Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 yea, I went thru that, too. Had to stay outside as much as possible. try sleeping with fans blowing on you at nite. In a message dated 2/15/2010 3:41:30 P.M. Pacific Standard Time, tug_slug@... writes: It appears that Im becoming more and more sensitive to chemicals, so much so that the only time I feel normal is when Im outside. Is there a certain vitamin protocol that can help desensitize my senses? Thanks Tug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 It appears that Im becoming more and more sensitive to chemicals, so much so that the only time I feel normal is when Im outside. Is there a certain vitamin protocol that can help desensitize my senses? Thanks Tug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 dr ziem protocol, plus check The Canary Report website and ask this same question. sue >It appears that Im becoming more and more sensitive to chemicals, so >much so that the only time I feel normal is when Im outside. Is there a >certain vitamin protocol that can help desensitize my senses? > >Thanks > >Tug > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Yes its called the Ziem protocol. developed by Dr Grace Ziem and Professor Pall, U of Washington, Go to her web site great info on all things to avoid.   If your reacting to chemicals, you might be reacting to foods as well?? From: snk1955@... <snk1955@...> Subject: Re: [] MCS Date: Monday, February 15, 2010, 2:44 PM  yea, I went thru that, too. Had to stay outside as much as possible. try sleeping with fans blowing on you at nite. In a message dated 2/15/2010 3:41:30 P.M. Pacific Standard Time, tug_slug (DOT) com writes: It appears that Im becoming more and more sensitive to chemicals, so much so that the only time I feel normal is when Im outside. Is there a certain vitamin protocol that can help desensitize my senses? Thanks Tug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 When Im in the hotel room I dont feel bad but as many of you know when I get in my truck I become instantly light headed and my skin becomes irritated. Today I had to go to several small businesses and the smells while not bad really got to me, it was to the point that I could hardly wait to get outside. I spoke to Dr Pall on the phone today, he told me the protocol he follows to help those who suffer from MCS. The problem is if I were to follow his protocol along with what I pay for all my other medications I'd be paying close to $600/mo for meds. I simply dont have that kind of money > > Yes its called the Ziem protocol. developed by Dr Grace Ziem and Professor Pall, U of Washington, Go to her web site great info on all things to avoid.   If your reacting to chemicals, you might be reacting to foods as well?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 Glutathione is known to help a lot people with allergies. cathy > > It appears that Im becoming more and more sensitive to chemicals, so much so that the only time I feel normal is when Im outside. Is there a certain vitamin protocol that can help desensitize my senses? > > Thanks > > Tug > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 > > yea, I went thru that, too. Had to stay outside as much as possible. try > sleeping with fans blowing on you at nite. > > > In a message dated 2/15/2010 3:41:30 P.M. Pacific Standard Time, > tug_slug@... writes: > > It appears that Im becoming more and more sensitive to chemicals, so much > so that the only time I feel normal is when Im outside. Is there a certain > vitamin protocol that can help desensitize my senses? I found Vitamin C iv's (7.5 - 15 g) to be tremendously helpful with both the mold poison and the chemical reactivity. High dose oral Vitamin C (15-30 g) also has been somewhat helpful. Dr. Rea discusses this in his book series (Volume 4). Apparently one person on this list got kidney stones subsequent to using high-dose Vitamin C. Dr. Rea says that this effect is quite rare though. I believe that individual reports obtaining benefit from the Vitamin C prior to getting the kidney stones though. I never found any other supplement that's helped even a little bit with the reactivity, unfortunately. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I've always wondered about supplements how effective they are? I've been using them off and on for well over 20 years and never really felt any different from the time I started taking them to the time that I stopped. Thats just me, I sure there's others have benefited quite a bit from using supplements. > I never found any other supplement that's helped even a little bit with the reactivity, unfortunately. > > Best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 HI Dave, A large part of the Ziem protocol is by prescription thru Key Pharmacy, and may be partially reimbursable by your insurance company. So far I have got nothing reimbursed of it thru Blue Shield, but my doc has not yet submitted a medical necessity form and info. You could talk to Key Pharmacy and get the specifics of what would be prescribed, ask your doctor to prescribe it and request that he/she go thru preauthorization with your medical insurer, see then if any of it would be reimbursed and what your monthly cost would be. Sue > >I spoke to Dr Pall on the phone today, he told me the protocol he >follows to help those who suffer from MCS. The problem is if I were to >follow his protocol along with what I pay for all my other medications >I'd be paying close to $600/mo for meds. I simply dont have that kind of money > >--- In , a Townsend <kmtown2003@...