CFS

[Guest guest]

Dear Ellen: Lyme symptoms and CFS symptoms overlap in their

definitions. According to a book by Alan Barbour on Lyme Disease

[although I think he may be in Steere's camp] he says that there are

shared symptoms of fatigue, aches and pains of the musculoskeletal

system, sleep disturbances,and a perception of diminished mental

function. He gives a chart of the differences between the symptoms and

there is really only one: Post-Lyme Disease [which in my opinion does

not exist!] does not have a sore throat or painful lymph glands in the

neck or under the arms and mild fever. But, these symptoms are

indicative of CFS. Also, CFS patients also have elevated levels of

total antibodies at the say time as they have a low white blood count.

Just remember - If you've had lyme, and you have CFS symptoms, you

are probably still infected. The recent findings by Dr.

indicate that there is no longer a reason to classify symptoms of

" Post-lyme syndrome " because he cultured the lyme bacteria in these

chronic patients. In my non-medical opinion, you need more

antibiotics!

As for the cognitive issues, I have brain-fogging and inability to

make connections - both of which seemed to have cleared somewhat with

Biaxin.

I hope this helped.

Lovette

[Guest guest]

Lovette,

Thanks for the information. It's very helpful. I actually have

Barbour's book, but didn't remember his addressing this issue. I'll

take another look.

Thanks, Ellen

[Guest guest]

----------

From: " Dag Jensen " <dag.leroe@...>

bowel cleanseonelist

Subject: CFS

Date: søn 15. aug 1999 12:19

Hello,

I am a CFS sufferer for some years, one of the symptoms bowel problems. Have

been recommended Hulda 's ascaries cure for tapeworms etc. Anybody with

experience with this?

[Guest guest]

On 15 Aug 99, at 13:17, Dag Jensen wrote:

> I am a CFS sufferer for some years, one of the symptoms bowel problems.

> Have been recommended Hulda 's ascaries cure for tapeworms etc.

> Anybody with experience with this?

Yes, I have done it, but not for any specific health problem - did it

for general health improvement. Doing that handling is not a bad

idea, but I would recommend you to do ALL of Dr. ´s handlings

and programs. She more or less guarantees that you will be well then,

but only if you follow all her advice. If you just do one thing out

of context, so to say, you could get some improvement of course, but

not all improvement possible from doing all the handlings.

There is a chapter about fatigue in the book The Cure for All

Diseases by Hulda , you will also need to study some other parts

of that book to get going. Also, to get the latest information from

Dr. , I recommend you to get The Cure for HIV and AIDS (this

book contains LOTS of information - and not just about HIV and AIDS).

I guess that you are either Norwegian or Dane. Then you are lucky

because there is a Hulda Clinic in both Oslo and Copenhagen. The

Norwegian one has a home page at home.sol.no/~huldakli

Best regards, Ulf

ulftage@...

[Guest guest]

lescase@... wrote:

>

> Wonder if CFS is typical for O's ,, a lot of us seem to have the symptoms. I

> had a bunch of reasons why I turned to the ER4YT diet and lack of energy in

> the afternoon was a major one. The diet's helped but I think the biggest

> help has been an increase in aerobic exercise... as soon as I get the tired

> feeling I exercise and that tiredness goes away.

>

I have the problem that exercise makes things worse, an hours walk is as

much as I can manage. And if I don't rest after this then things will

get a lot worse to the point where if I don't get sufficient rest I will

be laid up for 4 or 5 days. Worried about loosing muscle strength I

asked the doctor about exercise and was told except for gentle swimming

and using a Jacuzzi to stay away from more vigorous exercise until we

had a better idea about what might be the problem with me.

> Oh, Steve, I love the products from Green People,, shampoo/conditioner are

> good and the deodorant crystal I love,, what a great concept! trying to get

> my husb. to try but he's resisting... (we get so set in our ways sometimes!).

> Thanks for the info on gastrin... and interested to hear where you end

> up... I'm betting on Bastyr... keep us posted!

>

Glad you like the shampoo/conditioner...the crystal is good...some

companies do a pump action spray version, some with

perfumes/fragrances. The salts in the crystal (or liquid) kill the

bacteria that cause the odours. Unlike most anti-perspirants which just

block the pores.

I have to get my health better before I can consider anything like

Bastyr, the problems I live with include lack of focus/concentration and

'brain fog' where my mind will just go blank or stop, usually because of

an overload of information...least that is how it appears to me. Anyway

the first step is to get myself into the USA, then take things from

there.

