Bad Day

[Guest guest]

any time!! It wasn't all that long ago that I was just beginning this whole

process. My son likes the little party favors that you blow and it unrolls or

whistles, it helps with breathe support. we play outside bouncing the ball and

practicing words. My son is very active and his therapist found out that when he

is active that he can make the connection between his thoughts and his mouth

better, even though he really doesn't realize he is doing it. So we spend a lot

of time playing. I also got the Vsmile learning system and we play with that. He

loves it and is learning new sounds that he likes to say all the time.

Saari also suggested Talking Tools. There are some neat things in there, that i

plan on trying out. I just got my catalog. But most of that stuff you can get at

the store. this toy is really good too, it's called the V tech sing and Discover

piano. it responds to sounds in the microphone and you don't have to push or

hold down the button to talk in it. The little dog

dances, lights go off and music plays when you make sounds into it. My son

loves that thing. We take turns making funny sounds in the microphone and making

the music. You just have to try out different things and figure out what your

child likes the best. Oh and my son just LOVES bubbles. which is great because

when he wants more bubbles we trying using the words and we get all excited to

make more bubbles. He also like to help around the house. He likes to help put

the close in the dryer, so while we do it we sing the " wash wash wash " song

(totally made up) but it's the same word over and over again. and he will try to

sing with me because he loves to help so much. Just little things like

that...actually now that I type it all out I didn't really realize how much we

actually work on his speech, and here I thought I was tricking him LOL. I hope

maybe something in here will help you. It was all trial and error. I tried flash

cards and although he loved them, he wouldn't respond with

his voice. I have tried reading to him, he doesn't want to be read to at all.

and none of these things work unless he is in his playful mood. so I have to

work him up into it. Curtis like to be told " YOU'RE SO SMART!! " and " GOOD USING

YOU WORDS!! " of course he like that with anything " GOOD USING YOU THANK YOU!! "

and you can just see his little chest poke out and the pride he has

like... " yeah, I did that " . we will do the silly dance and throw our arms in the

air when he attempts to talk. It's actually a lot of fun...I sound like a big

kid huh . I hope something in here helps you. Keep your head up...you're doing

fine!!!

le

audrachanell <audrachanell@...> wrote:

You are absolutely right. I am getting a little better each time at

channeling this nervous energy in a more positive direction. What

tools are you using at home? Thanks for the support …

> I know where you are comming from, I definitely have those days. I

think we all do in the begining. But you child has only been in

therapy for a month, give it some time, work at home and do

everything you can to help you child and advocate for them. Ask lots

of questions, it will make you feel better. It does me and I was

begining to think that my sons SLP was getting a little irritated

with my question, but come to fine out she said I Wish more parents

were like you. I am very involved with his therapy and using tools at

home to help him. It's a long hard road, but it's worth it. That

feeling of helplessness have never gone away for me,

[Guest guest]

I remember being you! I remember thinking even when my son was 3 & 1/2

making up my mind that the only way he would be able to communicate

ever would be through sign language....but he is now 5 years old and

speaking in sentances. Actually we can't seem to shut him up. His

articulation is still behind and so is his language, but never did I

imagine that he would be speaking so much. Your son will make it to.

My son didn't really start speaking in phrases until he was 4 & 1/2. I

thought he would be non-verbal forever. Also, I just wanted to

mention my son has many friends that love playing with him and is very

social in school too. His speech disablity never got in the way of

making friends, still hasn't! So I hope this email brings you hope.

[Guest guest]

i use time out now and really works. if it was a communication reason why he

hit, after the time out i explain that we don't hit we use words and say sorry,

and then ask what was he trying to say. if it was just a bratty thing, we get

time out and he has to say sorry and there is no talking about it. he really is

responding to it. he gets really upset about it but I'm so glad because for a

time he just did not care about getting punished. he was very angrey. he

literally scratched my eyes out one day. was a scarey time but glad it's over.

he is back to my sweet boy, wanting to do good not evil, the dark side did not

take over. LOL oh we also do happy faces and sad faces for behavior. if he had

a good day at school we would get a happy face if he did not he get a sad face.

it really worked too. he would be so proud of his happy faces.

your doing a good job always remember that

chris

audrachanell <audrachanell@...> wrote:

I wish you mush luck with Kindergarten. I'm sure your angel with do

well. I am all too familiar w/the hitting. There was yet another

report of hitting in his communication book last week, " Kellen hit

two children in the face 4 times. " I was floored. Here I am

worrying about others mistreating him and he likes to hit. What can

I do to curb this behavior? Neither explaining to him this isn't the

way we treat others or time out seem to do the trick. What can I do

about this behavior?

