Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Nikki, Have you considered doing the same thing through acupuncture? This is from email that was forwarded to me. You can order the entire article through your public library: > > Today I at last recieved reprint of original paper from Prof., E.C.G. > Ventureyera (Chief, Division of Neurosurgery of Childrens Hospital of Easten > Ontario) recently publiced at > > Childs Nerv Syst (2000) 16:101-102 > > > > " Transcutaneous vagus nerve stimulation for partial onset seizure therapy: > A new concept. " > > > > He writes, for instance: > > > > " Transcutaneous electrical stimulation of the nervous system is a > noninvasive method that is already accepted and utilized for pain control, > muscle and tendon healing. > > > > The Xth cranial nerve has cutaneous reprezentation in the external > auditory canal (Ramsay Hunt zone). Via the intermediary nerve of Wrisberg > cutaneous stimuli reach both the vagus and NTS. Stimulation of this region > by acupuncture methods has shown beneficial effects upon seizure control. > > > > This knowledge can be developed a miniature transcutaneous electrical > stimulator the size of a hearing aid for noninvasive transcutaneous > stimulation of the Xth cranial nerves for seizure control. > > The availability of such a device could benifit millions of epiletic > patients of all ages by noninvasive means, by potentially decreasing or > eliminating the use of antiepileptic drugs, decreasing the costs of > treatment, and potentially eliminating the need for some risky and costly > surgical interventions. " ------------ Do you know what causes your seizures? What treatments have you tried. Brain surgery (1988) didn't stop mine and I got them under control in 1998 with no drugs at all. What do you do to manage yours? Zoe > Does anyone know about this procedure? Had anyone had this done and > successful? > > Nikki > > ps: I've read about it... Just want to hear it from others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Hi Zoe, New to the newsletter, I read your remark " .....I got them under control since 1998.. " What procedure do you use? Transcutaneous estimulation of the vagus? I am doing NF at home to my 31 yr old with intractable seizures and too early to tell. Thanks Cuns-Rial fcunsrial1@... Zoe_176@... wrote: > Nikki, > Have you considered doing the same thing through acupuncture? This is > from email that was forwarded to me. You can order the entire article > through your public library: > > > Today I at last recieved reprint of original paper from Prof., > E.C.G. > > Ventureyera (Chief, Division of Neurosurgery of Childrens Hospital > of > Easten > > Ontario) recently publiced at > > > Childs Nerv Syst (2000) 16:101-102 > > > > > > " Transcutaneous vagus nerve stimulation for partial onset seizure > therapy: > > A new concept. " > > > > > > He writes, for instance: > > > > > > " Transcutaneous electrical stimulation of the nervous system is a > > noninvasive method that is already accepted and utilized for pain > control, > > muscle and tendon healing. > > > > > > The Xth cranial nerve has cutaneous reprezentation in the external > > auditory canal (Ramsay Hunt zone). Via the intermediary nerve of > Wrisberg > > cutaneous stimuli reach both the vagus and NTS. Stimulation of this > region > > by acupuncture methods has shown beneficial effects upon seizure > control. > > > > > > This knowledge can be developed a miniature transcutaneous > electrical > > stimulator the size of a hearing aid for noninvasive transcutaneous > > stimulation of the Xth cranial nerves for seizure control. > > > The availability of such a device could benifit millions of > epiletic > > patients of all ages by noninvasive means, by potentially > decreasing or > > eliminating the use of antiepileptic drugs, decreasing the costs of > > treatment, and potentially eliminating the need for some risky and > costly > > surgical interventions. " > > ------------ > Do you know what causes your seizures? What treatments have you > tried. Brain surgery (1988) didn't stop mine and I got them under > control in 1998 with no drugs at all. What do you do to manage yours? > Zoe > > > > Does anyone know about this procedure? Had anyone had this done > and > > successful? > > > > Nikki > > > > ps: I've read about it... Just want to hear it from others. > > > _ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Hi Zoe, Nosing in: what's this about acupuncture & seizure control? I'll try anything aside from more meds & invasive surgery. I'm still looking around for a good neurofeedback doctor/center that's actually in relative proximity to me. Still writing...! ~Aja >From: Zoe_176@... >Reply- > >Subject: [ ] Re: Vagus Nerve Stimulation >Date: Tue, 13 Mar 2001 06:10:54 -0000 > >Nikki, >Have you considered doing the same thing through acupuncture? This is >from email that was forwarded to me. You can order the entire article >through your public library: > > > Today I at last recieved reprint of original paper from Prof., >E.C.G. > > Ventureyera (Chief, Division of Neurosurgery of Childrens Hospital >of >Easten > > Ontario) recently publiced at > > > Childs Nerv Syst (2000) 16:101-102 > > > > > > " Transcutaneous vagus nerve stimulation for partial onset seizure >therapy: > > A new concept. " > > > > > > He writes, for instance: > > > > > > " Transcutaneous electrical stimulation of the nervous system is a > > noninvasive method that is already accepted and utilized for pain >control, > > muscle and tendon healing. > > > > > > The Xth cranial nerve has cutaneous reprezentation in the external > > auditory canal (Ramsay Hunt zone). Via the intermediary nerve of >Wrisberg > > cutaneous stimuli reach both the vagus and NTS. Stimulation of this >region > > by acupuncture methods has shown beneficial effects upon seizure >control. > > > > > > This knowledge can be developed a miniature transcutaneous >electrical > > stimulator the size of a hearing aid for noninvasive transcutaneous > > stimulation of the Xth cranial nerves for seizure control. > > > The availability of such a device could benifit millions of >epiletic > > patients of all ages by noninvasive means, by potentially >decreasing or > > eliminating the use of antiepileptic drugs, decreasing the costs of > > treatment, and potentially eliminating the need for some risky and >costly > > surgical interventions. " > >------------ > Do you know what causes your seizures? What treatments have you >tried. Brain surgery (1988) didn't stop mine and I got them under >control in 1998 with no drugs at all. What do you do to manage yours? >Zoe > > > > > > > Does anyone know about this procedure? Had anyone had this done >and > > successful? > > > > Nikki > > > > ps: I've read about it... Just want to hear it from others. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Zoe, Ps: I've started working out a lot more in the last month, & it seems that the more exersize I get, the less simple partials I have... Have you had this same experience? ~Aja >From: Zoe_176@... >Reply- > >Subject: [ ] Re: Vagus Nerve Stimulation >Date: Tue, 13 Mar 2001 06:10:54 -0000 > >Nikki, >Have you considered doing the same thing through acupuncture? This is >from email that was forwarded to me. You can order the entire article >through your public library: > > > Today I at last recieved reprint of original paper from Prof., >E.C.G. > > Ventureyera (Chief, Division of Neurosurgery of Childrens Hospital >of >Easten > > Ontario) recently publiced at > > > Childs Nerv Syst (2000) 16:101-102 > > > > > > " Transcutaneous vagus nerve stimulation for partial onset seizure >therapy: > > A new concept. " > > > > > > He writes, for instance: > > > > > > " Transcutaneous electrical stimulation of the nervous system is a > > noninvasive method that is already accepted and utilized for pain >control, > > muscle and tendon healing. > > > > > > The Xth cranial nerve has cutaneous reprezentation in the external > > auditory canal (Ramsay Hunt zone). Via the intermediary nerve of >Wrisberg > > cutaneous stimuli reach both the vagus and NTS. Stimulation of this >region > > by acupuncture methods has shown beneficial effects upon seizure >control. > > > > > > This knowledge can be developed a miniature transcutaneous >electrical > > stimulator the size of a hearing aid for noninvasive transcutaneous > > stimulation of the Xth cranial nerves for seizure control. > > > The availability of such a device could benifit millions of >epiletic > > patients of all ages by noninvasive means, by potentially >decreasing or > > eliminating the use of antiepileptic drugs, decreasing the costs of > > treatment, and potentially eliminating the need for some risky and >costly > > surgical interventions. " > >------------ > Do you know what causes your seizures? What treatments have you >tried. Brain surgery (1988) didn't stop mine and I got them under >control in 1998 with no drugs at all. What do you do to manage yours? >Zoe > > > > > > > Does anyone know about this procedure? Had anyone had this done >and > > successful? > > > > Nikki > > > > ps: I've read about it... Just want to hear it from others. