too, was considering nursing only a few months ago. The community

college I was looking at was quite rude when they said hep b was mandatory

WITHOUT ANY EXCEPTION. OSHA has an exemption, & if hospitals, etc. are okay

w/ a medical exemption, what's the difference being okay w/ a philosophical

or religious exemption? The moment I got a nasty email from the nursing

secretary, I turned against healthcare as a profession/career change

entirely. I realized that w/ my somewhat extreme morals about health, that

I would be in no way, shape, or form able to conform to a government product

- & that's speaking currently, not factoring in healthcare of the future.

My vaccine squabble & possible nickname 'earth mother' would have been the

least of my concerns should I have embarked on nursing. Maybe you'll

consider these notes of mine as you continue to pursue this career path.

Good luck, & welcome.

Kitty

Thu, Mar 12, 2009 at 2:37 AM, Dawn <dawndanc@...> wrote:

> Hi Katrina!

>

> Welcome to the group! I too, had a 6 week preemie. Our son suffered severe

> reactions to his vaccines and was recently diagnosed on the Autism spectrum.

> He is on the road to recovery though because I stopped vaccinating at 6 mo.

> and finally went with my gut - I was told by the nurses on call that his

> reactions were " normal " . HA! What a lie! Good for you and your decision

> because preemies are at the highest risk of Autism!!! At the same time he

> was going through that, a rubella vaccine damaged my hearing....thankfully,

> I have recovered due to alternative treatment!

>

> I am so sorry about what you had to go through. I know, husbands can be

> tough - mine is a retired Marine. Talk about a difficult vax conversation.

> What did it for him was telling him that our infant received the same dose

> as an adult (.5 ml)! He then listened when I showed him the package insert

> pointing that out. What about purchasing some DVD's (a lot of men don't like

> to read)? Tocco has a new one that's great. I also have a lot of info

> on my personal blog too. Our nightmare begins in Sept 2008.

>

> http://www.marytocco.com/

>

> http://vaccinesexposed.blogspot.com

>

> Have you thought about being a nurse in alternative care? I would be very

> concerned about the way this country is going with regard to forced

> vaccinations. Sheri, the group leader and former peds nurse doesn't even

> recommend the field either anymore. Too scary.

>

> Again, welcome!

>

> Dawn

>

> >

> > Hi Everyone!

> >

> > I am new to this group. I have always been opposed to vaccines, but never

> really knew why. I got all of my scheduled ones, but it never felt " right "

> to me.

> >

> > While pregnant, I started researching them and grew increasingly

> uncomfortable about them. I decided that my little girl would not be getting

> any vaccines.

> >

> > Well, she was born 6 weeks premature. The hospital refused to listen to

> me when I told them no shots and no eye ointment. They said that it was

> state law and they had to do it. That is not entirely correct - I live in TN

> and they do allow for parental refusal for religious reasons. But the

> hospital wouldn't respect our wishes and gave the Vitamin K and eye ointment

> anyway. Dakota was too early and her lungs had not fully developed. She had

> to be resuscitated several times and was ultimately transferred to another

> hospital that night.

> >

> > She was in the NICU3 for 10 days, getting all sorts of medications. But

> we did refuse the Hep B shot and they respected that. Hopefully the

> medications that she already had has not harmed her.

> >

> > Anyway, she is two months old now. We refused vaccinations at the last

> appointment. The doctor made us sign a waiver that we would not hold them

> liable if she did get sick. They said that they really want us to consider

> giving her the RSV shot and the flu shot next fall. Otherwise, they were

> fine with our decision and didn't ask too many questions.

> >

> > *But, they said that since we aren't doing vaccinations and with her

> being a preemie, that she is at greater risk for getting sick. They do not

> want us to take her in public or allow her exposure to other children for at

> least a year. What do you all think of that?

> >

> > *My husband doesn't fully agree with not doing shots. He's going along

> with it so far, but I see strong doubt. I worry that he may try to get them

> for her behind my back. Do I have any say in that-to prevent her from

> getting them if he were to do that? I sure hope he doesn't, but I have a

> feeling that it would be out of my hands if he did.

> >

> > *For me to enter college (nursing), I am told that I need to " prove

> immunity " to Measles, Mumps and Rubella. I was vaccinated as a child, but my

> records were destroyed in a flood and my old school does not show my

> immunizations for some reason. I had bloodwork done, but do not have

> antibodies for Mumps. Does anyone know any way around my having to get a

> shot for this? They say that I have to have it before they will allow me to

> start classes.

> >

> > Thanks everyone!