When I get like this I find myself calling any and everywhere for

suggestion, answers and resources. I just feel so helpless at times

and I despise this defeated feeling. We are still working on getting

Kellen to sign though it is an uphill battle 99.9% of the. We just

keep plugging at it. He has taken pretty well to his picture book

and now shows some interest in trying to express himself verbally. I

will definitely stay on top of things and thank you for you the

encouraging words.

> I am having a really bad day; my days are up and down. I am having

one

> of my " feeling hopeless and afraid for my 2-YO child's future "

days. I

> am worried about how he must feel not being able to communicate,

how he

> has to deal with such a visible condition for a lifetime, bullying,

why

> him (how selfish of me, right?), etc. I could scream and pull my

hair

> out! He's been receiving services for a little over a month now

and no

> REAL progress. How can I contact or find older apraxic kids, teens

or

> adults? I feel hopeless today, and then I'll be fine tomorrow. I

am

> sorry for complaining ...

>

>

[Guest guest]

I was right there also. I was told by a slp when my

daughter was 3 that she needed to learn sign language

because she would never really grasp speech. My

husband and I labored over this decision to teach her

and opted not to. Many reason came into play here.

Regardless that sign is an international language, how

many people do you know that use it? What better way

to isolate her than to teach her something none of her

peers will ever know. We also felt that she needed to

speak with her voice. That like anything else,

practice makes perfect. If she started using sign, it

would become a crutch. She is now 9 years old. Yes

the years have been difficult. Do I regret my

decision...Nope! She is speaking better now than we

ever hoped she would. What have we done instead of

sign:

1. intensive speech therapy

2. Mood bell (particulary Visualizing and

verbalizing)

3. Pro-EFA

4. Educational Therapy

5. Lots of sports to keep her self esteem up.

6. Lots of play dates with friends. Note, these kids

have a hard time making friends on their own. You

need to step in as a parent, make play dates available

and fun so the peers want to come back and play some

more. It is up to us as parents to pave the way

toward success. Friends...or better yet...good

friends... will do the rest in the years to come.

Most " professionals " in the field have no clue what

will work with some of these kids.

--- <superj777@...> wrote:

> I remember being you! I remember thinking even when

> my son was 3 & 1/2

> making up my mind that the only way he would be able

> to communicate

> ever would be through sign language....but he is now

> 5 years old and

> speaking in sentances. Actually we can't seem to

> shut him up. His

> articulation is still behind and so is his language,

> but never did I

> imagine that he would be speaking so much. Your son

> will make it to.

> My son didn't really start speaking in phrases until

> he was 4 & 1/2. I

> thought he would be non-verbal forever. Also, I

> just wanted to

> mention my son has many friends that love playing

> with him and is very

> social in school too. His speech disablity never

> got in the way of

> making friends, still hasn't! So I hope this email

> brings you hope.

>

>

>

>

>

>

>

>

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

Thank you for your input....I am at the crossroads ..my daughter is 7 and

needs so much encouragement...I thought of stressing sign language but I

really think you are right..how many of her peers will know it...I am going

to show her the apraxic talking page tonight to let her know she is not

alone..any other ideas..I like all of your other ones but am unsure about

the pro-EFA ped neuro doesn't know anything about it and does't recommend

it ?????

_____

From:

[mailto: ] On Behalf Of Owens

Sent: Thursday, August 25, 2005 10:40 AM

Subject: Re: [ ] Re: Bad Day

I was right there also. I was told by a slp when my

daughter was 3 that she needed to learn sign language

because she would never really grasp speech. My

husband and I labored over this decision to teach her

and opted not to. Many reason came into play here.

