Re: Parents who want to recover kids trying to allay their own inadequacy

[Guest guest]

My response (I have a short fuse for this type of thing, sorry)

I've often thought the same thing-- in reverse. I think a lot of

mothers who are afraid of or eschew alternative recovery methods are

suffering from social insecurities and a terror of being orphaned by

convention. I think some are just frightened and I sympathize, but

anyone unleashing a pop-psych valentine like this has got a few

icecubes in their heart and axiomatically projects the " chill "

elsewhere. People like this read studies and articles on recovery

about as deeply as an upside down frisbee, already knowing what they

want to hear. Then when the wave of panic hits them-- the notion of

how much work and inconvenience these alt treatments and from-scratch

restricted diets involve and the risk of being shunned by friends and

their trusted medical authorities-- they decide that their child is

just not worth it. Not worth the loneliness, not worth the sheer

labor, not worth the cost, not worth the danger of straying outside

the social fold.

Better to pop a Prozac and be marginally accepted at the playgroups

and Kindermusik classes as a " struggling mom of disabled child " than

to scare all those " frenemies " with normal kids who-- when push comes

to shove-- are going to stop inviting said struggling mom to showers

and birthdays and such once that cute little autistic tot becomes too

big and loud and, well, just embarrassing and bothersome. And that's

whether struggling mom uses alternative treatments or not because

even the alt methods don't work overnight. Better to just take that

prescription of antipsychotics from the nice doc who gave all the

shots-- which are well known to shorten lifespan by a quarter

century, cause diabetes, tardive dyskinesia and psychosis. Better to

ignore those icky GI issues, raging quantifiable yeast and easily

assessed mitochondrial dysfunction. Easy to ignore the ubiquitous

mercury body burden which will eventually lead to heightened risk of

reproductive and other cancers and early cardiac death.

Because unconditional love is not convenient, will lose you friends,

support, will cost you your house and make life, you know, hard. The

only upside is that you might get your kid back.

November 27, 5:13 PM

>

> Posting here without commentary - it speaks for itself

>

>

> " I believe a lot of warrior moms love their children, but they

don’t love them unconditionally. They try untested therapies to

allay their own feelings of inadequacy. "

>

> http://www.examiner.com/x-949-New-York-Schools-Examiner~y2008m11d26-

Confessions-of-an-autism-mother-I-am-not-a-warrior-mom

>

[Guest guest]

I love this comment (emphasis mine):"I've often thought the same thing-- in reverse. I think a lot of mothers who are afraid of or eschew alternative recovery methods are suffering from social insecurities and a terror of being orphaned by convention. I think some are just frightened and I sympathize, but anyone unleashing a pop-psych valentine like this has got a few icecubes in their heart and axiomatically projects the "chill" elsewhere. People like this read studies and articles on recovery about as deeply as an upside down frisbee, already knowing what they want to hear. Then when the wave of panic hits them-- the notion of how much work and inconvenience these alt treatments and from-scratch restricted diets involve and the risk of being shunned by friends and their trusted medical authorities-- they decide that their child is just not worth it. Not worth the loneliness, not worth the sheer labor, not worth the cost, not worth the danger of straying outside the social fold. Better to pop a Prozac and be marginally accepted at the playgroups and Kindermusik classes as a "struggling mom of disabled child" than to scare all those "frenemies" with normal kids who-- when push comes to shove-- are going to stop inviting said struggling mom to showers and birthdays and such once that cute little autistic tot becomes too big and loud and, well, just embarrassing and bothersome. And that's whether struggling mom uses alternative treatments or not because even the alt methods don't work overnight. Better to just take that prescription of antipsychotics from the nice doc who gave all the shots-- which are well known to shorten lifespan by a quarter century, cause diabetes, tardive dyskinesia and psychosis. Better to ignore those icky GI issues, raging quantifiable yeast and easily assessed mitochondrial dysfunction. Easy to ignore the ubiquitous mercury body burden which will eventually lead to heightened risk of reproductive and other cancers and early cardiac death. Because unconditional love is not convenient, will lose you friends, support, will cost you your house and make life, you know, hard. The only upside is that you might get your kid back.""I believe a lot of warrior moms love their children, but they don’t love them unconditionally. They try untested therapies to allay their own feelings of inadequacy."

