Re: I Say, mold/microbial contaminates CAN'T make you sick

[Guest guest]

I tell people that I got sicker than Haides. I am better now. But stuff

in the air really bugs me sometimes and it never did before. They seem to

understand that.

In a message dated 2/8/2011 6:34:20 P.M. Pacific Standard Time,

rustee50@... writes:

I find it impossible for any or most to understand at all what kind of

devastation mcs/mold sensitivity can involve...i am an extreme reactor and my

reactions are so intense that I almost black out; can have convulsion,

whatever.....

[Guest guest]

In a message dated 2/8/2011 4:08:36 P.M. Pacific Standard Time,

tigerpaw2c@... writes:

I would like to here from everyone. If there is one thing you could say to

someone that may convince them,what would it be???

>That the US Chamber of Commerce says it doesn't cause illness. lol

[Guest guest]

Good question,

I don't have a good answer but I wish from the bottom of my heart they were

right and i was wrong and delusional.

My friends all believe me but they don't realise just how seriously its effected

my health. To them it's just another part of mcs but i do consider myself lucky

to have friends that believe that i have mcs and are very supportive. They just

dont see how mold can be quite as bad as I say it is especially in such minute

quantities. My mcs is no big deal but my mold sensitivity is though the roof.

How many times i've said i would love to 'just' have mcs even if it were 10

times worse than it is now...

I have at one time referred to the fact that u.s. Military has researched

biotoxins for thier use in warfare...and ive used other examples but not

thinking too clearly at the moment.

Looking forward to reading the other responses.

Kind regards,

D

________________________

On 2011-02-09 11:08:34 +1100 KC <tigerpaw2c@...> wrote:

>

>

> Gotcha !!!

>

> Ok, we all have heard this statement many, many times, to the point of

> completely losing it, even when it is staring some people right in the face.

> You can talk to them until you turn blue or like you are speaking to a wall.

>

> I would like to here from everyone. If there is one thing you could say to

> someone that may convince them,what would it be???

>

> Please try and keep it short, to one paragraph with a link/s if you like.

>

> I know this can be so darn frustrating at times. This still happens to all of

> us.

>

>

> KC

>

>

>

[Guest guest]

I have Hypersensitivity Pnuemonitis from a WDB which has been around for years

and know by the medical community.

Hypersensitivity pneumonitis (HP), also known as extrinsic allergic alveolitis,

is an immune mediated lung

disease. This uncommon disease is caused by inhalation of and sensitisation to

antigens derived from protozoa,

molds, animals, insects, bacteria, chemicals, and other organic materials .

http://medind.nic.in/iae/t06/i2/iaet06i2p115.pdf

What is so impossible to believe ? Only to those who do not want to see.

God Bless !!

dragonflymcs

Mayleen

________________________________

From: KC <tigerpaw2c@...>

Sent: Tue, February 8, 2011 7:08:28 PM

Subject: [] I Say, mold/microbial contaminates CAN'T make you sick

Gotcha !!!

Ok, we all have heard this statement many, many times, to the point of

completely losing it, even when it is staring some people right in the face. You

can talk to them until you turn blue or like you are speaking to a wall.

I would like to here from everyone. If there is one thing you could say to

someone that may convince them,what would it be???

Please try and keep it short, to one paragraph with a link/s if you like.

I know this can be so darn frustrating at times. This still happens to all of

us.

KC

[Guest guest]

I gave up on trying to convince people of my sensitivities to mold or chemicals,

when I did try they just looked at me like I was nuts. Now I just tell them I

have extremely bad allergies and that's something most people can relate to and

is easily acceptable.

Gotcha !!!

Ok, we all have heard this statement many, many times, to the point of

completely losing it, even when it is staring some people right in the face.

You can talk to them until you turn blue or like you are speaking to a wall.

I would like to here from everyone. If there is one thing you could say to

someone that may convince them,what would it be???

Please try and keep it short, to one paragraph with a link/s if you like.

I know this can be so darn frustrating at times. This still happens to all of

us.

KC

[Guest guest]

I tell them what I know briefly and the information has been hidden for monetary

reasons by insurance companies and the like. If they don't seem open to that, I

stop there. Figure from then on, it's their business. As far as referring to

myself, I say I have severe allergies, like Tug said, and that works. Any other

information and they look very confused.

>\

> Gotcha !!!

>

> Ok, we all have heard this statement many, many times, to the point of

completely losing it, even when it is staring some people right in the face. You

can talk to them until you turn blue or like you are speaking to a wall.

