Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Marcie - Unfortunately I AM a fanatic about the house. I'm sure I drive my poor husband crazy sometimes - I can't always keep things the way I like them so I nag at him to do the work. Poor guy! Anyhow - sorry you are having such a bad flare. It also sounds like you have little ones to try to keep up with as well. I can't imagine! I sure hope the Enbrel helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 SO SORRY YOU ARE HAVING SUCH A HARD TIME. WE DO KLNOW WHAT YOU ARE GOING THROUGH. ALL I CAN SAY IS TAKE IT ONE DAY AT A TIME ONE CHORE AT A TIME. I GIVE MYSELF ONE GOAL A DAY.....BE IT LAUNDRY, DUSTING, FOOD SHOPPING. IF I CAN DO MORE, GREAT. IF NOT I ACCOMPLISH ONE THING AND NOT LET MYSELF GET OVERWELMED. YOU ARE NOT GOING TO DO IT ALL IN A DAY....SO DON'T PUT THAT STRESS ON YOURSELF. ONE DAY, ONE THING. =-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 It's hard but you have to take it one day at a time.....try to do what you can....if you can't do it ..it'll always be there tomm.......try not to be to hard on yourself....I have 4 children and some days I can only get out of bed....others I can do it all....hang in there......MTNCAT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 In a message dated 6/14/01 7:13:46 PM Pacific Daylight Time, bunny55@... writes: > THROUGH. ALL I CAN SAY IS TAKE IT ONE DAY AT A TIME ONE CHORE AT A TIME. > I GIVE MYSELF ONE GOAL A DAY.....BE IT LAUNDRY, DUSTING, FOOD SHOPPING. > bunny- i know just what you mean. i went to the rheumy today and he said no typing till plaquenil kicks in which means no work. i talked to our hr rep to file workmans comp but he said that they might not cover me even though work hurts. the one thing i am lucky for is my son who does the chores around the house for the most part. and right now i will take what i can get. so-till it kicks in i wish everyone pain free days chicagoland sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 --- txtwin2002 <magicman99@...> wrote: > hey guys this is kyle, > i am having a really down > day. i think one > of the worst. maybe i need to change meds. the pain > has been very > bad. i mowed the yard yesterday but it is not big > and i took it nice > and slow but a cold front also came in today so > who knows. i have > been very anxious and can not relax and of course > someone dropped the > ball on the xanax refill..maybe i better go play > some free lotto on > the net..lol. ok i have whined enough! i hope > everyone has a good > day. i would like to set up a chat some time. lets > do it one eve..i > would like some feed back on a time i am in dallas > texas central > time . either during the week or on the weekend. we > can post a time > and date well in advance and everyone can think > about what they > might like to dicuss. i think we should take > advantage of the chat > room as i thiink it would benefit each and everyone > of > us..............wishing you > well......................kyle. > > > Hey , I'm in for the chat room. I'm in San . Evenings are best for me. Let me know. Hope the rest of your week is better. I think we're in for some rain here. I'm really stiff today and haven't been in a good mood either. Guess it goes with the territory. Have a better tomorrow. Terri B. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 Vicki, sorry your day was a bad one. We all have those days, so I know how you feel. Sorry to hear you have strep throat, that is a bummer! We have enough to deal with, without a little extra. I also have to be careful, I seem to get strep throat very easily myself. It's hard for family to realize we can't do it all like we use to. I do the same thing, I try to do what I can, and then hurt so bad, and then just cry. We can only do what we are capable of, and we need to realize it, which is hard to do. I think that you should ask for help, if someone is there to help you. You need to let them know, it's hard for you. You need their help. You try to take it easy, and let those antibiotics work for you. Take some extra vitamin C, and try to rest as much as you can. You need to be waited on for awhile, hugs Tawny PS:were always here to help, and lend an ear. > Well, I totally lost it today. The RA and Fibromyalgia have really been acting up the past few days - yesterday was a two Vicodin day - and then this morning I found out I have strep throat AGAIN! > > The last time was about three weeks ago and sent me to the ER when the swelling in my throat made breathing difficult. I didn't realize that I getting sick this time because I've felt so lousy lately; it was just more of the same. Now I'm on a different antibiotic and a 5- day course of steriods to combat the swelling. > > What made me lose it? The grandkids (ages 4 & 6 who live with us) were being their usual demanding selves. Everyone was waiting around for me to fix them something for dinner. NO ONE was even acknowledging the fact that I was sick or making any effort to help me. The final straw came