Sara

[Guest guest]

<<Aside from that, having my almost grown son home 24/7 and me home 24/7 this

fews weeks makes me realize how very difficult this is becoming.

Elie talks - on one subject only and for hours at a time, the same three

word three sentences. Over and over and over again. Any attempt to

redirect is met by the famous ELie whine. No bribe, manipulation, activity,

ignoring changes the focus.>>

Hi, Everyone....Sara....you can feel the frustration in your letter, coming

from your heart. The scary thing is that so much of what you say is true.

Believe me, I know about the over and over and over business. It drives me

nuts, too. I do know that in the past, I was sooooooooo frustrated and ready

to give Gareth up for adoption because of the autism....back when it was just

becoming the 'in' problem for everyone. When our kids were 3, 4, 5 ish,

there were very few papers for autism....period. There was no parental support

groups, ABA, sensory therapies, floortime, etc....we were all 'winging' it on

our own. I would not say that Gareth is cured, but he is not the severely

autistic child he was at age 5-6 when first labeled. He has come a long way,

mostly do to meds. He still can't be left home alone and needs assistance in

toiletry, baths, dressing, shoes/braces, etc. Like you....what comes next?

When do I start seriously thinking of putting him a home? Do I wait till I

can't do it anymore.....when I am soooooooo frustrated with him asking the same

question over and over and over again? How much time do I allow him to get

acclimated in a home before I get put six feet under? I'll be thinking of you

unpacking and getting settled in....did plenty of that over the past 20

years!!! Seven houses/cities in all!!! Prayers coming your way.

Margaret