> > ~Katrina

> >

>

>

>

--

" I wonder if other dogs think poodles are members of a weird religious

cult. "

[Guest guest]

Hi Katrina,

Well, I can speak to the husband issue as well. My husband still is not

convinced to this day, but is at the point where he says " all I can do is hope

nothing happens and when he turns 18, he can decide for himself if he wants to

be vaccinated "

What worked for me was first to say I was going to " delay " until I had completed

(haha) my research and also due to the immune system, liver, brain, etc not

being " fully " developed until at least age 2 - not totally accurate, but he got

it. My son is turning 4 now, and that statement got me past the initial issue -

as time went on, hubby fussed less and less about it since our son was just

fine.

Honestly though, I think the real reason he gave up the arguing is because I

told him " fine - you want to vaccinate him, first you do the research and then

after you have done ALL the research (haha) then if you still want him

vaccinated, then YOU have to take him to every shot appointment and take the

rest of the day off to watch for reactions " . Yeah THAT was going to happen! I

rationalized with him that until he did the research on both sides, he was not

knowledgeable enough to make the decision. I think different things will work

depending on the way your husband thinks - mine is a very logical sort, so that

rational worked for me.

If you want to totally avoid discussion with your ped, the easiest way is to

stop going to well baby check-ups (assuming your child is well). I am sure

there are different issues with a preemie, but I could look at my son and see he

was developing and growing well and that was good enough for me. IF I needed

critical care, my ped would have farmed me out to the ER anyways, so you could

go straight there or as we did, to an urgent care peds clinic for severe issues.

They never once asked me about his shots.

Best of luck!

>

> Hi Everyone!

>

> I am new to this group. I have always been opposed to vaccines, but never

really knew why. I got all of my scheduled ones, but it never felt " right " to

me.

>

> While pregnant, I started researching them and grew increasingly uncomfortable

about them. I decided that my little girl would not be getting any vaccines.

>

> Well, she was born 6 weeks premature. The hospital refused to listen to me

when I told them no shots and no eye ointment. They said that it was state law

and they had to do it. That is not entirely correct - I live in TN and they do

allow for parental refusal for religious reasons. But the hospital wouldn't

respect our wishes and gave the Vitamin K and eye ointment anyway. Dakota was

too early and her lungs had not fully developed. She had to be resuscitated

several times and was ultimately transferred to another hospital that night.

>

> She was in the NICU3 for 10 days, getting all sorts of medications. But we

did refuse the Hep B shot and they respected that. Hopefully the medications

that she already had has not harmed her.

>

> Anyway, she is two months old now. We refused vaccinations at the last

appointment. The doctor made us sign a waiver that we would not hold them

liable if she did get sick. They said that they really want us to consider

giving her the RSV shot and the flu shot next fall. Otherwise, they were fine

with our decision and didn't ask too many questions.

>

> *But, they said that since we aren't doing vaccinations and with her being a

preemie, that she is at greater risk for getting sick. They do not want us to

take her in public or allow her exposure to other children for at least a year.

What do you all think of that?

>

> *My husband doesn't fully agree with not doing shots. He's going along with

it so far, but I see strong doubt. I worry that he may try to get them for her

behind my back. Do I have any say in that-to prevent her from getting them if

he were to do that? I sure hope he doesn't, but I have a feeling that it would

be out of my hands if he did.

>

> *For me to enter college (nursing), I am told that I need to " prove immunity "

to Measles, Mumps and Rubella. I was vaccinated as a child, but my records were

destroyed in a flood and my old school does not show my immunizations for some

reason. I had bloodwork done, but do not have antibodies for Mumps. Does

anyone know any way around my having to get a shot for this? They say that I

have to have it before they will allow me to start classes.

>

> Thanks everyone!

> ~Katrina

>

[Guest guest]

I am from TN also...the Knoxville area =)

________________________________

From: Tina Shang <rogersvillemom@...>

Vaccinations

Sent: Wednesday, March 11, 2009 10:07:37 PM

Subject: Re: New Here With Questions

Katrina,

Where in TN are you located? I am in ville TN and did not have any

problems when I refused Hep and Vit K for my now 5 month old however he also

was not premature which may have been a reason why they reacted differently.

Anyway its just nice to see another person from TN on here. Welcome.

Tina

On Wed, Mar 11, 2009 at 9:23 PM, submissive_tiger_kitten <

princessbootzz@...> wrote:

>  Hi Everyone!

>

> I am new to this group. I have always been opposed to vaccines, but never

> really knew why. I got all of my scheduled ones, but it never felt " right "

> to me.

