Re: Anhidrosis - or not sweating

[Guest guest]

In a message dated 5/24/2006 2:37:25 P.M. Eastern Standard Time,

jacksonsmom99@... writes:

I know Maddie has this condition and Donna, when you return from your

wonderful trip to Ireland, you can enlighten me!! LOL!

Does anyone else's child have this condition?

The more I think about and being in the heat, playing sports, etc...

I don't recall him ever sweating.

I want to know what I should do about this - how do I found out if he has

this condition and if so, what precautions need to be taken?

He's done well for his first 7 years of life, lol, but we're coming up on

another hot summer in Virginia. He played soccer last year and would get red

but never sweat.

Any tips or info on what to do and how I know for sure, just holler. I

mentioned it to his teacher and aide yesterday and they don't recall ever

seeing

him sweat either. I guess I need to make an appt with the Neuro ped. I know

if he has it, I probably need to make some ammendments to his IEP.

Hi Jayne,

Yes, I'm home. Came home late Monday afternoon, and need a

vacation....LOLOL My aunt was quite the challenge; Maddie is easier to deal

with in a

sense....I'm not kidding. It was a NIGHTMARE, but we had pockets of fun.

Suffice it to say that when landing in Philly, I almost cried from

relief!!!!!! ;-)

Jayne, a couple of times, I took a poll on the DS listserv out of

curiosity. Yes, many individuals with DS have this condition. However, I

couldn't seem to find an adult with it, so I am wondering if it's something

they

outgrow. I don't know. I do know it's EXTREMELY serious, especially living

here in Philly with the heat and humidity in summers. We have it written

in Maddie's IEP that she can't be in the heat for any extended periods (all

it takes for her is 20 minutes) without being in air-conditioning or water.

I carry around a sprinkler bottle EVERYWHERE we go. I also wipe her down

with cool rags. It's a big part of the reason she got into Melmark; Philly

couldn't guarantee an air conditioned classroom. A few years ago, a 9

year old child died at Sesame Place from the condition. I cut out the article

and sent in into her school, so they'd keep up their diligence. I am

FIERCE about it.....telling her driver constantly, as well as teachers,

therapists

and aides, and family members. People think she's just getting *a little

color*, or getting very tired, or sometimes they think she's sick. It

hasn't happened to us in a long time, because I'm SO diligent about keeping her

cool. But when it happens, I panic....she turns red as a lobster, gets

real lethargic, and basically drops (and I'm not talking the wet noodle thing).

If you see this with , you should immediately have it written in

his IEP. It can be deadly.

Donna

[Guest guest]

In a message dated 5/24/2006 3:07:37 P.M. Eastern Standard Time,

liz.desantis@... writes:

She gets very flushed and sweats

like a PIG.. Excuse the expression (we are totally against pigs in this

house anymore!) =)

No Liz...the condition is NOT sweating. Sweating is good because it means

she's regulating her body temperature according to her environment.

Maddie has never ever had a bead of sweat on her body. When hot, she'll

just

turn beet red, and drop....heart rate changes, pressure changes (not that

we've taken it; it's just obvious). It's very scary.

Donna

[Guest guest]

In a message dated 5/24/2006 4:02:37 P.M. Eastern Daylight Time,

gldcst@... writes:

never seems to sweat at all and we're in 90+ weather. I on the other

hand work up a sweat just rolling over in bed.

Same here, Trisha will turn red as a beet but I don't recall seeing sweat

beads on her. Heat has always been something we tend to watch for her as if

she gets overheated she will get sick. Now me on the other hand I sweat just

sitting still. Oh wait, as I recall those might be hot flashes. lol

Carol

Trishasmom

She isn't Typical, She's Trisha!

[Guest guest]

Tori cannot handle the heat well at all. She gets very flushed and sweats

like a PIG.. Excuse the expression (we are totally against pigs in this

house anymore!) =)

Liz

Anhidrosis - or not sweating

>I know Maddie has this condition and Donna, when you return from your

>wonderful trip to Ireland, you can enlighten me!! LOL!

>

> Does anyone else's child have this condition?

> The more I think about and being in the heat, playing sports,

> etc... I don't recall him ever sweating.

> I want to know what I should do about this - how do I found out if he has

> this condition and if so, what precautions need to be taken?

> He's done well for his first 7 years of life, lol, but we're coming up on

> another hot summer in Virginia. He played soccer last year and would get

> red but never sweat.

> Any tips or info on what to do and how I know for sure, just holler. I

> mentioned it to his teacher and aide yesterday and they don't recall ever

> seeing him sweat either. I guess I need to make an appt with the Neuro

> ped. I know if he has it, I probably need to make some ammendments to his

> IEP.

