reactions

[Guest guest]

> Just throwing out a question to all of you.

>

> We are noticing in our five year old PDD son that every once in a

while,

> different foods seem to change his behavior. This is hard for us

to notice,

> at times, because he does not display many physical reactions, i.e.

loose

> stools, dark circles under eyes, red face, etc.

>

> One night we gave him the double whammy of orange juice and

tomatoes at

> dinner. He was almost insane after that -- hyperactive, dropping

on the

> floor, having two-sided conversations with himself (kind of

comical, he'd

> play one character, bounce to the other side of the room, and

answer a

> question he had just asked as the other character). The ONLY

physical effect

> that I can witness is red ears.

I have pretty much the same question. My son never seem to have any

physical reactions but red ears. The red ears seem kind of odd too,

it will all the sudden appear in spots and disappear right away,

sometime my son seem to be sleepy for a moment with the red ears but

then he will be fine! My son doesn't have much of phenol food,

regression and behavior problem so does that mean he is OK?

His BM has been fine, it gets slightly more solid if he had ice cream

but otherwise he seem to be OK. Any advise?

Eve

>

> I have fed him apples (at one time thinking these were the

culprit), but he

> has not responded like this. Usually he is placid, so these

reactions with

> adverse behavior come on rather strong -- although no aggressive

behavior,

> just odd behavior.

>

> My question is -- it's fairly obvious that he is responding badly

to

> tomatoes. Could he be responding badly to other phenol-related

foods, but we

> just can't tell? Or is it safe to say that, because he has no

physical

> reactions or phenol reactions to apples, these are safe for him?

>

> Kris

>

>

>

[Guest guest]

Hi Mic Its common to have reactions to many foods when you have Candida.

Keep a food journal and log your reations so you don't make the same mistake

twice. I am sensitive to so many but, yes, carob and cinnamon are two to

which I am sensitive. My list is long so I won't bore you with it. Just

keep tabs on yours so your Candida can't fed on what you are sensitive to.

Blessings, Joyce

reactions

I think I'm reacting to carob and to cinnamon. Does anyone else have a

reaction to these? I'm trying my elimination diet, and this is such a

learning experience....to say the least!

Mic

[Guest guest]

In a message dated 21/1/03 6:47:31 pm, klmitch@... writes:

> I've heard and read that this could be die-off. I know that she continually

> fights off yeast, so it is possible, any thoughts?

>

Sounds like yeast, definitely. Some people even get gunky eyes.

Marti

[Guest guest]

Hi Karyn

This could be withdrawal or die off reaction as well as supps. B vits are

usual suspects for hyper after a while on enzymes, you try removing that for

a few days. Or reduce enzyme dose a bit, or live with and hope its over

sooner. You know her best, Sam didn't have such a reaction but he was very

hyper and emotional.

Its a tricky business telling between between withdrawal, die off, allergy,

vits etc and trying to decide whether this is bad reaction or the sometimes

necessary 'regression before progression'. It might be none of the things

that have been suggested but I always feel its helpful to have options, if

only to narrow the field for your circumstances. I usually work backwards

trying to figure whats its NOT.

You just have to believe in yourself and guess to best of abilty LOL Good

luck and be sure to let us know how it goes

Mandi in UK

> Thanks to all those that replied, I had a gut feeling, just needed the

> confirmation from the experts!!!!

> One more thing. I've noticed that she's a bit more " touchy " lately,

> especially today. I've read that enzymes can mean that less supplements are

> possibly needed. She has benn tantruming and things that I've not seen her

> do in a long while. I'm wondering if I need to back off the supplements to

> see if that is a problem. She has been throwing the table in ABA, haven't

> seen that in months!!!!! Gets mad at the drop of a hat, she used to be

> pleasant, not so much anymore. Just wondering if there are any thoughts

> about all this....

>

> Thanks

>

> Karyn

>

[Guest guest]

> Do you need to take more/less or drop all together (enzymes) when

you chelate?

A few people have sent me email that they have needed to increase

enzymes while chelating.

