Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 Surella, I went to an allergist when I first realized the mold I was exposed to was what made me sick. He seemed very informed and knowledgable about mold and mold reactions. He did a series of test including skin test, blood test and x-rays to find out exactly what I was exposed to and the extent of my reaction. He then prescribe about ten different medications and allergy shots. I reacted to all the prescription medication and the allergy shots. He insisted that sometimes it takes about six months to see benefits from the treatment and the condition could get worse during that time. After about five months of allergy shots, I had an anaphalatic reaction and had to stop the treatment. It was not until after this treatment that I development MCS. My environmentalist says the allergy shots were actually injected the substances (i.e. molds) I am allergic to into my system in controlled dosages. Since I am reactive to those substance the treatment caused a stronger reaction in my system which lead to MCS, Restless Leg Symdrone, and Chronic Fatigue Syndrome. Please be careful seeing an allergist as most do not believe MCS is a real disease but more of a mental conditions to be consoled. Introducing the substance you are allergic to into your system will not have a good outcome. Tammy > > I just finished with a long bout of recovering from a mold exposure and my daughters were so concerned that they went looking for a doctor. OK, I know conventional doctors are not going to believe me but they found a Dr. ph Wojcik (New York) who is an allergist who treats MCS. He sent me several pages for me to fill out for my history and from the questions it does seem like he knows what I'm going through. > I don't think he takes insurance and I do not have money to waste so I wanted to know if anyone has had any luck with allergists treating their mold " allergy. " > Thanks for your input! Surella > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 Surella, I don't know enough about this to feel like I have a sure sense of whether or not allergy shots would help. I've had them for two years and haven't seen alot of benefit. I would at times feel some slight short term benefit, but had not experienced anything significant. And there has been some feedback that I've heard mention that it is recommended to have done some serious detox prior to allergy treatments. This I guess is part and parcel of protocols that are done at places like COEM and Dr. Rea's. I've not had the funds to go there and started allergy treatments before any significant detox and maybe that is why I had not experienced much improvement, except when I just practice avoidance of being out of moldy places. I finally had to stop doing the serums as we could no longer afford the out of pocket expense. I haven't as of yet noticed any difference one way or the other. But as each person's health and situation is so different, I wouldn't even guess at what that means even for myself. I'm still looking to learn more about allergy treatments and am hoping at some point to save my pennies and have a phone consult with Dr. to see if she can help. One other question I'm trying to figure out is the benefit of serums that aren't preservative-free. According to Dr. Sherry that is the best way to go, especially if you have mcs. But she also adds that there is almost nowhere to get preservative-free serums. Apparentyl she herself gets her serums for her remaining patients from Dr. Rea;s lab. In her books she has established that some people who weren't helped by regular serums, which usually have small amounts of phenol in them as a preservative, had in many cases experienced great relief from preservative-free serums. But then again a small handful of people that I've personally written to and spoken with have also had the latter and experienced some benefit, but not complete recovery-- and it did cost them alot of money. Seems like detox via saunas and ala ivs, etc. keeps coming up as the thing that has helped the most. Hope this helps or at least opens the door to more discussion,Sam I just finished with a long bout of recovering from a mold exposure and my daughters were so concerned that they went looking for a doctor. OK, I know conventional doctors are not going to believe me but they found a Dr. ph Wojcik (New York) who is an allergist who treats MCS. He sent me several pages for me to fill out for my history and from the questions it does seem like he knows what I'm going through. I don't think he takes insurance and I do not have money to waste so I wanted to know if anyone has had any luck with allergists treating their mold " allergy. " Thanks for your input! Surella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 I saw and allergist who did skin tests, he said I was allergic to cats, dogs, mold and yeast. Gave me Singular, Claritin and told me the rest of my symptoms were in my head and I need to see a psychiatrist. Needless to say I never saw him again and I stll have the Singular, Claritin sitting in a drawer > > I just finished with a long bout of recovering from a mold exposure and