Re: Question??

August 31, 2005

For me I want to get my belly button pierced and wear cute little clothes. Which I cant do now...LOL

Tina

Question??

What's one thing no matter how outrageous it is that you'd like to do when you reach your goal weight?For me, I want to get my belly button pierced!!

February 5, 2006

Dear Libby,

I'm glad to hear your daughter has progressed to this point.

While I don't have an answer to the antibiotic question, I do have a

suggestion for you to consider. What about getting a second opinion from

another LLMD. Most seem to have different approaches and a fresh view on

the same situation might be helpful.

I do agree that, regardless of what your daughter decides to do about abx,

that building up the body's systems and organs is a really good idea.

Since, I'm still figuring out how to do that for myself, I don't have any

suggestions on it.

Good to hear from you.

Deanna

P.S. When she went off the abx, had she been pulsing them or taking full

constant doses until she stopped?

>> I have a question. My adult daughter has had Lyme for about 3 years.

>> She is treated by a LLMD and has been on antibiotics for most of the

>> time. She is feeling well and only has occasional symptoms. She has

>> been off antibiotics for about 2 months and saw her LLMD this week.

> He

>> is leaving the decision of whether or not to go back on antibiotics

> up to

>> her. She doesn't know what to do? Should she wait until symptoms

>> recur? Should she take antibiotics in the hope of totally killing

>> every bug?

April 9, 2006

Take the Liver herbs EVERYDAY until well.....

>From: " darblly " <darblly@...>

>Reply-Dr

>Dr

>Subject: Question??

>Date: Sun, 09 Apr 2006 23:44:02 -0000

>

>As I was reading " Perscription For Nutritional Healing " ; and some

>others I picked up concerning Cirrohisis it said eliminate all animal

>by products but reccomends goats milk...isn't that a animal by

>product? It also says fish 2 times a week? Fish is not consider

>animal? Someone else said wild game? Like deer, rabbit, and

>squirrel!!!

>

April 9, 2006

Goat milk is generally free from all the chemicals that are in cows milk. Cow's

are given shots of anti-biotics, vaccines, hormones and who knows what. Their

feed may be full of pesticides. Most of the shots contain preservatives like

ethelene glyclol (anti-freeze), thimerosol (mercury), aluminum, formaldehyde and

other things that are hard on the liver. Organic goats milk would be much

better than cow. The casein (milk protein) in cows milk can turn to caseomophine

eventually in the human body. That is hard on a liver. large fish contain

mercury, and bottom feeding shellfish and catfish are really bad. The liver

works harder when fats are eaten, and toxins ingested. Besides the guidelines

listed in the book, avoid chemicals including gardening stuff . The skin absorbs

toxins just as easily as drinking and eating them. Get a shower filter too, to

filter out chlorine. No drinking water from the tap. Get bottled water or filter

it. What that liver needs is herbs, raw

veggies (get a juicer), lots of water, blueberries etc. This may take a long

time. Hope he got it in early stage. Good luck.

darblly <darblly@...> wrote: As I was reading " Perscription For

Nutritional Healing " ; and some

others I picked up concerning Cirrohisis it said eliminate all animal

by products but reccomends goats milk...isn't that a animal by

product? It also says fish 2 times a week? Fish is not consider

animal? Someone else said wild game? Like deer, rabbit, and

squirrel!!!

April 9, 2006

Only organic goat's milk for sure. We have goats, tho we do not milk

them. Many of my goat friends have dairy goats they show...these animals

are vaccinated repeatedly and dewormed with chemicals several times a year.

I have heard of people looking for raw goats milk for people who are

very ill. Here in Canada it is illegal to sell raw milk off the farm for

other's consumption but laws may differ in the US from state to state.

As for liver support/liver tonic a product that I LOVE is Dr.

Cabot's Livatone Plus.

Here is the link:

http://www.weightcontroldoctor.com/healthtopics/a-z/livertonics.asp

It is available in powder form which enabled me to adjust the dose for

my sensitive constitution.

