Re: More confusion.... sorry

[Guest guest]

The first time I was over exposed to an infestation of mold, I was able to

recover by buying a house and making it safe. It took a couple of years

thereafter to get better in terms of hypersensitivity to allergens and

contaminants but I did, without medication or supplements. Now, with this

condo's mold, I'm back to square one.

On Aug 20, 2010, at 11:57 AM, " Tug " <tug_slug@...> wrote:

Im reading alot of the different posts here and it seems that many here benefit

from probiotics. What Im wondering is if your out of your WDB shouldnt you start

feeling better without them or any other medication for that matter?

[Guest guest]

out of curiosity whats your plan of attack?

>

> The first time I was over exposed to an infestation of mold, I was able to

recover by buying a house and making it safe. It took a couple of years

thereafter to get better in terms of hypersensitivity to allergens and

contaminants but I did, without medication or supplements. Now, with this

condo's mold, I'm back to square one.

>

[Guest guest]

I can't do anything in the common areas where all the mold is without a quorum

(three votes; there are four owners). Yesterday I found out preliminary results

from mold testing. Nothing yet on the obvious, large amounts of mold colonies in

the basement all over the walls or on the air samples taken in my condo, but

already there are results from the carpet in the common area: there are so many

mold spores that all 218 grids of the dish are growing mold. Obvs, I was aware

that mold could exist in carpets but really thought the building didn't have

mold issues, such that I would react to the carpet (it's old enough that it's

outgassed VOCs, too). We couldn't get votes to fix the moisture problems; we

surely won't get votes to remove thecarpet.

So, my plan. I still don't have one. We need to get out of here, but we are both

having a hard time walking away and ruining our credit and having a foreclosure

on our reports for ten years. The bank will do a short sale buthow long will

that take? In the meantime the only place we could stay at would only be for a

couple of months and it has carpet in the basement. Since I'm the canary, we're

considering having me camp long term, but I'm not sure I could handle that. I'm

a small attractive woman who, because of my size and a now permanent look of

anguish on my face, looks vulnerable, so safety is a concern. I have vertigo all

day everyday so I'm not sure I'm safe to drive. But we don't have anywhere else

for me to go long term. And we don't have much savings for me to draw on. Not

having a plan is making me really panicky, yet the path doesn't seem clear to

us.

On Aug 21, 2010, at 11:42 AM, " Tug " <tug_slug@...> wrote:

out of curiosity whats your plan of attack?

>

> The first time I was over exposed to an infestation of mold, I was able to

recover by buying a house and making it safe. It took a couple of years

thereafter to get better in terms of hypersensitivity to allergens and

contaminants but I did, without medication or supplements. Now, with this

condo's mold, I'm back to square one.

>

[Guest guest]

There are some people who rent a bedroom w/bath in their homes, think they

charge $350 to $500 a month.  You might try looking for one in your area if you

can afford it.  You can post free on MCSSafeshelterUSA.

 

I do wish you luck finding a safe place to stay.

 

....Corky

 ......... We need to get out of here,........Since I'm the canary, we're

considering having me camp long term, but I'm not sure I could handle that...

But we don't have anywhere else for me to go long term. And we don't have much

savings for me to draw on. 

[Guest guest]

Thank you for your kind thoughts.

On Aug 21, 2010, at 2:21 PM, corky lux <corkylux1@...> wrote:

There are some people who rent a bedroom w/bath in their homes, think they

charge $350 to $500 a month. You might try looking for one in your area if you

can afford it. You can post free on MCSSafeshelterUSA.

I do wish you luck finding a safe place to stay.

....Corky

......... We need to get out of here,........Since I'm the canary, we're

considering having me camp long term, but I'm not sure I could handle that...

But we don't have anywhere else for me to go long term. And we don't have much

savings for me to draw on.

[Guest guest]

Corky, That's a wonderful resource for any of us.

Advocate, I pray you find one & get some relief.