>

> Also, I thought that it was the flu, she all the sudden got a nasty

cold, drainage - green, and acted as if she was hard to reach and not

feeling well on friday last week. I've heard and read that this could

be die-off. I know that she continually fights off yeast, so it is

possible, any thoughts?

Drainage around here means yeast/bacteria.

>

> She started rubbing her head, like she has a headache, very strange.

Headaches around here mean yeast.

?

>

> She is still waking in the middle of the night - OH BOY WHAT FUN!!!!

Could be die-off, could be meaness:) thoughts?

Night waking around here means yeast/bacteria.

>

> On the flip side, she actually looked at me when I took a picture of

her - DEAD AT THE CAMERA - AND SMILED!!!!!!

>

> She has also been a bit more focused, eye contact, and other things

in general, better at listening to one step commands, etc. WHAT

FUN!!!!?

Congrats!

Dana

[Guest guest]

Thanks to all those that replied, I had a gut feeling, just needed the

confirmation from the experts!!!!

One more thing. I've noticed that she's a bit more " touchy " lately, especially

today. I've read that enzymes can mean that less supplements are possibly

needed. She has benn tantruming and things that I've not seen her do in a long

while. I'm wondering if I need to back off the supplements to see if that is a

problem. She has been throwing the table in ABA, haven't seen that in

months!!!!! Gets mad at the drop of a hat, she used to be pleasant, not so much

anymore. Just wondering if there are any thoughts about all this....

Thanks

Karyn

>

> From: " danaatty <danaatty@...> " <danaatty@...>

> Date: 2003/01/22 Wed AM 09:44:00 EST

>

> Subject: Re: reactions

>

>

[Guest guest]

> H's reaction are getting worse! Today I had to drag him out of

church, kicking and screaming like a wild animal. He had had one tiny

easter egg someone gave him, but I think it's the PEP (1/2 cap three

times a day). I am thinking that I should go straight for it and put

him on 1 full cap PEP (stay on ZP as well) and introduce a normal diet

too. Any ideas?

I would not change more than one thing at a time. If you increase the

Pep and you notice a major nasty child, then you will know he does not

tolerate the Pep. But if you add new foods at the same time, you

won't know if it is the Pep or one of the foods.

Dana

[Guest guest]

reactions

H's reaction are getting worse! Today I had to drag him out of church, kicking

and screaming like a wild animal.

I used to take Jojo to Noon Mass during the week. I couldn't trust him or

myself to handle the stress of too many people while we were " detoxing " him. I

needed church, it gave me peace, but I didn't need other people looking at Jojo

having a fit. I used to hold him in my lap and stroke his hair while he kicked,

screamed, bit, etc. I don't recommend doing that without precautions though, I

once got bopped in the nose by his head. Hurt like heck, and I felt guilty for

swearing in church.

He had had one tiny easter egg someone gave him, but I think it's the PEP

(1/2 cap three times a day). I am thinking that I should go straight for it and

put him on 1 full cap PEP (stay on ZP as well) and introduce a normal diet too.

Any ideas?

We went to a full cap after about a week or so. What I read in 's book

convinced me to keep Jojo on his regimented diet for a couple of months after

having introduced and adjusted to all 3 ( for us) enzymes. It was only within

the last week and half that I deliberatly gave him oats. Go with what your gut

tells you. I've heard and read that being on a restricted diet sometimes does

more harm than good. I just thought I'd share what we did.

[Guest guest]

> Has anyone had any serious or negative reactions other than an

increase in

> behaviors while chelating their child?

The only negative I experienced with my kids was yeast, which I kept

under control with GSE. They lost their tendency toward yeast at

about round 50.

Dana

[Guest guest]

I can suddenly get reactions like you described,

usually when I am fighting off something, like the flu

going around or when I am under a lot of stress.

in NYC

Discover

Find restaurants, movies, travel and more fun for the weekend. Check it out!

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[Guest guest]

Most people just smile and say "How Cute!", very few ask what it is and even fewer say they know someone w/ one.

