Re: Bodies In Rebellion vs. Change.org

[Guest guest]

I endorsed Dr. Stoller's site in my comment.. I am having the same

thing going on.. tons of comments vs. actual votes. People aren't

realizing they have to follow the directions to vote... Some comments

are actually doing some good on my idea because it's giving me

feedback for writing the request for a Presidential ACT. I don't

think they realize that getting to talk to or email the President

isn't quite that simple ! E. , Sr.

>

> I think we have a problem. Check out signatures on Bodies In Rebellion

> >> 433 vs. 318 votes on change! Some are comments to the President.

>

> Let's email again & make it clear they have to go to Change.org to vote.

>

> Kathy

>

[Guest guest]

This just went into the AoA hopper.. And Change.org does seem to have a few kinks - I wonder if it shows on the profile views OTHER causes people have voted for, but not the one(s) YOU'VE voted for? AARGG! TWO typos.. Oh well, one of them is in the number, which I hope will be higher by the time this might get published.."Only 340 Votes?? We Can Do Better Than This..(As of 1:50 AM December 13) If you do know what I'm talking about here - good. I hope you voted for it (if not please do so now). If not - well, the lines of communication in the autism community are not quite as robust as we'd like sometimes, and having a ASD kid or two to raise full-time probably doesn't give much most of us as much free time as we'd like.So, if you don't know what this is talking about - it's K.P. Stoller's cause on Change.org cause called Bodies-In-Rebellion (http://www.change.org/ideas/view/bodies_in_rebellion). Change.org was set up by the Obama people to solicit ideas for possible policy initiatives, and potentially get REAL ACTION done. The top 10 ideas will be presented to President Obama on Inauguration day, after two rounds of voting. Secondly, a nonprofit sponsor for each idea will be selected to "promote" the idea to the Administration and to Congress. The details are can be found (http://www.change.org/ideas/faq).Voting is "relatively" straightforward. You register with Change.org, go to the webpage for the cause, and then click on the icon next to the name that has the number of current votes, which will increased immediately after you click on it. The Bodies-In-Rebellion cause is currently only in third place in the health care category, and could easily be knocked out quickly. Only the top 3 causes advance to the second round of voting, which begins on January 1. Then the top 3 from each category compete against each other.From the signing statement, all of which can be found of Stoller's main website (http://www.bodiesinrebellion.com/)."We believe that the many neurotoxins we are exposed to threaten the viability of human life on Earth and that affected children are the 'canaries in the coal mine.' Many illnesses, including breast cancer, prostate cancer [..] have their origins in the rising levels of pernicious chemicals we come in contact with [..] Today, almost 1 out of 3 American children suffer from at least one chronic illness, and 12 million have some form of developmental disorder. The U.S. has the 4th highest incidence of childhood cancer in the world. Since the 1970's, there has been a 50% increase in childhood acute lymphocytic leukemia and a 35% increase in brain cancer."Now, this will not be a panacea as it were for the autism crisis, or even a guarantee of getting our collective voice listened to (or the right parts of it). The Obama Administration can decided to reject ideas that "won't receive serious consideration from the Administration or the 111'th Congress". Secondly, it is not clear how the "nonprofit sponsor" would be selected. We all know who the two-thousand pound gorilla in the autism world is.. (Hint: it's not NAA or ARI). And they won't do diddly.But it's worth a shot (no pun inteded). Bodies In Rebellion is currently in third place in the first round of voting - which is only within each category. It trails by A LOT of votes (about 500) behind "Single Payer Health Care Plan". Whatever you think about such a plan, it is very broad, hard to implement ("the Devil is in the details" as they say), would have problems of it's own (every insurance system does), and most importantly, HAS BEEN TALKED ABOUT FOREVER by one political person or another, and perhaps most importantly, is ALREADY in Obama's stated agenda.With the number of families affected by autism in the United States alone, the vote total for this should be well over a thousand by now. It isn't. It's only at 339. I know that this idea has been talked about within the Halls of Power before. Perhaps this time would be no different. Or maybe it's a way to bring about the change we know MUST happen sooner than it would otherwise. Maybe not. But we won't know unless we try.I would also encourage EVERYONE who registers and votes to leave a comment - about your child, about your experience, about your observations of "the short bus", exploding special education in your child's schools. This is NOT limited to autism, but also to autoimmunity, allergies, food intolerances, of combinations of all of these. Personally, I would prefer that the focus of this entire debate be broadened in the public mind to include things OTHER than autism - because it certainly does, as K.P. Stoller's statement states. A number of comments do speak to these non-autism problems.Let's blow the competition out of the water and show them what American should REALLY care about! VOTE!"JimOn Dec 13, 2008, at 12:07 AM, E. , Sr. wrote:I endorsed Dr. Stoller's site in my comment.. I am having the samething going on.. tons of comments vs. actual votes. People aren'trealizing they have to follow the directions to vote... Some commentsare actually doing some good on my idea because it's giving mefeedback for writing the request for a Presidential ACT. I don'tthink they realize that getting to talk to or email the Presidentisn't quite that simple ! E. , Sr.>> I think we have a problem. Check out signatures on Bodies In Rebellion > >> 433 vs. 318 votes on change! Some are comments to the President. > > Let's email again & make it clear they have to go to Change.org to vote.> > Kathy>