my daughters were so concerned that they went looking for a doctor. OK, I know conventional doctors are not going to believe me but they found a Dr. ph Wojcik (New York) who is an allergist who treats MCS. He sent me several pages for me to fill out for my history and from the questions it does seem like he knows what I'm going through. > I don't think he takes insurance and I do not have money to waste so I wanted to know if anyone has had any luck with allergists treating their mold " allergy. " > Thanks for your input! Surella > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 Yes, this is exactly what I thought would happen to me too! I do not see the logic of injecting mold into a person as violently sensitive to mold as me. Thanks. > > > > I just finished with a long bout of recovering from a mold exposure and my daughters were so concerned that they went looking for a doctor. OK, I know conventional doctors are not going to believe me but they found a Dr. ph Wojcik (New York) who is an allergist who treats MCS. He sent me several pages for me to fill out for my history and from the questions it does seem like he knows what I'm going through. > > I don't think he takes insurance and I do not have money to waste so I wanted to know if anyone has had any luck with allergists treating their mold " allergy. " > > Thanks for your input! Surella > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 When I first was very ill from the moldy house, my clinic recommended an allergist. My then 2 best friends were a pharmacist couple. They told me that the traditional allergy testing and treatment were beginning to be considered a scam in the medical community, the testing unusually painful, and the shots not worth the money or pain of the injections. As this was the only good advise they ever gave me concerning mold illness, I was sorry I did not take it, it was a lot of money out of pocket that lead no where. I was later given CSM by my GP , left the house and recovered, although it took a long while that first recovery. - > > > I just finished with a long bout of recovering from a mold exposure and my daughters were so concerned that they went looking for a doctor. OK, I know conventional doctors are not going to believe me but they found a Dr. ph Wojcik (New York) who is an allergist who treats MCS. He sent me several pages for me to fill out for my history and from the questions it does seem like he knows what I'm going through. > > I don't think he takes insurance and I do not have money to waste so I wanted to know if anyone has had any luck with allergists treating their mold " allergy. " > > Thanks for your input! Surella > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 washing the sinuses daily and at the times you know you got a exposure, allergy or chemical can help greatly. it could basicly replace the need for allergy shots which I wouldn't have from a allergy doctor. what Dr. Rea does is not the same thing. and his testing serums are cleaner. I dont recall any serious problems with haveing regular allergy testing done but I was a mess at that time anyway. It was clear that avoidance alone did not stop the disease process from spreading as these patients had to have other therapy such as " intradermal provocative neutralization " testing and treatment not only for molds that they actually were initially exposed to but also to those common in the outside air. The recognition of the chemically hypersensitive stage in mold and mycotoxinexposed individuals is frequently overlooked. It can be ignored or does not even exist in the milder cases. These type of patients get well with the avoidance of the mold exposure and were not included in the series of 28 patients. Failure to reorganize the hypersensitive stagemay result in less than satisfactory results. Some patients in this series had such a damaged immune system http://truthaboutmold.info/_site_admin/assets/docs/Rea_Treatment_of_Patient\ s_with_Mycotoxin-Induced_Disease_2009.36283209.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 Dr. Reas allergy testing IS the same thing Jeannine. It is part of his protocal and I knew he would send Sues son in there to do it. It is one of the first things he ordered for me. And yes, he has you inject yourself with mold antigens and I know alot of people here do not agree with that, but his testing is no different from other allergist but yes he does have preservative free antigens like you said. He is a firm believer in allergy shots, etc. D > > washing the sinuses daily and at the times you know you got a exposure, allergy or chemical can help greatly. it could basicly replace the need for allergy shots which I wouldn't have from a allergy doctor. > what Dr. Rea does is not the same thing. and his testing serums are cleaner. I dont recall any serious problems with haveing regular allergy testing done but I was a mess at that time anyway. > > It was clear that avoidance alone did not stop the disease process from spreading as these patients had to > have other therapy such as " intradermal provocative neutralization " testing and treatment not only for molds that they actually were