new

[Guest guest]

if he's getting a star band that sounds about right for the price.

it's higher if the insurance covers it. i know orthomerica gave us a

discount if we were paying but luckily for us our insurance paid.

and send pics when he gets his band.

kathy

--- In Plagiocephaly , " " <saiken2003@y...>

wrote:

>

>

> Hi ,

> Welcome to the group. Your grandson is very lucky to have you as

his

> advocate! You are an awesome grandpa!! Where are you located?

Please

> keep us posted on him.

>

>

> --- In Plagiocephaly , <sunshine_male@y...>

wrote:

> > About 10 days ago I found out my 4 month old grandson has

> Plagiocephaly. At that point I started reading all I can on it,

from

> all sources. Keeping up with this group has been very helpful so

> far. It's told me that he is not as bad as many are, and the

> importance of starting early with treatment. He has a flat spot

on

> the right rear of his head and a ear and eye are off just slightly.

> > Both my wife and I are the oldest of 8 with several Rn's in the

> family. My daughters in laws are from families of 12 and 7.

> Comments came from all directions, some yes and some said he will

> grow out of it. With that in mind I printed many of the comments

in

> this group to help them make a decision. I went from, lets

position

> and see if he will grow out of it to lets get the helmet made.

> > Yesterday morning the decision was made by my daughter and her

> husband to have him fitted. They just got back from a custom

> fitting, and the helmet will be ready on Feb 1.

> > The only question I have is I see very little on custom made

> helmets and the cost. They were told this morning that it will be

> about 1700 dollars. Does this sound right?

> > Now all I have to do is get him a shirt like I got a few years

ago

> in Sturgiss, " Helmet Laws Suck " .

> > Being in my late 50s, and my first grandchild, I am often

accused

> of being over protective or him.

> > Thanks again for the info in the postings

> >

> > (sunshine_male)

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi Kim,

Welcome to the group. You didn't do anything wrong!! My plagio baby

was my 5th child and like you I never heard of plagio before. How are

we supposed to prevent a condition that we don't even know exists?

If you need to place blame, blame your maternity ward nurses and your

pediatrician. They are the ones that should be educating parents

about plagio. The only thing that matters now, is that you're doing

something about 's plagio!!! Keep us posted.

--- In Plagiocephaly , " " <kimmy23012003@y...>

wrote:

>

> MY NAME IS KIM, MY DAUGHTER EMILY IS 9 MTHS OLD AND IS GETTING THE

> STAR BAND ON MONDAY. SHE IS MY FIRST CHILD AND I HAD NEVER HEARD OF

> PLAGIO BEFORE THIS. I FEEL LIKE MAYBE I DID SOMETHING WRONG, LIKE I

> MESSED UP AND SHE HAS TO WERE THE BAND BECAUSE OF SOMETHING I DID

OR

> DIDN'T DO. AND MY FAMILYS NOT HELPING.

[Guest guest]

Hi Kim,

Welcome to the group! Don't blame yourself, I would say that most

of our members had never heard of this condition before. I know

that it wasn't in my " What to expect... " books. Where are you going

for treatment?

Natasha

Atlanta, GA

>

> MY NAME IS KIM, MY DAUGHTER EMILY IS 9 MTHS OLD AND IS GETTING THE

> STAR BAND ON MONDAY. SHE IS MY FIRST CHILD AND I HAD NEVER HEARD

OF

> PLAGIO BEFORE THIS. I FEEL LIKE MAYBE I DID SOMETHING WRONG, LIKE

I

> MESSED UP AND SHE HAS TO WERE THE BAND BECAUSE OF SOMETHING I DID

OR

> DIDN'T DO. AND MY FAMILYS NOT HELPING.

[Guest guest]

Hello Kim and welcome to our group. First of all, and more

importantly, IT IS NOT YOUR FAULT!!! YOU DID NOTHING WRONG!!!

Since the American Association of Pediatrics recommended that babies

are put to sleep on their backs (to prevent SIDS), the occurrence of

plagio has skyrocket to 1 in every 50 babies or so but, of course,

no one tells you about this. Also, parents are bombarded with

advertising that show products that would make our life easier since

this products are " ideal " to keep babies off their tummies, for

example bouncy seats, wich my twins used almost 24-7 until Ignacio

was diagnosed.

Im also a first time mom of twins and one of them was born with tort

and plagio, both caused by in uterus constraint. Even though we

brought his funny head shape up while he was still at NICU, they

told us that this was very normal and that it would correct on its

own. The doctors never mentioned that we should try to keep him off

the flat spot and his tort went undiagnosed for at least two and a

half months. So, of course, his plagio got worse and he was banded

for 5 and a half months. Now, after the fact, I know some things

that I could have done to prevent, or at least, minimize his plagio

but all these things I have learned them while being a member of

this wonderful group and during Ignacio's treatment.

