new

June 22, 2007

Being overwhelmed is normal. I was plus scared, nervous, upset and confused.

Things get easier, you will need to do your research. My daugter is now 5, and

was diagnost one year ago. You never know what is going to happen next but it

gets better. My daughter is now talking and expressing herself so well that she

will be attending a regular kindergarter class in Sept., she still has low

muscle tone but it is getting better and we work on it everyday, if you make

games out of it they have fun and don't even realize they are learning or

working out. Best of luck. This board helped me a lot to deal with the

overwhleming feeling so use it to help you.

melissa <mishla81@...> wrote: hey i'm new just found out my

2yr old has apraxia and low muscle tone

we have been told now we have to go to fortnightly appointments is it

normal for me to feel so overwhelmed and will things get easier

---------------------------------

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and

lay it on us.

June 22, 2007

Hi ,

My son just turned 3 and has been in speech therapy since

August. He is doing GREAT!!!!!. It was very overwhelming

at first, and very scary. It does certainly get easier. He has

come so far. We also took him to a DAN Dr. and he is on

alot of supplements including fish oils and Vit E which has

really helped. Very one here is in the same boat, so your

not alone.

Sue

melissa <mishla81@...> wrote:

hey i'm new just found out my 2yr old has apraxia and low muscle tone

we have been told now we have to go to fortnightly appointments is it

normal for me to feel so overwhelmed and will things get easier

---------------------------------

Be a better Heartthrob. Get better relationship answers from someone who knows.

Answers - Check it out.

June 22, 2007

Sue-

My daughter is 2 and just got diagnosed with apraxia. What is a DAN doctor?

I am trying to get her to take the fish oils and Vit.E but not having much

luck. How long was it before you saw improvements with your son going to

speech therapy. I am so impatient and need to know that the ST will work.

Besides we are going broke over the therapy. Our insurance only covers 30

visits and we have to meet a $500 deductible. Anyways, it is worth it to

me-my daughters health and well-being but I am just wondering if it is

really going to help. I hate worrying about this all the time. It has been

consuming my days as I research more about speech delays and apraxia. I wish

I could just relax and know that the ST will work and help my daughter.

-Cara

_________________________________________________________________

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June 28, 2007

Post the complete hair test results listing the toxic elements,

range detected, and the reference range and color. List the

essential elements with the ref. range, the detected range, the

color and whether it's over 50% or Under.

Then we can check it against the mercury rules and look for adrenal

and thyroid issues.

Excreting no mercury likely means he is toxic with it and holding

onto it. His potassium and sodium in relation to cal/mag will

indicate adrenal and thyroid issues..we can check it better with

complete results posted. If he has deranged mineral transport then

you cannot rely on the essential elements to acurately refect his

body levels. So the boron and strontium would not matter in that

case. But lets see if his test meets rule first.

Post and we will help you get on the right path. If he meets rules

you will want to look into dmsa and ala for chelation. It is

unsteady as to what exactly NDF does, but it doesn't chelate metals.

Heavy Metal detox is another issue in itself. Does it contain

chlorella or Alpha Lipoic Acid? If so..you may not want to use it.

Chlorella is not a good idea for anyone metal toxic and ALA must be

dosed carefully to remove mercury. Please read the files sections on

safe chelation and supplements while you await someone looking at

the hair test!

>

> We just started chelation 2 1/2 wks ago with NDF Plus and

yesterday

> added AMD Heavy Metal Detox. My son's hair analysis showed

> his arsenic levels at 97%,

> his aluminum at 76%,

> titanium, lead, tin, and antimony were elevated high normal,

> he's excreting no mercury (not a surprise but confusing with his

> Cu/Zn ratio)

> his calcium and magnesium below 2.5%,

> his potassium and sodium in the 80%,

> his copper/ zinc ratio was high normal range 4-20, his was 18(I

had

> been giving him zinc supplements when I started the GFCF diet for

> about a week so I'm not sure if that skewed the results,

> his copper on its own was noted as low and we should check for

> 's disease,

> his boron was 100%,

> his strontium was non existent.