LnL

--

Steve - Cheltenham, UK

---------

In love and light we are

In darkness we are no less

[Guest guest]

WOW that was quick thanks:)

I may get stuck a lot in life, but at least I stick with it:)

Re: CFS

Garth Nicholson (I think)

Think it is http://www.immed.org

mycoplasma(s) infections

Stuck wrote:

>

> did any of you see the show on CFS on November 19 on the discovery health

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[Guest guest]

Garth Nicholson (I think)

Think it is http://www.immed.org

mycoplasma(s) infections

Stuck wrote:

>

> did any of you see the show on CFS on November 19 on the discovery health

[Guest guest]

Stuck wrote:

>

> WOW that was quick thanks:)

You're welcome! Just getting ready to shut 'puter down. Think his last

name is Nichols rather than Nicholson. whatever. I wish egg nog and

chocolate were cures!

[Guest guest]

ME TOO!

I may get stuck a lot in life, but at least I stick with it:)

Re: CFS

Stuck wrote:

>

> WOW that was quick thanks:)

You're welcome! Just getting ready to shut 'puter down. Think his last

name is Nichols rather than Nicholson. whatever. I wish egg nog and

chocolate were cures!

Send blank message to candidiasis-unsubscribeonelist if you want to

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[Guest guest]

wow - this is a huge question... and if someone had the real **cure** there

would be millions of people healed!!

I have always believed in a comprehensive approach - our DIET is essentially

important (many many of us have allergies to many foods we are eating... and

also are eating junk and wrong foods).... CLEANSING of the bowels.... is

vital... ... trying to help digestion with food enzymes... re-building the

flora/fauna/bacteria balance in the body that has been destroyed from

medications/antibiotics/steroids...diet...

boy - i'm sure there's things I " ve left out... and others can fill in ...

but educating yourself in all these things is so vital. I'm reading an

excellent book right now called 'Chronic Fatigue and the Canary' by Majid

Ali.... EXCELLENT book....

wendy

CFS

Hi there. How do you cure the CFS?. Greetings.

Claudio

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[Guest guest]

Hi Corny,

What about raw green foods? Is this a different case?

Best Wishes!

Hyperbaroman

>From: Mike E Cornwall <corny88@...>

>Reply-oxyplus

>oxyplus

>Subject: CFS

>Date: Tue, 10 Jul 2001 18:44:43 +0000

>

>

>Luck, one of the listmembers here, has been reporting good results with

>his own problems by taking the dietary advice of Aajonus Vonderplanitz.

>He wrote the book, " We Want To Live. " I have the book which I used to

>embark on the raw meat diet. CFS may not be a problem for Luck, but many

>different conditions are apparently remedied by this diet.

>

>What AV has to say about CFS follows: " Often CFS results from not having

>the enzyme-mutation to digest cooked green foods. Avoid cooked green

>foods. Eating raw meat 2-4 times daily with a balanced raw diet corrects

>this condition, sometimes quickly but most often gradually.''

>

>Learn more about this approach to eliminating diseases by visiting AV's

>website: http://www.primaldiet.com

>

>Luck will hopefully give us an update with his thoughts about using this

>approach to remedy CFS.

>

>Corny

>

>

>________________________________________________________________

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[Guest guest]

Hi Corny,

What about raw green foods? Is this a different case?

Best Wishes!

Hyperbaroman

>From: Mike E Cornwall <corny88@...>

>Reply-oxyplus

>oxyplus

>Subject: CFS

>Date: Tue, 10 Jul 2001 18:44:43 +0000

>

>

>Luck, one of the listmembers here, has been reporting good results with

>his own problems by taking the dietary advice of Aajonus Vonderplanitz.

>He wrote the book, " We Want To Live. " I have the book which I used to

>embark on the raw meat diet. CFS may not be a problem for Luck, but many

>different conditions are apparently remedied by this diet.

>

>What AV has to say about CFS follows: " Often CFS results from not having

>the enzyme-mutation to digest cooked green foods. Avoid cooked green

>foods. Eating raw meat 2-4 times daily with a balanced raw diet corrects

>this condition, sometimes quickly but most often gradually.''

>

>Learn more about this approach to eliminating diseases by visiting AV's

>website: http://www.primaldiet.com

>

>Luck will hopefully give us an update with his thoughts about using this

>approach to remedy CFS.

>

>Corny

>

>

>________________________________________________________________

>GET INTERNET ACCESS FROM JUNO!

