Guest guest Posted April 15, 2006 Report Share Posted April 15, 2006 The after school care is a killer!! I can't tell you how many times Bob or I have been delayed and tear home to meet the school bus. The bus company won't let Elie off the bus if the door isn't opened (as in standing opened) or one of us is standing outside waiting for him. Therefore, I can't test my theory that he could go in the house, get out of school clothes, etc so that we have a small space of time when he would be OK alone. These days, he has been alone for 15 minutes in the morning so Bob can take me to work and thus keep the car to take our to workshop. So far, Elie stays in his room until Dad returns. It is a risk, but we have pretaught - now we need to test. So far only 15 minutes (I work 1.7 miles from the house.) Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: >Subject: Re: Meds for caregivers!! In-home support >Date: Sat, 15 Apr 2006 22:27:26 -0000 > >PS---- > >An interesting observation I have made is that families of people >with Autism, except for those who are quite accomplished, all hire >help. There's just no question about it except how to fund it if >money is tight. > >But in the Down syndrome community, it is rarely talked about or >seen. I don't know if that means that no one needs help, or if we >just aren't as open about it. I can't imagine that all teens with DS >are safe at home after school, for instance, or that the majority of >the families can afford to have only one income. But I could be >wrong! > >STill, I don't think it's a " failure " to admit these things. >Especially when the assistance or break give syou sanity. For me, >Andy is learning to do things with someone besides me and that's >important! > >Finding people to do this is hard, though. > >Joan > > > > > > >-------------------------------------------------- >Checkout our homepage for information, bookmarks, and photos of >our kids. Share favorite bookmarks, ideas, and other information by >including them. Don't forget, messages are a permanent record of the >archives for our list. http://groups.yahoo.com/group/ >-------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
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