>

> I'm not even sure what I am asking of everyone, just some help

> trying to digest all of this and make sense of it all. The test

was

> done before we started chelation. I feel happy that we have some

> test results to show that we are definitely on the right path but

> devastated that my son is carrying around such toxic levels of

> metals and messed up essentials.Help!

>

> Fay

>

July 21, 2007

Hi ,

THere are many treatments for Lupus and Fibro, you just have to remember

that you ahve to take it east and rest during the day. I know you are afraid

but it sounds like you have a good Dr. Try not to sit around and worry about

the what ifs but read, learn and talk to others here and on other sites

about their experiences. You are not alone. Feel free to ask anything . I do

not have Lupus , my mother did, but I have Fibro and RA. THis group gives me

alot of support and I am sure you will find that too.

Heidi M

On 7/20/07, Excited Lil Monkey <ramsbachers@...> wrote:

>

> Hi all. Well I have to say today has been the worst day of my life

> so far. I am scared, actually terrified at this point. I most

> likely have done this to myself by reading way too much on the

> internet and thinking about the symptoms that made me go to my

> doctor in the first place. I waited for my appt today telling

> myself, my children and my husband that all my test came back okay

> and I was just overly tired due to the last six months of stress and

> going constantly. I was wrong and the doctor was really nice about

> telling me that. Fibromyalgia and lupus never crossed my mind but

> that is all I think about right now and all day. My doctor

> confirmed both today. So I have so many questions and concerns and

> fears.

>

> My first question would be -- what length of time have you lived

> with lupus or FM and what is your quality of life? How bad are the

> side effects of the medicines you are on?

>

> My husband is military and leaving in less than 30 days for about

> six months....I am scared as hell right now...

>

October 22, 2007

Hello Jolinna, Welcome to this awesome group. I was just curious about when you said the school dropped your son's IEP because he was doing so well with academics. (which is awesome that he is doing well). Are they still monitoring him? and, did they change your son's classification? RoseJolinna <jolinna@...> wrote: Hello,My name is Jolinna. I have a 15 year old Aspie. I also have a 20 and 17 year old "normal child" and a 19 year old with childhood onset

bi-polar.Having the 19 year old really helped me with my son. When she was little we went through just about every behavior modification program there was (we were seeing a behavioralist). When my son started having problems about 3 I took bits and pieces from them and made something that worked with him. Because my daughter didn't deal well with change we were already on a fairly strict schedule. My son was diagnosed at 9. When we went into the DR he would not answer a question with anything but "pickle". It was then that she asked if he had been evaluated for Asperger Syndrome. Many of the symptoms we had under control already because I started dealing with them at 3 but there are some that you don't really "get control over". He had previously had a diagnosis of ADHD. Now 6 years later, he had 3 years of sensory integration therapy. Most of that our charter school provided. They also provided

Interactive Metronome training and Samonas (a listening therapy). We homeschooled through a public charter school for 3 years. My son is now a Sophmore in a public HS and doing well. He has found friends that are nearly as quirky as he is and they spend before school and at lunch plotting to take over the world (or universe)and playing Magic, The Gathering. When I first put him in ps I had him dictate his homework to me because it was too much for him after spending the day in school. I would simply sign the bottom stating that he dictated it to me. He now does it all on his own, on the computer for everything but math. The main problem I am having is the system dropped his IEP because he is so bright and doesn't need academic help. He is still Asperger though. I did get them to continue sending notices to his teachers before he starts their class that he has Asperger Syndrome and what it is and how it

affects him.Sorry this was so long. __________________________________________________

October 22, 2007

They are and they aren’t—they did

put him on a 504 but basically just to say that his teachers would be notified

of his condition. He is doing well but that doesn’t mean something

won’t happen to cause a meltdown at school. They claim he doesn’t

need monitoring because he is in all advanced classes and doing very well and

did not have any melt downs last year.

Jolinna

From:

[mailto: ] On Behalf Of Rose

Sent: Monday, October 22, 2007 4:59 PM

To:

Subject: Re: ( )

NEW

Hello Jolinna,

Welcome to this awesome group. I was just curious about when you

said the school dropped your son's IEP because he was doing so well with

academics. (which is awesome that he is doing well). Are they still

monitoring him? and, did they change your son's classification?