> >wrote: >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Well let me just say I lost my organs in 2 weeks I doubt I went threw some of it as much as I accelerated right threw the program. I started with respiratory reactions, then skin reactions, then both, these then lung damage. Quickly. So fast I never saw it coming. Which brings me to the sicker quicker which I also did. So which came first,,,,,,, I think sicker quicker charged up my MCS reactions and sped up everything at an accelerated rate as the term suggests. It all happened in a flash for me. ________________________________ From: KathyB <calicocat477@...> Sent: Sat, February 5, 2011 11:20:51 PM Subject: [] MCS Mayleen, If you can, please explain the stages of MCS you went though. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Remember still in theory stages , however I went to the point of no return in 2 weeks. My situation was unique to me I would like to elaborate but cannot at the moment. Here is some more : Neurogenic Inflammation Inflammation is an abnormal condition of redness, swelling, heat, and pain localized to a tissue. Histologically, inflammation is characterized by edema, vasodilatation, and infiltrates of leukocytes. A number of chemical mediators of inflammation have been identified biochemically. Inflammation may be triggered by the immune system, in which foreign materials interact with leukocyte receptors created after a sensitizing exposure to trigger an inflammatory cascade. Neurogenic inflammation is a well-defined process by which inflammation is triggered by the nervous system. http://www.mcsbeaconofhope.com/meggsa1.html Hypothesis for Induction and Propagation of Chemical Sensitivity Based on Biopsy Studies J. Meggs Department of Emergency Medicine, East Carolina University School of Medicine, Greenville, NC 27858 USA Abstract: The reactive airways dysfunction syndrome (RADS), the reactive upper airways dysfunction syndrome (RUDS), the sick building syndrome (SBS), and the multiple chemical sensitivity syndrome (MCS) are overlapping disorders in which there is an intolerance to environmental chemicals. The onset of these illnesses is often associated with an initial acute chemical exposure. To understand the pathophysiology of these conditions, a study of the nasal pathology of individuals experiencing these syndromes was undertaken. Preliminary data indicate that the nasal pathology of these disorders is characterized by defects in tight junctions between cells, desquamation of the respiratory epithelium, glandular hyperplasia, lymphocytic infiltrates, and peripheral nerve fiber proliferation. These findings suggest a model for a relationship between the chronic inflammation seen in these conditions and an individual's sensitivity to chemicals. A positive feedback loop is set up: the inflammatory response to low levels of chemical irritants is enhanced due to the observed changes in the epithelium, and the epithelial changes are propagated by the inflammatory response to the chemicals. This model, combined with the concept of neurogenic switching, has the potential to explain many aspects of RADS, RUDS, SBS, and MCS in a unified way. -- Environ Health Perspect 105(Suppl 2):473-478 (1997) Notice the date : The Role of the Brain and Mast Cells in MCS by Gunnar Heuser, MD, PhD, FACP Multiple Chemical Sensitivity (MCS) was first described in the 1980s, yet it has remained controversial. The resistance to the concept of MCS has come from scientists who pointed out the lack of solid scientific diagnostic tests. It has also come from the industry which has trouble accepting the proposition that their products make a great number of people sick. My personal experience (I have evaluated several thousands of chemically injured patients) has convinced me that MCS is based on a physiological and not on a psychological mechanism. This is why I have been interested in finding objective evidence for MCS. In this paper I will present a mast cell hypothesis, a limbic system hypothesis, and an office approach to objective testing for MCS. http://www.mcsbeaconofhope.com/MCS%20BOH/heuser_main.htm Chemical Brain Injury, the definitive volume on adverse effects of chemical exposure on the human brain, focuses on how common everyday chemicals affect the brain. It synthesizes the work of more than two decades of study and treatment and 45 published papers. Chemical Brain Injury makes a significant contribution to the environmental health profession by providing scientific evidence for the neurotoxic effects of commonly used chemicals, and the methodology for testing effects of exposure. http://www.mcsbeaconofhope.com/MCS%20BOH/kaye_kilburn.htm Abstract: Cases of multiple chemical sensitivity (MCS) are reported to be initiated by seven classes of chemicals. Each of the seven acts along a specific pathway, indirectly producing increases in NMDA activity in the mammalian body. Members of each of these seven classes have their toxicant responses lowered by NMDA antagonists, showing that the NMDA response is important for the toxic actions of these chemicals. The role of these chemicals acting as toxicants, in initiating cases of MCS has been confirmed by genetic evidence showing that six genes that influence the metabolism of these chemicals, all influence susceptibility to MCS. It is likely that chemicals act along these same pathways, leading to increased NMDA activity when they trigger sensitivity responses in MCS patients. The chronic nature of MCS and also related multisystem illnesses is thought to be produced by a biochemical vicious cycle mechanism, the NO/ONOO- cycle, which is initiated by