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Zoe, Ps: I've started working out a lot more in the last month, & it seems that the more exersize I get, the less simple partials I have... Have you had this same experience? ~Aja >From: Zoe_176@... >Reply- > >Subject: [ ] Re: Vagus Nerve Stimulation >Date: Tue, 13 Mar 2001 06:10:54 -0000 > >Nikki, >Have you considered doing the same thing through acupuncture? This is >from email that was forwarded to me. You can order the entire article >through your public library: > > > Today I at last recieved reprint of original paper from Prof., >E.C.G. > > Ventureyera (Chief, Division of Neurosurgery of Childrens Hospital >of >Easten > > Ontario) recently publiced at > > > Childs Nerv Syst (2000) 16:101-102 > > > > > > " Transcutaneous vagus nerve stimulation for partial onset seizure >therapy: > > A new concept. " > > > > > > He writes, for instance: > > > > > > " Transcutaneous electrical stimulation of the nervous system is a > > noninvasive method that is already accepted and utilized for pain >control, > > muscle and tendon healing. > > > > > > The Xth cranial nerve has cutaneous reprezentation in the external > > auditory canal (Ramsay Hunt zone). Via the intermediary nerve of >Wrisberg > > cutaneous stimuli reach both the vagus and NTS. Stimulation of this >region > > by acupuncture methods has shown beneficial effects upon seizure >control. > > > > > > This knowledge can be developed a miniature transcutaneous >electrical > > stimulator the size of a hearing aid for noninvasive transcutaneous > > stimulation of the Xth cranial nerves for seizure control. > > > The availability of such a device could benifit millions of >epiletic > > patients of all ages by noninvasive means, by potentially >decreasing or > > eliminating the use of antiepileptic drugs, decreasing the costs of > > treatment, and potentially eliminating the need for some risky and >costly > > surgical interventions. " > >------------ > Do you know what causes your seizures? What treatments have you >tried. Brain surgery (1988) didn't stop mine and I got them under >control in 1998 with no drugs at all. What do you do to manage yours? >Zoe > > > > > > > Does anyone know about this procedure? Had anyone had this done >and > > successful? > > > > Nikki > > > > ps: I've read about it... Just want to hear it from others. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Wondring if that has something to do with LACTIC ACID? Kathy B [ ] Re: Vagus Nerve Stimulation > >Date: Tue, 13 Mar 2001 06:10:54 -0000 > > > >Nikki, > >Have you considered doing the same thing through acupuncture? This is > >from email that was forwarded to me. You can order the entire article > >through your public library: > > > > Today I at last recieved reprint of original paper from Prof., > >E.C.G. > > > Ventureyera (Chief, Division of Neurosurgery of Childrens Hospital > >of > >Easten > > > Ontario) recently publiced at > > > > Childs Nerv Syst (2000) 16:101-102 > > > > > > > > " Transcutaneous vagus nerve stimulation for partial onset seizure > >therapy: > > > A new concept. " > > > > > > > > He writes, for instance: > > > > > > > > " Transcutaneous electrical stimulation of the nervous system is a > > > noninvasive method that is already accepted and utilized for pain > >control, > > > muscle and tendon healing. > > > > > > > > The Xth cranial nerve has cutaneous reprezentation in the external > > > auditory canal (Ramsay Hunt zone). Via the intermediary nerve of > >Wrisberg > > > cutaneous stimuli reach both the vagus and NTS. Stimulation of this > >region > > > by acupuncture methods has shown beneficial effects upon seizure > >control. > > > > > > > > This knowledge can be developed a miniature transcutaneous > >electrical > > > stimulator the size of a hearing aid for noninvasive transcutaneous > > > stimulation of the Xth cranial nerves for seizure control. > > > > The availability of such a device could benifit millions of > >epiletic > > > patients of all ages by noninvasive means, by potentially > >decreasing or > > > eliminating the use of antiepileptic drugs, decreasing the costs of > > > treatment, and potentially eliminating the need for some risky and > >costly > > > surgical interventions. " > > > >------------ > > Do you know what causes your seizures? What treatments have you > >tried. Brain surgery (1988) didn't stop mine and I got them under > >control in 1998 with no drugs at all. What do you do to manage yours? > >Zoe > > > > > > > > > > > > > Does anyone know about this procedure? Had anyone had this done > >and > > > successful? > > > > > > Nikki > > > > > > ps: I've read about it... Just want to hear it from others. > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > _ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 That is a common " side-effect " . It seems to be related to the fact that as you exercise, the