photos

[Guest guest]

In a message dated 11/17/01 9:37:03 PM Pacific Standard Time, bpatin@... writes:

, I can't send a photo either, we don't have a digital camera or a

scanner.

Remember that you can have regular film developed in a digital format, allowing you to send photos by e-mail that have been taken on a regular camera. Also, if you go to a fairly good copy shop, they will scan any photo and put it on a disc.

Harper

[Guest guest]

Lynn

What a fanastic difference. You must be thrilled :-D Can't wait to hear

what the drs say.

London UK

[Guest guest]

> I just added an album for Will. It was fun putting the faces

> with the kids I have been reading about.

>

>

Hi ,

He is a real cutie! I'm so glad everyone is putting photo's up

because I agree it is fun to put faces to names.

Roxanna

[Guest guest]

Willow looks great too! Love seeing such great correction photos

Thanks for sharing.

Oh I'm sure will take care of your photo album.

Debbie

> I stuck the before and now pics into Willow's album in the plagio

> kids. I made a before and after album, but can't get the pictures

> uploaded. How do I delete this album?

> Thanks

> Sandy WIllow's Mom

[Guest guest]

Hi Sandy,

Willow looks great! Thanks for sharing her pictures. I tried

deleting her album, but wouldn't let me. I'm sure will

take care of it for you.

, mom to Hannah, DOCgrad

Cape Cod, ma

>

> --- In Plagiocephaly , " Sandy " <samipa74@y...>

wrote:

> > I stuck the before and now pics into Willow's album in the

plagio

> > kids. I made a before and after album, but can't get the

pictures

> > uploaded. How do I delete this album?

> > Thanks

> > Sandy WIllow's Mom

[Guest guest]

Sandy,

Willow is looking great! I moved her pics for you, I put them in the

Willow folder in the before and after seciton.

- In Plagiocephaly , " Sandy " <samipa74@y...> wrote:

> I stuck the before and now pics into Willow's album in the plagio

> kids. I made a before and after album, but can't get the pictures

> uploaded. How do I delete this album?

> Thanks

> Sandy WIllow's Mom

[Guest guest]

Email the pictures to at taime @ optonline.net and she'll add

em for you.

Debbie

--- In Plagiocephaly , " Kimmerlee " <merleebird@y...>

wrote:

> can someone create a jacob m before/after folder for me to put the

> pics? el computer does not let me. thanks!

[Guest guest]

Hello

Kynzie is a doll. What a great name as well. I do think that you

can see some improvement. How old is Kynzie? Have you had a

specialist look at her and take any sort of measurements? What

types of helmets would you have access to?

As for the tilt in the one picture I really can't say much. She

doesn't look like she tilts in any of the back pics. Does she

prefer one side over the other? Does the muscle feel tight? Has

she been evaluated by a pt? You can call Early Intervention or

Birth to 3 in some states and they will come out to your house and

eval/screen her to see if she has tort. Might be a good idea to

rule out. Tort and Plagio go hand in hand. Good luck and keep us

updated on Kynzie.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 04

> The computer finally let me create an album and upload photos to

it. The only problem is it wouldn't allow me to put the album in

the " plagio kids " folder, and I can't seem to move it. Maybe one of

the moderators or owners of the list could do that for me?

>

> Anyhow, my daughter Kynzie's pics are in her folder Kynzie L.

I've been repositioning her since April 28th. I know that from her

pictures her head doesn't look all that bad, but she does have a

flat spot in the middle of the back. I posted the last 3 side

photos I have taken of her. I think I see improvement...does anyone

else? I posted her back photo that I took last night. In the first

photo her ears seem to be misaligned, but then in the second photo I

made her hold her head straight and held it with my hand and they

seem to be aligned alright. I also added her face picture to show

everyone how she tilts her head to the left. Does anyone think she

may have tort by looking at this pic? Please let me know all of

your opinions. I would like to know if anyone thinks she needs a

band or helmet. I need to pursue that option soon if I " m going to

do it.

>

> Thanks for the support on this group. I'm really a lurker, but I

enjoy reading everyone's posts and it helps to see other parents out

there dealing with this plagio thing.

>

> AMY, you go girlfriend!!! You make everyone in the world aware of

plagio. I'm on your side all the way. I'll e-mail Oprah, Dr. Phil,

The President, even the Pope if it would get the awareness out

there. :-) My son is now 3 years old and will have a flat head

forever because nothing was done about it and my ped told me " He'll

grow out of it " ...but she didn't tell me about repositioning or

anything else either. So I'm proud of anyone that wants to help

other parents become aware of this " disease " .

