Re: Re: Can Children with Autism Recover? If So, How?

[Guest guest]

I went to the pediatrician the other day to ask for a referral to a feeding specialist for my ASD kid's food rigidity. I have been laying all kinds of bio-med info on him. He told me he will eat when he is hungry and told me that casein is a wheat. He doesn't know anything about Autism and isn't trying. I was so angry that day. He just dismissed me, but not before he offered flu shots. He is a moron and so are the rest of the peds. in that practice. We will be waiting an awful long time before the AAP offers us anything for treatment. He did although, give me a referral for Stanford. I don't know what they will do or what I should be looking for. I would like the Porphorine test,(spelling), you know the one I want. Does anyone have any suggestions on tests at Stanford?I think they will want to do genetic testing and maybe EEG.

Candyce

Re: Can Children with Autism Recover? If So, How?

Recovery and Lovaas seem to go hand in hand. How does one recoverfrom a neurobiological disorder ? Interesting concept.. I know manykids make alot of progress that makes them 'like' their peers...butrecovered and ASD's don't seem to go hand in hand.. it's seems likethe 'recovered' is more of a 'mis diagnosed' case. The spread of3-25% is another 'hard thing to swallow'... thats a HUGE range.My son is Autistic and we love him for who he is.. if he were tomiraculously 'recover' he wouldn't be the special and so lovedaddition to our family. E. , Sr.> > > we review evidence that between 3% and 25% of children reportedly > > lose their ASD diagnosis and enter the normal range> > > of cognitive, adaptive and social skills.> > 25% doesn't sound that high - not with the number of kids out > there.. And the "normal range of cognitive, adaptive, and> social skills" - how exactly are they defining "normal"? (For that > matter, what is the range of "recovered" for successful bio-> med treatment?) I haven't read the article, but are they talking > only about the neurological problems, or everything else than> Kanner forgot to mention back in 1943?> > That raises another question. Playing Devil's advocate here, > apparently AgeOfAutism a while back ran a story about> "tens of thousands of recovered kids". Of course the NDers (Kev L. - > the only one I check even occasionally) attacked this,> looking for primary literature. He found ONE report on Pubmed > (which he then went on to say was in an "alternative med-> ical" journal and so didn't count). That aside (who ELSE is going to > publish?), why AREN'T there more published reports> in ANY medical journals? How much money does it take to get > something published? If there are documented recoveries,> why aren't they getting published SOMEWHERE? True, JAMA is probably > not going to publish anything like that anytime> soon - not until Hell freezes over, and Satan develops vaccine- > induced-autism-like-symptoms.. (Anybody know if Satan has> a mitochondria disorder?). But there are other journals. This would > still be a target for the NDers/anti-biomed-crowd, but at> least not so much of an obvious one.> > Jim>

[Guest guest]

My pediatrician is as lame as yours. I refer to him as 'a banannahead'. He

teaches at Harvard Medical School too. So he's bringing up generations of

mini-banannaheads in his wake. OH! and the worst part....he has a kid on the

Spectrum. I call him our ped. because we haven't found anyone worth switching

too, but I won't let him near my kid. Anyway, you can get the french porphyrins

test all on your own if you'd like, go to labbio.net. Good luck with all this,

Alison M.

--------- Re: Can Children with Autism Recover? If So, How?

>

>

> Recovery and Lovaas seem to go hand in hand. How does one recover

> from a neurobiological disorder ? Interesting concept.. I know many

> kids make alot of progress that makes them 'like' their peers...but

> recovered and ASD's don't seem to go hand in hand.. it's seems like

> the 'recovered' is more of a 'mis diagnosed' case. The spread of

> 3-25% is another 'hard thing to swallow'... thats a HUGE range.

> My son is Autistic and we love him for who he is.. if he were to

> miraculously 'recover' he wouldn't be the special and so loved

> addition to our family.

> E. , Sr.

>

> > > > we review evidence that between 3% and 25% of children reportedly > > lose their ASD diagnosis and enter the normal range> > > of cognitive, adaptive and social skills.> > 25% doesn't sound that high - not with the number of kids out > there.. And the "normal range of cognitive, adaptive, and> social skills" - how exactly are they defining "normal"? (For that > matter, what is the range of "recovered" for successful bio-> med treatment?) I haven't read the article, but are they talking > only about the neurological problems, or everything else than> Kanner forgot to mention back in 1943?> > That raises another question. Playing Devil's advocate here, > apparently AgeOfAutism a while back ran a story about> "tens of thousands of recovered kids". Of course the NDers (Kev L. - > the only one I check even occasionally) attacked this,> looking for primary literature. He found ONE report on Pubmed > (which he then went on to say was in an "alternative med-> ical" journal and so didn't count). That aside (who ELSE is going to > publish?), why AREN'T there more published reports> in ANY medical journals? How much money does it take to get > something published? If there are documented recoveries,> why aren't they getting published SOMEWHERE? True, JAMA is probably > not going to publish anything like that anytime> soon - not until Hell freezes over, and Satan develops vaccine- > induced-autism-like-symptoms.. (Anybody know if Satan has> a mitochondria disorder?). But there are other journals. This would > still be a target for the NDers/anti-biomed-crowd, but at> least not so much of an obvious one.> > Jim>