when I was putting the sheets I had washed this morning back on the bed. I didn't feel up to it, but you've got to have sheets, you know? My hand slipped and forced my fingers to bend toward my palm too hard and fast. I just broke down and cried. A shoulder-heaving, 6-tissue cry. I'm tired of hurting, I'm tired of being sick, and I'm tired of everyone forgetting that I can't do everything I want or that they expect. > > Now my throat is really starting to hurt. Tomorrow I have to watch the 4-yr old (who has ADHD) all day and possibly the 6-yr old if they cancel school. (The weather is starting to get pretty bad here again.) I don't sleep well these days and I'm not looking forward to how I'm going to feel tomorrow. I guess you could say I'm depressed!!! > > Anyway, I think I've whined long enough. I tried to explain to my husband how I was feeling, but there was really nothing he could do. How can he REALLY know what it's like dealing with the pain and fatigue EVERY DAY? How can he understand the frustration of not being able to do simple things like open a bottle or put sheets on the bed without injuring yourself? > > Maybe I'll feel better after I get some rest. I just hope these antibiotics do the trick and do it quickly. > > Thanks for being my shoulder to cry on. I just had to get this out. I'll be OK as soon as I quit crying. " This too shall pass... " > > Vikki > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 (((((((((((VIKKI)))))))))))))))) I totally understand ...one hint .. you might want to tell them that heard somewhere that people who fix dinner who have strep throat can cause food poisoning.. HEHE.. Ok I am trying to be funny... I have been having alot of those 6 tissue cries lately too... Bitch and whine all you want..this is the place to do it. I hope you get better soon Faith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 In a message dated 1/20/2005 11:54:25 P.M. Eastern Standard Time, writes: Subject: Bad Day Vikki: So sorry to hear about your day -- it sounds awful! Today can only be better! (let's hope and pray!) It's so hard for us to ask for what we need, especially help. I try to remember that the better care I take of myself, the more I have to give to others. Hope this helps, if only a little! Anything is an improvement! :-) Love and Prayers, Beth ~*~*~*~*~*~*~*~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 Vikki, I hope today will be much better and that school isn't called off. You've got to tell your husband and son that you are not feeling well enough to do all of the things they want you to do for them and that you need more help. Taking care of two young children is very hard work even for the able-bodied. Grown men can make dinner (or go out and get it) and put sheets on the bed. Peanut butter and jelly sandwiches will keep people alive for a very long time, LOL. Scrambled eggs and toast will also prevent starvation. Even the six-year-old can learn how to make simple meals. Good luck and let us know how you are doing. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Bad Day > > Well, I totally lost it today. The RA and Fibromyalgia have really been > acting up the past few days - yesterday was a two Vicodin day - and then > this morning I found out I have strep throat AGAIN! > > The last time was about three weeks ago and sent me to the ER when the > swelling in my throat made breathing difficult. I didn't realize that I > getting sick this time because I've felt so lousy lately; it was just more > of the same. Now I'm on a different antibiotic and a 5-day course of > steriods to combat the swelling. > > What made me lose it? The grandkids (ages 4 & 6 who live with us) were > being their usual demanding selves. Everyone was waiting around for me to > fix them something for dinner. NO ONE was even acknowledging the fact > that I was sick or making any effort to help me. The final straw came > when I was putting the sheets I had washed this morning back on the bed. > I didn't feel up to it, but you've got to have sheets, you know? My hand > slipped and forced my fingers to bend toward my palm too hard and fast. I > just broke down and cried. A shoulder-heaving, 6-tissue cry. I'm tired > of hurting, I'm tired of being sick, and I'm tired of everyone forgetting > that I can't do everything I want or that they expect. > > Now my throat is really starting to hurt. Tomorrow I have to watch the > 4-yr old (who has ADHD) all day and possibly the 6-yr old if they cancel > school. (The weather is starting to get pretty bad here again.) I don't > sleep well these days and I'm not looking forward to how I'm going to feel > tomorrow. I guess you could say I'm depressed!!! > > Anyway, I think I've whined long enough. I tried to explain to my husband > how I was feeling, but there was really nothing he could do. How can he > REALLY know what it's like dealing with the pain and fatigue EVERY DAY? > How can he understand the frustration of not being able to do simple > things like open a bottle or put