>

>

[Guest guest]

Kynzie is 6 months old. I haven't had a specialist look at her and take measurements. My pediatrician is one of those that say "She'll grow out of it". I'm not taking that for an answer this time though. My son is now stuck with a flat head because I didn't know much about plagio and the same ped told me he would grow out of it too...now at 3 his head is really bad. Hopefully he will have a strong self-esteem and can deal with the teasing that inevitably kids are going to give. I don't know what types of helmets/bands that I have access too. I just figured that I would have to see a cranio facial surgeon or a neurosurgeon and then they would tell me what was available. Is there a way to find out what is available on my own?

As for her "tilt". She ALWAYS tilts to the left...however, the muscle doesn't feel tight. She has great range of motion, she just tilts her head that way. I haven't had her evaluated by a pt. I just recently started to realize she may have tort. I go to see her pediatrician on June 8th and then I can ask for some referrals. Thanks for the info on Early Intervention. I'll have to look into that.

Re: Photos

Hello Kynzie is a doll. What a great name as well. I do think that you can see some improvement. How old is Kynzie? Have you had a specialist look at her and take any sort of measurements? What types of helmets would you have access to? As for the tilt in the one picture I really can't say much. She doesn't look like she tilts in any of the back pics. Does she prefer one side over the other? Does the muscle feel tight? Has she been evaluated by a pt? You can call Early Intervention or Birth to 3 in some states and they will come out to your house and eval/screen her to see if she has tort. Might be a good idea to rule out. Tort and Plagio go hand in hand. Good luck and keep us updated on Kynzie.Sandy Willow's MomTorticollis resolvedCranio Germany Grad 04> The computer finally let me create an album and upload photos to it. The only problem is it wouldn't allow me to put the album in the "plagio kids" folder, and I can't seem to move it. Maybe one of the moderators or owners of the list could do that for me?> > Anyhow, my daughter Kynzie's pics are in her folder Kynzie L. I've been repositioning her since April 28th. I know that from her pictures her head doesn't look all that bad, but she does have a flat spot in the middle of the back. I posted the last 3 side photos I have taken of her. I think I see improvement...does anyone else? I posted her back photo that I took last night. In the first photo her ears seem to be misaligned, but then in the second photo I made her hold her head straight and held it with my hand and they seem to be aligned alright. I also added her face picture to show everyone how she tilts her head to the left. Does anyone think she may have tort by looking at this pic? Please let me know all of your opinions. I would like to know if anyone thinks she needs a band or helmet. I need to pursue that option soon if I"m going to do it.> > Thanks for the support on this group. I'm really a lurker, but I enjoy reading everyone's posts and it helps to see other parents out there dealing with this plagio thing. > > AMY, you go girlfriend!!! You make everyone in the world aware of plagio. I'm on your side all the way. I'll e-mail Oprah, Dr. Phil, The President, even the Pope if it would get the awareness out there. :-) My son is now 3 years old and will have a flat head forever because nothing was done about it and my ped told me "He'll grow out of it"...but she didn't tell me about repositioning or anything else either. So I'm proud of anyone that wants to help other parents become aware of this "disease".> > For more plagio info

[Guest guest]

Hi ,

I'm glad you got the photos posted. I'll simply second everything

Sandy told you about her plagio and your tort questions. Kynzie is

adorable!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

> > The computer finally let me create an album and upload photos to

> it. The only problem is it wouldn't allow me to put the album in

> the " plagio kids " folder, and I can't seem to move it. Maybe one

of

> the moderators or owners of the list could do that for me?

> >

> > Anyhow, my daughter Kynzie's pics are in her folder Kynzie L.

> I've been repositioning her since April 28th. I know that from

her

> pictures her head doesn't look all that bad, but she does have a

> flat spot in the middle of the back. I posted the last 3 side

> photos I have taken of her. I think I see improvement...does

anyone

> else? I posted her back photo that I took last night. In the

first

> photo her ears seem to be misaligned, but then in the second photo

I

> made her hold her head straight and held it with my hand and they

> seem to be aligned alright. I also added her face picture to show

> everyone how she tilts her head to the left. Does anyone think

she

> may have tort by looking at this pic? Please let me know all of

> your opinions. I would like to know if anyone thinks she needs a

> band or helmet. I need to pursue that option soon if I " m going to

> do it.

> >

> > Thanks for the support on this group. I'm really a lurker, but

I

> enjoy reading everyone's posts and it helps to see other parents

out

> there dealing with this plagio thing.