It is alot milder than I thought it would be - I even forget that people are looking at the helmet. Today at the library more people tahn normal were making eyes and ooing over my baby - it wasn't until later that I realized she had her helmet on and that is probably what drew attention to her! :-)

Jen

Mommy to 4...and 1 more!!!!

VOTE FOR LULI- www.evenflo.com

Baby Youre a Star

PHOTO #4842

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

For the most part I've had exp with positive reactions, then the

staring and a few rude ones which I would counter right away.

Sandy Willow's mom

Tort resolved 02/04

Cranio Germany Grad 02/04

>

> I have no experience with helmets/starbands. My husband and I are

> talking about getting one we just have to figure out how to pay for

it.

>

> How do people react when they see it? Do they ask questions or stare?

> I just want to be prepared?

>

[Guest guest]

What a wonderful and inspiring post. I am always inspired and taken back by all

you do as parents.

Blessings to you all, and your children

Amy

mbcomfort <mcomfort@...> wrote:

Good Morning listmates,

I think we all relate to Charlotte's friend. Even if our child(ren) doesn't have

an autism dx, finding out that our child is not typically developing is a hard

horse pill to swallow. I, too, started using the " autism " word long before

anyone else. I guess I was kind of " trying " it on before the inevitable

happened. By the time we had a dx I had dealt with a lot of the initial grieving

and I was just ready to have a real plan of action. That energy is what propels

me everyday. I thank God everyday for putting me in places where there were

people around that were already deep in the game. (Angie S and others!!!) I feel

so blessed to have been able to glean all that knowledge. I just wanted to

somehow download their info and experience right into my brain!!! Unfortunately,

we can't do that.....but after hours and hours of reading and studying I finally

feel that I have at least a layman's understanding of what is going on. My guys

have responded wonderfully to the biomed and

chelation. I can't believe we are almost a year into it. After the first 3-4

weeks I never thought I would be able to stick it out!!! I kind of thought I had

been snookered into buying all these supplements that were going to just sit in

my cabinet along with all the other fad things I had tried for one reason or

another. I now know that I will forever have a different perspective on how my

body works and what I need to do to support it. I want to die of old age....not

disease!!! I haven't really done all the special diets.....may never do

that.....but I certainly respect others that do as it is another huge sacrifice.

As Trish wrote about her grandson I, too, want to encourage anyone who may feel

discouraged right now. Every set back is another learning notch on your belt to

recovery. It's maddening to wake up one day and feel you have lost ground, but

you will hunker down and start dissecting the situation until you come out on

the other side again. And you will be filled with more knowledge and experience

that will benefit you the next time something happens. We did the " birthday

cake " party for our 3 year old NT daughter last night and my 6 year old PDD sang

at the top of his voice and actively participated without having a teary

meltdown because he couldn't blow out the candles or manipulate the moment. He

couldn't have done that last year. I know some progress is just maturity, but

his maturity is most definately helped along by the fact he feels better and is

able to think clearer and process more readily.

We just finished our 13th round of DMSA. This has been a huge part of the

recovery efforts. Still battle yeast (birthday cake doesn't help!!), but after a

few days post chelating he will feel better. We see the biggest gains about 5

days later. Sometimes I hate to start another round because it brings some

emotionality and anxiousness that I would rather avoid, but then the gains are

always so wonderful to see. I pray we don't stop seeing those gains, although I

know that is a possibility as many see a plateau with their kids after quite a

few rounds. I am going to talk to Dr. DeMio about adding in ALA as I wonder if

we might need that, too.

Happy New Year to all and may God give us all the grace. patience wisdom and

perseverance to continue the fight!!

Beth

[Guest guest]

Beth,

What a heartfelt post and so true! This is a marathon that we are running

and all of us would love to have done all of this yesterday and change the

past... that being said, there is wonderful support here and a wealth of

knowledge provided on helping our children. This is the first place I

learned everything I needed to know about my kid 2+ years ago and I continue

to learn!