I dont know where you live, but here all doctors (except the one

that gave us the referral for the band) told us the " it will round

on its own speech " and even some of them expressed their concerns

that the band treatment would affect our baby. Even one of them,

who was the neurosurgeon, told us that with the band we would get

the result of " blistering " our baby's skin and that we would get no

correction whatsoever... Encouraging, right?

Well, now that Ignacio has finished his treatment I can tell you

that we are very please with the results we got... and we didnt get

a 100% correction or something close to it. Ignacio's assymetric

measures are still consider in the normal side but borderline. But,

the therapists that worked with hin told us about this possibility

since DAY 1 so I cant tell you that the results got us by surprise.

Anyway, his head shape looks remarkable well compared to the

beginning of treatment and all the facial assymetry is gone.

As for the family... I know what you mean. Even though my family

was very understanding and supportive, I cannot tell you how many

times I've heard that some other child was born with plagio and his

head corrected itself... that instead of the band I should have

tried to put a sock or soemthing to cover his head and " pressure it "

to a round form, etc. Now, all of them are in awe about how much

his head shape has improved and manifest that the treatment was

great.

So just hang in there and you'll see you will not regret the

decision to band your daughter.

Annie

Mom to twins, Ignacio (DOC Grad 5/17/04) &

San , PR

>

> MY NAME IS KIM, MY DAUGHTER EMILY IS 9 MTHS OLD AND IS GETTING THE

> STAR BAND ON MONDAY. SHE IS MY FIRST CHILD AND I HAD NEVER HEARD

OF

> PLAGIO BEFORE THIS. I FEEL LIKE MAYBE I DID SOMETHING WRONG, LIKE

I

> MESSED UP AND SHE HAS TO WERE THE BAND BECAUSE OF SOMETHING I DID

OR

> DIDN'T DO. AND MY FAMILYS NOT HELPING.

[Guest guest]

Kim,

Don't blame yourself! You didn't do anything wrong. We all have had

feelings of guilt, but the fact is there are many contributing

factors to plagio and the important thing is that it was diagnosed

and you are getting treatment. As for your family, you are the

mommy, you know in your heart what is right for your daughter and

don't let anyone tell you different. You are doing a wonderful thing

for your daughter and you will not regret it. Please let us know how

's fitting goes on Monday and if you have any questions.

Take care,

& Aidan in CT

16.5 months doc band #2 11/9/04

--- In Plagiocephaly , " " <kimmy23012003@y...>

wrote:

>

> MY NAME IS KIM, MY DAUGHTER EMILY IS 9 MTHS OLD AND IS GETTING THE

> STAR BAND ON MONDAY. SHE IS MY FIRST CHILD AND I HAD NEVER HEARD OF

> PLAGIO BEFORE THIS. I FEEL LIKE MAYBE I DID SOMETHING WRONG, LIKE I

> MESSED UP AND SHE HAS TO WERE THE BAND BECAUSE OF SOMETHING I DID

OR

> DIDN'T DO. AND MY FAMILYS NOT HELPING.

[Guest guest]

NATASHA, I TAKE EMILY TO PEDIATRIC NEUROSURGERY ASSOCIATES, P.C.

AT CHILDRENS HEALTHCARE OF ATLANTA.

THANK YOU ALL FOR THE SUPPORT.

> >

> > MY NAME IS KIM, MY DAUGHTER EMILY IS 9 MTHS OLD AND IS GETTING

THE

> > STAR BAND ON MONDAY. SHE IS MY FIRST CHILD AND I HAD NEVER HEARD

> OF

> > PLAGIO BEFORE THIS. I FEEL LIKE MAYBE I DID SOMETHING WRONG, LIKE

> I

> > MESSED UP AND SHE HAS TO WERE THE BAND BECAUSE OF SOMETHING I DID

> OR

> > DIDN'T DO. AND MY FAMILYS NOT HELPING.

[Guest guest]

My daughter wore a STARband from age 9 to 12 months. We are in missouri.

She is my 3rd child and I had never heard of plagio. You did nothing wrong.

Just know that you are a great mom. My dad told me how horrible it was that

I was banding her but everyone else was for the band. Yes it hurt my

feelings that my dad wasn't supportive but I knew I was doing the right

thing for my daughter. Just follow your mommy instincts. Jenna was born

with her plagio and it got worse as time went on. I knew for us the band

was our only option for her to receive the correction we desired. She has

pictures under Jenna in the before and afters as well as the other photos.

