Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Has anyone ever heard of s Syndrome onset being related to a sick building/mold exposure? Sue Bell Averill Park, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Do you have that? From: Sue <sebell1862@...> Subject: [] Mold Exposure related SJS Date: Thursday, March 18, 2010, 1:12 PM Has anyone ever heard of s Syndrome onset being related to a sick building/mold exposure? Sue Bell Averill Park, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 no i don't, don't know what it is even, and no one else in my family has it. sue >Do you have that? > > > >From: Sue <sebell1862@...> >Subject: [] Mold Exposure related SJS > >Date: Thursday, March 18, 2010, 1:12 PM > > Has anyone ever heard of s Syndrome onset being >related to a sick building/mold exposure? > > > >Sue Bell > >Averill Park, NY > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 This may seem far fetched but I'm at my wits end. At the beginning of the school year (September) my youngest daughter who is 15 and a sophmore in high school began to come home with head aches, not feeling well and breaking out into a rash. There was an obvious mold situation in their high school which the school was " handling " . They closed down her class room and moved it elsewhere in the school because of conditions in the classroom. This illness repeated itself on several different occasions resulting in leaving school early. The condition also bothered her asthma which she was on an inhaler for. My 17 year old daughter who is a senior this year attended the same high school in the beginning of the year but the only complaint she had was she was tired. Considering she is very athletic and a very accomplished dancer with an extremely busy schedule, this was not uncommon. In October, my youngest daughter went to the doctor immediately after I pulled her from school complaining of illness. The doctor said she was having an allergic reaction. Immediately, they placed her on medicines for allergies and said to give it a day and send her back to school. So I did. On Thursday of that week, I sent both my kids to school whereas my youngest complained of rash and not feeling well and my oldest complained of burning eyes. This was the beginning of the end. On Friday my oldest daughter woke with a swollen face which eventually spread and became worse. She was hospitalized with s Syndrome/Toxic Epidermal Necrolysis for 17 days and if it weren't for her health and strength she would have perished. Now, both girls have been out of the school building and both girls have been through hundreds of allergy tests, skin tests and blood work. Nothing shows up. No illness, no allergies except minor pollen/dust mite for my youngest. Ironically, my youngest who has needed an inhaler hasn't used one since October and under the care of her doctor has been kept out of the building requesting alternative educational environment. I am left banging my head because my older daughter is left with many complications from the SJS/TEN and because we can't pin point the trigger everything is suspect. With every test that comes back negative it brings the arrow back to the school. The only blood work that has showed anything was performed by an environmental doctor in November, over a month after the onset and it showed high levels of Aspergillus fumigatus and Micropolyspora Faeni IgG. As I am being told presently, there are many staff members who are ill with bronchitis and other respiratory related illness occuring constantly but the health department doesn't seem to care and neither does the school district. I have no clue what to do. I know there are many health related issues to mold and sick buildings but has anyone ever dealt with something this extreme? Sue Bell Averill Park, NY > > From: Sue <sebell1862@...> > Subject: [] Mold Exposure related SJS > > Date: Thursday, March 18, 2010, 1:12 PM > > Has anyone ever heard of s Syndrome onset being related to a sick building/mold exposure? > > > > Sue Bell > > Averill Park, NY > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 Here's an article about SJS. http://www.witzerlaw.com/stevens-johnson-syndrome-toxic-epidermal-necrolysis-fro\ m-allopurinol ________________________________ From: sue <svican@...> Sent: Fri, March 19, 2010 7:58:04 AM Subject: Re: [] Mold Exposure related SJS no i don't, don't know what it is even, and no one else in my family has it. sue >Do you have that? > > > >From: Sue <sebell1862aol (DOT) com> >Subject: [] Mold Exposure related SJS > >Date: Thursday, March 18, 2010, 1:12 PM > > Has anyone ever heard of s Syndrome onset being >related to a sick building/mold exposure? > > > >Sue Bell > >Averill Park, NY > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 have they been tested for any bacterial infections? > > > > From: Sue <sebell1862@> > > Subject: [] Mold Exposure related SJS > > > > Date: Thursday, March 18, 2010, 1:12 PM > > > > Has anyone ever heard of s Syndrome onset being related to a sick building/mold exposure? > > > > > > > > Sue Bell > > > > Averill Park, NY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 SJS is believed to be an autoimmune disorder. It has been associated with a variety of exposures, ranging from medications (e.g. Tylenol) through chlorinated solvents (trichloroethylene). I suggest you do a google search regarding the medicines prescribed to the children. Water damaged buildings contain more than molds. Gram negative and positive bacteria flourish with the molds. Some of them are interactive with molds in a synergistic manner (animal and tissue culture studies revealed this). The bacteria that are present