Thanks for sharing your heart today! Jackie---

----- Original Message -----

> Good Morning listmates,

> I think we all relate to Charlotte's friend. Even if our child(ren)

> doesn't have an autism dx, finding out that our child is not typically

> developing is a hard horse pill to swallow. I, too, started using the

> " autism " word long before anyone else. I guess I was kind of " trying " it

> on before the inevitable happened. By the time we had a dx I had dealt

> with a lot of the initial grieving and I was just ready to have a real

> plan of action. That energy is what propels me everyday. I thank God

> everyday for putting me in places where there were people around that were

> already deep in the game. (Angie S and others!!!) I feel so blessed to

> have been able to glean all that knowledge. I just wanted to somehow

> download their info and experience right into my brain!!! Unfortunately,

> we can't do that.....but after hours and hours of reading and studying I

> finally feel that I have at least a layman's understanding of what is

> going on. My guys have responded wonderfully to the biomed and chelation.

> I can't believe we are almost a year into it. After the first 3-4 weeks I

> never thought I would be able to stick it out!!! I kind of thought I had

> been snookered into buying all these supplements that were going to just

> sit in my cabinet along with all the other fad things I had tried for one

> reason or another. I now know that I will forever have a different

> perspective on how my body works and what I need to do to support it. I

> want to die of old age....not disease!!! I haven't really done all the

> special diets.....may never do that.....but I certainly respect others

> that do as it is another huge sacrifice.

> As Trish wrote about her grandson I, too, want to encourage anyone who may

> feel discouraged right now. Every set back is another learning notch on

> your belt to recovery. It's maddening to wake up one day and feel you have

> lost ground, but you will hunker down and start dissecting the situation

> until you come out on the other side again. And you will be filled with

> more knowledge and experience that will benefit you the next time

> something happens. We did the " birthday cake " party for our 3 year old NT

> daughter last night and my 6 year old PDD sang at the top of his voice and

> actively participated without having a teary meltdown because he couldn't

> blow out the candles or manipulate the moment. He couldn't have done that

> last year. I know some progress is just maturity, but his maturity is most

> definately helped along by the fact he feels better and is able to think

> clearer and process more readily.

> We just finished our 13th round of DMSA. This has been a huge part of the

> recovery efforts. Still battle yeast (birthday cake doesn't help!!), but

> after a few days post chelating he will feel better. We see the biggest

> gains about 5 days later. Sometimes I hate to start another round because

> it brings some emotionality and anxiousness that I would rather avoid, but

> then the gains are always so wonderful to see. I pray we don't stop seeing

> those gains, although I know that is a possibility as many see a plateau

> with their kids after quite a few rounds. I am going to talk to Dr. DeMio

> about adding in ALA as I wonder if we might need that, too.

> Happy New Year to all and may God give us all the grace. patience wisdom

> and perseverance to continue the fight!!

> Beth

[Guest guest]

I find myself in the same boat ): I am eating very

large amounts of fats without any problem. I am

really looking forward to regular movements,

especially since I have suffered from constipation for

what seems like forever!

--- sjda1701 <surinta_abraham@...> wrote:

> Hi Bee and friends,

>

> Have been on the diet for 3 weeks now and am up to 2

> tbsp a day of

> coconut oil. I do find that since cutting out grains

> and carbs, I have

> gotten rather constipated. I still eat vegetables

> (the ones on the

> list) and eggs, and ingest butter, coconut oil and

> virgin olive oil.

> Should I be increasing my fat intake to get more

> regular? Or does it

> just take a while for the body to " readjust " after a

> lifetime of

> cereals, breads, rice and other " bulk " foods? :-)

>

> thanks!

>

>

________________________________________________________________________________\

____

No Cost - Get a month of Blockbuster Total Access now. Sweet deal for

users and friends.

http://tc.deals./tc/blockbuster/text1.com

[Guest guest]

>

> Hi Bee and friends,

>

> Have been on the diet for 3 weeks now and am up to 2 tbsp a day of

> coconut oil. I do find that since cutting out grains and carbs, I have

> gotten rather constipated. I still eat vegetables (the ones on the

> list) and eggs, and ingest butter, coconut oil and virgin olive oil.