[Guest guest]

I think I finally figured out how to vote. I really did think I

voted before because I clicked on some link to vote and then made a

comment. This time using the link in the e-mail below I registered

and than voted. The vote went from 345 to 346 when I clicked on

vote. Hope I finally did it right. People need to be referred to the

link to register first. Melinda

> > >

> > > I think we have a problem. Check out signatures on Bodies In

> > Rebellion

> > > >> 433 vs. 318 votes on change! Some are comments to the

President.

> > >

> > > Let's email again & make it clear they have to go to

Change.org

> > to vote.

> > >

> > > Kathy

> > >

>

[Guest guest]

Before I went to Strollers main website and signed the letter, I

guess that is not voting? Melinda

> > > >

> > > > I think we have a problem. Check out signatures on Bodies In

> > > Rebellion

> > > > >> 433 vs. 318 votes on change! Some are comments to the

> President.

> > > >

> > > > Let's email again & make it clear they have to go to

> Change.org

> > > to vote.

> > > >

> > > > Kathy

> > > >

> >

>

[Guest guest]

Jim,

Should we wait until AOA publishes to send out with your name? I

haven't seen it there yet.

Great email btw!

Kathy

> > >

> > > I think we have a problem. Check out signatures on Bodies In

> > Rebellion

> > > >> 433 vs. 318 votes on change! Some are comments to the

President.

> > >

> > > Let's email again & make it clear they have to go to

Change.org

> > to vote.

> > >

> > > Kathy

> > >

>

[Guest guest]

I don't know - I haven't gotten an email about when they'll

publish either. Someone else may also have written a piece about it

too (probably better!), and you don't really want two pieces on the

same thing so close together.

The count is going up a bit - it's at 379 now.. Not in the

thousands, but.. Only 700 to go!

Jim

> Should we wait until AOA publishes to send out with your name? I

> haven't seen it there yet.

>

> Great email btw!

>

> Kathy

>

>

> >

> > This just went into the AoA hopper.. And Change.org does seem

> to

> > have a few kinks - I wonder if it shows on the profile views OTHER

> > causes people have voted for, but not the one(s) YOU'VE voted for?

> >

> > AARGG! TWO typos.. Oh well, one of them is in the number,

> which

> > I hope will be higher by the time this might get published..

> >

> > " Only 340 Votes?? We Can Do Better Than This..

> >

> > (As of 1:50 AM December 13) If you do know what I'm talking about

> > here - good. I hope you voted for it (if not please do so now).

> If

> > not - well, the lines of communication in the autism community are

> > not quite as robust as we'd like sometimes, and having a ASD kid

> or

> > two to raise full-time probably doesn't give much most of us as

> much

> > free time as we'd like.

> >

> > So, if you don't know what this is talking about - it's K.P.

