Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 Coriee and group; WElcome to our group. I am so sorry about your pain. As you read our post you will learn a lot about fibro and RA. I hope you feel better gentle kind hugs Clora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 WELCOME CORLEE, i hope this ra group will help u as much as it has helped me. there's certain people who HELP more than others but i guess it depends on the questions asked.. i hope u feel better soon.god bless,melyndagamez 9/6/08 4:10p.m.central [ ] Re: new Corlee, Welcome to the group. I hope you get as much out of this wonderful forum as I do. Hon, I am not the veteran that you are to this disease, but I hope the new combination of drugs helps tremendously. Come on South, we would love to have you. Shirley --- In @gro ups.com, " Neva Weatherly " <corlee_us@. ..> wrote: > > Hi, I am new to this group and hope to learn additional info on RA and > fibromyalgia. I have had RA for 32 years. My first 20 years I took > placquinal and was in remission. Then one day it quit working and I > lost the use of my arms and hands. I went to a rheumatoloqist then and > was put on remicade and methatrexate. I quit working and we moved to > where I could do water arobics. Spring and fall are awfull-I flair and > have to go on predisone and just gain more weight! We have just bought > a motorhome and want to go full time rving. I changed to Embrel with > methotrexate, it seems to be working ok. I found out last summer that I > have fibro also,but have not been giving anything for it except Fibro > malic and acetyl-L Carnitine. I hurt now and want to head south. I > don't know if it will be hard with traveling or not. Have any of you > done it? My feet hurt all the time--is it RA or Fibro? Hope to get to > know you all..Corlee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 Hi Corlee, Welcome to the group. I found that everone here is very helpful and understanding. It is great to talk with people who understand what you are going through. Heidi M On Fri, Sep 5, 2008 at 10:42 PM, Neva Weatherly <corlee_us@...> wrote: > Hi, I am new to this group and hope to learn additional info on RA and > fibromyalgia. I have had RA for 32 years. My first 20 years I took > placquinal and was in remission. Then one day it quit working and I > lost the use of my arms and hands. I went to a rheumatoloqist then and > was put on remicade and methatrexate. I quit working and we moved to > where I could do water arobics. Spring and fall are awfull-I flair and > have to go on predisone and just gain more weight! We have just bought > a motorhome and want to go full time rving. I changed to Embrel with > methotrexate, it seems to be working ok. I found out last summer that I > have fibro also,but have not been giving anything for it except Fibro > malic and acetyl-L Carnitine. I hurt now and want to head south. I > don't know if it will be hard with traveling or not. Have any of you > done it? My feet hurt all the time--is it RA or Fibro? Hope to get to > know you all.Corlee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 Welcome Corlee, I hope the remicade and mtx are working well for you. The water arobics should help you so much. It seems like with RA, fibro comes along with it, I have both also. I take humira and mtx for my RA. I take neurontin for neuropathy pain in my leg. I've heard it helps fibro, so if it does, I'm lucky. I do still have lots of tissue pain, along with the joint pain. Where do you live, if I may ask? I live in OK, and are winters are fairly mild here, but we have big time humidity in the summer, and it isn't easy. It is hard for me to travel, just the moving of the vehicle causes me great pain. But, with lots of stops, and able to sleep, might help you get through it. You take care, and hope you enjoy the group, Tawny --- In , " Neva Weatherly " <corlee_us@...> wrote: > > Hi, I am new to this group and hope to learn additional info on RA and > fibromyalgia. I have had RA for 32 years. My first 20 years I took > placquinal and was in remission. Then one day it quit working and I > lost the use of my arms and hands. I went to a rheumatoloqist then and > was put on remicade and methatrexate. I quit working and we moved to > where I could do water arobics. Spring and fall are awfull-I flair and > have to go on predisone and just gain more weight! We have just bought > a motorhome and want to go full time rving. I changed to Embrel with > methotrexate, it seems to be working ok. I found out last summer that I > have fibro also,but have not been giving anything for it except Fibro > malic and acetyl-L Carnitine. I hurt now and want to head south. I > don't know if it will be hard with traveling or not. Have any of you > done it? My feet hurt all the time--is it RA or Fibro? Hope to get to > know you all.Corlee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 welcome ! How did the testing go? He sounds very similar to my ds who is now 12 yo, hfa. He has hyperlexia and is also gifted. Each "label" adds and subtracts from the mix. RoxannaYou're UniqueJust like everyone else... ( ) New My name is , I live in AL. My granson is believed to have the low form of autism, he