>Juno offers FREE or PREMIUM Internet access for less!

>Join Juno today! For your FREE software, visit:

>http://dl.www.juno.com/get/tagj.

_________________________________________________________________

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[Guest guest]

I really don't know if cfs is connected with low thyroid problems or

it is a secondary illness resulting from first having CFS. All I know

is that when I was ill it was after having pneumonia, I was back in

college and picked up a very bad infection, the docotor prescribe a

antibotic and after a month he called my home to tell me they gave me

the wrong antibotic for my pneumonia. So I took the new medication,

but somehow never felt well.

After a few months I became very tired, I had yeast infections and I

never had one before, I could not swollow, my lymph nodes (armpits

and throat were extremely swollen), I could not drink coffee it was

like poision, my eyes were black, I could not sleep and I could not

drive.

I could not get better. So I went back to my doctor, he did blood

tests and the results were that the pneumonia germ was still in my

blood as well a high numbers for esptein barr, CMV, mono, yeast, and

my white blood cells count was very high and my red blood cell count

was normal( which he could not understand), he told me I had

lymphoma. He told me there was nothing he could do for me, he walked

away.

This was early 1990, the nurse whispered in my ear to take vitamins--

so that is when I got into juicing, it took 2 years to get back to

normal and in 1997 I had my last yeast infection (which was also on

my skin)--I think I beat the yeast when I got into taking lots of C--

around 5-6 grams a day for me.

I never had the muscle aches that was association with CFS, but I

know many who have had CFS also have muscle problems. Everything that

I have read when CFS was first diagnoised it was due to a illness

that you never recovered from and that diagnoise did work for me here.

All I know is that I have the anitbodies for all these viruses in my

blood still to this day, but I have never suffered them returning

because anytime I feel like I am getting sick, I go back to my mega

doseage of C's, and my juicing book.

hopefully this can help someone out there---tina

[Guest guest]

high B vitamins and C really helped me to function (helped adrenals) until

menopause. Then my adrenals were all done. Pneumonia is a symptom of low

adrenal function too.

Gracia

> I really don't know if cfs is connected with low thyroid problems or

> it is a secondary illness resulting from first having CFS. All I know

> is that when I was ill it was after having pneumonia,

[Guest guest]

> wrote:

> My osteopath claims that if he can't detect an excessive amount of

> candida in my blood tests, then I must have CFS, which he claims they

> can't treat.

Hi ,

He might claim he can't treat it, but in fact there is a well-known

method for treating CFS.

It happens that it's pretty natural, that's all. Essentially it's

detoxification including liver flushes, oxygenation, antioxidant

therapy and cold-processd whey and selenium, and for some people, amino

acids for HGH increase.

For most people, that therapy is enough; for others they might have

also mycoplasma infection or some such.

Try the group CFScured, for example.

The bonus is that most of it is what you'd do for any toxin-related

disorder anyway, candidiasis included.

Duncan Crow

[Guest guest]

> I only meant to ask about the E question here, not being

> afraid of sounding stupid. I have been occupied with the

> other 100 things that CFIDS causes!!

Katrina -- okay, it sounds like you are in good hands. :-)

Obviously I didn't have all that facts! All I knew is that

your EMF sensitivity appeared to be getting worse, which to

me was an indication of doing something wrong. But I do

realize that when you've got lots of other issues, it all

becomes extremely complicated, and one has to prioritize

which issues to address first.

I also had chronic fatigue syndrome along with my ES 5 years ago

(in bed 20 hours/day, constantly ill, on medical leave of

absence from work), but fortunately I got over that part of

the illness in a couple years. But it required a huge expense

and trial & error, and doctors really never helped at all.

I did get quite a bit of help from " Wellness Consultants "

and " Nutritionists " who used EAV testing and muscle testing,

and used more natural supplements like those from Standard

Process.

In all your experimentations Katrina, have you ever tried

the supplement " Cellfood " ? That one seemed to bring me

back from " near death " all by itself, although it didn't

do anything for my ES. And I could only tolerate a

small fraction of the recommended dose (2 drops/day

instead of 24)

Marc

[Guest guest]

Marc,

The " Cellfood " sounds familiar, from discussions...do you recall who makes it? A

number of products have similar names.

Most Doctors, in all Specialties (and frankly Clinics and Naturopath types, too)

have been essentially useless, or even damaging. But there are so many

components to ME/CFS, small things may help temporarily, without addressing it's

core issues.

I took something that sounded like Cellfood in the early days, and definitely

felt better, but not cured. This is typical!