Regardless that sign is an international language, how

many people do you know that use it? What better way

to isolate her than to teach her something none of her

peers will ever know. We also felt that she needed to

speak with her voice. That like anything else,

practice makes perfect. If she started using sign, it

would become a crutch. She is now 9 years old. Yes

the years have been difficult. Do I regret my

decision...Nope! She is speaking better now than we

ever hoped she would. What have we done instead of

sign:

1. intensive speech therapy

2. Mood bell (particulary Visualizing and

verbalizing)

3. Pro-EFA

4. Educational Therapy

5. Lots of sports to keep her self esteem up.

6. Lots of play dates with friends. Note, these kids

have a hard time making friends on their own. You

need to step in as a parent, make play dates available

and fun so the peers want to come back and play some

more. It is up to us as parents to pave the way

toward success. Friends...or better yet...good

friends... will do the rest in the years to come.

Most " professionals " in the field have no clue what

will work with some of these kids.

--- <superj777@...> wrote:

> I remember being you! I remember thinking even when

> my son was 3 & 1/2

> making up my mind that the only way he would be able

> to communicate

> ever would be through sign language....but he is now

> 5 years old and

> speaking in sentances. Actually we can't seem to

> shut him up. His

> articulation is still behind and so is his language,

> but never did I

> imagine that he would be speaking so much. Your son

> will make it to.

> My son didn't really start speaking in phrases until

> he was 4 & 1/2. I

> thought he would be non-verbal forever. Also, I

> just wanted to

> mention my son has many friends that love playing

> with him and is very

> social in school too. His speech disablity never

> got in the way of

> making friends, still hasn't! So I hope this email

> brings you hope.

>

>

>

>

>

>

>

>

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

Hi-

Just wanted to share a little with you. My daughter is almost 5 and uses sign

language she has been in school for over 2 years nowand you would really be

suprised how interested the other kids are to learn sign. Hannah has not used

her signs as a crutch, actually it has been benificial to her speech. She may

start out with only a sign for a word but as she uses it more and more she

starts to put the word with it until she stops using the sign and uses the word

only. Her SLP taught her this technique and we followed through at home with it.

So there is another side of sign language with apraxia. Hope this was helpful.

Leo and Roxanne Leonard <leoroxie@...> wrote:

Thank you for your input....I am at the crossroads ..my daughter is 7 and

needs so much encouragement...I thought of stressing sign language but I

really think you are right..how many of her peers will know it...I am going

to show her the apraxic talking page tonight to let her know she is not

alone..any other ideas..I like all of your other ones but am unsure about

the pro-EFA ped neuro doesn't know anything about it and does't recommend

it ?????

[Guest guest]

I have such a stong feeling here, I just had to reply to your post,

as well as the first reply. I have 3 points to make

1st) On the topic of the Pro-EFA, Most doctors dont know about Pro-

EFA, And even if they do, they aren't going to openly promote it.

WHY? Because it is out of the realm of " typical " medical practice. It

is all natural OTC supplement. Doctors like to write prescriptions

remember? Thats not to say ALL dr's are like that. My daughters neuro-

ped, and I quote, " it wont hurt her, but there is no evidence that

says it will work or make a difference " And this is a doctor that at

one time worked with Dr. Agin, when Dr. Agin worked at Childrens

Specialized Hospital in NJ.

#2)Having your daughter visit the talking page is a good idea. It

will let her hear other children w/ apraxia, and let her know she

isn't alone.

With that said, I have to make my 3rd point..

Teaching sign, or not to teach has been the topic of debate for a

long time. I chose to teach my daughter sign language at 2 years of

age due to her being COMPLETELY non-verbal, having temper tantrums,

and our frustration levels. It was a vicious cycle in our home. And

everywhere for that matter. Family outings, extended families

homes. She would try, (point & grunt) and I tried to guess, she would

cry, I would want to cry,(sometimes I even did) she could feel me

getting upset, or hear my tone of " what do you want " , and become more

upset, and round and round we would go. ALL day, every day for almost

2 years.

I don't think I really need to give you exact examples, but I was

tired of trying to figure out what she wanted/needed. More

importantly, I was tired of seeing her walk away disappointed or

frustrated. So I did what I had to do. We learned ASL as a family. We

all practiced together, with eachother. Even the extended family

learned a little. So when they were in her company. They knew what

she wanted/needed. If she wanted a drink, she could sign it, instead

of pointing and grunting infront of the fridge. If we were in a

resturant, she could sign " toilet " , instead of screaming/grunting,

running off the table and holding herself. When we are in the park,

or some other setting I can discretely sign " stop it " if one my kids

are be non-compliant.

