Re: Re: HELP/Pesticides/ SUMETHRIN POISOINING

[Guest guest]

Thank you for your kind words. I am in the system because I suffer from

funzaloo/  The fight would bring aide to others as well if I did manage to get

something done with them. I cannot go to any Dr on my own and those I see threw

medicaid are  clueless, uanble to read, listen or understand a thing.  They

have

almost killed me., more than once simply by discrimination to disability  The

ones that have not attmpted to do so, have released me from their practice.  I

have had not even a pulmo in the time I have had medicaid and have seen 7 thus

far.  There is not even a Dr monotoring my oxygen use.  I never know what my

oxyegn saturation is. 

I use how I feel to guide me and what ever information I can read or get from

my

friends here and on other groups. So it has kept me alive so far but I really do

not know how I am  other than my blood work shows no anemia, nor anything else

like highrbc or wbc etc.   Basic things,.  That is all I have gotten thus

far. I

have a good nuero but he does not know what to do.  had read some papers and he

asks me questions but he is just not prepared for what I do have in my lungs nor

can he.  I just lost my PCP to discrimination and that is all I get here. 

I was told tonight by anurse to go to the hospital if I am sick but not tell

them what I have.  Make sence to you?  I get anphalactic reactions from

perfume,

scented stuff, should I not tell them?  My veins burn with antibiotics, Should

I

not tell them? latex, plastic iv inserts collapse my veins, and 4 hrs in the ER

make me look like I have severe wind burns on my skin.  What should I not tell

the ER if I had to go? 

I have someone working on getting me back my respiratory equipment and now we

have no one to write the script after she found me a DME company willing to do

it.  One step foward, three steps back, so I cannot get one step ahead. 

So I now have about 5 months or so to go for medicare, they back dated me a year

or more back.  But now with the pesticide and the pain in my breast and all 5

months feels like forever. 

I already had suspicions of something in my enviroment like left over mold

by-products and now some pesticide an oxygen tank that does not let me go

anywhere and the heat has been so bad no car is not an option at the moment.  I

was Sept to come and cool things down , maybe then I can at least sleep in the

car for a while.  I had an ANA at the neuros office and had a reaction to the

electrodes, the site swelled and I could not breathe.  Even the testing gets in

my way.  Jus a little insight into my life. 

God Bless !!

dragonflymcs

Mayleen

________________________________

From: osisposis <jeaninem660@...>

Sent: Thu, August 26, 2010 11:36:17 PM

Subject: [] Re: HELP/Pesticides/ SUMETHRIN POISOINING

 

soory for your loss Mayleen, I dont know that you would be much better off be

fight with medicaid and them finding you a doctor, cant you just go to a doctor

that takes medicaid and worry about the fight over coverage later, if there is

any?

while everything may not be covered some will. maybe you can round up the money

for what isn't?

I just wouldn't hold much confidence in a medicaid finding you a doctor and not

even all environmental doctors know what to do here.