> Should I be increasing my fat intake to get more regular? Or does it

> just take a while for the body to " readjust " after a lifetime of

> cereals, breads, rice and other " bulk " foods? :-)

==>Hi Surinta. You might have decreased your carbs too quickly

compared to increasing your good fats. You won't have constipation if

you increase your fats enough. In the meantime you might have to add

back some grain like buckwheat, quinoa, millet or brown rice until you

can get your fat intake higher. The problem with increasing fats too

quickly is that they are antifungal so they must be increased gradually.

Bee

[Guest guest]

>

> I find myself in the same boat ): I am eating very

> large amounts of fats without any problem. I am

> really looking forward to regular movements,

> especially since I have suffered from constipation for

> what seems like forever!

==>, since you have had constipation forever your body will retrace

all of them according to Hering's Law of Cures. So in your case you

cannot avoid it. Sorreee! I recommend enemas and lots of vitamin C in

the meantime - see my article on constipation:

http://www.healingnaturallybybee.com/articles/dig1.php

Bee

[Guest guest]

Heal the gut and liver support. My son tolerate more things after a year of milk

thistle four times a day. He still is so so on some thing though and that may

come with gut healing and finishing his detox.

In the meantime, we have only enzymes to get through. Some people do not have

the ones they need to digest certain foods.

>

> Is there a way to help these kids tolerate corn tomatoes etc.. without

enzymes??? she goes crazy with the no phenol. I am wondering if there is another

way to help their body tolerate more foods.

>

[Guest guest]

>

> Is there a way to help these kids tolerate corn tomatoes etc.. without

enzymes???

For my son, corn and tomatoes required carotene conversion supplements before

they were tolerated. Enzymes did nothing for this problem.

Dana

[Guest guest]

I saw new behaviors in my son last year that lasted past the end of the round.

He started to show symptoms of a diarrheal illness the same day I started a

round, but because I also give him extra vitC while chelating (more than the amt

he needs on a daily basis, I mean) I didn't realize the diarrhea was because he

was sick. And my brain was too foggy (I'm an amalgam mom) so I didn't realize

that as soon as I saw the first new symptom, I should've stopped! Took a while,

but all the new symptoms went away, but it was scary at the time.

>

> Has anyone had any serious or negative reactions other than an increase in

> behaviors while chelating their child?

>

> KK

>

[Guest guest]

>

> Is there a way to help these kids tolerate corn tomatoes etc.. without

enzymes??? she goes crazy with the no phenol. I am wondering if there is another

way to help their body tolerate more foods.

>

Due to a genetic disorder, I and my oldest son are supposed to require digestive

enzymes " for life " . We both got off of them. Coconut oil, sea salt,

glyconutrients, and avoiding yeast in the diet were a big part of why we stopped

needing enzymes. There is additional info on my website if you are interested:

http://www.healthgazelle.com

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

[Guest guest]

-- In , " Peggy " <diamond12345@...> wrote:

> These are the things that my child most reacts to:

> corn, tomatoes, strawberries, milk, chocolate.

> The reaction in very aggressive uncontrollable behavour. Do thes mostly look

like phenols, and also has anyone ever tried benydryl to help with all of the

reactions?

The first three were bad for my son because of the carotene content. Milk he

did not tolerate until I gave him mito cocktail.

Chocolate is a high amine food. I was anaphylactic to chocolate until after

chelation.

Dana

[Guest guest]

I can't do the carotene conversion or mito coctail since she reacts

violently to EVERYTHGN I try. Do you think after years of chelation

some of these things may go away.

On Nov 9, 2009, at 8:28 AM, danasview wrote:

> -- In , " Peggy " <diamond12345@...>

> wrote:

> > These are the things that my child most reacts to:

> > corn, tomatoes, strawberries, milk, chocolate.