> >

> > AMY, you go girlfriend!!! You make everyone in the world aware

of

> plagio. I'm on your side all the way. I'll e-mail Oprah, Dr.

Phil,

> The President, even the Pope if it would get the awareness out

> there. :-) My son is now 3 years old and will have a flat head

> forever because nothing was done about it and my ped told

me " He'll

> grow out of it " ...but she didn't tell me about repositioning or

> anything else either. So I'm proud of anyone that wants to help

> other parents become aware of this " disease " .

> >

> >

[Guest guest]

Send to at taime @ optonline.net (minus the spaces). She'll

help you out. I really wish would fix this problem, it's gone

on for months now!

Debbie

--- In Plagiocephaly , " tortibaby " <sugrill@j...>

wrote:

> To whom do I send photos as an attachment in an email, so that some

> kind soul can put them into an album for me? is being most

> unfriendly, but you guys are going to love what I did with Peanut's

> helmet!

>

>

> , 18 mos, tort, plagio, DOC Band 5/7

[Guest guest]

, You can send the pics to me at Ian_C_Icenhower@... I will

create a folder for you and post them in there for you. I am anxiuos

to see what you did with his helmet.

--- In Plagiocephaly , " tortibaby " <sugrill@j...>

wrote:

> To whom do I send photos as an attachment in an email, so that

some

> kind soul can put them into an album for me? is being most

> unfriendly, but you guys are going to love what I did with

Peanut's

> helmet!

>

>

> , 18 mos, tort, plagio, DOC Band 5/7

[Guest guest]

--- In , " dawnciano " <dawnciano@y...>

wrote:

>

> I never even bothered to look at the photos section on this board

> until today (For some reason, I presumed it would be empty). It's

> nice to finally see some faces to go with the names.

>

> Dawn

P.S. I posted two photos of me and my baby a if anyone is

interested.

Dawn

[Guest guest]

>>>P.S. I posted two photos of me and my baby a if anyone is

interested.<<<

Nice!!! :-)

Cheers,

Tas'.

[Guest guest]

Dawn, like you, I hadn't checkout out the photos, yet. After viewing yours, I

can't decide who's more beautiful; you or your gorgeous baby! What a cutey she

is!

Rebekah

Photos

I never even bothered to look at the photos section on this board

until today (For some reason, I presumed it would be empty). It's

nice to finally see some faces to go with the names.

Dawn

[Guest guest]

Thanks Rebekah! That's nice to hear. I think my little Dani is

pretty special too (naturally!). I'm hoping everyone else will put up

some photos. It makes it more like a real community that way.

Dawn

> Dawn, like you, I hadn't checkout out the photos, yet. After

viewing yours, I can't decide who's more beautiful; you or your

gorgeous baby! What a cutey she is!

>

> Rebekah

>

> Photos

>

>

>

> I never even bothered to look at the photos section on this board

> until today (For some reason, I presumed it would be empty). It's

> nice to finally see some faces to go with the names.

>

> Dawn

>

>

>

>

>

>

[Guest guest]

I'm sorry that you guys had to go through the surgery, I bet that

was tough. Thanks for sharing the photos of the Fit Well, I had

seen only one child in one before. What is making them change the

design and how are you using two helmets? Alternating or what?

He is really cute, he reminds me of a TV baby but I can't put my

finger on who...

Natasha

--- In Plagiocephaly , " minoura89 " <minoura89@y...>

wrote:

>

> I have posted some photos of Jack under JMR. I know most people

here

> don't have a child with a synostosis so I thought I'd post a

couple

> surgery photos. They made an incision across his head and removed

> bone (sagittal suture was closed)so that his head will grow

> normally. Unfortunately, because the bone was even softer after

> surgery, he has a small flat spot on the back right. So the other

> two pictures are with the Fit-Well helmet. The pic of the regular

> helmet is not great (he was crying hysterically), bit it kind of

> wraps around with a large hole on top and only 1 velcro closure.

The

> try out helmet is two pieces. It is much more enclosed (sweats

more)

> with 2 velcro closures. Currently there is a screw on top so the

two

> pieces slide together better, but that is supposed to be gone with

> the new helmet we get tomorrow. This one stays on much better.

When

> I get the " take a picture " t-shirt, I will post him in that.