ASL, is a form of commumication. A widely " hands-on " form. That

involves several of our senses. Visual, tactial, and yes auditory.

When you sign a word, you are to VERBALIZE it as well.

The comment of sign becomming a " crutch " is ridiculous. I understand

everyone is entitled to there own opinion(s). However there has been

so much research done on signing with our children and the positve

benifits. From increased increased vocabulary to higher IQ scores.

In addition you are teaching your child a second language. We all

know that experts have agreed that it's easier to learn a second

language when you are younger vs's older.

Additionaly, when a child who has apraxia, or any other form of a

communication delay/disability, masters a word, they will then drop

the sign for that word. For example " baby " . My daughter no longs

needs to sign it. I know she wants to play with her baby, because she

is able to verbalize baby. However she has also retained the signs we

taught her over 2 years ago. If I ask her to show me sign(s) from

that long ago, she can.

Furthermore, the school she is enrolled in, there are at least 3

other kids that know asl, as well as her teacher, and 2 of the SLP's.

So that is not a problem either. For now at least.

I will stress, this was my choice. And I don't regret it either.

Life is better then 2 years ago. Not just because of sign. But

because we can communicate in 2 forms.

Dawn in NJ

Mom to:

, 14, ADD, CAPD

Alyssa 9, " typical "

Abby, 4, Apraxia, hypotonia, sensory " issues "

(possible ADHD & CAPD)

>

> > I remember being you! I remember thinking even when

> > my son was 3 & 1/2

> > making up my mind that the only way he would be able

> > to communicate

> > ever would be through sign language....but he is now

> > 5 years old and

> > speaking in sentances. Actually we can't seem to

> > shut him up. His

> > articulation is still behind and so is his language,

> > but never did I

> > imagine that he would be speaking so much. Your son

> > will make it to.

> > My son didn't really start speaking in phrases until

> > he was 4 & 1/2. I

> > thought he would be non-verbal forever. Also, I

> > just wanted to

> > mention my son has many friends that love playing

> > with him and is very

> > social in school too. His speech disablity never

> > got in the way of

> > making friends, still hasn't! So I hope this email

> > brings you hope.

> >

> >

> >

> >

> >

> >

> >

> >

>

>

>

>

> ____________________________________________________

> Start your day with - make it your home page

> http://www./r/hs

>

>

>

>

>

>

>

[Guest guest]

Awwww ((((Kerry))))!! I am so sorry you're hurting so badly! And BOY am I

glad I'm done with teenagers! LOL! I feel for you!

I hope mother's day finds you feeling better!

Carol

In a message dated 5/12/2007 2:40:15 P.M. Pacific Daylight Time,

kerry-lane@... writes:

Hi guys.

Hope everyone is doing better than i am today

Today I wish i could jump in front of a bus. To barely touch my skin

hurts.. every joint bend crook wrinkle is excrutiating. And of course the

kids

are being pains in the butt.. (teenagers..LOL)

Im not going to complain to much as this is the first day in about a month

that it has been this bad.

talk to u all soon.

Kerry

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hope tomorrow is a better day for you Kerry. I know what you mean about the

teenagers.

My dd had detention today for skipping.

~Kerry~ <kerry-lane@...> wrote:

Hi guys.

Hope everyone is doing better than i am today

Today I wish i could jump in front of a bus. To barely touch my skin hurts..

every joint bend crook wrinkle is excrutiating. And of course the kids are being

pains in the butt.. (teenagers..LOL)

Im not going to complain to much as this is the first day in about a month that

it has been this bad.

talk to u all soon.

Kerry

[Guest guest]

Kerry I am so sorry today is so rough on you. I know the feeling. Hope you get

relief soon.

Marsha

[ ] bad day

Hi guys.

Hope everyone is doing better than i am today

Today I wish i could jump in front of a bus. To barely touch my skin hurts..

every joint bend crook wrinkle is excrutiating. And of course the kids are being

pains in the butt.. (teenagers.. LOL)

Im not going to complain to much as this is the first day in about a month that

it has been this bad.

talk to u all soon.

Kerry

[Guest guest]

(((Kerry)))

Sorry your feeling so bad today. I am in the same boat, I feel SO

bad. I'm very weak, and just no energy at all. I take my mtx Sunday,

which doesn't help. I hope you feel better, try to rest as much as

you can, Tawny

[Guest guest]

I hope u get to feeling better too.. I broke down and got a nice bottle of red

wine and that helped relax me a little... still in pain, but Im starting to not

care..