She also advocates raw juices and a liver cleansing diet in her books

which would be listed on the site as well.

HTH ;-(

Joanne

wrote:

> Goat milk is generally free from all the chemicals that are in cows

> milk. Cow's are given shots of anti-biotics, vaccines, hormones and

> who knows what. Their feed may be full of pesticides. Most of the

> shots contain preservatives like ethelene glyclol (anti-freeze),

> thimerosol (mercury), aluminum, formaldehyde and other things that are

> hard on the liver. Organic goats milk would be much better than cow.

>

August 21, 2007

>

> Hi all

> has been really really fatigued all weekend - much more

than

> usual - he slept 13 hours straight - I thought he was dead!!! It`s

> nothing to do with the weather as we live in San Francisco and it`s

> famously cold in the summer! Now he says he feels a little spaced

> out - just not himself - I think he`s felt like this before now and

> then and it goes away but does anyone else have extreme fatigue like

> this? His neuro gave him a script for Provigil but MEDI CAL has

> refused to pay for it saying it`s off label as it`s for narcolepsy.

>

> Just as well aspirin is over the counter as people take it as a

blood

> thinner not just for pain - probably be a whole lot more deaths from

> heart attacks!

>

> Anyway....it doesnt seem to be an exaserbation and no new symptoms

have

> appeared but it`s worrying never the less. He`s been on 4.5mg LDN

for

> over two years.

>

==========

I replied to this but seems to be on the blink again and gave me

a weird response once I posted so I'll try again.

He may need Dr. Lawrence's oxidative stress supplement protocol, it is

better than steroids. If you would like to see this protocol, let me

know.

August 21, 2007

Yes please - anything I can do to help make him feel better.

-

-- In low dose naltrexone , " Bren " <b63powell@...>

wrote:

>

> >

> > Hi all

> > has been really really fatigued all weekend - much more

> than

> > usual - he slept 13 hours straight - I thought he was dead!!!

It`s

> > nothing to do with the weather as we live in San Francisco and

it`s

> > famously cold in the summer! Now he says he feels a little

spaced

> > out - just not himself - I think he`s felt like this before now

and

> > then and it goes away but does anyone else have extreme fatigue

like

> > this? His neuro gave him a script for Provigil but MEDI CAL has

> > refused to pay for it saying it`s off label as it`s for

narcolepsy.

> >

> > Just as well aspirin is over the counter as people take it as a

> blood

> > thinner not just for pain - probably be a whole lot more deaths

from

> > heart attacks!

> >

> > Anyway....it doesnt seem to be an exaserbation and no new

symptoms

> have

> > appeared but it`s worrying never the less. He`s been on 4.5mg

LDN

> for

> > over two years.

> >

> ==========

>

> I replied to this but seems to be on the blink again and

gave me

> a weird response once I posted so I'll try again.

>

> He may need Dr. Lawrence's oxidative stress supplement protocol,

it is

> better than steroids. If you would like to see this protocol, let

me

> know.

>

August 21, 2007

I posted on Sunday 8/19/07 but don't see it. I take provigil and Kaiser approves it for MS. It does help.On 8/20/07, emmalemma777 <

bevkean777@...> wrote:

Yes please - anything I can do to help make him feel better.

-

-- In low dose naltrexone , " Bren " <b63powell@...>

wrote:

>

> >

> > Hi all

> > has been really really fatigued all weekend - much more

> than

> > usual - he slept 13 hours straight - I thought he was dead!!!

It`s

> > nothing to do with the weather as we live in San Francisco and

it`s

> > famously cold in the summer! Now he says he feels a little

spaced

> > out - just not himself - I think he`s felt like this before now

and

> > then and it goes away but does anyone else have extreme fatigue

like

> > this? His neuro gave him a script for Provigil but MEDI CAL has

> > refused to pay for it saying it`s off label as it`s for

narcolepsy.