various stressors that increase nitric oxide and peroxynitrite levels (with some but not others acting via NMDA stimulation). The NO/ONOO- cycle is based on well documented individual mechanisms. The interaction of this cycle with previously documented MCS mechanisms, notably neural sensitization and neurogenic inflammation, explains many of the previously unexplained properties of MCS. This overall mechanism is also supported by physiological correlates found in MCS and related multisystem illnesses, objectively measurable responses to low level chemical exposure in MCS patients, many studies of apparent animal models of MCS and also evidence from therapeutic trials of MCS-related illnesses. Some have argued that MCS is a psychogenic illness, but this view is completely inconsistent with this diverse data on MCS and related illnesses and the literature claiming psychogenesis of MCS is deeply flawed. In addition, two rare predictions that can be used to test psychogenesis both lead to rejection of the psychogenic hypothesis. While the NO/ONOO- cycle mechanism for MCS is supported by many different observations, there are also multiple areas where further study is needed. http://www.thetenthparadigm.org/mcs09.htm God Bless !! dragonflymcs Mayleen ________________________________ From: KathyB <calicocat477@...> Sent: Sat, February 5, 2011 11:20:51 PM Subject: [] MCS Mayleen, If you can, please explain the stages of MCS you went though. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 On October 1, 2009 in Japan, the Medical Information System Development Center (MEDIS-DC) – a subsidiary organization of the Ministry of Health, Labor and Welfare (MHLW) – registered “multiple chemical sensitivity†as “ICD-10 Japanese standard disease masterâ€. Multiple chemical sensitivity was classified in Japan into ICD-10 code T65.9 – “Toxic effect of unspecified substance, Poisoning NOSâ€. Please look at the following material (1)(2). From these references, it is well understood that multiple chemical sensitivity is classified into “Toxic effect of substance†(1) T65.9 ICD-10 WHO Chapter XIX: Injury, poisoning and certain other consequences of external causes (S00-T98) T51-T65: Toxic effects of substances chiefly non-medicinal as to source T65 Toxic effect of other and unspecified substances T65.9: Toxic effect of unspecified substance Poisoning NOS (2) The Japanese name of diseases classified into “ICD10 code T65.9″ The Japanese name of diseases 1. multiple chemical sensitivity 2. systemic poisoning 3. poisoning 4. accidental poison ingestion 5. attempted suicide by taking poisonhttp://www.csn-deutschland.de/blog/en/categories/sick-building-syndrome/ God Bless !! dragonflymcs Mayleen ________________________________ From: dragonflymcs <dragonflymcs@...> Sent: Sun, February 6, 2011 12:27:11 AM Subject: Re: [] MCS http://www.thetenthparadigm.org/mcs09.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 What does this mean? What are these codes? Are they for that diagnostic machine that uses cards and reads electric signatures from the body? I went to a doctor that used one of those but don't know what they are called. Or are these codes a classification system? anita ---------------------------------- From: dragonflymcs On October 1, 2009 in Japan, the Medical Information System Development Center (MEDIS-DC) – a subsidiary organization of the Ministry of Health, Labor and Welfare (MHLW) – registered “multiple chemical sensitivity†as “ICD-10 Japanese standard disease masterâ€. Multiple chemical sensitivity was classified in Japan into ICD-10 code T65.9 – “Toxic effect of unspecified substance, Poisoning NOSâ€. Please look at the following material (1)(2). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 When I was in the homes with waterdamage/indoor mold I could never use a fan. But now that I do not have that problems here I use a fan all the time to circulate the air. Mainly because I don't use the central heat, and it seems to help with odors, coming from other apartments. My fan broke this summer and I had to wait a week to get a new one. The first one I bought had some fumes and had to get rid of it-- but the new one was fine. > > Fans blowing on me makes me really sick. My now deceases elderly mom use to do better with fans blowing all over her but I would get Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Without a code for disease the doctors can't order any testing. You will see these on you blood test forms. In other words, if you don't have a code you aren't ill. AMA rules. Meredith By the way, on my last pic sheet it said the tests were for child abuse????? > > What does this mean? What are these codes? Are they for that diagnostic machine that uses cards and reads electric signatures from the body? I went to a doctor that used one of those but don't know what they are called. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Fans make me not breathe, they make me really sick too. Too much wind is also a problem. God Bless !! dragonflymcs Mayleen > Fans blowing on me makes me really sick. My now deceases elderly mom use to do >better with fans blowing all over her but I would get > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Ah, I never knew this, thank you. anita ---------------------------------- From: fontanafool  Without a code for disease the doctors can't order any testing. You will see these on you blood test forms. In other words, if you don't have a code you aren't ill. AMA rules. Meredith Quote Link to comment Share on other sites More sharing options...
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