Kerry

[ ] Re: bad day

(((Kerry)))

Sorry your feeling so bad today. I am in the same boat, I feel SO

bad. I'm very weak, and just no energy at all. I take my mtx Sunday,

which doesn't help. I hope you feel better, try to rest as much as

you can, Tawny

------------------------------------------------------------------------------

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PM

[Guest guest]

Kerry:

I am so sorry and complain all you want. We all have them and you have my

sympathy. I haven't had one for about 5 weeks now and I am actually

starting to wonder what is wrong.

na

_____

From: [mailto: ] On

Behalf Of ~Kerry~

Sent: Saturday, May 12, 2007 5:32 PM

Subject: [ ] bad day

Hi guys.

Hope everyone is doing better than i am today

Today I wish i could jump in front of a bus. To barely touch my skin hurts..

every joint bend crook wrinkle is excrutiating. And of course the kids are

being pains in the butt.. (teenagers..LOL)

Im not going to complain to much as this is the first day in about a month

that it has been this bad.

talk to u all soon.

Kerry

[Guest guest]

Hi Kerry,

Either you , your husband or someone remind the kids that tomorrow is Mothers

Day and nothing would be nicer that a nice day for Mom. Sometimes kids listen.

Have a good one..Happy Mother's Day!

Colleen

[Guest guest]

Kerry,

I hope today will be better for you... I am having a tough time too... I can't

lay in the bed it hurts so bad... I finally was able to sleep at 5am Sat morning

and my daughter had a few errands to run - and she needs me to go along to help

with the baby....I had to take cortizone - which I hate to have to do - and up

the dosage just to be able to move and get out of the house... In the store, I

had to put my hand on her shoulder to walk because I couldn't walk without

something to hold onto....That particular store did not have a wheelchair..

I am only 43 for goodness sakes!!

I just keep telling myself - " this too shall pass " -

Here's to a better tomorrow!

Rose

---------------------------------

Ready for the edge of your seat? Check out tonight's top picks on TV.

[Guest guest]

Rose,

We all tend to do the same thing. After it's all over, well we pay for

it. Do you have any Prednisone, tha might help? I would ask the

doctor for something stronger then Ultram, if it's not working. When

I was first dx, they gave me Ultram, It did nothing for me. Just try

to get some rest, and if it's not better, I would call the doc. Take

care, Tawny

[Guest guest]

Sorry you over did it Rose. Believe me after this last weekend I know the

feeling.

I hope you feel better soon. Does anything like bengay or joint-ritis. Help

your shoulder?

My Mom got me some of this stuff called joint=ritis, it's a roll on and it

seemed to dull the ache a bit.

Joy

mom2rkd <mom2rkd@...> wrote:

Hi everyone -

I just wanted to post - I've been trying to help my daughter get the

house in order because they ordered a new bed - and they were

switching rooms around as the bed they ordered is a King....

Well, I've overdone it - and I've known all along I would pay - and I

certainly am now...

I took a shower to get ready for bed and I couldn't lift my leg over

the side of the tub... I had to maneuver around to where I could

" pull " it out - - it was quite scary....

Despite the pain meds (generic Ultram) from the doctor I am in such

pain - I've got an ice pack on my shoulder as it seems to be the worst

right now - - It feels like at any moment it is going to twist right

off...

Tomorrow will be better - - I keep telling myself that....I am headed

toward better days..... I tell myself that too....

Thank ya'll for being here... You truly are a Godsend....

Rose

[Guest guest]

mom2rkd wrote:

>

>

> >Despite the pain meds (generic Ultram) from the doctor I am in such

> pain - I've got an ice pack on my shoulder as it seems to be the worst

> right now - - It feels like at any moment it is going to twist right

> off...

>

Oh, Rose, I'm sorry you're suffering so much. We always pay in the

end when we overdo things. Seems like a good thing at the time and we

may even be feeling pretty good right then, but sooner or later we pay

the piper, don't we?

Ultram did nothing for my pain.