can also cause severe skin problems. These include Streptomyces spp, Staphylococcus spp. and several different species of Actinobacteria (especially Mycobacterium and Propionibacterium). You need to obtain bulk samples of the mold growth and perform the following: ERMI test to determine mold species; mold cultures at 27 and 25 degrees C (some molds have an optimum growth at 37 C), and bacteria at 55 and 37 degrees C. Make sure that the bacteria cultures are done for Actinobacteria, Streptomyces, Staphylococcus (Gram positive bacteria) as well as Gram negative bacteria. The endotoxins (lipopolysacccharides) released by Gram negative bacteria are irritants of the respiratory tract and can cause a flu-like condition. The 1-3-beta-D-glucans (mold cells wall polysaccharides) are also present at concentrations up to 500 times greater than spore counts. These are also irritating to the respiratory tract. see the URLs below for further information. http://www.thoracic.org/statements/resources/mtpi/nontuberculous-mycobacterial-d\ iseases.pdf http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2153459/pdf/nihms35332.pdf http://www.ncbi.nlm.nih.gov/pubmed/19012949 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC544211/pdf/0645-04.pdf Jack-Dwayne: Thrasher, Ph.D. Toxicologist/Immunotoxicologist/Fetaltoxicologist www.drthrasher.org toxicologist1@... Off: 916-745-4703 Cell: 575-937-1150 L. Crawley, M.ED., LADC Trauma Specialist sandracrawley@... 916-745-4703 - Off 775-309-3994 - Cell This message and any attachments forwarded with it is to be considered privileged and confidential. The forwarding or redistribution of this message (and any attachments) without my prior written consent is strictly prohibited and may violate privacy laws. Once the intended purpose of this message has been served, please destroy the original message contents. If you have received this message in error, please reply immediately to advise the sender of the miscommunication and then delete the message and any copies you have printed. Thank you in advance for your compliance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 s Syndrome is a severe, life threatening condition that causes cell death in your skin and mucous membrames. It is normally caused by a reaction to antibiotics. I met a woman here in Dallas that had SJS and nearly died from it. Its very dangerous. I have never heard of mold being the cause of SJS. D > > > >From: Sue <sebell1862@...> > >Subject: [] Mold Exposure related SJS > > > >Date: Thursday, March 18, 2010, 1:12 PM > > > > Has anyone ever heard of s Syndrome onset being > >related to a sick building/mold exposure? > > > > > > > >Sue Bell > > > >Averill Park, NY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Mold Cultures should have read: 37 and 25 degrees C. My error. For example, the optimum temperature for A. flavus is 37 C. It can be crowded out by Penicillium and other genera that grow well at 25 C. Thus, A. flavus can be missed by culturing. Also, I found A. flavus in homes by ERMI test and the cultures have been negative at 25 C. I am now requesting all culture be done at both 37 and 25. Jack-Dwayne: Thrasher, Ph.D. Toxicologist/Immunotoxicologist/Fetaltoxicologist www.drthrasher.org toxicologist1@... Off: 916-745-4703 Cell: 575-937-1150 L. Crawley, M.ED., LADC Trauma Specialist sandracrawley@... 916-745-4703 - Off 775-309-3994 - Cell This message and any attachments forwarded with it is to be considered privileged and confidential. The forwarding or redistribution of this message (and any attachments) without my prior written consent is strictly prohibited and may violate privacy laws. Once the intended purpose of this message has been served, please destroy the original message contents. If you have received this message in error, please reply immediately to advise the sender of the miscommunication and then delete the message and any copies you have printed. Thank you in advance for your compliance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Here in lies the problem. When my daughter began to have symptoms of SJS/TEN they tested her for every known " normal " illness, viral, bacterial etc. I have a handful of paperwork from all the tests they ran in the hospital and they all came back negative other than to say that she had an increase white blood cell count. I kept saying it had to do with something in the school. Now, we had to foil the school at the time to get the information that they had because they wouldn't share it with us openly and therein we found lab results for multiple tests on tiles and roof decking in a wing of the school that had positive results for numerous molds and bacteria. The biggest problem is that the cross test a human to what was found is not something that the doctors could do or would even consider. It wasn't until she was out of the hospital that an environmental doctor ran blood tests for molds and bacterials, pigeon droppings etc. that she had high results and since this is the only test after multitude of allergy tests that have showed any sign of difference. Sue Bell > > > > > > From: Sue <sebell1862@> > > > Subject: [] Mold Exposure related SJS > > > > > > Date: Thursday, March 18, 2010, 1:12 PM > > > > > > Has anyone ever heard of s Syndrome onset being related to a sick building/mold exposure? > > > > > > > > > > > > Sue Bell > > > > > > Averill Park, NY > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 In every way what my daughter went through was definitely autoimmune related however, the cause is " unknown " even by the best allergists in NYC. We believe in leaving doctors scratching their heads. It's become a