>

> I would like to here from everyone. If there is one thing you could say to

someone that may convince them,what would it be???

>

> Please try and keep it short, to one paragraph with a link/s if you like.

>

> I know this can be so darn frustrating at times. This still happens to all of

us.

>

>

> KC

>

[Guest guest]

I find it impossible for any or most to understand at all what kind of

devastation mcs/mold sensitivity can involve...i am an extreme reactor and my

reactions are so intense that I almost black out; can have convulsion,

whatever.....

and I am perpetually very ill and bedridden mostly, that is how overwhelming my

chronic fatiguen is....never mind all else....

how can one expect people to understand how a person can be so sick as to be

virtually bed-ridden without having legitimate visible disease or medical

diagnosis?

my entire family and scope of relatives honestly think I am psychotic;

delusional ; crazy......

If I was 'normal' I could never understand these illnesses either nor could I

imagine the ill health they bring on....

Ian

>

> I gave up on trying to convince people of my sensitivities to mold or

chemicals, when I did try they just looked at me like I was nuts. Now I just

tell them I have extremely bad allergies and that's something most people can

relate to and is easily acceptable.

>

>

[Guest guest]

I agree here with everything you said. The topperr is, " So are you okay now? "

Yep, Alllllllllll better, thanks.

Meredith

>

> Good question,

>

> I don't have a good answer but I wish from the bottom of my heart they were

right and i was wrong and delusional.

>

> My friends all believe me but they don't realise just how seriously its

effected my health. To them it's just another part of mcs but i do consider

myself lucky to have friends that believe that i have mcs and are very

supportive. They just dont see how mold can be quite as bad as I say it is

especially in such minute quantities. My mcs is no big deal but my mold

sensitivity is though the roof. How many times i've said i would love to 'just'

have mcs even if it were 10 times worse than it is now...

[Guest guest]

Yes, i'm getting that a lot!! People think i should be able to just get on with

my life now. They don't see that i'm actually getting worse. Also lots of very

well meaning people wanting to cure me with vitamin C, herbs etc. If only it

were that simple! But i'm blessed to have people that care and want to help. For

that i am thankfull.

________________________

On 2011-02-09 14:21:44 +1100 fontanafool <productionking04@...> wrote:

>

> I agree here with everything you said. The topperr is, " So are you okay

> now? "

> Yep, Alllllllllll better, thanks.

> Meredith

>

[Guest guest]

Here is a site for everyone on Invisible Disabilities ::

http://www.invisibledisabilities.org/educate/butyoulookgood/

In 1997, there were 26 million Americans considered to have a severe disability

and only 7 million of them use a wheelchair, cane, crutches or walker.

Therefore, we cannot always judge whether a person is disabled or not by how

they look to us. True, not every kind of disability qualifies a person to park

in a reserved space, but it is considered a disability – whether or not it is

visible to the onlooker (U.S. Department of Commerce).

Despite the facts, when most people think of a disability, they picture in their

minds a person with a visible, obvious impairment. Lorden, a writer living

with Fibromyalgia explained, “…our visually oriented society may not take

the

time to look beyond appearances. People tend to believe what they see; and if it

can’t be seen, it simply doesn’t exist.â€

We often do not realize that a person can have hindrances that come from the

inside and may not be visible on the outside. In other words, they can have a

physically limiting illness or injury, even though it is not obvious to the

onlooker. Their limitations may be disabling, but because their symptoms can

seem unapparent to most, we call them, “Invisible Disabilities.â€

http://www.invisibledisabilities.org/educate/invisibleawareness/lookscanbedeceiv\

ing/

The numbers of Americans battling MCS seem to be rising quickly. Most with MCS

tell a story of once being healthy and not effected by fragrances. “MCS

usually

starts with either an acute or chronic toxic exposure, after which this initial

sensitivity broadens to include many other chemicals and common

irritants…â€(3)

Many experts have found that once a person become reactive to a chemical or

toxin, their intolerance is rarely reversible.

Furthermore, “In 1998, it was estimated that 26.3 million Americans have been

diagnosed with asthma.â€(4) Asthma is a serious respiratory disorder that can

constrict and cause swelling of the airways. “The Institute of Medicine placed

fragrance in the same category as second hand smoke in triggering asthma in

adults and school age children.â€(5) What’s more, “Up to 72% of asthmatics

report

their asthma is triggered by fragrance. Asthmatics and others that

are negatively impacted by fragrance often have difficulties working, obtaining

medical care, and going about activities of daily living because of others’

use

of scented products.â€(6)

For those living with asthma and/or MCS, just going to work, a meeting or an

activity may expose them to chemicals that could make them ill. These reactions

can be very serious and have changed the lives of millions. Because they have to

avoid public situations and even having people in their own homes, they can

also experience isolation, loneliness, lose their jobs and may even become

homebound.

http://www.invisibledisabilities.org/educate/chemicalsensitivities/fragrancefree\

zone/

[Guest guest]

I'd like to offer them a mold cocktail to sniff like Brocovich

did with the water in the movie. I think it's a good idea to have a

beaker with mold in it to see if the insurers sitting at the WC table

would sniff it along with the judge.