[Guest guest]

;~D Thanks.

>

> I love this comment (emphasis mine):

>

> " I've often thought the same thing-- in reverse. I think a lot of

> mothers who are afraid of or eschew alternative recovery methods are

[Guest guest]

Even Pub Med has an article about improving diet and sleep can help

a child recover.

1: Neuropsychol Rev. 2008 Dec;18(4):339-66. Epub 2008 Nov 14. Links

Can children with autism recover? If so, how?

Helt M, Kelley E, Kinsbourne M, Pandey J, Boorstein H, Herbert M,

Fein D.

Department of Psychology, University of Connecticut, Storrs, CT,

06268, USA, molly.helt@....

Although Autism Spectrum Disorders (ASD) are generally assumed to be

lifelong, we review evidence that between 3% and 25% of children

reportedly lose their ASD diagnosis and enter the normal range of

cognitive, adaptive and social skills. Predictors of recovery include

relatively high intelligence, receptive language, verbal and motor

imitation, and motor development, but not overall symptom severity.

Earlier age of diagnosis and treatment, and a diagnosis of Pervasive

Developmental Disorder-Not Otherwise Specified are also favorable

signs. The presence of seizures, mental retardation and genetic

syndromes are unfavorable signs, whereas head growth does not predict

outcome. Controlled studies that report the most recovery came about

after the use of behavioral techniques. Residual vulnerabilities

affect higher-order communication and attention. Tics, depression and

phobias are frequent residual co-morbidities after recovery. Possible

mechanisms of recovery include: normalizing input by forcing

attention outward or enriching the environment; promoting the

reinforcement value of social stimuli; preventing interfering

behaviors; mass practice of weak skills; reducing stress and

stabilizing arousal. Improving nutrition and sleep quality is non-

specifically beneficial.

PMID: 19009353

In EOHarm , Jim Witte wrote:

>

> I love this comment (emphasis mine):

>

> " I've often thought the same thing-- in reverse. I think a lot of

> mothers who are afraid of or eschew alternative recovery methods

are

> suffering from social insecurities and a terror of being orphaned

by

> convention. I think some are just frightened and I sympathize, but

> anyone unleashing a pop-psych valentine like this has got a few

> icecubes in their heart and axiomatically projects the " chill "

> elsewhere. People like this read studies and articles on recovery

> about as deeply as an upside down frisbee, already knowing what

they

> want to hear. Then when the wave of panic hits them-- the notion

of

> how much work and inconvenience these alt treatments and from-

scratch

> restricted diets involve and the risk of being shunned by friends

and

> their trusted medical authorities-- they decide that their child

is

> just not worth it. Not worth the loneliness, not worth the sheer

> labor, not worth the cost, not worth the danger of straying

outside

> the social fold.

>

> Better to pop a Prozac and be marginally accepted at the

playgroups

> and Kindermusik classes as a " struggling mom of disabled child "

than

> to scare all those " frenemies " with normal kids who-- when push

comes

> to shove-- are going to stop inviting said struggling mom to

showers

> and birthdays and such once that cute little autistic tot becomes

too

> big and loud and, well, just embarrassing and bothersome. And

that's

> whether struggling mom uses alternative treatments or not because

> even the alt methods don't work overnight. Better to just take

that

> prescription of antipsychotics from the nice doc who gave all the

> shots-- which are well known to shorten lifespan by a quarter

> century, cause diabetes, tardive dyskinesia and psychosis. Better

to

> ignore those icky GI issues, raging quantifiable yeast and easily

> assessed mitochondrial dysfunction. Easy to ignore the ubiquitous

> mercury body burden which will eventually lead to heightened risk

of

> reproductive and other cancers and early cardiac death.