Kathy

On Aug 21, 2010, at 2:21 PM, corky lux <corkylux1@...> wrote:

There are some people who rent a bedroom w/bath in their homes, think they

charge $350 to $500 a month. You might try looking for one in your area if you

can afford it. You can post free on MCSSafeshelterUSA.

I do wish you luck finding a safe place to stay.

....Corky

......... We need to get out of here,........Since I'm the canary, we're

considering having me camp long term, but I'm not sure I could handle that...

But we don't have anywhere else for me to go long term. And we don't have much

savings for me to draw on.

[Guest guest]

You might also try calling CIIN (chemical injury information network) They put

out a small magazine called Out Toxic Times. They allowed me to get a free

subscription because of my finances. People who post ads in there are sometimes

looking for roommates & it might be the least expensice way to go. Here is

another group.

http://groups-beta.google.com/group/MCS-Housing

There are lots of MCS - why not join every one !

And you can try Planet Thrive too. You never know. Housing is always in demand.

>

> I can't do anything in the common areas where all the mold is without a quorum

(three votes; there are four owners). Yesterday I found out preliminary results

from mold testing. Nothing yet on the obvious, large amounts of mold colonies in

the basement all over the walls or on the air samples taken in my condo, but

already there are results from the carpet in the common area: there are so many

mold spores that all 218 grids of the dish are growing mold. Obvs, I was aware

that mold could exist in carpets but really thought the building didn't have

mold issues, such that I would react to the carpet (it's old enough that it's

outgassed VOCs, too). We couldn't get votes to fix the moisture problems; we

surely won't get votes to remove thecarpet.

>

>

[Guest guest]

You are reminding me that a good vehicle is priceless for times like these. I'm

sleeping in mine now because of the renovations. Lots more to go & this is no

time to crash. You did mention you thought of camping but think you're too sick.

The fresh air may change that. You'll be tired at first from being outside so

much. I would not rest easy if I didn't have a vehicle to fall back on - it's

still packed & nothing new goes into it.

>

> Thanks for all the ideas everbody. I knew of the MCS Safe Housing list and

group, but the problem really is I can't afford even $500 a month. Then

there's the issue of MCS safe but not mold safe. There was a posting for a short

term rental room in an MCS safe house, but it had carpet and dogs. Carpets hold

mold and mold spores like nothing else and I'm allergic to dogs. Back to the

drawing board for me. But I appreciate all the problem solving, I really do.

[Guest guest]

i have a truck that has an insulated a camper shell on it. When I moved from my

WDB I naturally put allot of things in the bed of the truck and put them in

storage. As time went on I kept allot of my clothes wrapped up in plastic bags

in the bed as well. Now Im afraid that whatever I moved from the WDB may have

gotten those same mold spores on the liner so I went down to the place where I

bought it, told them my situation and they said they would store it there for as

long as I wanted at no charge.

Chances are Im over reacting but a person gets so freaked out by all this talk

of cross contamination and wanting to make sure that when I moved the clothes

that I bought didn't even have a remote chance of getting mold spores on them.

>

> You are reminding me that a good vehicle is priceless for times like these.

I'm sleeping in mine now because of the renovations. Lots more to go & this is

no time to crash. You did mention you thought of camping but think you're too

sick. The fresh air may change that. You'll be tired at first from being outside

so much. I would not rest easy if I didn't have a vehicle to fall back on - it's

still packed & nothing new goes into it.

>

>

[Guest guest]

Yes a vehicle kept well will be a life saver in times like this.  MCS and mold,

housing is not available.  If you thought it was hard to find housing with MCS,

try mold and MCS.     very very hard.....................

 

  

God Bless !!

dragonflymcs

Mayleen

________________________________

From: safersmilesdentallab <safersmilesdentallab@...>

Sent: Mon, August 23, 2010 2:08:45 AM

Subject: [] Re: More confusion.... sorry

 

You are reminding me that a good vehicle is priceless for times like these. I'm

sleeping in mine now because of the renovations. Lots more to go & this is no

time to crash. You did mention you thought of camping but think you're too sick.