Barth

www.presenting.net/sbs/sbs.html

SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

---

K> Gotcha !!!

K> Ok, we all have heard this statement many, many times, to the point of

completely losing it, even when it is staring some people right in the face. You

can talk to them until you turn blue or like

K> you are speaking to a wall.

K> I would like to here from everyone. If there is one thing you could say to

someone that may convince them,what would it be???

K> Please try and keep it short, to one paragraph with a link/s if you like.

K> I know this can be so darn frustrating at times. This still happens to all of

us.

K> KC

[Guest guest]

what advantage is it for me to take this sort of abuse (from you)?

_______________________________

In a message dated 2/8/2011 4:08:36 P.M. Pacific Standard Time,

tigerpaw2c@... writes:

I would like to here from everyone. If there is one thing you could say to

someone that may convince them,what would it be???

[Guest guest]

If you have the TIME: Explain to them which side the money is on, and show them

proof of how mold in government buildings are handled differently than public

buildings, etc. Although I have to say there seems to be two types of people:

those that always believe 'authority figures' and those that don't/realize that

authority figures aren't always correct and sometimes are even corrupt..imagine

that? If they are the first type, it seems no amt of talking changes that in my

experience.

>

>Ok, we all have heard this statement many, many times, to the point of

completely losing it, even when it is staring some people right in the face. You

can talk to them until you turn blue or like you are speaking to a wall.

>

> I would like to here from everyone. If there is one thing you could say to

someone that may convince them,what would it be???

>

> Please try and keep it short, to one paragraph with a link/s if you like.

>

> I know this can be so darn frustrating at times. This still happens to all of

us.

>

>

> KC

>

[Guest guest]

Mold is got in our blood streams & brain. Why can't they see that???

Beyond Dr. Shoe's tests, can't we prove it w urine or blood tests showing mold?

What about those who had black stuff coming out of a bodily part.  Mold induced

asthma, MCS, the list goes on. 

The sad fact is the majority of us can't swing the cost of specialty tests to

add more proof.

Stack up the tests of those who can. It's about having the money.for the chance

at recovery.

Kathy

[Guest guest]

One way to get rid of the monetary issue.

A registry of some kind needs to be created, anonymously labeled by country,

city. 

Who were lost, who recovered to be able to function, those somewhere in the

middle.

Those who win lawsuits have retain the right to add their name or anonymous

plaintiff.

Tests to prove we got sick compared w past records.

Doc's who treat need to take the time to submit anonymous data for the registry.

Yes many won't get added who don't know about it.

All of us here need to be willing to stand up for what happened to us.

How do we show we can't handle small exposures anymore I can't answer. My guess

is

we still have some mold hiding somewhere or now have intolerance's.

As delayed food intolerances are different than immediate allergies.

Kathy

[Guest guest]

My records show a timeline from a healty person going to school, bowling twice a

week and never needing medical help to a person who had a serious reaction and

went to emergency. This was followed by chest pain, all sinuses infected,

polyps, irritant induced asthma, allergic to penicillin which was new, chronic

yeast infections, etc. All fungal related.

>

>

> In a message dated 2/8/2011 4:08:36 P.M. Pacific Standard Time,

> tigerpaw2c@... writes:

>

>

> I

[Guest guest]

When I haven't seen someone for a time they say " are you better now? " and I say

sometimes, " NO, I am WORSE! "

At that point they don't usually want to talk anymore.

It's like they can't admit what is really happening. Even had a friend look up

some bogus site and tell me " It says here that it is

spreading phenomenom, meanig somatic not biologic " . Funny because this is a

diabled perrson, back operations, neck broke, fibro, etc. But she can't believe

I can't be in her house. Her husband even has mild mcs. SHe said if he were

like me she would devorce him!!!

Life goes on, without many friends.

meredith

>

> >

> > I agree here with everything you said. The topperr is, " So are you okay

> > now? "

> > Yep, Alllllllllll better, thanks.