pH or acidity of your blood diminishes slightly but in doing so, it increases the capacity to carry more oxygen (Is called PaO2) Keep it up! fcunsrial1@... wrote: > Wondring if that has something to do with LACTIC ACID? > Kathy B > [ ] Re: Vagus Nerve Stimulation > > >Date: Tue, 13 Mar 2001 06:10:54 -0000 > > > > > >Nikki, > > >Have you considered doing the same thing through acupuncture? This is > > >from email that was forwarded to me. You can order the entire article > > >through your public library: > > > > > Today I at last recieved reprint of original paper from Prof., > > >E.C.G. > > > > Ventureyera (Chief, Division of Neurosurgery of Childrens Hospital > > >of > > >Easten > > > > Ontario) recently publiced at > > > > > Childs Nerv Syst (2000) 16:101-102 > > > > > > > > > > " Transcutaneous vagus nerve stimulation for partial onset seizure > > >therapy: > > > > A new concept. " > > > > > > > > > > He writes, for instance: > > > > > > > > > > " Transcutaneous electrical stimulation of the nervous system is a > > > > noninvasive method that is already accepted and utilized for pain > > >control, > > > > muscle and tendon healing. > > > > > > > > > > The Xth cranial nerve has cutaneous reprezentation in the external > > > > auditory canal (Ramsay Hunt zone). Via the intermediary nerve of > > >Wrisberg > > > > cutaneous stimuli reach both the vagus and NTS. Stimulation of this > > >region > > > > by acupuncture methods has shown beneficial effects upon seizure > > >control. > > > > > > > > > > This knowledge can be developed a miniature transcutaneous > > >electrical > > > > stimulator the size of a hearing aid for noninvasive transcutaneous > > > > stimulation of the Xth cranial nerves for seizure control. > > > > > The availability of such a device could benifit millions of > > >epiletic > > > > patients of all ages by noninvasive means, by potentially > > >decreasing or > > > > eliminating the use of antiepileptic drugs, decreasing the costs of > > > > treatment, and potentially eliminating the need for some risky and > > >costly > > > > surgical interventions. " > > > > > >------------ > > > Do you know what causes your seizures? What treatments have you > > >tried. Brain surgery (1988) didn't stop mine and I got them under > > >control in 1998 with no drugs at all. What do you do to manage yours? > > >Zoe > > > > > > > > > > > > > > > > > > > Does anyone know about this procedure? Had anyone had this done > > >and > > > > successful? > > > > > > > > Nikki > > > > > > > > ps: I've read about it... Just want to hear it from others. > > > > > > > _________________________________________________________________ > > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > > > _ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Zoe I just read this morning that people in the know, prefer to stimulate the trigeminal nerves (both) as opposed to the vagus because the vagus nerve controls the lungs and heart and an overstimulation could lead to more serious problems that the trigeminal not involved with any major organ. Actually, researchers at Duke have been successful with this therapy and an old friend of mine a dentist in Ca, (Jennings) has been able to " cure " a number of epileptic patients, stimulating the trigeminal via orthodontic devices that one wears 24/7. Thanks Fcunsrial1@... asley wrote: > Hi Zoe, > > Nosing in: what's this about acupuncture & seizure control? I'll try > anything aside from more meds & invasive surgery. I'm still looking around > for a good neurofeedback doctor/center that's actually in relative proximity > to me. > > Still writing...! > > ~Aja > > >From: Zoe_176@... > >Reply- > > > >Subject: [ ] Re: Vagus Nerve Stimulation > >Date: Tue, 13 Mar 2001 06:10:54 -0000 > > > >Nikki, > >Have you considered doing the same thing through acupuncture? This is > >from email that was forwarded to me. You can order the entire article > >through your public library: > > > > Today I at last recieved reprint of original paper from Prof., > >E.C.G. > > > Ventureyera (Chief, Division of Neurosurgery of Childrens Hospital > >of > >Easten > > > Ontario) recently publiced at > > > > Childs Nerv Syst (2000) 16:101-102 > > > > > > > > " Transcutaneous vagus nerve stimulation for partial onset seizure > >therapy: > > > A new concept. " > > > > > > > > He writes, for instance: > > > > > > > > " Transcutaneous electrical stimulation of the nervous system is a > > > noninvasive method that is already accepted and utilized for pain > >control, > > > muscle and tendon healing. > > > > > > > > The Xth cranial nerve has cutaneous reprezentation in the external > > > auditory canal (Ramsay Hunt zone). Via the intermediary