Right now I am taking Cell Signalling factors, which I really like.

Many with true, original CFS are now found to be in a form of Diastolic Heart

Failure, probably due to Mitochondria damage, which may have originated with a

virus....even a virus in the heart, or brain.

I have the absurd situation of a funder for the top Specialist in the World, yet

little to live on daily. Sometimes this varies, or may change. Very frustrating,

as I am learning all the protective things that can be done for my environment

and EMF, which of course are dangerously escalating, just because of toxic and

high tech times we live in.

Dr. Cheney is addressing " the terrain " , which in theory would make me less

sensitive/reactive to all of it.

I think this is what you were suggesting, just alot more complicated. Like

restoring function to very damaged heart, muscles, nerves, and brain.

Yes, prioritizing..what a challenge. I'm now attempting to address all

simultaneously. Feel that it is correct, but will be trial and error (like you

know about), and can't keep up with all resources/lists and data. I have to

follow allot of research to find what's connected, relevant, and to be

addressed. (With a damaged brain, I might add).

So, I hope I can still ask elementary E questions, or for elementary

clarification.

You said:

>>>And I could only tolerate a

> small fraction of the recommended dose (2 drops/day

> instead of 24)<<<

Very typical of ME/CFS and MCS.

>>>> (in bed 20 hours/day, constantly ill, on medical leave of

> absence from work), but fortunately I got over that part of

> the illness in a couple years.<<<<

I got " up " from 4 years of the same, but not well, no more working, and damage

galore.

At least I get to get up and out part of every day. Some never do.

Thanks!

Katrina

> > I only meant to ask about the E question here, not being

> > afraid of sounding stupid. I have been occupied with the

> > other 100 things that CFIDS causes!!

>

> Katrina -- okay, it sounds like you are in good hands. :-)

> Obviously I didn't have all that facts! All I knew is that

> your EMF sensitivity appeared to be getting worse, which to

> me was an indication of doing something wrong. But I do

> realize that when you've got lots of other issues, it all

> becomes extremely complicated, and one has to prioritize

> which issues to address first.

>

> I also had chronic fatigue syndrome along with my ES 5 years ago

> (in bed 20 hours/day, constantly ill, on medical leave of

> absence from work), but fortunately I got over that part of

> the illness in a couple years. But it required a huge expense

> and trial & error, and doctors really never helped at all.

> I did get quite a bit of help from " Wellness Consultants "

> and " Nutritionists " who used EAV testing and muscle testing,

> and used more natural supplements like those from Standard

> Process.

>

> In all your experimentations Katrina, have you ever tried

> the supplement " Cellfood " ? That one seemed to bring me

> back from " near death " all by itself, although it didn't

> do anything for my ES. And I could only tolerate a

> small fraction of the recommended dose (2 drops/day

> instead of 24)

>

> Marc

[Guest guest]

> The " Cellfood " sounds familiar, from discussions...do you recall who

> makes it? A number of products have similar names.

The stuff I buy is from Lumina Health:

http://www.luminahealth.com/

But Lumina Health is merely a distributor. The stuff is manufactured

by NuScience, and then various companies sell it under their own

label:

http://nuscience.com/cellfood.htm

This is useful for people who seem to be unable to absorb nutrients

(and therefore get no benefit from) from supplements/foods using

the usual digestive route. By passing straight into the bloodstream

through the mucuous membranes, you can get some nutrition where you

might not otherwise.

> I took something that sounded like Cellfood in the early days, and

> definitely felt better, but not cured.

Yes, I didn't mean to imply that it was a complete solution, but

for me, out of the hundreds of supplements I've tried, it was

certainly one of the more useful supplements for overcoming

my fatigue and getting me out of bed.

Marc

[Guest guest]

>>>>This is useful for people who seem to be unable to absorb nutrients

> (and therefore get no benefit from) from supplements/foods using

> the usual digestive route.<<<<

Kinda sounds familiar, and makes sense. Maybe that's why it was helping me.

I do think with all I am doing that I have better absortion now will keep this

in mind.

BTW, I do not think there has been one day of my " CFS " that I would describe

what I felt as " Fatigue " .

Perhaps semi-conscious,near death,Near faint, near paralysis, near

coma,disoriented, scalding pain, uncoordinated, tortuous flu, bruised from head

to toe, and multitude of others. But not fatigue.

Today I am not bedridden, but have multi-organ/system damage from whatever

caused the above. Energy itself is quite good for awhile, but just erratically

useful.