>

>

> mum to Jack sagittal surgery (1/13/05), Fit-Well helmet

[Guest guest]

When we first got the helmet, he asked me to put it on Jack for a

couple of hours a day. We went in after a week and let him know how

it was. Since we liked it better, he decided to try and fix it so it

didn't need the screw thing at the top. I guess my Dr. had been

asking him to design a new one because the old one didn't really let

the head grow on both sides. Since Jack had scapho (which is what

happens when the sagittal suture is closed), he needs both sides to

grow out. I will be taking the new helmet to my appt. with the

plastic surgeon, and I am hoping he ok's it.

mum to Jack sagittal surgery (1/13/05), Fit-Well helmet

> >

> > I have posted some photos of Jack under JMR. I know most people

> here

> > don't have a child with a synostosis so I thought I'd post a

> couple

> > surgery photos. They made an incision across his head and removed

> > bone (sagittal suture was closed)so that his head will grow

> > normally. Unfortunately, because the bone was even softer after

> > surgery, he has a small flat spot on the back right. So the other

> > two pictures are with the Fit-Well helmet. The pic of the regular

> > helmet is not great (he was crying hysterically), bit it kind of

> > wraps arou

nd with a large hole on top and only 1 velcro closure.

> The

> > try out helmet is two pieces. It is much more enclosed (sweats

> more)

> > with 2 velcro closures. Currently there is a screw on top so the

> two

> > pieces slide together better, but that is supposed to be gone with

> > the new helmet we get tomorrow. This one stays on much better.

> When

> > I get the " take a picture " t-shirt, I will post him in that.

> >

> >

> > mum to Jack sagittal surgery (1/13/05), Fit-Well helmet

[Guest guest]

Yea, I'd like that also.

Bev

<beccadawn@...> wrote:

I'm pretty sure this message board doesn't accept photos. Most

boards have separate folders to put photos and files into, this board

does not. It'd be good if it did though, it's nice to see who you

are talking to

---------------------------------

[Guest guest]

Can someone help her get it to the photos on shutterbug ? I'm not sure how. Thanks

[Guest guest]

I sent all my most precious photos to a company to scan and put on a CD, that I

could then keep as well as store on my hard drive.

Then bag the photos, or if you want them to someday be okay again, put them in

storage in boxes in a very dry hot climate. Wait five years.

>

> I'm going throught the same thing. It's heartbreaking. I'm considering

> scanning them (or having them scanned) so at least electronic copies will

> exist. Then later, perhaps I can get them printed again. You're not

> alone. Hang in there.

> Debbie

>

>

>

[Guest guest]

Can you please explain how the photos become " okay " after being stored for 5

years? Its my experience that nothing paper can be saved or made safe. Thanks~

D

> >

> > I'm going throught the same thing. It's heartbreaking. I'm considering

> > scanning them (or having them scanned) so at least electronic copies will

> > exist. Then later, perhaps I can get them printed again. You're not

> > alone. Hang in there.

> > Debbie

> >

> >

> >

[Guest guest]

Apparently if you store them in an arid hot climate (in a public storage locker

you rent, I assume) the mold spores and toxins will denature over about five

years.

Don't store them in plastic or wrap them up.

And don't store them in a cool or humid climate.

>

> Can you please explain how the photos become " okay " after being stored for 5

years? Its my experience that nothing paper can be saved or made safe. Thanks~

D

>

> --- In , " cocopollyphenol " <cocopollyphenol@>

wrote:

> >

> > I sent all my most precious photos to a company to scan and put on a CD,

that I could then keep as well as store on my hard drive.

> >

> > Then bag the photos, or if you want them to someday be okay again, put them

in storage in boxes in a very dry hot climate. Wait five years.

> >

[Guest guest]

Of course he's a living doll!!

I posted 2 more pics of baby and myself and one with hubby, myself and baby. He got to go home Sunday. He's a living doll.

Debbie

[Guest guest]

I was just looking at the photos that some of the other members have posted over

the years and seeing all that mold and reading through the archives has me

terrified. I never really thought about post traumatic stress disorder but I

cant tell you it does exist and I experience it every day.

As much as I love living here all I can think about doing is running as far away

from this place as possible due to the mold they found in the a/c coils but I

have no guarantees that I'll be moving into a safe environment. I cant sign a

lease because if I get sick in my new apartment than what? I looked into moving

back into the hotel I was living in for 3 months and their rent has gone up

almost $100.00 a month which I cant afford.

As far as I know we dont have any more mold in the house but Im worried that

whatever is in the air thats affecting me is affecting my puppy as well. Should

I give her to a home that doesnt have any known mold issues, do I keep her and

move into a place that takes small dogs? I have all these questions running

through my mind right now but because Im not thinking clearly I hate to make the

wrong decision which could make my situation worst but if I don't do something

my health is only going to deteriorate.

I can see why so many move to warmer climates and live out of their cars, at

least there they know their safe.

Tug