sheets on the bed without injuring > yourself? > > Maybe I'll feel better after I get some rest. I just hope these > antibiotics do the trick and do it quickly. > > Thanks for being my shoulder to cry on. I just had to get this out. I'll > be OK as soon as I quit crying. " This too shall pass... " > > Vikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2005 Report Share Posted January 21, 2005 All of us have bad days, but in the end they seem to dissolve over time. Let me tell you of my bad day. It started earlier this month when I went to the ER because of a very high fever, 104+, and was admitted on Wed the 5th. I stayed until that Sunday evening, having signed on for a clinical program testing a new pneumonia drug, Tigecycline. This last Wednesday, I had to go to the hospital for a follow-up and get x-rays for my back problem. I had been building a platform to carry my scooter on, and a receiver hitch for my 62 Ford Galaxie. I got to the hospital with no problems, easily unloaded the scooter, and went inside to see doctors and do a blood lab and more x-rays. Everything went ok except that my doc didn't look at the x-rays and pronounced me well even though my back is pretty bad. Fortunately, I had looked at all the x-rays and decided for myself that it's just something to be careful with. I didn't hear what I expected, but went along with all of it. I went back out to the car and loaded the scooter easily. My design was working well and didn't cost $1000 or more. The car started and I drove almost to the highway when the car suddenly stopped. I pulled it out of traffic and to the side of the road. Keep in mind, this is a 42 year old car. The security guards came, put out cones and started playing 20 questions. They tried to run my drivers license, but it wouldn't work, so there were more questions and even had me try to start the car so they were sure I was telling the truth. They finally left me alone to wait for our friend to come with a trailer to carry the car home. When he got there about an hour later, I looked at the trailer and told him the car wouldn't fit, that he should have brought mine since it's bigger. He swore it would fit and started winching it onto the trailer. When both doors were rubbing the sides, he decided it wouldn't fit. So, it's getting late and the sun had gone down, so I convinced him to pull the car to the parking lot for the night. Then when he brought me home, I left the MTX I had in the floor of his truck. We left it overnight and brought it home yesterday. The timing chain had jumped a couple of teeth, so it'll need some TLC. Now I have the task of finding parts for the old car. It'll be running by the next trip to the hospital, I hope. The moral of the story is that you can be having a bad day, but in my case, I always find someone that has it worse. Now I'm smiling because my bad string of luck has run it's course (I hope) *<} Dennis Bad Day > > > Vikki: > > So sorry to hear about your day -- it sounds awful! Today can only be > better! (let's hope and pray!) > > It's so hard for us to ask for what we need, especially help. I try to > remember that the better care I take of myself, the more I have to give to > others. > > Hope this helps, if only a little! Anything is an improvement! :-) > > > Love and Prayers, > Beth > ~*~*~*~*~*~*~*~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2005 Report Share Posted January 22, 2005 oh, vikki.... i am so sad to hear of your bad day... and STREPP... yuck, i get so sick with that... sure hope you are feling better now... my thoughts are with you.... rae [ ] Bad Day Well, I totally lost it today. The RA and Fibromyalgia have really been acting up the past few days - yesterday was a two Vicodin day - and then this morning I found out I have strep throat AGAIN! The last time was about three weeks ago and sent me to the ER when the swelling in my throat made breathing difficult. I didn't realize that I getting sick this time because I've felt so lousy lately; it was just more of the same. Now I'm on a different antibiotic and a 5-day course of steriods to combat the swelling. What made me lose it? The grandkids (ages 4 & 6 who live with us) were being their usual demanding selves. Everyone was waiting around for me to fix them something for dinner. NO ONE was even acknowledging the fact that I was sick or making any effort to help me. The final straw came when I was putting the sheets I had washed this morning back on the bed. I didn't feel up to it, but you've got to have sheets, you know? My hand slipped and forced my fingers to bend toward my palm too hard and fast. I just broke down and cried. A shoulder-heaving, 6-tissue cry. I'm tired of hurting, I'm tired of being sick, and I'm tired of everyone forgetting that I can't do everything I want or that they expect. Now my throat is really starting to hurt. Tomorrow I have to watch the 4-yr old (who has ADHD) all day and possibly the 6-yr old if they cancel school. (The weather is starting to get pretty bad here