The fresh air may change that. You'll be tired at first from being outside so

much. I would not rest easy if I didn't have a vehicle to fall back on - it's

still packed & nothing new goes into it.

[Guest guest]

, not sure if you answered when I asked before, but if so I didn't see the

post. What type of vehicle do you have? How hard was it to find? Thanks.

>

> You are reminding me that a good vehicle is priceless for times like these.

I'm sleeping in mine now because of the renovations. Lots more to go & this is

no time to crash. You did mention you thought of camping but think you're too

sick. The fresh air may change that. You'll be tired at first from being outside

so much. I would not rest easy if I didn't have a vehicle to fall back on - it's

still packed & nothing new goes into it.

>

[Guest guest]

Adding to that.. how do you keep clean so it remains a safe refuge?

Robin

> >

> > You are reminding me that a good vehicle is priceless for times like these.

I'm sleeping in mine now because of the renovations. Lots more to go & this is

no time to crash. You did mention you thought of camping but think you're too

sick. The fresh air may change that. You'll be tired at first from being outside

so much. I would not rest easy if I didn't have a vehicle to fall back on - it's

still packed & nothing new goes into it.

> >

>

[Guest guest]

Isn't everyone with MCS also mold sensitive?

>

> Yes a vehicle kept well will be a life saver in times like this.  MCS and

mold,

> housing is not available.  If you thought it was hard to find housing with

MCS,

> try mold and MCS.     very very hard.....................

>  

>   

> God Bless !!

> dragonflymcs

> Mayleen

[Guest guest]

Someone asked & I answered. Anyway, Toyota 4 Runner. I bought a 3 yr old about 8

mos before I crashed... & after that it smelled new! Somehow I adapted. I was

getting sensitive but not insanely when I bought it. Luckily found it at a

dealer that didn't clean the vehicles. Didn't know how lucky I was at the time.

It was difficult to find only in that I wanted white - with a sun-roof in case I

wanted to go camping. (little did I know!) I found it on-line, autotrader.com I

think, & drove a few hours to get it.

--- In , " cocopollyphenol " <cocopollyphenol@...>

wrote:

>

> , not sure if you answered when I asked before, but if so I didn't see

the post. What type of vehicle do you have? How hard was it to find? Thanks.

[Guest guest]

, I knew someone who was diagnosed with MCS who got it from working with

chemicals at work. no mold involved,supposedly. ?

MCS or what some now refer to as CIRS-WDB chronic inflammatory responce

syndrome-water damaged buildings, is caused by toxin exposure that can lead to

mutisymptons and affect multiorgans.

some believe we are only reactive to what we were exposed to.

which could be a long list of things when you consider all the toxins that could

be involved in a WDB.

plus mixtures of toxins/chemicals that may produce even more toxins,

plus offgassing of some building materials, man made chemicals,ect.

than there are families of chemicals where if your reactive to a chemical in

that family of chemicals you would be reactive to those chemicals even though

you were not directly exposed to them.

but than you also have to consider that both dose and the toxicity of any given

chemical would also play a role, and it seems to me with organs and tissue

damage, that for some even some non-toxic things that act more as irritants to

the damaged organs/tissues can also cause more inflammation.

you cant just base everything on sensory and neuronal disfunctions/damage when

theres tissue and organ damage also involved.

and different organs involved mean different symptoms involved so what one

claims as MCS symptoms is not the same as what another person is experienceing

as symptoms.even though we have many of the same symptoms.

the direct damage to tissues and organs which might lead to scaring, fibrosis

and easier pathways for re-exposures to have easy access to the same organs by

those pathways.

so I can see where some could only be reactive to what they were exposed to, and

others may be reactive to even more.

than there are immediate reactions and delayed reactions.

just my thoughts.

>

> Isn't everyone with MCS also mold sensitive?

>

>

[Guest guest]

My brain fog is really getting bad as I just reread this post and realized that

it was a reply to my question as to your plan of attack. Advocate Im really

sorry to hear that your having to go through this a second time especially after

you were nearly recovered from your first exposure. I think many of us know all

to well how mold exposure can completely devastate you financially not to

mention emotionally and physically as well.