initially exposed to but also to those common in the outside air. The recognition of the chemically hypersensitive stage in mold and mycotoxinexposed individuals is frequently overlooked. It can be ignored or does not even exist in the milder cases. > These type of patients get well with the avoidance of the mold exposure and were not included in the series of 28 patients. > Failure to reorganize the hypersensitive stagemay result in less than satisfactory results. > Some patients in this series had such a damaged immune system > > http://truthaboutmold.info/_site_admin/assets/docs/Rea_Treatment_of_Patient\ s_with_Mycotoxin-Induced_Disease_2009.36283209.pdf > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 Sue, I have been treated by an environmental doctor since right after my exposure. The treatment helped me but I was still sick. I have the " double whammy " I think you mentioned and ended up seeing Dr. Shoemaker as well. The environmental docs treat the acquired immune system, i.e., allergy, while the others treat the innate immune system, i.e., inflammation caused by the toxic exposure. I have had great results from both kinds of treatment. The allergy testing done by the environmental doctors is much more individualized based upon one's unique tolerance for an allergen whereas traditional testing uses standardized antigens. Everyone is different. - > > ok, but what about the environmental medicine doctors like Dr. Rea who > we are seeing now, they also use allergy testing and treatments, is that > a scam too? Dr. Rea has come highly recommended by a number of folks > who did not get relief anywhere else, including people on this list, and > he seemed like a very smart and thorough guy based on first impressions, > first appointment yesterday, ordered up a bunch of tests no one else has > thought to do, but also has us scheduled in for allergy skin testing... > > any thoughts, what's the difference between one kind of allergy testing > and another? > > sue v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 Thank you everyone-I think I am not going to pursue the allergist-it seems my first instincts are probably correct-it probably won't help and it may even hurt, plus it would be very expensive. Thanks again! > > Yes, this is exactly what I thought would happen to me too! I do not see the logic of injecting mold into a person as violently sensitive to mold as me. > Thanks. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 while allergy and intolerance is not the same thing,I think of you have them both, you have several overlapping symptoms. it's important to be tested for both allergies and intolerances. this is the difference in seeing a good environmental doctor and just a allergest. > > > > ok, but what about the environmental medicine doctors like Dr. Rea who > > we are seeing now, they also use allergy testing and treatments, is that > > a scam too? Dr. Rea has come highly recommended by a number of folks > > who did not get relief anywhere else, including people on this list, and > > he seemed like a very smart and thorough guy based on first impressions, > > first appointment yesterday, ordered up a bunch of tests no one else has > > thought to do, but also has us scheduled in for allergy skin testing... > > > > any thoughts, what's the difference between one kind of allergy testing > > and another? > > > > sue v > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 Sue, you are giveing your son the best help you can by listening to him and paying close attn. to how he fells. the best of luck to him and you. hopefully with the medical attn. he is getting, there will not be a need for him to take mood altering drugs. the colozapans<spelling are about the only ones I could tolerate after my exposure, they helped me sleep more than anything else. thats all I really used them for, mainly because if I took them thats what happened. > > and dr rea is going to do lots of other testing on my son besides the > allergy testing, I am sure we will learn something, and while most of > his health problems have not resolved in dallas, he is blowing his nose > much much less since leaving our sedona rental 1 1/2 weeks ago (even my > son recognizes the difference), even w/staying in perfumey smelling > dirty hotel/motel rooms, so the sedona rental must have had hidden mold > or some other trigger, now in the enviro rea housing, he is hardly > blowing his nose, so at least this tells us something. and is first > positive health change in 4 years....a tiny but measurable baby step.... > > > sue v. > > >Dr. Reas allergy testing IS the same thing Jeannine. It is part of his > >protocal and I knew he would send Sues son in there to do it. It is one > >of the first things he ordered for me. And yes, he has you inject > >yourself with mold antigens and I know alot of people here do not agree > >with that, but his testing is no different from other allergist but yes > >he does have preservative free antigens like you said. He is a firm > >believer in allergy shots, etc. D > > > Quote Link to comment Share on other sites More sharing options...
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