again.) I don't sleep well these days and I'm not looking forward to how I'm going to feel tomorrow. I guess you could say I'm depressed!!! Anyway, I think I've whined long enough. I tried to explain to my husband how I was feeling, but there was really nothing he could do. How can he REALLY know what it's like dealing with the pain and fatigue EVERY DAY? How can he understand the frustration of not being able to do simple things like open a bottle or put sheets on the bed without injuring yourself? Maybe I'll feel better after I get some rest. I just hope these antibiotics do the trick and do it quickly. Thanks for being my shoulder to cry on. I just had to get this out. I'll be OK as soon as I quit crying. " This too shall pass... " Vikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2005 Report Share Posted January 24, 2005 Dear Vikki: I am so sorry you are feeling so bad. Sore throats are terrible. I hope you call your Doctor and see if he can suggest anything else. Maybe a different pain med or something. Feel better soon. Sincerely, Colletti Anjillah@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 i used my computer chair to get around and do alot of chores kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 From time to time, I've had problems with my foot where it was once broken and I found wrapping it helped. I've used both elastic bandages and wide tape and the tape seems to do better. I also know with my pain, nothing works but Advil for me. Have you tried different OTC pain relievers? Doctors tend to recommend one brand for their own reasons. Tylenol has never relieved pain for me ... neither has Aleve (and my doctor looked at me like I was crazy when I told her that!). When my foot was broken and I didn't want to use the crutches, I put my knee on a stool and moved around that way. Looked funny but kept my foot from being used! Hugs Pattie along302003 <along3@...> wrote: I am having a very bad day need to clean house but everytime I move my foot is throbbing real bad Have taken pain killers and nothing is helping. Really wish I knew what is going on with my foot Hopefully monday they will call me and schedule the bone scan does anyone have any secrets that can help with foot pain all the doctor told me is stay off it as much as possible and take tylenol as needed I appreciate all the help I get form you guys I guess I better limb my way to the washing machine and get some work done. Thanks again Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Thanks for your reply I have tried different pain relievers nothing seems to help the pain I will have to go buy some wide tape and try that I try to stay off it as much of possible but I work in the childcare field and am on it a lot during the week Hopefully I'll know something soon Thanks Angie > > I am having a very bad day need to clean house but everytime I move > my foot is throbbing real bad Have taken pain killers and nothing > is helping. Really wish I knew what is going on with my foot > Hopefully monday they will call me and schedule the bone scan does > anyone have any secrets that can help with foot pain all the doctor > told me is stay off it as much as possible and take tylenol as > needed I appreciate all the help I get form you guys I guess I > better limb my way to the washing machine and get some work done. > Thanks again > Angie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Hi Angie, Sorry your having a bad day. I would put the cleaning off for another day, it isn't going anywhere. Just try to pamper yourself, and rest your foot, until you can get to the doctor. You sure don't want to make it worse. If you can get in a tub, and soak for awhile that might help, use some Epasom salt(not sure if that is how it's spelled.) If not, just soak your foot, that might help some. The Ace bandage is also a great idea that was mentioned. Will keep you in prayer, and hopefully you can get into the doc on Monday, take care Tawny > > I am having a very bad day need to clean house but everytime I move > my foot is throbbing real bad Have taken pain killers and nothing > is helping. Really wish I knew what is going on with my foot > Hopefully monday they will call me and schedule the bone scan does > anyone have any secrets that can help with foot pain all the doctor > told me is stay off it as much as possible and take tylenol as > needed I appreciate all the help I get form you guys I guess I > better limb my way to the washing machine and get some work done. > Thanks again > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Sorry you are having so much trouble with your foot, Angie. Staying off of it is probably the best thing. Please call the doctor ASAP and tell him that it is throbbing and that the pain is very bad. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] bad day > > > I am having a very bad day need to clean house but everytime I move > my foot is throbbing real bad Have taken pain killers and nothing > is helping. Really wish I knew what is going on with my foot > Hopefully monday they will call me and schedule the bone scan does > anyone have any secrets that can help with foot pain all the doctor > told me is stay off it as much as possible and take tylenol as > needed I appreciate all the help I get form you guys I guess I > better limb my way to the washing machine and get some work done. > Thanks again > Angie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 don't be sorry. we all have days like this. my son is 5 and going into kindergarden and i am so scard. throughout his wonderful life we had ups and downs. it normal but he is really growing and trying to communicate as best as he could. I know the progress is slow but it sure taught me patience. it does get better but I'm not going to lie to you, its a long road. the only advice I could give ya is never give up and don't feel sorry for him. I did that and it caused a lot of behavior in and as he got older it was hard to brake him of these behaviors, especially the hitting. at first it was taps when he was little but then it turned into pushes, and real hits. sooo anyway i don't want you feel worse with this but if I have goals for him and I am working on them, I feel better about myself. maybe working on small goals that are yours and his only you won't feel so helpless. the bullying happens with typical kids I think we are more sensitive with our children(rightfully so) but we have to teach them to be strong and be able to fight back(hopefully but not by chocking and kicking where it hurts, that's what my son did recently). My son also found other ways to communicate without words, he pantimines, acts it out, some sign language, and will bring me to the situation. that helps a lot and they feel good that they found other ways to communicate. always remember that your a great mom and that your doing the best you can and noone can take that away from you. much luck and hope this helped chris audrachanell <audrachanell@...> wrote: I am having a really bad day; my days are up and down. I am having one of my " feeling hopeless and afraid for my 2-YO child's future " days. I am worried about how he must feel not being able to communicate, how he has to deal with such a visible condition for a lifetime, bullying, why him (how selfish of me, right?), etc. I could scream and pull my hair out! He's been receiving services for a little over a month now and no REAL progress. How can I contact or find older apraxic kids, teens or adults? I feel hopeless today, and then I'll be fine tomorrow. I am sorry for complaining ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 I know where you are comming from, I definitely have those days. I think we all do in the begining. But you child has only been in therapy for a month, give it some time, work at home and do everything you can to help you child and advocate for them. Ask lots of questions, it will make you feel better. It does me and I was begining to think that my sons SLP was getting a little irritated with my question, but come to fine out she said I Wish more parents were like you. I am very involved with his therapy and using tools at home to help him. It's a long hard road, but it's worth it. That feeling of helplessness have never gone away for me, but I know that I am doing the best for my son and getting him everything he needs, he just needs to find the strength in himself to overcome this and all I can do is keep reminding him that he can do it and that I couldn't be prouder of him. Have faith in your child, and support and love them. When the new SLP first met my son she thought it was going to be open close...I can get him to talk. It's been about 6 months of therapy with her and the test show that he has shown no progress, she has been able to get my son to open is mouth when he tried to talk which is a HUGE improvement for my son. He has also started trying to imitate with an open mouth (he generally talks with his mouth closed letting the sounds come out of his nose). She has done what I thought he would never be able to do. There are still the thought about the teasing in school, the possibilty that the school will treat him as if he can't learn, and I always have the thought that people judge me and think that I did something to cause it. I even question it myself. But there is nothing you can do about all that now. Right now, the most important thing is to be involved in the process and become and informed parent. I spend the time not working with me son, researching on new teachniques, toys, movies, laws, research and any other resources that can help him. I hope this helps you get through the bad days a little better. they will always be there, but the question to ask yourself is, what are you going to do to make it better for you and your child? Best wishes, keep your head up, you are doing the right thing for your child. Never doubt yourself. le Mother to Curtis, 2 1/2 yr old Dx verbal apraxia audrachanell <audrachanell@...