nerve of > >Wrisberg > > > cutaneous stimuli reach both the vagus and NTS. Stimulation of this > >region > > > by acupuncture methods has shown beneficial effects upon seizure > >control. > > > > > > > > This knowledge can be developed a miniature transcutaneous > >electrical > > > stimulator the size of a hearing aid for noninvasive transcutaneous > > > stimulation of the Xth cranial nerves for seizure control. > > > > The availability of such a device could benifit millions of > >epiletic > > > patients of all ages by noninvasive means, by potentially > >decreasing or > > > eliminating the use of antiepileptic drugs, decreasing the costs of > > > treatment, and potentially eliminating the need for some risky and > >costly > > > surgical interventions. " > > > >------------ > > Do you know what causes your seizures? What treatments have you > >tried. Brain surgery (1988) didn't stop mine and I got them under > >control in 1998 with no drugs at all. What do you do to manage yours? > >Zoe > > > > > > > > > > > > > Does anyone know about this procedure? Had anyone had this done > >and > > > successful? > > > > > > Nikki > > > > > > ps: I've read about it... Just want to hear it from others. > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > _ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Hi , I depended a lot on behavior therapy to bring them under control. After they stopped I had four months of NF which helped much. Another MAJOR help was using the amino acid L-taurine. I'm just reading tonight in the Merk Manual that generalized seizures suggest metabolic disorders of which there are more than a hundred with seizures as a symptom. Also, seizures can be the first symptom of systemic lupus and of celiac disease. DIET was also a big factor in getting the seizures to stop--especially wheat free and dairy\lactose free. It is well known that the glutamate in MSG can be neurotoxic and cause seizures and cell death. MSG is the salt derived from gluten, the indigestible protein in wheat and many other grains. So it may be that wheat is contributing to toxic levels of glutamate which may result in seizures. Going off the wheat made a big improvement in reducing seizures. I was researching it tonight and ascorbic acid (vitamin C) apparently plays a role in lessening the damage from glutamate toxicity which I'm posting in another message. What diet or other techniques have you tried to get the seizures under control? Best of luck with the NF. Let other's know how it works for you. Zoe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Hi Aja, Glad you are still writing. Where are you anyway? Have you tried anyplace besides EEG Spectrum to find a practitioner? From the library you should be able to get or order a copy of the article on the acupuncture. Tere are acupuncture practioners listed through organizations on the web also. Are you on a strict gluten-free diet? It may be the gluten\glutamate we get in our food as much as the additives, like MSG that keeps our nervous systems riled up. I hit my wall with the language thing tonight. I went to my first yoga class out here. My ability to track spoken language is still very poor, I literally cannot " see " what someone else is saying if they talk faster than I can comprehend. The instructor is real nice though, so think it will work out. We discussed it after the class (slowly!). Oh! I meant to tell you. How is it for you writing by hand? I wrote left handed and it was my left side that was paralyzed. I can now type fifty words a minute but can't write legibly by hand to this day. I found a word processor type thing, very lightweight. It runs on AA batteries and stores about a hundred pages of typing divided into 8 files. A cable connects it to the back of the computer and makes it like the computer's keyboard. When you press the " send " command, it sends your file to the computer's open word processing program which you can then save to disk or print. It is easy to use and very light weight, so I can carry it in my back-pack and not have to lug my laptop around or worry about the battery running down in just a few hours on the computer. It only cost about $200.00 and I'm tickeled with it. Makes things much easier! Keep writing kiddo! I'll be getting settled into a temporary apartment at the end of the month. You can send me writing any time you want to my private email address. I expect to have an article posted in the next week, actually, two, on my web page. One is about behavior modification and seizures, the other an interview with a psychologist in Germany who is doing research on behavior therapy for seizures. It is now possible to get feedback monitoring