> >

> > Just as well aspirin is over the counter as people take it as a

> blood

> > thinner not just for pain - probably be a whole lot more deaths

from

> > heart attacks!

> >

> > Anyway....it doesnt seem to be an exaserbation and no new

symptoms

> have

> > appeared but it`s worrying never the less. He`s been on 4.5mg

LDN

> for

> > over two years.

> >

> ==========

>

> I replied to this but seems to be on the blink again and

gave me

> a weird response once I posted so I'll try again.

>

> He may need Dr. Lawrence's oxidative stress supplement protocol,

it is

> better than steroids. If you would like to see this protocol, let

me

> know.

>

August 21, 2007

Thanks Aletha!

>

> Hi all

> has been really really fatigued all weekend - much more

than

> usual - he slept 13 hours straight - I thought he was dead!!!

It`s

> nothing to do with the weather as we live in San Francisco and

it`s

> famously cold in the summer! Now he says he feels a little

spaced

> out - just not himself - I think he`s felt like this before now

and

> then and it goes away but does anyone else have extreme fatigue

like

> this? His neuro gave him a script for Provigil but MEDI CAL has

> refused to pay for it saying it`s off label as it`s for

narcolepsy.

>

> Just as well aspirin is over the counter as people take it as a

blood

> thinner not just for pain - probably be a whole lot more deaths

from

> heart attacks!

>

> Anyway....it doesnt seem to be an exaserbation and no new symptoms

have

> appeared but it`s worrying never the less. He`s been on 4.5mg LDN

for

> over two years.

>

August 21, 2007

maybe he has a cold or flu. Everyone on this site says they never get get

sick on ldn I have on been o2 1/2 months but I got a horrible sore throat

low grade fever over the last several days. I have been eating 2000md vit C

every 2 hours and I seem to be almost better. On a good note the people I

think I got it from have been sick for three weeks with what is now

bronchitis. So maybe the ldn helped speed up recovery. But I slept

constantly. B

>From: " emmalemma777 " <bevkean777@...>

>Reply-low dose naltrexone

>low dose naltrexone

>Subject: [low dose naltrexone] Question??

>Date: Tue, 21 Aug 2007 00:31:31 -0000

>

>Hi all

> has been really really fatigued all weekend - much more than

>usual - he slept 13 hours straight - I thought he was dead!!! It`s

>nothing to do with the weather as we live in San Francisco and it`s

>famously cold in the summer! Now he says he feels a little spaced

>out - just not himself - I think he`s felt like this before now and

>then and it goes away but does anyone else have extreme fatigue like

>this? His neuro gave him a script for Provigil but MEDI CAL has

>refused to pay for it saying it`s off label as it`s for narcolepsy.

>

>Just as well aspirin is over the counter as people take it as a blood

>thinner not just for pain - probably be a whole lot more deaths from

>heart attacks!

>

>Anyway....it doesnt seem to be an exaserbation and no new symptoms have

>appeared but it`s worrying never the less. He`s been on 4.5mg LDN for

>over two years.

>

_________________________________________________________________

Now you can see trouble…before he arrives

http://newlivehotmail.com/?ocid=TXT_TAGHM_migration_HM_viral_protection_0507

March 18, 2008

Hi-

My son had a CT scan and thankfully, cranio was ruled out as the cause

of his problems. I felt better with the concrete evidence of a scan

and would have been concerned if they gave him the all-clear based on

just feeling his head and/or statistics. I never gave much thought to

the radiation since I was more concerned with the possibility that he

could have cranio and would have to go through surgery. I don't know

that much about CT scans, but it only lasted a few seconds so I can't

imagine that one shot of radiation could do much harm. I was also more

concerned with the the possibility that he was going to be sedated. He

was only 3 months old and had to fast for like 6-8 hours before the

scan in order to be sedated, so the poor thing was hungry and grumpy.