>

> While pregnant, I started researching them and grew increasingly

> uncomfortable about them. I decided that my little girl would not be getting

> any vaccines.

>

> Well, she was born 6 weeks premature. The hospital refused to listen to me

> when I told them no shots and no eye ointment. They said that it was state

> law and they had to do it. That is not entirely correct - I live in TN and

> they do allow for parental refusal for religious reasons. But the hospital

> wouldn't respect our wishes and gave the Vitamin K and eye ointment anyway.

> Dakota was too early and her lungs had not fully developed. She had to be

> resuscitated several times and was ultimately transferred to another

> hospital that night.

>

> She was in the NICU3 for 10 days, getting all sorts of medications. But we

> did refuse the Hep B shot and they respected that. Hopefully the medications

> that she already had has not harmed her.

>

> Anyway, she is two months old now. We refused vaccinations at the last

> appointment. The doctor made us sign a waiver that we would not hold them

> liable if she did get sick. They said that they really want us to consider

> giving her the RSV shot and the flu shot next fall. Otherwise, they were

> fine with our decision and didn't ask too many questions.

>

> *But, they said that since we aren't doing vaccinations and with her being

> a preemie, that she is at greater risk for getting sick. They do not want us

> to take her in public or allow her exposure to other children for at least a

> year. What do you all think of that?

>

> *My husband doesn't fully agree with not doing shots. He's going along with

> it so far, but I see strong doubt. I worry that he may try to get them for

> her behind my back. Do I have any say in that-to prevent her from getting

> them if he were to do that? I sure hope he doesn't, but I have a feeling

> that it would be out of my hands if he did.

>

> *For me to enter college (nursing), I am told that I need to " prove

> immunity " to Measles, Mumps and Rubella. I was vaccinated as a child, but my

> records were destroyed in a flood and my old school does not show my

> immunizations for some reason. I had bloodwork done, but do not have

> antibodies for Mumps. Does anyone know any way around my having to get a

> shot for this? They say that I have to have it before they will allow me to

> start classes.

>

> Thanks everyone!

> ~Katrina

>

> 

>

--

Tina D. Shang

ville Online

http://www.rogersvilleonline.com

[Guest guest]

Hi Katrina, I'm in TN too, in Memphis.

I would definitely get a DVD for you and your husband, and also a book like Neil

Z. 's Guide to Vaccination. The reason why your husband has doubt is

because he does not have all the information needed to make a decision.

Keep on learning.

Vida

>

> Hi Everyone!

>

> I am new to this group. I have always been opposed to vaccines, but never

really knew why. I got all of my scheduled ones, but it never felt " right " to

me.

>

> While pregnant, I started researching them and grew increasingly uncomfortable

about them. I decided that my little girl would not be getting any vaccines.

>

> Well, she was born 6 weeks premature. The hospital refused to listen to me

when I told them no shots and no eye ointment. They said that it was state law

and they had to do it. That is not entirely correct - I live in TN and they do

allow for parental refusal for religious reasons. But the hospital wouldn't

respect our wishes and gave the Vitamin K and eye ointment anyway. Dakota was

too early and her lungs had not fully developed. She had to be resuscitated

several times and was ultimately transferred to another hospital that night.

>

> She was in the NICU3 for 10 days, getting all sorts of medications. But we

did refuse the Hep B shot and they respected that. Hopefully the medications

that she already had has not harmed her.

>

> Anyway, she is two months old now. We refused vaccinations at the last

appointment. The doctor made us sign a waiver that we would not hold them

liable if she did get sick. They said that they really want us to consider

giving her the RSV shot and the flu shot next fall. Otherwise, they were fine

with our decision and didn't ask too many questions.

>

> *But, they said that since we aren't doing vaccinations and with her being a

preemie, that she is at greater risk for getting sick. They do not want us to

take her in public or allow her exposure to other children for at least a year.

What do you all think of that?

>

> *My husband doesn't fully agree with not doing shots. He's going along with

it so far, but I see strong doubt. I worry that he may try to get them for her

behind my back. Do I have any say in that-to prevent her from getting them if

he were to do that? I sure hope he doesn't, but I have a feeling that it would

be out of my hands if he did.

>

> *For me to enter college (nursing), I am told that I need to " prove immunity "

to Measles, Mumps and Rubella. I was vaccinated as a child, but my records were

destroyed in a flood and my old school does not show my immunizations for some

reason. I had bloodwork done, but do not have antibodies for Mumps. Does

anyone know any way around my having to get a shot for this? They say that I

have to have it before they will allow me to start classes.

>

> Thanks everyone!

> ~Katrina

>