Nina

>

[Guest guest]

I had some things happen with my two aspies today..My 10 year old aspie

was late for school today, thanks to MY oversleeping, and he cried

thinking it was his fault..Since Aspies have trouble with change,he was

off his game all day..The teacher told him when he got there to go right

to the library, but instead he went to the classroom and sat there alone

the whole time.. He said he didnt want to disrupt the class..I actually

think it was the anxiety of going in front of the class late.. The

attention is what he was afraid of..Then I get a call from the school

nurse of my 8 yr old Aspie and she says a school mate told my son to

touch a radiator,so he did it and burned himself!! I worry for my kids

so bad ,especially now that I am seeing them being taken advantage of,

and also not following directions..No one even knew my 10 yr son was

alone on the classroom, god forbid there was a fire!

Conni

[Guest guest]

>

> I worry for my kids

> so bad ,especially now that I am seeing them being taken advantage of,

> and also not following directions..No one even knew my 10 yr son was

> alone on the classroom, god forbid there was a fire!

Hi Conni. It makes me feel less worried if I make sure a school

administrator knows these things happen, and I ask for action to make

sure it doesn't happen again. They don't always respond as strongly

as I would like, but at least I know somebody is aware these things

are happening. And usually it does have some effect. Like Jan said

in another post--sometimes you feel like you're fighting so hard and

you feel like so much is still wrong--but if you think back over

things, you'll realize things are getting better. Hang in there!

Ruth

[Guest guest]

First of all ...if the school knows their DX....they should have walked him to his class in the library....next time you drop them off late...make sure someone walks them to their classes.

Next...practice what to do if the fire bell goes off. Go over and over and over it. I know in our school the teachers have to take a head count as they are leaving and once they are outside....but inorder that he doesn't arrive and sit in an empty room...make sure someone takes him to his room and makes sure he is accounted for!!!!!!

If things get worse...consider getting them a paraprofessional to be with them all day.

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: clbrew311@... <clbrew311@...>Subject: Re: ( ) bad day Date: Tuesday, February 24, 2009, 5:52 PM

I had some things happen with my two aspies today..My 10 year old aspiewas late for school today, thanks to MY oversleeping, and he criedthinking it was his fault..Since Aspies have trouble with change,he wasoff his game all day..The teacher told him when he got there to go rightto the library, but instead he went to the classroom and sat there alonethe whole time.. He said he didnt want to disrupt the class..I actuallythink it was the anxiety of going in front of the class late.. Theattention is what he was afraid of..Then I get a call from the schoolnurse of my 8 yr old Aspie and she says a school mate told my son totouch a radiator,so he did it and burned himself!! I worry for my kidsso bad ,especially now that I am seeing them being taken advantage of,and also not following directions.. No one even knew my 10 yr son wasalone on the classroom, god forbid there was a

fire!Conni

[Guest guest]

The prednisone usually helps, how long have you been on it? You have to

give meds a little time to help. As for the weight gain, you shouldn't

gain weight in a short dose.

None of us want to take these RA meds, but we are fighting to keep

going. The RA meds, help stop the progression. Without those type

meds, it will cause more pain, and the joints will start deforming.

I hope you can find the right choice for you. We all follow different

paths in life. Wishing you lots of pain free days.

I hope you had a good day at the rheumy's.

Tawny

--- In , " cofade_2000 " <Cofade_2000@...>

wrote:

>

> Hi everyone:

>

> Ugh, well prednisone not working anymore, bad flaring. I feel the heat

in my body. I dont want to take it anymore anyways, I am fat enough

without blowing up some more - L0L:)) Something is now happening to my

knuckles there is bad swelling in between them. The metatarsals on my

foot are hurting so bad, feels like my foot is going to break, but my

foot is not swollen, just heated.

>

> I had to submit to baseline x-rays (27 of them, jeez!) and the tech

kept manipulating my knees and ankles, hands etc (he had too), but that

exacerbated the flare I think. All I had for pain was Flexoril and it

does nothing to me. So I called my pain management specialist, told her

pills were bothering my stomach, so she gave me a fentanyl patch, very

low dose. It was great, you wear it for 2 days, the change it. The only

thing is there is so much discomfort from the swelling/heat that once

the pain is controlled, the discomfort is not.

>

> Going to Rheumy today, i guess she will start me on methotrexate. I

dont want to loose my hair, so she is giving me Folic Acid. I am gonna

fight this thing hard, I cannot take pills to combat pills to combat

pills, and I dont want to start injections, there must be a better way.

patches are good, and I think people have a big misconception about

opiates when taken properly, we are not trying to get high, just relief.

