Re: Hi everyone - I am new to the list.....

[Guest guest]

Hi ,

I am Viola, Mom to Tammy21, Tania 18, and 13 DS AND PDD(nos). did

not start acting autistic untill the age of 9 . It started out slowly his

first thing he did was stare at his hands as if they were full of diamonds.

is very affectionate. He is verbal. He does play with his toys as well

as stim with them. 's weakest area at school is fine motor skills

also is my youngest and spoiled! LOL. walked at 24 months, and was

completly toilet trained by 5. is also sensitive to loud noises such as a

dogs

barking. He prefers to play alone, however we can engage him for awhile and

he will play with us for short periods of time. suffers greatly with

sensory issues, which are addressed with a large sensory diet. Brushing

protical and joint compressions. 's diagnosis of PDD(nos), is because

while

he displayed some of the charitristics of Autism and did not have all under

one the catagories. Are you close to a childrens hospital?? We had to go 2

hours away from where we lived at the time to columbus childrens hosital, which

had both a down syndrome clinic, and an autism clinic.

good luck hope this helps!!

My son with ds is almost 4, and has developed some behaviors in the

past few months which are concerning to me. All the professionals I

have talked to say that he doesn't have autism, but I still

wonder....

In reading back through posts, it seems like many of you have had

the same experiences with professionals that have worked with your

children, so I guess I'm here to listen and learn

Brady has fairly delayed fine motor skills, his self-help skills are

pretty delayed due to the fact that he's the baby of six and is

pretty much spoiled to death - guess I need to do something about

that LOL He walked at 21 months, but still can't jump and will not

walk up and down stairs independently, even though I think he is

capable. He will walk if we hold one hand though, and can climb up

and down on his tummy and will now butt scoot down He is very

bright in some areas - learns academic things very easily - abcs,

colors, numbers, shapes etc.... knows over 300 signs, but he

doesn't really use them very well in functional language. He loves

to be around other kids, but doesn't seem to be able to break into

their groups, he doesn't understand how to play the way they do.

When he was a baby, he was always more interested in people and we

had to teach him how to play with toys. He doesn't do imaginative

play very well - he'll take animals and make their noises and make

them jump or eat, but he won't play with them for long periods of

time. He is sensitive to some loud noises, but not all - he hates

cheering and when our dog barks a certain bark, and he just cries :

( He has some sensory stuff with foods - he doesn't like cold

things, or foods that are sweet. When he was younger he loved to

spin bowls and watch balls bounce on wooden floors, or down the

stairs - but he has pretty much outgrown that. When he gets

excited he stiffens up his whole body and says ooooh ooooh oooooh

and does this weird thing with his arm. He has always sucked his

tongue as a soothing thing, and he sometimes grinds his teeth.

Sorry this is long - I guess what I'm trying to say is - from this

stuff - do you think I should do further testing.... There aren't

any developmental pediatricians in my area, or even

neuropsychologists, so I don't even know WHO I would take him to for

testing.... He is social, he is snuggly, he points to things, both

in books, and in the environment - he doesn't fit a typical autism

profile, but does that mean he's not on the spectrum? Is autism in

DS different than in the typical autism population? I've tried to

research it, found checklists and such, and looked at the articles

on the riverbend site - but I still am unsure. In some ways, a lot

of the behaviors could be sensory dysfuntion - but that goes with

autism - I just want some input as to whether you experienced

parents think I'm in denial

If you made it this far - THANKS!!

- mom to Brady almost 4 w/ds and his bunch