will be tested Sept. 8. He was 2 in June. He has speech delay, some temper issues,lines up his toys, but what is really confusing me is he never did this thing of lining up his toys until the last 5-6 months. He can count to 11 and has been able to for along time now, he can say his A,B,C's, matches colors and the numbers and shapes.My daughter wants to try changing his diet and see if this helps. Anyone have any recipes or other advice. Hes such a sweet boy. Thank-you. No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.11/1639 - Release Date: 8/28/2008 7:39 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Carolyn: I read your message and had your e-mail sent to me through the . I live in S.W. Wisconsin now. I have two children. An ADHD/PDD-NOS/Aspie boy of almost 15. Diagnosed in 3rd grade, I had to take matters into my own hands. I had to pull him out of school because of the lack of cooperation in many schools in this area. (I'm originally from WA state - Western U.S.A.) I am in need of knowing if you home school. I have many questions for anyone who home schools special needs BOYS in particular. My other son I pulled out of school because his dyslexia was not diagnosed and the public school would not diagnose because, " they did not get paid to be doctors no get paid to test. " The comment of " Oh he will grow out of it and he'll be fine " did not improve my opinion of why he was failing in reading/spelling/hearing and understand vowel/consonant blends. He is 12 with dyslexia/anxiety/depression disorder. So my kids are also some times lonely. Any recommendations on curriculum? Any idea's on how to handle when they have melt downs? I have all the literature I read on a daily basis. I even attended a seminar given by Tony Attwood here in WI. He is the expert out of Australia and knows and speaks with groups of teachers-parents-Para/educators on these issues. Any and all suggestions would be greatly appreciated. Thanks so much in advance to any comments you could give. A. Sterland - ssterland@... ( ) New > Hi, I am mom to a 12 year old ds with AS/ADHD and a 10 year old DS with > PDD/HFA/ADHD. We live on the South Shore of Massachusetts/Plymouth > County area. Despite our attempts with social skills training groups, > both boys basically still lack friends and are quite lonely most of the > time. I was wondering if there is anyone from this area that might be > in a similar situation and would be willing to hook up for some weekend > day trips or activities. I should mention that both boys are not > really into sports,but more into video games,computers, and music. > Please contact me if you have a child that may be in the same boat. > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Does he get therapy for the dyslexia? Or do you do any specific training/teaching for dyslexia? RoxannaYou're UniqueJust like everyone else... ( ) New> Hi, I am mom to a 12 year old ds with AS/ADHD and a 10 year old DS with> PDD/HFA/ADHD. We live on the South Shore of Massachusetts/Plymouth> County area. Despite our attempts with social skills training groups,> both boys basically still lack friends and are quite lonely most of the> time. I was wondering if there is anyone from this area that might be> in a similar situation and would be willing to hook up for some weekend> day trips or activities. I should mention that both boys are not> really into sports,but more into video games,computers, and music.> Please contact me if you have a child that may be in the same boat.>>>> ------------------------------------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Dear Roxanne: Thank you so much for writing back. Okay, he does not get any help for dyslexia. The schools would not do it because they can't get funding for it. I asked our primary care physician and she said most insurance companies won't cover it because it needs to be diagnosed by the dyslexia experts. The doctor's don't diagnose unless you go to a specialist and PAY OUT OF POCKET which is hundreds of dollars I don't have. So the vicious circle continues. I now home school at a slower pace. I know I am very fortunate to be able to stay home we/my sons. One thing I tried was to use a "box" when he reads. No, not one that is over him. Take a little piece of paper that has a box cut out of it. Have your child either read one sentence through the box at a time. The "Box" can either be small one word at a time, or a whole sentence. I ask him what he sees. He says the word gets "real fuzzy mom and the letters go out of focus." The word "saw" is now "was". The word "dad" becomes "bab." Switch, switch, switch, 3's are backwards, 9's are 6's. Times and plus signs get mixed. So, I slow will go over the times and plus signs with a red pen, or black high lighter pen, or just write, "this is a plus problem, this is a multiplication problem." Yes, he does have glasses, but his stigmatism is so very slight I think the doctor gave him a prescription so he can "be smart with his glasses." ( ) New> Hi, I am mom to a 12 year old ds with AS/ADHD and a 10 year old DS with> PDD/HFA/ADHD. We live on the South Shore of Massachusetts/Plymouth> County area. Despite our attempts with social skills training groups,> both boys basically still lack friends and are quite lonely most of the> time. I was wondering if there is anyone from this area that might be> in a similar situation and would be willing to hook up for some weekend> day trips or activities. I should mention that both boys are not> really into sports,but more into video games,computers, and music.