Re: Dawn/Joan and Zeb's update

[Guest guest]

Hi Dawn,

Thanks for asking. My FIL is about the same. He is home, four houses away from

me, with a feeding tube. The drs have no clue what testing to do next

considering all his testing thus far has been inconclusive. I am running back

and forth changing his tube dressing and trying to figure out a balanced diet

for an 86 yr old guy. After his esphogus dialation he can eat pureed foods. He

wants to eat but can't eat enough for proper nutrition. I am trying to balance

the canned nutrition with his food. I called the hospital dietician but she

couldn't help too much because she is not supposed to consult with patients out

of the hospital. The visiting nurses do not have a dietician on staff. Joan I

wish you were closer. I never realized how difficult this is. I have a new

appreciation for what you do. Zeb met a girl in school this year. He came home

with her phone number and address. She lives very close to us. He begged to call

her during this vacation and invite her to our house. I was

hesitant not knowing anything about her. I actually didn't want Zeb to get his

hopes up and be disappointed if she declined or her parents said no. Zeb called

a few times and always seemed to get a tape. The Mom finally called me and asked

if she could drop off her daughter to visit. had also been asking her Mom

to visit with Zeb. They are a very good match. The Mom never said anything about

her. I actually expected a typical peer. Intellectually they are very similiar.

does not have DS. They sat in Zeb's room and watched a movie. I walked by

often and they seemed to be fine. After the movie I drove them to my FIL's so I

could change his dressing and check on his food intake. The kids were sitting in

the backseat quietly and out of the blue Zeb asked if she liked her first

kiss. My hair stood on end! just smiled as I watch through the rear view

mirror. She has since visited again and the both of them have not left my sight.

I learned to expect teenage

behavior regardless of the disability, something I never expected to happen

this young. Happy New Year to all.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

a043059 wrote:

did I spell your name right? sometimes my spelling is horrible!! Just

thinkin about you and wondering how you were feeling, and how your

father in law is? I thought I read that he was doing better, is he

with you all? just thinkin about ya, hope all is well, HEY ZEB!!!!

Dawn (how I wish everyone had Zeb's sense of humor!)

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[Guest guest]

Go Zeb! What a ladies man! My 14 year old, typical child, is so shy -even he

hasn't had his first kiss yet!!!! Great story and so glad he's found a friend

from school.

Glad to hear things with your FIL are going well, I know your family is

thankful you can do so much for him. Hang in there.

Jayne

charlyne olko wrote:

Hi Dawn,

Thanks for asking. My FIL is about the same. He is home, four houses away from

me, with a feeding tube. The drs have no clue what testing to do next

considering all his testing thus far has been inconclusive. I am running back

and forth changing his tube dressing and trying to figure out a balanced diet

for an 86 yr old guy. After his esphogus dialation he can eat pureed foods. He

wants to eat but can't eat enough for proper nutrition. I am trying to balance

the canned nutrition with his food. I called the hospital dietician but she

couldn't help too much because she is not supposed to consult with patients out

of the hospital. The visiting nurses do not have a dietician on staff. Joan I

wish you were closer. I never realized how difficult this is. I have a new

appreciation for what you do. Zeb met a girl in school this year. He came home

with her phone number and address. She lives very close to us. He begged to call

her during this vacation and invite her to our house. I was

hesitant not knowing anything about her. I actually didn't want Zeb to get his

hopes up and be disappointed if she declined or her parents said no. Zeb called

a few times and always seemed to get a tape. The Mom finally called me and asked

if she could drop off her daughter to visit. had also been asking her Mom

to visit with Zeb. They are a very good match. The Mom never said anything about

her. I actually expected a typical peer. Intellectually they are very similiar.

does not have DS. They sat in Zeb's room and watched a movie. I walked by

often and they seemed to be fine. After the movie I drove them to my FIL's so I

could change his dressing and check on his food intake. The kids were sitting in

the backseat quietly and out of the blue Zeb asked if she liked her first

kiss. My hair stood on end! just smiled as I watch through the rear view

mirror. She has since visited again and the both of them have not left my sight.

I learned to expect teenage

behavior regardless of the disability, something I never expected to happen this

young. Happy New Year to all.

Charlyne

Mom to Zeb 13 DS/OCD/ASD?

a043059 wrote:

did I spell your name right? sometimes my spelling is horrible!! Just

thinkin about you and wondering how you were feeling, and how your

father in law is? I thought I read that he was doing better, is he

with you all? just thinkin about ya, hope all is well, HEY ZEB!!!!

Dawn (how I wish everyone had Zeb's sense of humor!)

--------------------------------------------------

Checkout our homepage for information, bookmarks, and photos of our

kids. Share favorite bookmarks, ideas, and other information by including them.

Don't forget, messages are a permanent record of the archives for our list.

http://groups.yahoo.com/group/

--------------------------------------------

[Guest guest]

Oh wow!!!!! Charlyne!!!!! I was smiling as I was reading, too

sweet, is this something with Zeb that you have seen coming or out

of the blue that he likes a girl, do you think they will go to a

dance or something for school? wouldnt that be fun? How great (and

also a bit scary) to read that our Zeb is really growing up!!!!

I wish you could have some help for your father in law, this must be

very hard to figure out all this, what a wonderful daughter in law

you are, dont forget to take time out for yourself, God Bless you,

Dawn (wish Joan was closer too!)

> did I spell your name right? sometimes my spelling is horrible!!

Just

> thinkin about you and wondering how you were feeling, and how your

> father in law is? I thought I read that he was doing better, is he

> with you all? just thinkin about ya, hope all is well, HEY ZEB!!!!

> Dawn (how I wish everyone had Zeb's sense of humor!)

>

>

>

>

>

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and

photos of our kids. Share favorite bookmarks, ideas, and other

information by including them. Don't forget, messages are a

permanent record of the archives for our list.

http://groups.yahoo.com/group/

> --------------------------------------------

>