> wrote: I am having a really bad day; my days are up and down. I am having one of my " feeling hopeless and afraid for my 2-YO child's future " days. I am worried about how he must feel not being able to communicate, how he has to deal with such a visible condition for a lifetime, bullying, why him (how selfish of me, right?), etc. I could scream and pull my hair out! He's been receiving services for a little over a month now and no REAL progress. How can I contact or find older apraxic kids, teens or adults? I feel hopeless today, and then I'll be fine tomorrow. I am sorry for complaining ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 For one thing, don't worry about things that are too far in the future. By 5, your son may be talking. I have twin daughters who at 2 were both diagnosed as having apraxia: one moderate and the other severe. At 3, one of them started talking fairly well, and the other didn't. At almost 9, you really can't tell that ever had a speech problem. She is in the gifted education program at school, and she is very advanced in reading, writing, and arithmetic. still has a noticeable speech problem, but she is talking. Academically, she does very well at math. I don't know who is better at math because both and are very good at it. As far as reading, is reading early 3rd grade material, and she is comprehending it well. I think she struggles the most with writing because of her speech problems (word retrieval being one of the issues). Neither of my girls has ever been bullied about their speech. would take being bullied much easier than . At school, they read " Simon's Hook " . It teaches several ways to handle bullies, and really understands how to handle the situation. The only time was bullied was by a girl in 's class who tried to belittle in front of . This little girl wanted to be 's friend. and and their teachers understood what was going on, and it really didn't bother too much. My son who doesn't have speech problems has been teased the most, so even normal kids get teased. I think all kids need to be taught how to handle teasing. Anyway, it is too early to tell what the future holds for your child. Also, remember to look at the positives in your child. My daughter is the hardest worker of my three kids. She never gives up, and therefore she figures out how to do things before her brother and sister. For example, my 11 year old son still doesn't know how to blow bubbles with bubble gum. He tried a few times, and then gave up trying. Over vacation, decided she needed to learn how to blow bubbles with bubble gum. Well, she worked at it for days. She started with small bubbles, and by the end of vacation she was blowing huge bubbles. She never gave up. That's a great attitude that will take her far in life. Suzi > I am having a really bad day; my days are up and down. I am having one > of my " feeling hopeless and afraid for my 2-YO child's future " days. I > am worried about how he must feel not being able to communicate, how he > has to deal with such a visible condition for a lifetime, bullying, why > him (how selfish of me, right?), etc. I could scream and pull my hair > out! He's been receiving services for a little over a month now and no > REAL progress. How can I contact or find older apraxic kids, teens or > adults? I feel hopeless today, and then I'll be fine tomorrow. I am > sorry for complaining ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 There's a great page my brother told me about called the talking page at www.debtstart.com/talk/ It's called the talking page. You can listen to other older and younger apraxic children speak. It may give you a piece of hope, or at least not feel so alone. - Debbie On 8/22/05, audrachanell <audrachanell@...> wrote: > I am having a really bad day; my days are up and down. I am having one > of my " feeling hopeless and afraid for my 2-YO child's future " days. I > am worried about how he must feel not being able to communicate, how he > has to deal with such a visible condition for a lifetime, bullying, why > him (how selfish of me, right?), etc. I could scream and pull my hair > out! He's been receiving services for a little over a month now and no > REAL progress. How can I contact or find older apraxic kids, teens or > adults? I feel hopeless today, and then I'll be fine tomorrow. I am > sorry for complaining ... > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 I also forgot to ask, have you thought about teaching your child sign? I know some therapists don't think it is a good idea. Our first SLP suggested it when my son was 18 months, he's 2 1/2 now and knows more than 150 signs. his new therapist thought it was a bad idea and I began to question myself. But then I thought about what exactly I wanted for my child. I want him to grow up happy and have every opportunity for him to succeed in life. So I decided that first and for most was his quality of life and second was his ability to speak. Lets say he never learns to talk, or is uncomfortable doing it. His new LP now fully agrees