Rose

Jolinna

<jolinnacableone (DOT) net> wrote:

Hello,

My name is Jolinna. I have a 15 year old Aspie. I also have a 20

and 17 year old " normal child " and a 19 year old with childhood onset

bi-polar.

Having the 19 year old really helped me with my son. When she was

little we went through just about every behavior modification program

there was (we were seeing a behavioralist). When my son started

having problems about 3 I took bits and pieces from them and made

something that worked with him. Because my daughter didn't deal well

with change we were already on a fairly strict schedule.

My son was diagnosed at 9. When we went into the DR he would not

answer a question with anything but " pickle " . It was then that she

asked if he had been evaluated for Asperger Syndrome. Many of the

symptoms we had under control already because I started dealing with

them at 3 but there are some that you don't really " get control

over " . He had previously had a diagnosis of ADHD.

Now 6 years later, he had 3 years of sensory integration therapy.

Most of that our charter school provided. They also provided

Interactive Metronome training and Samonas (a listening therapy). We

homeschooled through a public charter school for 3 years.

My son is now a Sophmore in a public HS and doing well. He has found

friends that are nearly as quirky as he is and they spend before

school and at lunch plotting to take over the world (or universe)and

playing Magic, The Gathering. When I first put him in ps I had him

dictate his homework to me because it was too much for him after

spending the day in school. I would simply sign the bottom stating

that he dictated it to me. He now does it all on his own, on the

computer for everything but math.

The main problem I am having is the system dropped his IEP because he

is so bright and doesn't need academic help. He is still Asperger

though. I did get them to continue sending notices to his teachers

before he starts their class that he has Asperger Syndrome and what

it is and how it affects him.

Sorry this was so long.

__________________________________________________

October 24, 2007

Hi Jolinna,

My son, 18, had a 504 Plan thru middle and high school. We didn't

have the Asperger's diagnosis until high school (he had the Plan due

to his OCD and dysgraphia). My son also did well in school grade-

wise so Aspergers wasn't an issue so far as tests, grades, etc.

Luckily he'd never had any behavior problems. Is there anything in

your son's plan that would address possible meltdowns (what could

trigger them, how to handle if one occurs...)?

>

> They are and they aren't-they did put him on a 504 but basically

just to say

> that his teachers would be notified of his condition. He is doing

well but

> that doesn't mean something won't happen to cause a meltdown at

school.

> They claim he doesn't need monitoring because he is in all advanced

classes

> and doing very well and did not have any melt downs last year.

>

> Jolinna

>

October 25, 2007

They won’t put that stuff in it

because it hasn’t happened. He usually waits till he gets home to

meltdown.

From: [mailto: ] On Behalf Of

Sent: Wednesday, October 24, 2007

8:40 PM

Subject: Re: ( )

NEW

Hi Jolinna,

My son, 18, had a 504 Plan thru middle and high school. We didn't

have the Asperger's diagnosis until high school (he had the Plan due

to his OCD and dysgraphia). My son also did well in school grade-

wise so Aspergers wasn't an issue so far as tests, grades, etc.

Luckily he'd never had any behavior problems. Is there anything in

your son's plan that would address possible meltdowns (what could

trigger them, how to handle if one occurs...)?

>

> They are and they aren't-they did put him on a 504 but basically

just to say

> that his teachers would be notified of his condition. He is doing

well but

> that doesn't mean something won't happen to cause a meltdown at

school.

> They claim he doesn't need monitoring because he is in all advanced

classes

> and doing very well and did not have any melt downs last year.