> Because unconditional love is not convenient, will lose you

friends,

> support, will cost you your house and make life, you know, hard.

The

> only upside is that you might get your kid back. "

>

> On Nov 27, 2008, at 4:02 PM,

> wrote:

> > " I believe a lot of warrior moms love their children, but they

> > don't love them unconditionally. They try untested therapies to

> > allay their own feelings of inadequacy. "

> >

>

[Guest guest]

---This states to me that the parents whom refuse to try so called

alternative feel inadequate about themselvs.Firstly I will say I have

used nothing alternative. My child was loaded with mercury so I used

standard medical treatment chelation. Doctors use chelation all the

time very popular in the 70 " s. I use the standard nutrients used in

mitochondrial disorder reccomended by the UMF to help with the mercury

damaged mitochondria in my childs body.As far as diet Folks with fatty

acid disorders usually have celiac and the yeast in the hep-b vaccine

is associated with chrones/colitis. It was totally reasonable to take

wheat away since the diahrea was oozing all over the place.If I was

insecure ,feeling inadequate,or a lazy slouch whom did not

unconditionally love my baby I would have taken the lazy way out and

used antipsychotics.Folks whom do not want to help thier childrens

medical issues do not unconditionally love them If they did they

wouldnt be looking for an easy out. I have had folks even say to me " to

do what you do/have done is too hard. I am not as strong as you " ie[i

do not love my kid that much to do all that work.] Mining for studies

or quotes from whomever the pharmies prop up is to justify thier frank

neglect of thier children is an easy out for the lazy slugs.In

EOHarm , wrote:

>

> Posting here without commentary - it speaks for itself

>

>

> " I believe a lot of warrior moms love their children, but they

don’t love them unconditionally. They try untested therapies to allay

their own feelings of inadequacy. "

>

> http://www.examiner.com/x-949-New-York-Schools-Examiner~y2008m11d26-

Confessions-of-an-autism-mother-I-am-not-a-warrior-mom

>

[Guest guest]

everyone needs to post a comment on the site.

maurine>> Posting here without commentary - it speaks for itself> > > "I believe a lot of warrior moms love their children, but they don’t love them unconditionally. They try untested therapies to allay their own feelings of inadequacy."> > http://www.examiner

..com/x-949- New-York- Schools-Examiner ~y2008m11d26-Confessions- of-an-autism- mother-I- am-not-a- warrior-mom>

[Guest guest]



People should also remember that ABA was "untested" for a long time after Lovaas did his study in the 70's. Mainstream medicine takes a really long time to determine that something should be the "gold standard". Many of the treatments that we are doing will be considered mainstream 20 years from now. The difference between us and the people who are waiting for science to validate the treatments is that we aren't willing to wait for mainstream medicine to catch up. I have a friend whose son was a few years older than mine. She was told that ABA was "child abuse" by the ASA and never did it. By the time it was accepted her son was older and it was hard to get someone to work with her kid. My son is fourteen now and I had to go against all professional advice when I placed my son in an ABA school when he was 3. All of the really facinating stuff involving mitochondria and neuroinflammation isn't on the radar of most professionals yet. I'm not willing to wait for it to get to them.

--------------- Ezorsezor@...