But when we got there, the technician said they would try once to get

the scan without sedating him, and luckily they were able to, so we

avoided sedation all together. I think some babies are diagnosed with

plagio without a scan to rule out cranio based on the severity of

their head shape. My son's was pretty severe, so our ped referred us

to the neuro. He actually ordered the CT scan before we even went in

for our appointment, so I guess there was the chance that, had we seen

my son first, he might have been able to tell without a scan. But

again, in the end, I felt better about having the scan and actually

seeing it with my own eyes that there was nothing wrong with his

sutures.

Good luck!

Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)

Jordan-4

>

> We took Jayden (our daughter) to the neurologist today. He wants her

to have a CT scan to rule out craniosynostosis. He believes that she

has positional plagiocephaly but said there is no way to know that she

does not have craniosyn. without a scan. I asked why other people are

diagnosed without a scan and he said they go with the stats- far more

babies have plagio. Did anyone else get a scan? Were you worried about

the levels of radiation you baby was exposed to? aarg! I am getting so

frustrated. Thanks for your replies!

>

March 19, 2008

Hello. My Daughter had a CT scan at 6 months old to rule out cranio.

The Dr was pretty sure she didn't have cranio, but he wanted to be 100%

sure before he prescribed a band (kind of a " cover your butt " type

thing. lol) It really wasn't a big deal though. They gave her a

little bit of orange stuff to drink which made her sleep and then the

CT scan only took a minute or 2 once she was asleep. I wasn't

concerned about the radiation. It's nice to have that done and know

for SURE that there aren't any issues.

Jen

(3 1/2 yrs), tort resolved, Hanger Band Grad

(6 yrs)

>

> We took Jayden (our daughter) to the neurologist today. He wants her

to have a CT scan to rule out craniosynostosis. He believes that she

has positional plagiocephaly but said there is no way to know that she

does not have craniosyn. without a scan. I asked why other people are

diagnosed without a scan and he said they go with the stats- far more

babies have plagio. Did anyone else get a scan? Were you worried about

the levels of radiation you baby was exposed to? aarg! I am getting so

frustrated. Thanks for your replies!

>

October 7, 2008

In a message dated 10/7/2008 11:09:18 AM Central Daylight Time, dusty.com@... writes:

There is a GNC where I live

Is there a good parasite cleanse

here is their site:

http://www.gnc.com/sm-vitamins-supplements-minerals-herbs-sports-nutrition-diet-and-amp-energy--bs-2167112.html

available or is purchasing online better

I have to try this out first because it all started with the

crawly sensations in my knees and my knees are still hurting me

My last order is still not here !!

call and check on it, or email them

Sandy~

**************New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out (http://local.mapquest.com/?ncid=emlcntnew00000002)

May 1, 2009

Marie,

Please call your physician ASAP.

Not an MD

On Fri, May 1, 2009 at 12:48 AM, stenvikm <stenvikm@...> wrote:

>

> Hello Friends

>

> I have a question about side affects with methotrexate, I have been on oral

> for three weeks and swicthed to injection tonight when I was getting ready

> for bed I noticed my scare where I had my hysterectomy a year and half ago

> was hurting I looked at it and its all red with puse and it smells bad Sorry

> I know this is gross but its freaking me out. Is this what they mean about

> skin infections with this medicine??I never had any problems with this

> before .What do you think??

> Thank Marie

May 1, 2009

Marie,

I agree with . You need to call your Dr immediately. Skin infections

can become systemic very quick. So make that call. Let us know what the Doc

has you do.

Heidibug

On Fri, May 1, 2009 at 8:58 AM, <

Rheumatoid.Arthritis.Support@...> wrote:

>

> Marie,

>

> Please call your physician ASAP.

>

> Not an MD

>

> On Fri, May 1, 2009 at 12:48 AM, stenvikm

<stenvikm@...<stenvikm%40>>

> wrote:

> >

> > Hello Friends

> >

> > I have a question about side affects with methotrexate, I have been on

> oral

> > for three weeks and swicthed to injection tonight when I was getting

> ready

> > for bed I noticed my scare where I had my hysterectomy a year and half

> ago

> > was hurting I looked at it and its all red with puse and it smells bad

> Sorry

> > I know this is gross but its freaking me out. Is this what they mean

> about

> > skin infections with this medicine??I never had any problems with this

> > before .What do you think??