>

> Sorry for the rambling, but I am only 3 months into this challenge.

There is really something with the Chinese and their position on cooling

the heat in your body to combat this, I am going whole-hog into

investigating this.

>

> I used to volunteer with The handicapped Riding Association, I was a

lead walker and a side walker and its alot of responsibility because the

children are very handicapped. I love horses and kids, and I stopped

because my legs were hurting me so bad afterwards, for months I thought

it was because I was just out of shape, imagine that? I pushed thru it

until I couldnt anymore.

>

> Sometimes I feel like if I keep moving I will be alright. I hate pain

though, but I am not going to be depressed, cause they are going to try

to give me a pill for that too!

>

> OKD

>

[Guest guest]

Today is a 8 .5 pain day I fell down steps and hurt my ankles one bad and the

other not so. But it is hard to walk I have to be careful. Of course that makes

my arms,hands, shoulders and legs hurt. Has to go and change the blades on the

lawn mower, had trouble took the deck off so I just killed my arms. My back been

hurting it is the nerve that runs down your leg that is pinched. Them my Wife

hasn't been talking to me this last week. It is ok when she is gone baby sitting

but she is home today. I get so tired of hurting and everything else. Probably

said to much but most of the time I just say nothing.

Ed

[Guest guest]

your son sounds just like mine he just turned 11 and is going to start middle school...he paces and follows me too...we tried over 14 meds in the last 5 years only to have growth issues and BAD side affects. I am at a loss also....I feel like educationally he has lost and only one teacher gave him the encouragement he needed and he tried harder.

From: Elgamal <cindyelgamal@...>Subject: RE: ( ) Bad day Date: Thursday, August 5, 2010, 12:16 AM

Is your son on any medications? This sounds very similar to things we were seeing with my son at this age. Finding the right cocktail of meds was very helpful though it did take some adjusting to get to the best meds, dosages, etc.

From: [mailto: ] On Behalf Of angelaSent: Wednesday, August 04, 2010 11:48 AM Subject: ( ) Bad day

I don't know what to do anymore. Every day is the same. Taking a shower, time for games to be over, anything he doesn't agree with. Everything is a battle. I'm so tired. I end up crying every day because I'm just so tired of all the fighting. It seems like everything I ask my 12 yo ds to do is wrong (to him). I have to stand here and listen to him curse me out, knowing he only says it to get a reaction when he's mad. I have to restrain him at times to keep him from hurting me or taking off. Can't just walk away and let him cool down since he'll just follow me to keep the fight going. He listens to other people (outside the family), but won't listen to me or his father. He constantly wants to fight (literally) me or his dad or his brother. And the hardest part is his little sister has to watch all of this. She's the one who loses out the most. At this point, I seriously don't think he'll even be able to live on his

own.Angi

[Guest guest]

oh and my daughter who just turned 6 suffers and can't keep friends cuz he makes up stories....EVERYONE does everything wrong BUT him. He wants all the attention and also has a mean streak and blames outbursts on it. He also hits her daily and makes her cry I have to have constant eyes on him and it wears me down......

From: Elgamal <cindyelgamal@...>Subject: RE: ( ) Bad day Date: Thursday, August 5, 2010, 12:16 AM

Is your son on any medications? This sounds very similar to things we were seeing with my son at this age. Finding the right cocktail of meds was very helpful though it did take some adjusting to get to the best meds, dosages, etc.

From: [mailto: ] On Behalf Of angelaSent: Wednesday, August 04, 2010 11:48 AM Subject: ( ) Bad day

I don't know what to do anymore. Every day is the same. Taking a shower, time for games to be over, anything he doesn't agree with. Everything is a battle. I'm so tired. I end up crying every day because I'm just so tired of all the fighting. It seems like everything I ask my 12 yo ds to do is wrong (to him). I have to stand here and listen to him curse me out, knowing he only says it to get a reaction when he's mad. I have to restrain him at times to keep him from hurting me or taking off. Can't just walk away and let him cool down since he'll just follow me to keep the fight going. He listens to other people (outside the family), but won't listen to me or his father. He constantly wants to fight (literally) me or his dad or his brother. And the hardest part is his little sister has to watch all of this. She's the one who loses out the most. At this point, I seriously don't think he'll even be able to live on his

own.Angi