> > Meredith

> >

>

[Guest guest]

When you become bed-ridden it is what Dr. Rea calls " total debilitation. " Tell

them that is the name of your condition and it describes it better. It has to do

with multi-organ involvement etc. I went through that and I know how

discouraging it can be especially when your family is questioning all of it when

what you need most is their support. Take care D

>

> I find it impossible for any or most to understand at all what kind of

devastation mcs/mold sensitivity can involve...i am an extreme reactor and my

reactions are so intense that I almost black out; can have convulsion,

whatever.....

>

> and I am perpetually very ill and bedridden mostly, that is how overwhelming

my chronic fatiguen is....never mind all else....

>

> how can one expect people to understand how a person can be so sick as to be

virtually bed-ridden without having legitimate visible disease or medical

diagnosis?

>

> my entire family and scope of relatives honestly think I am psychotic;

delusional ; crazy......

>

> If I was 'normal' I could never understand these illnesses either nor could I

imagine the ill health they bring on....

>

> Ian

>

[Guest guest]

LOL, I get that too. Also, after I have just explained how disabled I am, " So

do you work? " I sure do, coping with, caring for and healing up from MCS is a

full-time job!

anita

---From: fontanafool

Sent: Tuesday, February 8, 2011 6:46 PM



I agree here with everything you said. The topperr is, " So are you okay now? "

Yep, Alllllllllll better, thanks.

Meredith

[Guest guest]

I never used to be afraid to breathe in mold. I once stayed in such a damp

house the books were molding on the shelves. It was a long time ago and I was

there for a month. I actually liked the smell of the mold (not black) when it

rained. Some outdoor mold smells make me think of camping which I love. If

only I had that kind of tolerance now, wow..........

I do wonder these days if it didn't affect me back then and I just didn't know

it? My health got worse after that, but I was taking medication also that

affected me so that confuses things. But it certainly could have been a cause

or start of my new symptoms and not just the meds.

anita

---From: Patilla DaHun

?

I'd like to offer them a mold cocktail to sniff like Brocovich

did with the water in the movie. I think it's a good idea to have a

beaker with mold in it to see if the insurers sitting at the WC table

would sniff it along with the judge.

Barth

www.presenting.net/sbs/sbs.html

SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

---

K> I would like to here from everyone. If there is one thing you could say to

someone that may convince them,what would it be???

[Guest guest]

 If there is one thing you could say to someone that may convince them,what

would it be???

I have a trailer specially designed with a typical toxic mold environment. You

can say kind of like a " control " in a science experiment. Why dont you and your

family come and stay for a while?

[Guest guest]

 If there is one thing you could say to someone that may convince

them,what would it be???

I have a trailer specially designed with a typical toxic mold environment. You

can say kind of like a " control " in a science experiment. Why dont you and your

family come and stay for a while?

Just to clarify, this should be said to lawyers and the Doctors they also employ

to cloud the facts against the truth, that there is such a thing as toxic

mold.Not to the lay person:)

Eli

[Guest guest]

My experience has been that people who are believing don't need any convincing,

they just believe me easy, right away. People who are disbelieving, nothing I

say will convince them. Nothing.

anita

---From: KC

I would like to here from everyone. If there is one thing you could say to

someone that may convince them,what would it be???

[Guest guest]

This is my experience Anita. People are either open-minded or they aren't.

What I mean by that is that they believe something because an authority figure

told them and they will not question that EVER. Could be a parent, a doctor,

minister, teacher, a book or magazine by respected source. There are people who

just don't question things. I think someday they are people who fall for scams,

etc. I question things and if something sounds logical or possible, I'm open to

considering it. I don't struggle with it or with anyone bec I've discovered it

does no good, but wears you out.

>

> My experience has been that people who are believing don't need any

convincing, they just believe me easy, right away. People who are disbelieving,

nothing I say will convince them. Nothing.

> anita

>

>

[Guest guest]

Barb, right, I know what you mean. I was going to say open-minded rather than

believing because believing sounds like I meant gullible, and I didn't.

Open-minded is good, being willing to consider something, but being gullible is

not.

anita

----------------------------------

From: barb b w



This is my experience Anita. People are either open-minded or they aren't. What

I mean by that is that they believe something because an authority figure told

them and they will not question that EVER. Could be a parent, a doctor,

minister, teacher, a book or magazine by respected source. There are people who

just don't question things. I think someday they are people who fall for scams,

etc. I question things and if something sounds logical or possible, I'm open to

considering it. I don't struggle with it or with anyone bec I've discovered it

does no good, but wears you out.