> > Thank Marie

>

January 13, 2010

HI Ann,If you are having pain in your "tail bone", it sounds like your symptoms are just getting progressively worse.Pain in that area can be coming from the L4/L5/S1 nerves in your spine.I don't know where your stenosis is or your DDD, but those areas can refer pain to the tailbone.Darvocet, is not really a good choice for spine pain and I'm very surprised that your doctor has actually prescribed it. I haven't seen it prescribed for anyone in many, many years as it is not a good choice.There was talk awhile ago that the FDA was going to take it off the market because of many complication problems with it.Have you tried any of the nerve pain medications to help ease your pain, Neurontin/garbapentin,

lyrica, cymbalta?I know you've been suffering for a number of years, at least 10, I think, I know you've never had surgery either.It's sounding like, at this point, you really need to consider some type of surgery to help ease your pain.I know many people are afraid of spine surgery and they hear horror stores. And that is just what they are, horror stories.The thing is they are far from the normal results from spine surgery. The majority of people have quite successful spine surgeries, recover and go on to live their lives pain free.The reason you read about the horror stories is that those that have recovered and returned to their lives are far to busy to be posting on various spine forums.What you read about are the minority, not the majority.You need to

call your spine doctor and tell him/her about the new pain and really think about surgery at this point.Good luckFranFrom: Ann <nachobaby2@...>Subject: Question??Spinal Stenosis Treatment Date: Wednesday, January 13, 2010, 11:36 AM

Hello Everyone,I would like to know if any of you have pain in the tail bone< especially when you sit down early in the morning? I have pain all the way up my spine and in my hands. I have taken just about ever med they make, and nothing helps. I do take Darvocet, and it seems to help a little. Please let me know, this is driving me crazy. Have a Pain free day!! God Bless!

January 16, 2010

I dunno if you are familiar with what a Herx reaction is, but it's

possible you are experiencing one. My herx's usually start a couple

days after starting new abx, but I guess they could start an hour

after. If it is a herx, it is a sign that the abx is killing off the

bacteria. It's a good sign even though it doesn't feel good.

Don

CR wrote:

> does anyone experience an increase in symptoms about an hour after taking

their antibioitcs...also i t feels like a surge going thru my body...and my body

will also feel hot inside while cold and tingling skin outside..chest feels

tight and strange sometimes and have been having trouble breathing is it a part

of lyme...

>

January 17, 2010

Don ive been on amoxicillin since Sept.and continuing to get worse and

worse..know times of feeling good at all...symptoms are very severe..i have

severe nerve damage..my body is starting to have shakes spasms and jerks

now..and constant humming and vibrating and tingling sensations that never go

away..and constant pain..and stomach distress...very very ill....no sleep severe

night sweats..tightness in chest...and breathing difficulties..been sick since

Nov.07 and this is the worst..not sure how much longer i can go on like this my

body is in severe distress...no rest the nervous system damage is affecting my

digestive system and keeping me from resting..and the humming and other

sensations make life horrible for me 24/7..im fixing to stop the antibiotics

cause i think they are just making me worse...i dont know where to go from

here...im doing all the right thing to no avail..just continuing to suffer

horribly...i know its not herxing cause ive had no

brakes in between...my nervous system is so damaged that the tiniest little

sound makes me jerk and echoes in my ears for a long time and then the humming

and vibrating get louder..im in hell...

> does anyone experience an increase in symptoms about an hour after taking

their antibioitcs. ..also i t feels like a surge going thru my body...and my

body will also feel hot inside while cold and tingling skin outside..chest feels

tight and strange sometimes and have been having trouble breathing is it a part

of lyme...