Have to make clear that " CFS " is not " Fatigue " , even if you aready know that.

Because many still do not. If one is " fatigued " , they have something else.

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome are listed in the WHO ICD-9

code under Neurological Illnesses.

The CDC is the culprit who gave us the misleading name.

Katrina

>

> > The " Cellfood " sounds familiar, from discussions...do you recall who

> > makes it? A number of products have similar names.

>

> The stuff I buy is from Lumina Health:

>

> http://www.luminahealth.com/

>

> But Lumina Health is merely a distributor. The stuff is manufactured

> by NuScience, and then various companies sell it under their own

> label:

>

> http://nuscience.com/cellfood.htm

>

> This is useful for people who seem to be unable to absorb nutrients

> (and therefore get no benefit from) from supplements/foods using

> the usual digestive route. By passing straight into the bloodstream

> through the mucuous membranes, you can get some nutrition where you

> might not otherwise.

>

> > I took something that sounded like Cellfood in the early days, and

> > definitely felt better, but not cured.

>

> Yes, I didn't mean to imply that it was a complete solution, but

> for me, out of the hundreds of supplements I've tried, it was

> certainly one of the more useful supplements for overcoming

> my fatigue and getting me out of bed.

>

> Marc

>

[Guest guest]

>

> Okay, so my question is is candida possibly the same as CFS? Are they

> linked in any way? Do they work against each other to make you feel

> worse?

==>All candida sufferers experience symptoms described as the chronic

fatigue syndrome, and CFS is cured on the candida program. There is a

definite link. The proof is that the candida program works for CFS and

many other diseases.

Bee

[Guest guest]

Hi Jay,

I'm sorry you have had such a tough time.

I'm originally from southern California but am a Texas

transplant -suffer from fibro/cfs/possible chronic

lyme for years.

It's difficult to grasp why doctors wouldn't have

thought of testing or treating you for lyme disease

with your history in the hill country of picking so

many ticks off of you.

I'm not a doctor of course, but it sounds like you may

be dealing with long term chronic lyme disease that

you probably were infected with during your years in

the brush in the hill country.

I had a friend who was born and raised in Texas. She

used to clear land around her parent's lake house and

pick all kinds of ticks off of herself. She was taken

to doctor after doctor for years since childhood

before she finally got diagnosed officially with lyme

and treated. Now, a the age of 42 (I think) she is

finally much improved and getting to really live life

-

SO-there is hope -though it can be a long road-but

just have determination and don't ever give up.

You may want to try to research finding a lyme

literate doctor-and, since you are in Delaware-maybe

you wouldn't mind going to New York-or Connecticut

where there are lyme docs who understand? It may seem

far away-but remember when u lived in Texas? It can

take as much as thirteen hours to get from College

Station/ to Big Bend, Texas for instance. In the

north east -you can be in another state anywhere from

thirty minutes to a few hours-

I'm sure everyone on the list can be much more helpful

than me-good luck-

Sincerely,

Gena

--- Jay <whitewolf643@...> wrote:

> Good morning, I've been going threw the post that

> were replied back to me and trying to put the pieces

> back together. I have to read and re read post for

> it to stick.

> Ok my first question, Lyme Disease. This concerns

> me. As a teenager I was in the Texas Hill Country. I

> was living out in the woods basically helping build

> a house. Not a day went by I wasn't covered in

> ticks. I was a common routine to take a shower and

> pull 10 to 30 off of myself. In all my years of

> seeing doctors they never checked for this ?

> As for mold oh boy. I've been in homes that would

> scare you. I lived in a complex in Florida that

> allot of lower apartments they couldn't rent because

> it was infested with black mold. I've worked and

> lived in environments that would probably raise most

> people hair. I also see that for us PWS stress is a

> huge breakdown of our adrenals ? Well if I look back

> on my life esp as a child I lived in extreme stress.

> And I mean extreme. No wonders I'm so sick. I've

> also survived 3 car wrecks.

> I had a instance last night that kinda woke me up to

> just how fast I loose my magnesium levels. Since I

> been off all prescription drugs I been doing fair at

> 600mgs a day. I actually found enough strength

> yesterday to mow the lawn. When I was done I knew I

> really pushed it so I came inside. When I sat down

> the sweat rolled off me like I was in the shower.

> This went on for half a hour. I knew this wasn't

> good. I took 400mgs setting right there. By 4 hours

> later my system was out and I got the crying jags

> and hopeless all over again. So I took more.Needless

> to say getting my levels back was rough last night.