> Please contact me if you have a child that may be in the same boat.>>>> ------------------------------------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 The school is lying to you. They do get funding for reading help plus, the No Child Left Behind law has serious language for forcing schools to find kids who are having reading problems and help them learn to read. They get funding through what is called "Title 1" and this pays for tutors to help kids who are not reading at grade level. If he was far enough behind, he could get an IEP and special ed help for dyslexia. I feel so bad when I read your post because our school actually does a great job with this. My youngest has dyslexia and before I could go in and ask for help, they had already pegged him for Title 1 program. In that program, they use Orton Gillingham methodology, which is one of the best methods to use with dyslexic readers. He made great progress. Also, my school offers "Fast Forword" as well and my ds has been in it for a while. It is an expensive program that we couldn't afford if we had to pay privately. But the school buys it and provides it to kids who need the extra help. I wish all schools were this way. But sadly, I know a lot of schools have the attitude you descibe in your email. When my older ds (also dyslexic) was younger, I couldn't get them to remediate his "reading problem." I asked if it was dyslexia and got told all the things they tell parents - it can't be dx'd until 3rd grade, he can't have it because he doesn't always write backwards, we don't dx dyslexia - it's a medical dx and only a doctor can do that, blah blah blah. Needless to say, he never rec'd the help he needed. I was begging years ago for the school to provide Fast Forword and back then they told me it was not "scientifically proven" - only to decide it was a few years later. Imagine my face when I saw them vote to provide Fast Forword after spending years begging for just that! But it was too late for my older ds. At his last Evaluation, we requested an "IEE" (independent educational evaluation) and I also got the best book on Dyslexia I could find. (Read anything by Sally Shaywitz) I read that book during a one week vacation we took and came back prepared to get him the help he needed. I realized at the meeting that I knew more about dyslexia than anyone else in that room. They still wanted to not admit he even had it but I was able to show them every score that fit the exact profile of dyslexia and answer all their complaints with answers/explanations. Anyway, he is now a "compensated" dyslexic. He's learned to manage on his own. It's slow but good enough to get by. Maybe you could buy a book or a program so you could teach him better reading skills? The box is a great idea, especially if the words are moving around! Have you considered e-schooling? We do this now with my 12 yo (hfa, gifted, hyperlexia). He still has an IEP and gets his speech therapy provided by the school, as well. But he schools here at home with me. All his lessons are online. They tell us what to do each day and we do all the subjects. He has e-classes online too a few times per week. A real teacher teaches classes online in a virtual classroom. But I was also thinking about finding a reading tutor or program that would help remediate the dyslexia too. I just googled and found this --> http://verticylearning.org/?gclid=CPGQrNT8yZYCFQVfFQodqSReyg I don't know if it's any good but it was the first one up on the list. lol. It can give you an idea of what I mean. Maybe search around online and find out what is available in your state? You could still homeschool but also get help. They provide the curriculum and if you need help, you can call them or email them. Here is a link to a page with a listing of some e-schools for your state --> http://distancelearn.about.com/od/onlinepublicschools/a/WisconsinPublic.htm E-schools are the same as public schools and they would be required to do an evaluation of your ds and see if he qualifies for special education. Then if he did, he could get tutoring or therapy for dyslexia provided without cost to you (except you'd have to transport him to the therapy.) Just an idea to think about. RoxannaYou're UniqueJust like everyone else... ( ) New> Hi, I am mom to a 12 year old ds with AS/ADHD and a 10 year old DS with> PDD/HFA/ADHD. We live on the South Shore of Massachusetts/Plymouth> County area. Despite our attempts with social skills training groups,> both boys basically still lack friends and are quite lonely most of the> time. I was wondering if there is anyone from this area that might be> in a similar situation and would be willing to hook up for some weekend> day trips or activities. I should mention that both boys are not> really into sports,but more into video games,computers, and music.> Please contact me if you have a child that may be in the same boat.