>

> Thanks for any advice.

> Jayne

>

>

> ---------------------------------

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> Voice.

>

>

[Guest guest]

<<She gets very flushed and sweats

like a PIG.. Excuse the expression (we are totally against pigs in this

house anymore!) =)>>

LOL how's that pig thing going anyway?

never seems to sweat at all and we're in 90+ weather. I on the other hand

work up a sweat just rolling over in bed.

Sherry

[Guest guest]

so she sweats more than usual then? Hmmm, doesn't seem to sweat at all.

sorry but I had to chuckle about the pigs... is that still going on with

her???

Jayne

Liz D wrote:

Tori cannot handle the heat well at all. She gets very flushed and sweats

like a PIG.. Excuse the expression (we are totally against pigs in this

house anymore!) =)

Liz

Anhidrosis - or not sweating

>I know Maddie has this condition and Donna, when you return from your

>wonderful trip to Ireland, you can enlighten me!! LOL!

>

> Does anyone else's child have this condition?

> The more I think about and being in the heat, playing sports,

> etc... I don't recall him ever sweating.

> I want to know what I should do about this - how do I found out if he has

> this condition and if so, what precautions need to be taken?

> He's done well for his first 7 years of life, lol, but we're coming up on

> another hot summer in Virginia. He played soccer last year and would get

> red but never sweat.

> Any tips or info on what to do and how I know for sure, just holler. I

> mentioned it to his teacher and aide yesterday and they don't recall ever

> seeing him sweat either. I guess I need to make an appt with the Neuro

> ped. I know if he has it, I probably need to make some ammendments to his

> IEP.

>

> Thanks for any advice.

> Jayne

>

>

> ---------------------------------

> Be a chatter box. Enjoy free PC-to-PC calls with Yahoo! Messenger with

> Voice.

>

>

[Guest guest]

I on the other hand work up a sweat just rolling over in bed.

Sherry

Never fails, you have me laughing out loud sherry!

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My first " mom of a dual dx " friend (a mentor) had this problem with her son and

it was so severe that she actually had a grant to have a suit made for him from

NASA that could control his temperature. There is something in the

hypothalamus?? not sure- that is broken in some of our kids, as are so many

other things. She always carried spray mister bottles; they have some with fans

on them and continually sprayed him down. Anyway it is some problem in the

ability to regulate body temp. As with so many other senses etc. it's like the

switchboard isn't working- not making connections.

How's that for a scientific description?

This is something I worry about with seeing that hurricane season is on

it's way. She's used to being in AC- house, car, or outside only to go in the

pool or for very short periods.

It's actually what I miss the most during power outages too. Take the food, take

the TV...just give me my AC!!

Sherry

PS to Carol....it's just one looooong hot flash now LOL

[Guest guest]

In a message dated 5/24/2006 5:20:47 P.M. Eastern Standard Time,

gldcst@... writes:

There is something in the hypothalamus?? not sure

Yes Sherry, that is the part of the brain that operates body temp.

Donna

[Guest guest]

Jayne, when was young he used to get beet red in the heat and

didn’t perspire. At that time no one said anything about it and we just

cooled him off when we noticed it. I can only remember a couple times

of him sweating. He doesn’t perspire now but he doesn’t get that

flushed in the heat either. I wonder if there are degrees of this

condition. At least he doesn’t have that smelly body odor so some good

in it lol. Now the feet smell is a different thing at times.

Louise Mom to 43 DS, Deaf, ASD (diagnosed at 41)

Anhidrosis - or not sweating

I know Maddie has this condition and Donna, when you return from your

wonderful trip to Ireland, you can enlighten me!! LOL!

Does anyone else's child have this condition?

The more I think about and being in the heat, playing sports,

etc... I don't recall him ever sweating.

I want to know what I should do about this - how do I found out if he

has this condition and if so, what precautions need to be taken?

He's done well for his first 7 years of life, lol, but we're coming up

on another hot summer in Virginia. He played soccer last year and would

get red but never sweat.

Any tips or info on what to do and how I know for sure, just holler.

I mentioned it to his teacher and aide yesterday and they don't recall

ever seeing him sweat either. I guess I need to make an appt with the

Neuro ped. I know if he has it, I probably need to make some

ammendments to his IEP.

Thanks for any advice.

Jayne

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[Guest guest]

<<Yes Sherry, that is the part of the brain that operates body temp.

Donna>>

Sooooooo what happens to the hypthalamus in menopause??? LOL

Sherry