Where are you located. Maybe someone in the group is in your area. please

keep us posted.

Angie and Jenna(STAR grad)

NEW

>

>

> MY NAME IS KIM, MY DAUGHTER EMILY IS 9 MTHS OLD AND IS GETTING THE

> STAR BAND ON MONDAY. SHE IS MY FIRST CHILD AND I HAD NEVER HEARD OF

> PLAGIO BEFORE THIS. I FEEL LIKE MAYBE I DID SOMETHING WRONG, LIKE I

> MESSED UP AND SHE HAS TO WERE THE BAND BECAUSE OF SOMETHING I DID OR

> DIDN'T DO. AND MY FAMILYS NOT HELPING.

>

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Hi Kim,

Welcoemt o the group. You did nothing wrong. How can you do something wrong if you have never heard of plagio? You are doing something now which is great! I'm sorry your family is not being helpful.

So where are you located? Are you seeking band treatment for ? Has your dr noticed it? how can we help you? Do you have any questions?

mom to na

DOC Grad

Tort Resolved

South Carolina

www.thefilyaws.com <kimmy23012003@...> wrote:

MY NAME IS KIM, MY DAUGHTER EMILY IS 9 MTHS OLD AND IS GETTING THE STAR BAND ON MONDAY. SHE IS MY FIRST CHILD AND I HAD NEVER HEARD OF PLAGIO BEFORE THIS. I FEEL LIKE MAYBE I DID SOMETHING WRONG, LIKE I MESSED UP AND SHE HAS TO WERE THE BAND BECAUSE OF SOMETHING I DID OR DIDN'T DO. AND MY FAMILYS NOT HELPING.For more plagio info

[Guest guest]

Hi Kim, welcome to the group. Plagio isn't something you can

prevent if you've never heard of it, which is not your fault at

all. There is defnitely an issue w/plagio education all around the

world! You can't always prevent it anyway, even if you are educated

on the subject. It's certainly more difficult when you don't have a

good support system. Please know you're welcome to post here

anytime!

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

>

> MY NAME IS KIM, MY DAUGHTER EMILY IS 9 MTHS OLD AND IS GETTING THE

> STAR BAND ON MONDAY. SHE IS MY FIRST CHILD AND I HAD NEVER HEARD

OF

> PLAGIO BEFORE THIS. I FEEL LIKE MAYBE I DID SOMETHING WRONG, LIKE

I

> MESSED UP AND SHE HAS TO WERE THE BAND BECAUSE OF SOMETHING I DID

OR

> DIDN'T DO. AND MY FAMILYS NOT HELPING.

[Guest guest]

Hi and welcome. I 2nd what everyone said. You are not to blame. The

good thing is that you are doing something painless and non-invasive

to treat it NOW rather than letting it go. Hang in there. It is not

as bad as it seems. Soon this will be a distant memory. I'm sorry

your family is not supporting you very well. We are VERY supportive

so please lean on us here. We are here with you every step of the

way...

Take care,

Sue

Colin F. 15 mos.

STARband grad

--- In Plagiocephaly , " " <kimmy23012003@y...>

wrote:

>

> MY NAME IS KIM, MY DAUGHTER EMILY IS 9 MTHS OLD AND IS GETTING THE

> STAR BAND ON MONDAY. SHE IS MY FIRST CHILD AND I HAD NEVER HEARD OF

> PLAGIO BEFORE THIS. I FEEL LIKE MAYBE I DID SOMETHING WRONG, LIKE I

> MESSED UP AND SHE HAS TO WERE THE BAND BECAUSE OF SOMETHING I DID

OR

> DIDN'T DO. AND MY FAMILYS NOT HELPING.

[Guest guest]

Welcome, . This is a great group, and a and keep us

well informed. I'm glad that you're going to make an appointment with a

rheumatologist. If you have any questions, just ask away. We know what

you're going through. Sue

On Monday, February 28, 2005, at 11:43 PM, wrote:

>

> Hi there. I am new, and was just referred by someone I met on another

> list. I was diagnosed with RA almost two years ago.

>

[Guest guest]

Hi and welcome to the group. My oldest daughter started therapy with a DOC band at 19 months and we got very good correction. We didn't get full correction because she got into it very late. She had left side severe plagio and now only has a small flat spot left.

Johanna and

Tatijana (DOC graduate 05/01) and

lyse (DOC banded 02/01/05)

>From: "s_rad1" <s_radlinski@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: new

>Date: Mon, 11 Apr 2005 20:32:23 -0000

>

>

>

>Hello. Today my 8 1/2 month old son was evaluated for a STARband. He

>will get his helmet in 2 weeks. He has SEVERE right-sided

>plagiocephaly. Because of his age we have been told that we may not

>get total correction with the helmet. Has anyone else had experience

>with starting helmet therapy at this age and what kind of results did

>you see??

