Re: Article on CMT research beneficial to patients

[Guest guest]

Article on CMT research beneficial to patients

Windsor Star Published: Wednesday, November 26, 2008

Regarding White's letter: Condition's description unduly

negative, dad says, Nov. 19.

I share your understanding that Charcot-Marie Tooth disease is not,

in fact, a fatal disease but it does affect each person differently

and pain, surgeries and deformities caused by muscle atrophy are very

common.

While I am happy for your son, who appears to be doing very well, I

also have been dealing with CMT since my early teens.

I am now in my mid-40s and, unlike your son, by 30 I was wearing

orthopedic devices and had various surgeries with more to come in the

near future.

But regardless of that, I think you missed the point entirely.

You should be extremely pleased that there is some funding to study

this disease, which is more common than muscular dystrophy but with

far less attention.

Share the article with your son. I'm sure he's old enough to face the

facts and appreciate the positives that this research may bring.

Sharon Zakoor

LaSalle