From: EOHarm [mailto:EOHarm ] On Behalf Of sammysouthieSent: Thursday, November 27, 2008 6:20 PMTo: EOHarm Subject: Re: Parents who want to recover kids trying to "allay their own inadequacy"

---This states to me that the parents whom refuse to try so called alternative feel inadequate about themselvs.Firstly I will say I have used nothing alternative. My child was loaded with mercury so I used standard medical treatment chelation. Doctors use chelation all the time very popular in the 70"s. I use the standard nutrients used in mitochondrial disorder reccomended by the UMF to help with the mercury damaged mitochondria in my childs body.As far as diet Folks with fatty acid disorders usually have celiac and the yeast in the hep-b vaccine is associated with chrones/colitis. It was totally reasonable to take wheat away since the diahrea was oozing all over the place.If I was insecure ,feeling inadequate,or a lazy slouch whom did not unconditionally love my baby I would have taken the lazy way out and used antipsychotics.Folks whom do not want to help thier childrens medical issues do not unconditionally love them If they did they wouldnt be looking for an easy out. I have had folks even say to me "to do what you do/have done is too hard. I am not as strong as you" ie[i do not love my kid that much to do all that work.] Mining for studies or quotes from whomever the pharmies prop up is to justify thier frank neglect of thier children is an easy out for the lazy slugs.In EOHarm , wrote:>> Posting here without commentary - it speaks for itself> > > "I believe a lot of warrior moms love their children, but they don’t love them unconditionally. They try untested therapies to allay their own feelings of inadequacy."> > http://www.examiner.com/x-949-New-York-Schools-Examiner~y2008m11d26-Confessions-of-an-autism-mother-I-am-not-a-warrior-mom>

[Guest guest]



I would venture to guess that National ASA did not say ABA is child abuse. It was probably one person's opinion.

Candyce

RE: Re: Parents who want to recover kids trying to "allay their own inadequacy"

 People should also remember that ABA was "untested" for a long time after Lovaas did his study in the 70's. Mainstream medicine takes a really long time to determine that something should be the "gold standard". Many of the treatments that we are doing will be considered mainstream 20 years from now. The difference between us and the people who are waiting for science to validate the treatments is that we aren't willing to wait for mainstream medicine to catch up. I have a friend whose son was a few years older than mine. She was told that ABA was "child abuse" by the ASA and never did it. By the time it was accepted her son was older and it was hard to get someone to work with her kid. My son is fourteen now and I had to go against all professional advice when I placed my son in an ABA school when he was 3. All of the really facinating stuff involving mitochondria and neuroinflammation isn't on the radar of most professionals yet. I'm not willing to wait for it to get to them.

--------------- Ezorsezoracedsl

From: EOHarm [mailto:EOHarm ] On Behalf Of sammysouthieSent: Thursday, November 27, 2008 6:20 PMTo: EOHarm Subject: Re: Parents who want to recover kids trying to "allay their own inadequacy"

---This states to me that the parents whom refuse to try so called alternative feel inadequate about themselvs.Firstly I will say I have used nothing alternative. My child was loaded with mercury so I used standard medical treatment chelation. Doctors use chelation all the time very popular in the 70"s. I use the standard nutrients used in mitochondrial disorder reccomended by the UMF to help with the mercury damaged mitochondria in my childs body.As far as diet Folks with fatty acid disorders usually have celiac and the yeast in the hep-b vaccine is associated with chrones/colitis. It was totally reasonable to take wheat away since the diahrea was oozing all over the place.If I was insecure ,feeling inadequate,or a lazy slouch whom did not unconditionally love my baby I would have taken the lazy way out and used antipsychotics.Folks whom do not want to help thier childrens medical issues do not unconditionally love them If they did they wouldnt be looking for an easy out. I have had folks even say to me "to do what you do/have done is too hard. I am not as strong as you" ie[i do not love my kid that much to do all that work.] Mining for studies or quotes from whomever the pharmies prop up is to justify thier frank neglect of thier children is an easy out for the lazy slugs.In EOHarm , wrote:>> Posting here without commentary - it speaks for itself> > > "I believe a lot of warrior moms love their children, but they don’t love them unconditionally. They try untested therapies to allay their own feelings of inadequacy."> > http://www.examiner.com/x-949-New-York-Schools-Examiner~y2008m11d26-Confessions-of-an-autism-mother-I-am-not-a-warrior-mom>