>

January 17, 2010

Have you treated any co-infections - especially Babesia? Some folks find

that they need to treat the Babesia before proceeding with Lyme treatment.

The main symptoms of Babesia are significant shortness of breath, fevers,

and sweating spells although it also causes lots of other symptoms.

Ask your LLMD about it.

On Sun, Jan 17, 2010 at 11:00 AM, Rausch

<rausch_cynthia@...>wrote:

>

> Don ive been on amoxicillin since Sept.and continuing to get worse and

> worse..know times of feeling good at all...symptoms are very severe..i have

> severe nerve damage..my body is starting to have shakes spasms and jerks

> now..and constant humming and vibrating and tingling sensations that never

> go away..and constant pain..and stomach distress...very very ill....no sleep

> severe night sweats..tightness in chest...and breathing difficulties..been

> sick since Nov.07 and this is the worst..not sure how much longer i can go

> on like this my body is in severe distress...no rest the nervous system

> damage is affecting my digestive system and keeping me from resting..and the

> humming and other sensations make life horrible for me 24/7..im fixing to

> stop the antibiotics cause i think they are just making me worse...i dont

> know where to go from here...im doing all the right thing to no avail..just

> continuing to suffer horribly...i know its not herxing cause ive had no

> brakes in between...my nervous system is so damaged that the tiniest little

> sound makes me jerk and echoes in my ears for a long time and then the

> humming and vibrating get louder..im in hell...

>

> > does anyone experience an increase in symptoms about an hour after taking

> their antibioitcs. ..also i t feels like a surge going thru my body...and my

> body will also feel hot inside while cold and tingling skin outside..chest

> feels tight and strange sometimes and have been having trouble breathing is

> it a part of lyme...

>

> >

>

> >

>

> >

>

> >

>

January 17, 2010

Insist on another antibiotic, doxycycline. Yours is not the normal antibiotic

for lyme.

>

> > does anyone experience an increase in symptoms about an hour after taking

their antibioitcs. ..also i t feels like a surge going thru my body...and my

body will also feel hot inside while cold and tingling skin outside..chest feels

tight and strange sometimes and have been having trouble breathing is it a part

of lyme...

>

> >

>

> >

>

> >

>

> >

>

January 17, 2010

Insist on THREE antibiotics. Amox only goes after spirochetes -- doesn't touch

intracellulars or cysts at all. Doxy is somewhat less good for spirochetes, but

hits the intracellulars pretty hard -- and still ignores the cysts.

, if amoxycillin isn't making you feel at least somewhat better by this

point -- you should be having some pretty good days by now -- you need to either

have a serious chat with your doctor, or fire him outright and start over.

Sara

On Jan 17, 2010, at 8:52 12PM, molly.macbean@... wrote:

> Insist on another antibiotic, doxycycline. Yours is not the normal antibiotic

for lyme.

>

>>

>>> does anyone experience an increase in symptoms about an hour after taking

their antibioitcs. ..also i t feels like a surge going thru my body...and my

body will also feel hot inside while cold and tingling skin outside..chest feels

tight and strange sometimes and have been having trouble breathing is it a part

of lyme...

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

January 18, 2010

, remember to ask about Bartonella testing too. The buzzing skin,

spasms, sole pain, stomach upset all make me think bartonella. After 17 months

of antibiotics I just discovered bart was a major component of my illness. My

LLMD started me on Rifampin and Monodox (doxy w/ stomach protection of some

sort) for the bart. LLMDs often prescribe Levaquin in place of the Rifampin for

bart. If you have babesia an LLMD will want to prescribe a combo like Mepron

and Azithromycin. Of course it's possible to have Lyme, bartonella AND

babesia!!! Have you read Dr. B's guidelines on coinfections? Also I just

viewed an excellent video of his presentation to the Lyme Disease Assoc of

Southeastern Pennsylvania. The video includes a presentation by Pamela

Weintraub, author of " Cure Unknown " .

It can be ordered here: http://www.lymepa.org/html/video_order_form.html I