load of fun. I have done ALOT of research on SJS/TENS. I even documented her hospital stay in pictures. Every day of every struggle. It is quite impressive. One of the best doctors at the hospital said to us after all the tests they ran is that whatever triggered the SJS/TEN was something she had come in contact with within several hours of the initial onset. The only place the child had been was home, in her car and at school. It was documented that the school was undergoing a major mold issue at the time blaming it on roof replacement during the summer months. Testing that was performed by a lab for the school showed positive tests for many different molds and bacteria, some visible to the naked eye within the classrooms and hallway above the drop ceiling. Ironically, the custodians had been removing the ceiling tiles from the classrooms during the week that the kids both took ill which in my opinion was mixing it in the air and exposing it to occupied spaces. Upon receiving the final report from the school, it was documented that much of the hallway was not remediated by any means and the custodial staff was told if it starts to smell, ventilate the area above the ceiling. It has now come to my attention that much of the faculty has been suffering continuous problems with sinus issues, bronchitis and headaches and still to this day continue to be ill. Unfortunately, the school won't discuss further testing and the health department says that the school hasn't reported any issues. So the only tests I have to go on are the original results from September. Sue Bell --- In , " Jack Thrasher, Ph.D. " <toxicologist1@...> wrote: > > SJS is believed to be an autoimmune disorder. It has been associated with a variety of exposures, ranging from medications (e.g. Tylenol) through chlorinated solvents (trichloroethylene). I suggest you do a google search regarding the medicines prescribed to the children. > > Water damaged buildings contain more than molds. Gram negative and positive bacteria flourish with the molds. Some of them are interactive with molds in a synergistic manner (animal and tissue culture studies revealed this). > > The bacteria that are present can also cause severe skin problems. These include Streptomyces spp, Staphylococcus spp. and several different species of Actinobacteria (especially Mycobacterium and Propionibacterium). > > You need to obtain bulk samples of the mold growth and perform the following: ERMI test to determine mold species; mold cultures at 27 and 25 degrees C (some molds have an optimum growth at 37 C), and bacteria at 55 and 37 degrees C. Make sure that the bacteria cultures are done for Actinobacteria, Streptomyces, Staphylococcus (Gram positive bacteria) as well as Gram negative bacteria. > > The endotoxins (lipopolysacccharides) released by Gram negative bacteria are irritants of the respiratory tract and can cause a flu-like condition. The 1-3-beta-D-glucans (mold cells wall polysaccharides) are also present at concentrations up to 500 times greater than spore counts. These are also irritating to the respiratory tract. see the URLs below for further information. > > http://www.thoracic.org/statements/resources/mtpi/nontuberculous-mycobacterial-d\ iseases.pdf > > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2153459/pdf/nihms35332.pdf > > http://www.ncbi.nlm.nih.gov/pubmed/19012949 > > http://www.ncbi.nlm.nih.gov/pmc/articles/PMC544211/pdf/0645-04.pdf > > > > > > > Jack-Dwayne: Thrasher, Ph.D. > Toxicologist/Immunotoxicologist/Fetaltoxicologist > www.drthrasher.org > toxicologist1@... > Off: 916-745-4703 > Cell: 575-937-1150 > > > L. Crawley, M.ED., LADC > Trauma Specialist > sandracrawley@... > 916-745-4703 - Off > 775-309-3994 - Cell > > > > > This message and any attachments forwarded with it is to be considered privileged and confidential. The forwarding or redistribution of this message (and any attachments) without my prior written consent is strictly prohibited and may violate privacy laws. Once the intended purpose of this message has been served, please destroy the original message contents. If you have received this message in error, please reply immediately to advise the sender of the miscommunication and then delete the message and any copies you have printed. Thank you in advance for your compliance. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 I dont doubt that it was the school that caused this illness. I really dont. with this illness being caused by both bacterial infections and antibotics, it's not beyond the scope of what could happen. I dont think so at all. some antibiotics are made from mold and mycotoxins. I had blisters all up in and around my nose,down my throat and my mucosa was badly damaged. I had tiny red dots everywhere, I thought it was a rash but I think it was actually vaculitis. different genitics and skin pigmentations could play a role in some haveing more,worse skin reactions, also I think the immune problems could play a role there too. > > Here in lies the problem. When my daughter began to have symptoms of SJS/TEN they tested her for every known " normal " illness, viral, bacterial etc. I have a handful of paperwork from all the tests they ran in the hospital and they all came back negative other than to say that she had an increase white blood cell count. I kept saying it had to do with something in the school. Now, we had to foil the school at the time to get the information that they had because they wouldn't share it with us openly and therein we found lab results for multiple tests on tiles and roof decking in a wing of the school that had positive results for numerous molds and bacteria. > The biggest problem is that the cross test a human to what was found is not something that the doctors could do or would even consider. > It wasn't until she was out of the hospital that an environmental doctor ran blood tests for molds and bacterials, pigeon droppings etc. that she had high results and since this is the only test after Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Sue: I went back and read your post. You stated that they tested for all " normal bacteria " . What about the unusual bacteria which are difficult to culture: Mycobacterium, Nocardia, Propionibacterium? Jack-Dwayne: Thrasher, Ph.D. Toxicologist/Immunotoxicologist/Fetaltoxicologist www.drthrasher.org toxicologist1@... Off: 916-745-4703 Cell: 575-937-1150 L. Crawley, M.ED., LADC Trauma Specialist sandracrawley@... 