My vertigo has really gotten bad this past week and allot like you Im getting

worried about my driving but there's times that I have no choice but to. Deep

down inside i know that the only way Im going to recover is to move out of this

house, there's a hotel that i stayed in after my first exposure that I felt

really good in and I started to recover but like i said in one of my other posts

they raised the rent by 100.00/mo and that puts it out of my price range. I

would imagine that i could stop buying my medications/supplements and eat

nothing but baked chicken breasts 3 x's a day 7 days a week but im not sure if

that's possible beings i need to eat more than 2 or 3 breasts a day.

I live near the Rockies and it was suggested to me that i should consider moving

to the mountains which is definitely a doable in the summer but in the winter

months id either have to move into an apartment or get either a van or an rv to

live in. if i get a either im going to have to worry about where im going to

park it beings most camp grounds to my knowledge are closed during the winter

months and with my credit being all but destroyed the bank wouldn't loan me the

money for an oil change much less a vehicle. if i move into an apartment why

waste my time moving to the mountains? why not just do it now and get it over

with?

Tug

(from Barb: I think you should get out of the house asap until the weather cools

off to see if you do better some place else.)

>

> So, my plan. I still don't have one. We need to get out of here, but we are

both having a hard time walking away and ruining our credit and having a

foreclosure on our reports for ten years.

[Guest guest]

Thanks, . Did you mostly crash in parking lots? I have a Toyota car, but a

manufacturer makes a tent that fits over the hatch and then sits on the ground

like a normal tent. I guess I'm concerned about safety, too--I take sleep

medicine that knocks me out cold, wouldn't hear a bear, fire, or ax

murderer--and about eating. My GERD is so bad that all I'm able to tolerate is a

banana, toasted English muffin, baked potato, cooked spinach, and a non-red-meat

protein. Trying to figure out, too, where I could camp in winter and not get too

cold.

>>> wrote:

You are reminding me that a good vehicle is priceless for times like these. I'm

sleeping in mine now because of the renovations. Lots more to go & this is no

time to crash. You did mention you thought of camping but think you're too sick.

The fresh air may change that. You'll be tired at first from being outside so

much. I would not rest easy if I didn't have a vehicle to fall back on - it's

still packed & nothing new goes into it.

[Guest guest]

Sometimes Walmart lots. 2 restaurants let me stay in their lot long term. One on

a bay & one on a creek. Don's Guide to Free Camping was invaluable. Not

all were free but many were. The less facilities, the less toxic, & usually

free. I wouldn't do a tent or leave anything out overnight. You have to be able

to dart off from danger (people & chems). I like sleeping behind locked doors -

with key in the ignition. Food was a challenge. I went hungry A LOT rather than

have horrible reactions from the wrong food. Found I tolerated plain Kettle

Chips, plain Fritos, Sami's Bread (I had to mail for) raw grated beets (they

keep well in a paper bag until you grate them) pumpkin seeds, ready for this >

Mc 's salads & fries not more than every 10 days. canned artichoke

quarters, pumpkin seeds, canned green beans, canned aduki beans, canned black

eyed peas,Vital Choice tuna & salmon - VERY different from all the rest. I

highly recommend it. I hated canned tuna before that & my throat closed up from

the " safe " fish at healthy food stores. Canned coconut milk & Whey To Go vanilla

occasionally,

green bean baby food , occasional walnuts, potato salad. I would cheat every now

& then when I was starving & sometimes have to starve for awhile afterwards

until the inflammation went away. I took a lot of supplements too.

> You are reminding me that a good vehicle is priceless for times like these.

I'm

> sleeping in mine now because of the renovations. Lots more to go & this is no

> time to crash. You did mention you thought of camping but think you're too

sick.

> The fresh air may change that. You'll be tired at first from being outside so

> much. I would not rest easy if I didn't have a vehicle to fall back on - it's

> still packed & nothing new goes into it.

>

>

>