of your brain cells getting excited just as a seizure starts and to train those particular brain cells to calm down and learn to do this on your own. (obediance school for the seizure-prone brain!). Zoe > > > Does anyone know about this procedure? Had anyone had this done > >and > > > successful? > > > > > > Nikki > > > > > > ps: I've read about it... Just want to hear it from others. > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Hi , Can you email me that article or link to it? It sounds very interesting. From what I've read, the vagal nerve stimulator works by altering the blood flow to the area of the brain where seizures originate. As in what you noted about the pH, the changes in cerebral blood flow may be what precipitate the seizures. This is what Fried and others maintain and, in Fried's view, the abnormal electrical activity is the result of the seizure, not the seizure itself. I've pulled a number of articles on cerebral blood flow and seizures. is there something going on with your child, systemic, metabolic maybe rhat could keep cycling into seizures? Has your dentist friend published anything about his " cures " ? Zoe p.s. Syncope is the condition most often misdiagnosed as epilepsy. since the seizures and syncope can be clinically identical in symptoms. I wonder how many (if any) people who got the stimulator may have had vasovagal syncope misdiagnosed as a seizure disorder? At any rate, the stimulator seems to be fairly successful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Hi Zoe, , my son, has been taking Taurine for years, not only because it is a precursor of inhibitor neurotransmitters but also because it helps with the heart tissue strength and eyesight as well. You must take it in an empty stomach and be careful about gastric distress. takes it also in liquid form under the tongue for quick absorption. An amino acid profile indicated that he was low in Taurine. We have done the full rotation diet twice to eliminate any food sensitivities and found no direct correlation with any of the common offenders. In the 15 years of " fighting " ,masking, neurofeedback and trigeminal stimulation were the most successful techniques we found. Exercise, of course is a must.as is the taking of generous amounts of necessary supplements. Among those we insist a great deal in the " brain " antioxidants such as Lipoic acid, Vinpocetine, etc.Warm regards Zoe_176@... wrote: > Hi , > I depended a lot on behavior therapy to bring them under control. > After they stopped I had four months of NF which helped much. > Another MAJOR help was using the amino acid L-taurine. I'm just > reading tonight in the Merk Manual that generalized seizures suggest > metabolic disorders of which there are more than a hundred with > seizures as a symptom. Also, seizures can be the first symptom of > systemic lupus and of celiac disease. DIET was also a big factor in > getting the seizures to stop--especially wheat free and dairy\lactose > free. > It is well known that the glutamate in MSG can be neurotoxic and > cause seizures and cell death. MSG is the salt derived from gluten, > the indigestible protein in wheat and many other grains. So it may be > that wheat is contributing to toxic levels of glutamate which may > result in seizures. Going off the wheat made a big improvement in > reducing seizures. > I was researching it tonight and ascorbic acid (vitamin C) > apparently plays a role in lessening the damage from glutamate > toxicity which I'm posting in another message. What diet or other > techniques have you tried to get the seizures under control? Best of > luck with the NF. Let other's know how it works for you. > Zoe > > > > > _ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Hi Zoe, I think that people at EEG Spectrum have a small gizmo, that measures micro circulation transcutaneally and capable of determining the flow variations as you do NF. It seems to be a great device for research to determine whether one has the ability to shunt the blood flow rapidly enough from one area to the next. I do not have the link to the trigeminal stimulation experiment in rats but I do know that was Duke Univ and www.Dukenews/duke.edu is what comes to mind. I have lost the track of Jennings but I know he is still practicing in Ca. His page is no longer out there, but knowing him I am sure that he is going on strong . warm regards Zoe_176@... wrote: > Hi , > Can you email me that article or link to it? It sounds very > interesting. From what I've read, the vagal nerve stimulator works by > altering the blood flow to the area of the brain where seizures > originate. As in what you noted about the pH, the changes in cerebral > blood flow may be what precipitate the seizures. This is what Fried > and others maintain and, in Fried's view, the abnormal electrical > activity is the result of the seizure, not the seizure itself. I've > pulled a number of articles on cerebral blood flow and seizures. is > there something going on with your child, systemic, metabolic maybe > rhat could keep cycling into seizures? Has your dentist friend > published anything about his " cures " ? > Zoe > p.s. > Syncope is the condition most often misdiagnosed as epilepsy. > since the seizures and syncope can be clinically identical in > symptoms. I wonder how many (if any) people who got the stimulator > may have had vasovagal syncope misdiagnosed as a seizure disorder? At > any rate, the stimulator seems to be fairly successful. > > > _ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Hi , It seems the taurine helped my digestive process (and seizures that provoked) as much as changing diet, as you must know. I took as much as six grams of taurine a day but have stayed with 1 gram a day for more than a year now. Taurine seems to be a sort of " de facto " antidote to glutamate build-up. What things (besides seizures and traumas such as car accidents) will cause a depletion of taurine? I haven't seen much on it in my searching. I'm always looking for more information on taurine, especially in relation to seizures. I think you may have written me once, either from my web page or the biofeedback group. I remember that I wrote a long response and the email was rejected. It seems to me we are too often missing some kind of relationship between diet, digestion, and numerous disorders such as seizures and some of the autoimmune disorders. Even without the seizures, I am still having " reactions " of varying degrees, almost every meal, though can't clearly see what they are to figure out how to best respond. If I missed it, please explain " masking " to me. Thanks. Zoe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 , Is slow cortical potentials training something you are doing or have looked into? I'm just finishing an article about it and one of the studies in Germany indicated the SCPs traing to stop seizures also made changes in cerebral blood flow to the affected areas. Zoe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Hi Zoe, I am doing plain NF rewarding Beta and inhibiting slow Theta at T3 T4. It is protocol developed by the Othmers at EEG Spectrum. I am very interested in your article and the Slow Potential issue. Pls keep me posted.\ Thanks Zoe_176@... wrote: > , > Is slow cortical potentials training something you are doing or > have looked into? I'm just finishing an article about it and one of > the studies in Germany indicated the SCPs traing to stop seizures > also made changes in cerebral blood flow to the affected areas. > Zoe > > > _ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Hi , I shold have a link to the articles in a few days and will post them. I am very impressed with the Othmers and their views on seizures. Keep us posted on how the NF goes. Zoe > Hi Zoe, I am doing plain NF rewarding Beta and inhibiting slow Theta at T3 > T4. It is protocol developed by the Othmers at EEG Spectrum. I am very > interested in your article and the Slow Potential issue. Pls keep me posted.\ > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 In a message dated 3/15/01 6:42:39 AM Eastern Standard Time, fcunsrial1@... writes: << Hi Zoe, I am doing plain NF rewarding Beta and inhibiting slow Theta at T3 T4. It is protocol developed by the Othmers at EEG Spectrum. I am very interested in your article and the Slow Potential issue. Pls keep me posted.\ >> OK....ZOE and FRANK....:-) This is all Greek to me. Can you explain what you are talking about? Does this have to do with biofeedback? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 interesting. many,including myself have noticed how my voice changes sometimes. vagus nerve stimulation http://www.neurosurgerytoday.org/what/patient_e/vagus_nerve_stimulation.asp http://www.umm.edu/neurosciences/vagus_nerve.htm seizure disorders http://www.merck.com/mmhe/sec06/ch085/ch085a.html The vagus nerve starts in the brain, goes down the neck and into the body where if affects the vocal cords, the acid content of the stomach, the heart, the lungs, and other organs. In the brain it projects to areas believed to be responsible for seizures, mood, appetite, memory and anxiety vagus nerve stimulation for eating disorders http://www.epigee.org/vagus-nerve-stimulation-treatment-eating-disorders Quote Link to comment Share on other sites More sharing options...
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