>

> Jolinna

>

October 27, 2007

Hi . Welcome!!! I'm Robin. We're in Wisconsin.matt <mmgreat2003@...> wrote: hi my name is christina and i have three kids dustin who is allmost 12 who is allmost 7 (has autism ) the baby allmost 5. has a been seen by a ped and a nueroligist and now the school is doing there part .. We live im flint michigan I have been seeing things since he was 2 ..Liked be alone and just played quite never was lound unless he wanted something ..he didnt speak

untill he was 3 1/2 he was four when and in head start and they sent him for speach and hearing test but the speach is what he failed and they didnt do much for him ..Untill he was in kindgarten and they noticed he has alot going on screaming hold ing his hands over his ears and has to point to what he wants he does talk just sometimes he doesnt know what to say.they wanted to hold him back last year i told them no so we are in 1gr and he loves computer time ..He brings home work thats not finished colors all the time wants to do work just doesnt know how.He loves movies and repets the whole movie to from the beging to the end ...he cant read yet but he know his words no eye contact and walk on his tip toes and still to this day cant undo his belt or button ..we just found out he is color blind and well wears glasses hes cute with them on ..well thats parker .. __________________________________________________

October 27, 2007

hi christina welcome this is such an amazing group! I'm dee and i'm in sioux falls sd and/or Robin Lemke <jrisjs@...> wrote: Hi . Welcome!!! I'm Robin. We're in Wisconsin.matt <mmgreat2003 > wrote: hi my name is christina and i have three kids dustin who is allmost 12 who is allmost 7 (has autism ) the baby allmost 5.

has a been seen by a ped and a nueroligist and now the school is doing there part .. We live im flint michigan I have been seeing things since he was 2 ..Liked be alone and just played quite never was lound unless he wanted something ..he didnt speak untill he was 3 1/2 he was four when and in head start and they sent him for speach and hearing test but the speach is what he failed and they didnt do much for him ..Untill he was in kindgarten and they noticed he has alot going on screaming hold ing his hands over his ears and has to point to what he wants he does talk just sometimes he doesnt know what to say.they wanted to hold him back last year i told them no so we are in 1gr and he loves computer time ..He brings home work thats not finished colors all the time wants to do work just doesnt know how.He loves movies and repets the whole movie to from the beging to the end ...he cant read yet but he know his words no

eye contact and walk on his tip toes and still to this day cant undo his belt or button ..we just found out he is color blind and well wears glasses hes cute with them on ..well thats parker .. __________________________________________________

December 17, 2007

,

Welcome to the group.I take embrel too and it seems to have helped my ore

all pain. I have given up on something to stop my hands from hurting.I also

take Methotreaxte. and several more meds for different conditions.I have

learned a lot from this group and have found the people on here are warm and

understanding. Agai Welcome

Heidi M

On 12/16/07, triviaplace <renandstimpy3@...> wrote:

>

> Hi,

> I just found this group while searching around for more information. I

> was diagnosed with Sero-negative RA in august of 2006. I had a major

> flare in March of 2006, it first started with general arthritis in my

> back and in may 06 I spent 3-4 days in bed with a fever of 104, I

> couldn't even get out of bed I hurt so bad, it felt like every time I

> moved I was breaking my bones. I finally got myself back on my feet

> and was started on Methotrexate in august 06 by october 06 it was

> raised and I was so sick from it they took me off. In Dec 06 started

> Enbrel and it worked miricles for me until the state took away my ins.

> Now I am working a full time job with 100% coverage on ins and back on

> enbrel but waiting for it to start working. I just started my second

> dose of it on friday. I hope the pain and swelling go away soon.

>

December 18, 2007

Hi

Sorry to hear that hope every goes well for ya now i just had my first apt

with my rheumy Dr and she has put me on prednisone for 8 weeks and then

wants me to come back and then is going to put me on MTX if not soon she drawed

6

tubes of blood an is waiting for the results SD my Ra factor was 35.5, she

wants to see if it has went up any since the last time it was checked. I

really don't like the idea of the prednisone but told her i would give it a

try.

Thanks

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December 18, 2007

I was on percocet up until July 07 for my pain. I had to go off of it because

of the type of work I do. I work with adults with Developmental Disabilities.

I also in the last year had left my husband due to issues with the RA, from the

first major flare. I have 2 children, a girl 4 and a boy 2.

-------------- Original message --------------

From: " Heidi Mendelsohn " <hmendelsohn@...>