and supports me using sign at home. He will always have ASL, a tool that has already changed his life. he is so much more happier. I just thought I would ask if you had considered it. I think that because of the reduced frustration by using sign, my son is better able to focus on his speech and not what he wants to tell me. He knows he can sign it and I will know, then I ask him to try to say the word and sometimes he tries to vocalize it sometime he can't. But in therapy they pretend they don't know sign and he is pushed harder. which I like, but at home I feel it is more important for my child to feel comfortable and safe and loved at home and not have to work all the time on speech, potty training (not going well), eating when it's time, picking up toys, going to bed when it's time, stuff like that. But I do practice with him and make games to where he doesn't even know that we are practicing speech. Hang in there....you're doing just fine!! le audrachanell <audrachanell@...> wrote: I am having a really bad day; my days are up and down. I am having one of my " feeling hopeless and afraid for my 2-YO child's future " days. I am worried about how he must feel not being able to communicate, how he has to deal with such a visible condition for a lifetime, bullying, why him (how selfish of me, right?), etc. I could scream and pull my hair out! He's been receiving services for a little over a month now and no REAL progress. How can I contact or find older apraxic kids, teens or adults? I feel hopeless today, and then I'll be fine tomorrow. I am sorry for complaining ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 I wish you mush luck with Kindergarten. I'm sure your angel with do well. I am all too familiar w/the hitting. There was yet another report of hitting in his communication book last week, " Kellen hit two children in the face 4 times. " I was floored. Here I am worrying about others mistreating him and he likes to hit. What can I do to curb this behavior? Neither explaining to him this isn't the way we treat others or time out seem to do the trick. What can I do about this behavior? When I get like this I find myself calling any and everywhere for suggestion, answers and resources. I just feel so helpless at times and I despise this defeated feeling. We are still working on getting Kellen to sign though it is an uphill battle 99.9% of the. We just keep plugging at it. He has taken pretty well to his picture book and now shows some interest in trying to express himself verbally. I will definitely stay on top of things and thank you for you the encouraging words. > I am having a really bad day; my days are up and down. I am having one > of my " feeling hopeless and afraid for my 2-YO child's future " days. I > am worried about how he must feel not being able to communicate, how he > has to deal with such a visible condition for a lifetime, bullying, why > him (how selfish of me, right?), etc. I could scream and pull my hair > out! He's been receiving services for a little over a month now and no > REAL progress. How can I contact or find older apraxic kids, teens or > adults? I feel hopeless today, and then I'll be fine tomorrow. I am > sorry for complaining ... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 You are absolutely right. I am getting a little better each time at channeling this nervous energy in a more positive direction. What tools are you using at home? Thanks for the support … > I am having a really bad day; my days are up and down. I am having one > of my " feeling hopeless and afraid for my 2-YO child's future " days. I > am worried about how he must feel not being able to communicate, how he > has to deal with such a visible condition for a lifetime, bullying, why > him (how selfish of me, right?), etc. I could scream and pull my hair > out! He's been receiving services for a little over a month now and no > REAL progress. How can I contact or find older apraxic kids, teens or > adults? I feel hopeless today, and then I'll be fine tomorrow. I am > sorry for complaining ... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 Hi Debbie, I came across the Talking Page (thank GOD for it!) a few months ago and I visit it often. You are right, it does give me hope > > I am having a really bad day; my days are up and down. I am having one > > of my " feeling hopeless and afraid for my 2-YO child's future " days. I > > am worried about how he must feel not being able to communicate, how he > > has to deal with such a visible condition for a lifetime, bullying, why > > him (how selfish of me, right?), etc. I could scream and pull my hair > > out! He's been receiving services for a little over a month now and no > > REAL progress. How can I contact or find older apraxic kids, teens or > > adults? I feel hopeless today, and then I'll be fine tomorrow. I am > > sorry for complaining ... > > > > > > Quote Link to comment Share on other sites More sharing options...
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