> > The reaction in very aggressive uncontrollable behavour. Do thes

> mostly look like phenols, and also has anyone ever tried benydryl

> to help with all of the reactions?

>

> The first three were bad for my son because of the carotene

> content. Milk he did not tolerate until I gave him mito cocktail.

>

> Chocolate is a high amine food. I was anaphylactic to chocolate

> until after chelation.

>

> Dana

>

>

[Guest guest]

> I can't do the carotene conversion or mito coctail since she reacts

> violently to EVERYTHGN I try. Do you think after years of chelation

> some of these things may go away.

At my house, what went away after chelation was the intolerance to the

supplements. My son still needed the supps for recovery, but he tolerated them

at about round 50.

Dana

[Guest guest]

i posted a week or so ago..

here it is

i have mold toxicity from exposure 2 x ( different houses) have been sick from

it the last 4 1/2 years, recently realized, moved and left all behind, moved to

another state, rented house, had mold guy come first to investigate.

also have mercury toxicity causing me a great deal of physical, neuro sx.

having chemical sensitivities from the mold .

just had a exposure from breathing in airborne dry spores from a job my

landlord

did to remove window trim that had mold on it . the trim was dry, warped

rotten, wood caused from condinsation.

a mold dog hit on it. the landlord said he would plastic off and bring fan to

create neg pressure, didn't bring fan and pulled down plastic when done before

it was vacuumed or blown out.

i went back to see the area, took a fairly deep breath and the reaction was

immed. burning eyes, nose, throat, lungs, my sinus cavity was on fire and the

bones in my face hurt for days, everyday my eyes had goop in them, nose stuffed

up, and deep lung cough, headache. haven't had these mold sx before, except

last exposure burning eye, nose ears and throat, but nothing like this.

that was 10 days ago. my eyes are better, my nose still stuffy and lungs still

hurt and have a dry painful cough.

today i tried the nettle pot with warm distilled water and 1/4 sea salt. my

nose

is much better

will these sx go away, as reaction settles?

inhaling these dry gas toxic spores, have i done further and irreversible

damage?

the airborne spores have probable entered the house. had it vacuumed with hepa

and neg pressure fan, all surfaces wiped with vinegar, wall, floors, furniture(

all furniture removed outside and blown with leaf blower then wiped with

vinegar)

will that get rid of the dry spores?

can i do something else?

can't believe my reaction and stupidity for going back there. this mold sucks

and so hard to get rid of and away from.

any help

denise

things did get a bit better, then we mopped wood floors with vinegar and canola

oil, had a reaction. maybe the oil brought out something in the floors, varnish

or something. had to mop many times with water and dawn to cut the oil. my

daughter moved in a painted bed. last night i tried on some clothes that were

new, but have been hanging in closet for 1 month, horrid reaction, immed stuffy

nose, tight chest, eye burn. today when i woke couldn't breathe, blew nose and

blood. before breathing in the spores or bacteria, i never had this reaction.

even in the moldy house it was headaches, dizziness, gut, nausea, neuro, even

after 2nd exposure, but this has really changed things. even befoe this i went

into a store with my daughter, didn't even have a reaction at all.

i don't think it is mold it is chem sensitivities, voc does this get better? i

am on csm and thought i was doing better but nothing is helping this. will i be

sensitive forever, can anything help this? i have a air pua but not helping.

maybe need one for mold particles and voc. the one i have is air pura uv6 for

paticles and uv for bacteria, but there is another for voc.

am i set up for this for life, any store, people, will i always react this way

now, just inhaling the spores/bac has damaged me. my daughter can and sat next

to me, she had spent the night out and showered at friends with different

shampoo, lotion, and immed i had a stuffy nose. will this inflammation calm

down. do i need nasal spray or rx. i have a mercury problem and the spray has

collidial silver so that is bad, and the mercury has messed with salicylates so

anti fugal are bad gse, coconut oils etc, antibodies bad for yeast. i would

have to have rx anti fugal like nystain compounded b/c of sals for yeast but can

one compound rx for bacteria?

what a mess