916-745-4703 - Off 775-309-3994 - Cell This message and any attachments forwarded with it is to be considered privileged and confidential. The forwarding or redistribution of this message (and any attachments) without my prior written consent is strictly prohibited and may violate privacy laws. Once the intended purpose of this message has been served, please destroy the original message contents. If you have received this message in error, please reply immediately to advise the sender of the miscommunication and then delete the message and any copies you have printed. Thank you in advance for your compliance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2010 Report Share Posted March 22, 2010 Re: Mold Exposure related SJS Sue: I went back and read your post. You stated that they tested for all " normal bacteria " . What about the unusual bacteria which are difficult to culture: Mycobacterium, Nocardia, Propionibacterium? Jack-Dwayne: Thrasher, Ph.D. Toxicologist/Immunotoxicologist/Fetaltoxicologist www.drthrasher.org toxicologist1@... Off: 916-745-4703 Cell: 575-937-1150 L. Crawley, M.ED., LADC Trauma Specialist sandracrawley@... 916-745-4703 - Off 775-309-3994 - Cell This message and any attachments forwarded with it is to be considered privileged and confidential. The forwarding or redistribution of this message (and any attachments) without my prior written consent is strictly prohibited and may violate privacy laws. Once the intended purpose of this message has been served, please destroy the original message contents. If you have received this message in error, please reply immediately to advise the sender of the miscommunication and then delete the message and any copies you have printed. Thank you in advance for your compliance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2010 Report Share Posted March 23, 2010 Hi Dr Thrasher, Pray you are well. Please state which tests should be done for unsual bacteria so I can tell the Dr. Thank you !    God Bless !! dragonflymcs Mayleen ________________________________ From: " Jack Thrasher, Ph.D. " <toxicologist1@...> Sent: Mon, March 22, 2010 1:44:29 PM Subject: [] Fw: Mold Exposure related SJS  Re: Mold Exposure related SJS Sue: I went back and read your post. You stated that they tested for all " normal bacteria " . What about the unusual bacteria which are difficult to culture: Mycobacterium, Nocardia, Propionibacterium? Jack-Dwayne: Thrasher, Ph.D. Toxicologist/ Immunotoxicologi st/Fetaltoxicolo gist www.drthrasher. org toxicologist1@ msn.com Off: 916-745-4703 Cell: 575-937-1150 L. Crawley, M.ED., LADC Trauma Specialist sandracrawley@ msn.com 916-745-4703 - Off 775-309-3994 - Cell This message and any attachments forwarded with it is to be considered privileged and confidential. The forwarding or redistribution of this message (and any attachments) without my prior written consent is strictly prohibited and may violate privacy laws. Once the intended purpose of this message has been served, please destroy the original message contents. If you have received this message in error, please reply immediately to advise the sender of the miscommunication and then delete the message and any copies you have printed. Thank you in advance for your compliance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 EMSL does the appropriate testing. All you need to do is specify that you want testing done for Actinobactera: Mycobacterium, Actinomyces, Streptomyces, etc. Be sure that you request that the two temperatures: 55 and 37 C be done. You want to test for both thermophilic (55 C) and mesophilic (37 C) Actinobacteria. Also, have them culture additional samples using sheep blood agar for Gram negative bacteria. Finally, request that the cultures for Actinobacteria be maintained for at least two weeks. Some of these bacteria are slow growing and will be missed in a 24 to 48 hours of the usual culture protocol. Jack-Dwayne: Thrasher, Ph.D. Toxicologist/Immunotoxicologist/Fetaltoxicologist www.drthrasher.org toxicologist1@... Off: 916-745-4703 Cell: 575-937-1150 L. Crawley, M.ED., LADC Trauma Specialist sandracrawley@... 916-745-4703 - Off 775-309-3994 - Cell This message and any attachments forwarded with it is to be considered privileged and confidential. The forwarding or redistribution of this message (and any attachments) without my prior written consent is strictly prohibited and may violate privacy laws. Once the intended purpose of this message has been served, please destroy the original message contents. If you have received this message in error, please reply immediately to advise the sender of the miscommunication and then delete the message and any copies you have printed. Thank you in advance for your compliance. Quote Link to comment Share on other sites More sharing options...
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