> I know my system needs cleaned out. I have a hard

> time comprehending all these routines. Milk thistle

> was recommended too me ? Will this be good enough ?

> I also need something to help me sleep at night ?

> It was also recommended to me I try apple cider

> vinegar 3xs a day ?

> I called every doctor in the CFIDS links I could

> find. The ones listed for Wilmington Delaware. When

> I call there either disconnected or retired or they

> have no clue why the doctor was put on the list. I

> also called a doctor off Doctor Tenabaums site.

> Again the doctor didn't understand why he was on

> that site. I see a rheumatologist next month. When I

> called I asked if he was familiar with CFIDS/ME

> patients. They said yes. I hope so. I need test and

> the right ones.

> It was also suggested to me I get Valerian Root

> Extract for sleep ?

> All of your help is greatly appreciated.

>

>

> Jay

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

HELLO ALL... SOOOOO, they are saying all the VERY SAME symptoms/problems are

ok if labeled CFS ----BUT NOT OK ---- if labeled LYME? And if labeled as lyme

they dont even count at all? rediculous.... as if they think that the lyme

can be cured... but then they say themselves that the long term ABX does not

always help.... so in effect they are saying NO CURE... and also that

implies that CFS is not curable... but meanwhile dont see people getting ABX

treatment for it.... the ones I hear of that got ABX treatment for whatever

other

reason seemed to get better... HMMMM....

All this is easily accessible info amazing how they can ignore and twist the

facts for their own pleasure.... although I would usually say this is one

disease I would not wish on my worst enemy, I WISH IT ON THOSE PEOPLE so that

they can see what we all know....

[Guest guest]

Dear Jim,

Has she done a series of liver cleanses?

Has she done ozone saunas five times a week for six weeks?

Best of Health!

Dr. Saul Pressman

Coconut vs CFS

Greetings. What do you think the chances are of coconut oil having an

effect on CFS? My Sweety has been drinking O3 H2O and taking O3 saunas

with little effect. She feels good while taking the sauna, but 20

minutes afterwards it feels like she never had the sauna. She's never

had anything that could be considered a 'healing crisis'.

Thank you for your time. Jim

[Guest guest]

Barbara, can you share what you have tried? I think I have tried just about every med out there, especially for sleep. I live in land by the Chesapeake Bay outside of polis. We got some snow last week and are expected to get some more this weekend. I am 65 and on Social Security since my husband passed almost 5 years ago. I have had cfs/fms for about 10 years (knowingly) but have had symptoms longer than that. I would like to share with you. You can email me direct if you want. Prywarr@... Shirley Godbout

CFS

Hi Everyone! My name is Barbara and I am a soon to be 52 yr old woman who has had CFS for 4 1/2 years now. Needless to say, it has been a very difficult and life changing 4 years. I am doing better now, still not well enough to work again, but certainly not as ill as I was the first 2 years. I have tried so many healing remedies both Traditional and Eastern and have been to many CFS Doctors. I live in NJ(Near NYC). If anybody has any questions, since I have tried so many things, please feel free to email and I will be happy to offer my knowledge and support. I am also a Social Worker by profession although currently on disability. I try to stay as positive as I can and pace myself throughout my days. Stay warm tonight, it's snowy out there here in NJ!Peace and good health,Barbara

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[Guest guest]

Shirley, I had insomnia for years, it just got worse over time. Finally I went to a new rheumatologist who said that in his opinion the most important problem to solve for an FM patient is the insomnia. He prescribed Temazepam and I have not had a problem sleeping since. I fall asleep quickly, if I wake in the night, I can get right back to sleep, and in the morning I feel refreshed, no grogginess or brain fog. I know it's a strong drug and can cause some serious side effects, but for me it has been a huge blessing.

Pam

CFS

Hi Everyone! My name is Barbara and I am a soon to be 52 yr old woman who has had CFS for 4 1/2 years now. Needless to say, it has been a very difficult and life changing 4 years. I am doing better now, still not well enough to work again, but certainly not as ill as I was the first 2 years. I have tried so many healing remedies both Traditional and Eastern and have been to many CFS Doctors. I live in NJ(Near NYC). If anybody has any questions, since I have tried so many things, please feel free to email and I will be happy to offer my knowledge and support. I am also a Social Worker by profession although currently on disability. I try to stay as positive as I can and pace myself throughout my days. Stay warm tonight, it's snowy out there here in NJ!Peace and good health,Barbara

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