>>>> ------------------------------------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Hi and welcome. I am new also and have a 12 yo daughter recently dx with AS. Do you have a son or daughter? I am curious to compare notes with someone who have a preteen daughter like myself. Well if you do or not I hope life is going well for you and your aspey. Look forward to hearing more from you. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Hi...I have a son 12 years and a daughter 10 years. On 1/12/09, amybishop92 <amybishop92@...> wrote: > Hi and welcome. > > I am new also and have a 12 yo daughter recently dx with AS. Do you > have a son or daughter? I am curious to compare notes with someone who > have a preteen daughter like myself. Well if you do or not I hope life > is going well for you and your aspey. Look forward to hearing more > from you. Amy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 Have you been to Dr. G's website yet? www.neuroimmunedr.com I would recommend that you start there and then post any questions you may have on the board. The group is really supportive and very informed about the protocol. My three sons and I are all on the protocol and we're seeing lots of improvement. All the best, Robyn > From: mompuzzle <mompuzzle@...> > Subject: New > > Date: Thursday, January 22, 2009, 2:41 PM > Hello I am new to the group. Just recently came across the > . Can > anyone help get me started to see if this is right for my > son. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 > > Hello I am new to the group. Just recently came across the . Can > anyone help get me started to see if this is right for my son. Last year, I started out with the diet first to see if my son would benefit. He did so well that as soon as I could I took my son to see Dr. G. I live in the South so it was a big deal to have my son be seen by him, but well worth it. I learned so much and I feel my son is going more in the right direction than every before. My son has always been delayed in speech and was diagnosed with Aspergers. He is now 8, but he is only in 1st grade. However, he is doing well in school and I am hopeful that he will graduate high school and college. Thank you, Freda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 I and my three sons are patients of Dr. Goldberg's. He is wonderful and my kids are getting better every day! All the best, Robyn > From: neidhardtashley <neidhardtashley@...> > Subject: NEW > > Date: Tuesday, May 19, 2009, 11:16 AM > Hello I am new to this info. After listening to Dr Goldberg > I want to go see him in Calif. I live in Ohio. My son is > almost 6 yrs old and I have done alot with very little > progress. I see the list of labs and my son only has had a > handful. I would like to know anyone has made him their > childs doctor and how it has been Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Hi, I think that you daughter is very smart and she will be very successful if you guide her computers skills positively I am an IT person and addicted to computers also . I love computers and game, my children love them too. .. I watch the news in my pc, I socialized in my pc, I do my banking in my pc, etc. In the computer world everybody belongs to the same race, everybody wears the same clothing. Nobody call you “weirdâ€. People accept you the way you are… I express myself better using a pc because I am not afraid of the possibility of people disliking me because of my look or color. I introduced my children to the computer world and now they are addicted to games, computers, phone, etc. My son is 22 and when we see each other we play games together, sometimes we search web sites to learn how to play the guitar and also we watch movies in our pc. Using the pc my son learned to play the guitar; I learned how to program in VB and how to set up my web page for my business and how to run an internet business. Using the pc my daughter learned math and to play the clarinet. Using the pc I met the most wonderful friend I have in my life. Using the pc I keep contact with my family from Dominican Republic. I buy games for my daughter, playing those games she had learned to dance, to be patience and to do well in math... I do not see anything wrong with using a pc or playing games all the time. The bad aspect is the social effects that computers could cause in some people, but in my situation I have not time to be social. My aspergers girl sooths herself playing computers games. When she plays a game she abstracts herself and travel to a place where she is accepted as she is, where being “weird†is acceptable and sometimes “coolâ€. I also always keep track and monitor the web sites she goes to and she is well train on internet securities. ( ) NewHello Everyone!My daughter, , is 13 years old and has Asperger Syndrome. I joined on-line support groups a long time ago, but life got busy and I know longer stayed joined. I have been having a lot of hard times lately, trying to figure out what is best for my daughter, and I constantly find myself at a loss. She is addicted to the computer, has no friends, and wants to do nothing but play on her computer. I'm worried, I want her to go and do things and spend time with me and our family. She is the only child, I am divorced and she doesn't see her father. We have a small family and most of them are not very supportive. I have a wonderful boyfriend who treats her wonderfully. But I am at a loss on what to do to fill her time so she isn't on the computer as much. Any help would be greatly appreciated.I am really looking forward to being back on this support group! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Hi welcome here its a great source of info... I am 44 i have complex regional pain syndrome (gina can i post what that is?) Fibro, psoriatic arthritis and or ra either one im being treated the same. I have five kids three still at home. I so understand your pain, if it werent for heidi on here through my early diagnosis of my ra/psoriatic i dont know what i would have done. I cannot work i was a stay at home mom for 22 years didn't qualify for ssd just got ssi now that i moved out of my house. It does get better hang in there. I have two children with bipolar so i totally understand that as well. If you need to talk im here. Jolene from buffalo ny In a message dated 11/6/2009 9:34:24 A.M. Eastern Standard Time, angels4hailee@... writes: Hi, my name is i am 37 years old, yesterday I was diagnosied with Rheumatoid Arthritis and Fibromyalgia. I am feeling very overwhelmed with the diagnosis. I was started on Neurotin for my pain. I have had a very complicated year as far as my health In feb I was admitted many times to the hospital for Pneumonia ended up with a pacemaker thanks to having low heart rates in the 30s, finally was diagnosied with Legioners Disease, got that under control and had to have a total hysterectomy, and im dealing with complete body pain, joint pain, muscle pain, bone pain, and swelling, my feet and hands are the worse, than my shoulders and knees. I am a preschool teacher and I am on my feet all day, i am so worried that I will not be able to do what I love. I have to go my Autistic daughter is needing my attention, (to add to my stress) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 Thanks Jolene just reading and typing back has me in tears Sent from my iPhone On Nov 6, 2009, at 7:41 AM, Jolenefive@... wrote: > Hi welcome here its a great source of info... I am 44 i have > complex regional pain syndrome (gina can i post what that is?) > Fibro, psoriatic > arthritis and or ra either one im being treated the same. I have > five kids > three still at home. I so understand your pain, if it werent for > heidi on > here through my early diagnosis of my ra/psoriatic i dont know what > i would > have done. I cannot work i was a stay at home mom for 22 years didn't > qualify for ssd just got ssi now that i moved out of my house. It > does get > better hang in there. I have two children with bipolar so i totally > understand that as well. If you need to talk im here. > > Jolene from buffalo ny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Sure, Jolene. You are free to post information about complex regional pain syndrome. Not an MD On Fri, Nov 6, 2009 at 8:41 AM, <Jolenefive@...> wrote: > Hi welcome here its a great source of info... I am 44 i have > complex regional pain syndrome (gina can i post what that is?) Fibro, psoriatic > arthritis and or ra either one im being treated the same. I have five kids > three still at home. I so understand your pain, if it werent for heidi on > here through my early diagnosis of my ra/psoriatic i dont know what i would > have done. I cannot work i was a stay at home mom for 22 years didn't > qualify for ssd just got ssi now that i moved out of my house. It does get > better hang in there. I have two children with bipolar so i totally > understand that as well. If you need to talk im here. > > Jolene from buffalo ny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 We went to the NNY Autism Center in Black River...best thing we ever did! My little girl is doing awesome. www.nnyautismcenter.com - > > New to this group- on several others. Can anyone share their experience w/ Dr G in LA - is he a diet guy, a viral guy- both ? > I am in NY. Thanks. Feel free to email me. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Hello - I am new, and newly dx'd (two days ago). I am 54, have had chronic fatigue syndrome since '93, and am on disability for cognitive issues that I believe are related to the CFS. I'm frustrated that it took this long to dx me; it took me changing PCPs, and one app't with this new doctor, an osteopath, got me the blood tests to show high inflammation and a dx of RA. I forgot to ask about the ANA panel results.. Right now, pain control is my focus; I'm using Tylenol and Lodine (etodolac). The Lodine is new, and is still kind of iffy as far as my stomach goes, so I can't take it regularly enough for good pain control. And, oh joy, unfortunately I am highly sensitive to most medications. Anyway, I know very little about RA and I have an app't with a rheumatologist in March. I don't know what to expect or what to ask. I'm leery of specialists; I hear too many horror stories. So I'm looking forward to reading posts and learning. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Hello Pat: Welcome to our very special group of caring people. You will learn so much here about RA and what an ugly beast of a disease it is. I am 70, and have had RA for almost 6 years. The best thing I did for myself was join this group. I have learned so much about RA, and it changed my life outlook. The caring, support, information, and love you get here is truly amazing. The best of the best is here. You can cry, vent, etc. here as everyone knows exactly what you are dealing with on a 24/7 daily basis.  I am glad you will see your Rheumy next month. That is the best thing to do right away so they can start you on the meds. quickly. Plus, you need to get some pain meds. that work well for you. They make a big difference with what you can and can't do each day. My advice is to rest as much as you can. RA is relentless and truly wears us out.  I hope you feel better soon. Again, welcome again.  Hugs,  Barbara From: Morton <trishcat55@...> Subject: [ ] Re: New Date: Saturday, February 13, 2010, 11:48 AM  Hello - I am new, and newly dx'd (two days ago). I am 54, have had chronic fatigue syndrome since '93, and am on disability for cognitive issues that I believe are related to the CFS. I'm frustrated that it took this long to dx me; it took me changing PCPs, and one app't with this new doctor, an osteopath, got me the blood tests to show high inflammation and a dx of RA. I forgot to ask about the ANA panel results.. Right now, pain control is my focus; I'm using Tylenol and Lodine (etodolac). The Lodine is new, and is still kind of iffy as far as my stomach goes, so I can't take it regularly enough for good pain control. And, oh joy, unfortunately I am highly sensitive to most medications. Anyway, I know very little about RA and I have an app't with a rheumatologist in March. I don't know what to expect or what to ask. I'm leery of specialists; I hear too many horror stories. So I'm looking forward to reading posts and learning. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Thanks, Barbara. Pat From: [mailto: ] On Behalf Of Barbara Creedon Sent: Saturday, February 13, 2010 1:05 PM Subject: Re: [ ] Re: New Hello Pat: Welcome to our very special group of caring people. You will learn so much here about RA and what an ugly beast of a disease it is. I am 70, and have had RA for almost 6 years. The best thing I did for myself was join this group. I have learned so much about RA, and it changed my life outlook. The caring, support, information, and love you get here is truly amazing. The best of the best is here. You can cry, vent, etc. here as everyone knows exactly what you are dealing with on a 24/7 daily basis. I am glad you will see your Rheumy next month. That is the best thing to do right away so they can start you on the meds. quickly. Plus, you need to get some pain meds. that work well for you. They make a big difference with what you can and can't do each day. My advice is to rest as much as you can. RA is relentless and truly wears us out. I hope you feel better soon. Again, welcome again. Hugs, Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 hi, my name is dawn. i have mcs and mold infection. my doctor is working with dr gray to get me started on a treatment. i currently take a probiotic seroyal hmf forte, 8 billion, 4 strains, but 100mg fos. i would like to find a good probiotic without the fos, yet is easy on me and my checkbook. i am open for suggestions... i am also interested in retraining my brain, i am on facebook and my blog is http://www.dlm-studios.com. i try each day to write something, read/edit my work, or create something artistic. if you like art and poetry, please friend dawn leslie mullan (dlmstudios) and like its pages on facebook. if you like interesting articles, rants, and topic of the day, then friend dl mullan. beware, i like to poke people! great to meet you all. thank you, dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 Hi Dawn, that's a tough one. The very good probios are on the pricey side. Not as bad, try sedona labs i-flora. There are many out there, and the group will come in with all kinds of suggestions. The two best I use are pricey, so if you change your mind, I will be happy to share that info. scott _____ From: [mailto: ] On Behalf Of dlmullan Sent: Tuesday, February 01, 2011 3:47 PM Subject: [] new hi, my name is dawn. i have mcs and mold infection. my doctor is working with dr gray to get me started on a treatment. i currently take a probiotic seroyal hmf forte, 8 billion, 4 strains, but 100mg fos. i would like to find a good probiotic without the fos, yet is easy on me and my checkbook. i am open for suggestions... i am also interested in retraining my brain, i am on facebook and my blog is http://www.dlm-studios.com. i try each day to write something, read/edit my work, or create something artistic. if you like art and poetry, please friend dawn leslie mullan (dlmstudios) and like its pages on facebook. if you like interesting articles, rants, and topic of the day, then friend dl mullan. beware, i like to poke people! great to meet you all. thank you, dawn Quote Link to comment Share on other sites More sharing options...
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