> > Stoller's cause on Change.org cause called Bodies-In-Rebellion

> > (http://www.change.org/ideas/view/bodies_in_rebellion).

> Change.org

> > was set up by the Obama people to solicit ideas for possible

> policy

> > initiatives, and potentially get REAL ACTION done. The top 10

> ideas

> > will be presented to President Obama on Inauguration day, after

> two

> > rounds of voting. Secondly, a nonprofit sponsor for each idea

> will

> > be selected to " promote " the idea to the Administration and to

> > Congress. The details are can be found

> (http://www.change.org/ideas/

> > faq).

> >

> > Voting is " relatively " straightforward. You register with

> > Change.org, go to the webpage for the cause, and then click on the

> > icon next to the name that has the number of current votes, which

> > will increased immediately after you click on it. The Bodies-In-

> > Rebellion cause is currently only in third place in the health

> care

> > category, and could easily be knocked out quickly. Only the top 3

> > causes advance to the second round of voting, which begins on

> January

> > 1. Then the top 3 from each category compete against each other.

> >

> > From the signing statement, all of which can be found of

> Stoller's

> > main website (http://www.bodiesinrebellion.com/).

> >

> > " We believe that the many neurotoxins we are exposed to threaten

> the

> > viability of human life on Earth and that affected children are

> the

> > 'canaries in the coal mine.' Many illnesses, including breast

> > cancer, prostate cancer [..] have their origins in the rising

> levels

> > of pernicious chemicals we come in contact with [..] Today, almost

> 1

> > out of 3 American children suffer from at least one chronic

> illness,

> > and 12 million have some form of developmental disorder. The U.S.

> > has the 4th highest incidence of childhood cancer in the world.

> > Since the 1970's, there has been a 50% increase in childhood acute

> > lymphocytic leukemia and a 35% increase in brain cancer. "

> >

> > Now, this will not be a panacea as it were for the autism crisis,

> or

> > even a guarantee of getting our collective voice listened to (or

> the

> > right parts of it). The Obama Administration can decided to

> reject

> > ideas that " won't receive serious consideration from the

> > Administration or the 111'th Congress " . Secondly, it is not clear

> > how the " nonprofit sponsor " would be selected. We all know who

> the

> > two-thousand pound gorilla in the autism world is.. (Hint: it's

> not

> > NAA or ARI). And they won't do diddly.

> >

> > But it's worth a shot (no pun inteded). Bodies In Rebellion is

> > currently in third place in the first round of voting - which is

> only

> > within each category. It trails by A LOT of votes (about 500)

> behind

> > " Single Payer Health Care Plan " . Whatever you think about such a

> > plan, it is very broad, hard to implement ( " the Devil is in the

> > details " as they say), would have problems of it's own (every

> > insurance system does), and most importantly, HAS BEEN TALKED

> ABOUT

> > FOREVER by one political person or another, and perhaps most

> > importantly, is ALREADY in Obama's stated agenda.

> >

> > With the number of families affected by autism in the United

> States

> > alone, the vote total for this should be well over a thousand by

> > now. It isn't. It's only at 339. I know that this idea has

> been

> > talked about within the Halls of Power before. Perhaps this time

> > would be no different. Or maybe it's a way to bring about the

> change

> > we know MUST happen sooner than it would otherwise. Maybe not.

> But

> > we won't know unless we try.

> >

> > I would also encourage EVERYONE who registers and votes to leave a

> > comment - about your child, about your experience, about your

> > observations of " the short bus " , exploding special education in

> your

> > child's schools. This is NOT limited to autism, but also to

> > autoimmunity, allergies, food intolerances, of combinations of all

> of

> > these. Personally, I would prefer that the focus of this entire

> > debate be broadened in the public mind to include things OTHER

> than

> > autism - because it certainly does, as K.P. Stoller's statement

> > states. A number of comments do speak to these non-autism problems.

> >

> > Let's blow the competition out of the water and show them what

> > American should REALLY care about! VOTE! "

> >

> > Jim

> >

>