>

>Thanks,

>

>

>

>

>

>

[Guest guest]

>

Thank you. That is encouraging news that your daughter significantly

improved starting at 19 months! We are not expecting total

correction, but are hoping to see much improvement over the next 4-6

months! I'm still quite upset that we did not start treatment

sooner. For months we were told by our pediatrician that it would

self-correct!

Michigan

plagio (STARband)

[Guest guest]

Hi ,

Welcome to the " My ped told me it would pop out. " club. There are many, many

members

of this club, including me and my daughter Sophia, who is 10 months old and was

fitted

with a DOC band last week for Brachycephaly. It's good your child has

plagiocephaly, it is

easier and quicker to correct, especially at this age. Good luck, you will see

good results.

-Monika

Mom to Sophia, DOC band, 10 months, Brachy

> >

> Thank you. That is encouraging news that your daughter significantly

> improved starting at 19 months! We are not expecting total

> correction, but are hoping to see much improvement over the next 4-6

> months! I'm still quite upset that we did not start treatment

> sooner. For months we were told by our pediatrician that it would

> self-correct!

>

>

> Michigan

> plagio (STARband)

[Guest guest]

Stacey---

You are not alone--we have been told the same by our ped. My

sweetie's head has gotten better as her torticollis has improved,

but it is still not " normal " . We are seeing a pediatric plastic

surgeon, but are going to Cranial Tech. for a second opinion next

week. My daughter is 8 mos. and still isn't in her band yet. Hers

is mild to moderate, but I know how you feel about things

progressing so far without you really knowing what was happening.

My daughter's facial asymmetry wasn't really pointed out to me until

about 3 weeks ago. Looking back at pictures it is so evident, but

we didn't see it . . .

Tara, mother to Mallory

> > >

> > Thank you. That is encouraging news that your daughter

significantly

> > improved starting at 19 months! We are not expecting total

> > correction, but are hoping to see much improvement over the next

4-6

> > months! I'm still quite upset that we did not start treatment

> > sooner. For months we were told by our pediatrician that it

would

> > self-correct!

> >

> >

> > Michigan

> > plagio (STARband)

[Guest guest]

,

You can still receive excellent correction at this age, the docs need

to prepare you ahead of time that you may not get a total fix when you

start later. Check out the pictures section here and you will see many

babies that started at this age and later who received wonderful

correction. The most important thing to do is follow the orthotists

orders and I'm sure in no time you will be posting progress pictures

of your own.

CarolG.

--- In Plagiocephaly , " s_rad1 " <s_radlinski@h...>

wrote:

>

> Hello. Today my 8 1/2 month old son was evaluated for a STARband.

He

> will get his helmet in 2 weeks. He has SEVERE right-sided

> plagiocephaly. Because of his age we have been told that we may not

> get total correction with the helmet. Has anyone else had

experience

> with starting helmet therapy at this age and what kind of results

did

> you see??

>

> Thanks,

[Guest guest]

,

You can still receive excellent correction at this age, the docs need

to prepare you ahead of time that you may not get a total fix when you

start later. Check out the pictures section here and you will see many

babies that started at this age and later who received wonderful

correction. The most important thing to do is follow the orthotists

orders and I'm sure in no time you will be posting progress pictures

of your own.

CarolG.

--- In Plagiocephaly , " s_rad1 " <s_radlinski@h...>

wrote:

>

> Hello. Today my 8 1/2 month old son was evaluated for a STARband.

He

> will get his helmet in 2 weeks. He has SEVERE right-sided

> plagiocephaly. Because of his age we have been told that we may not

> get total correction with the helmet. Has anyone else had

experience

> with starting helmet therapy at this age and what kind of results

did

> you see??

>

> Thanks,

[Guest guest]

,

My 8 1/2 month old has only been in his Star band 3 weeks. We have

already seen some improvment. THe ortho told us that it might take a

bit longer because of his age but it all depends on how much growth

happens. OUr little guy is doing great with his star band and even if

it takes a couple more months- i am so glad we decided to band him.

GOod luck and hang in there!

emily

west michigan

mommy to Elijah, tort, star banded 3/23

--- In Plagiocephaly , " s_rad1 " <s_radlinski@h...>

wrote:

>

> Hello. Today my 8 1/2 month old son was evaluated for a STARband.

He

> will get his helmet in 2 weeks. He has SEVERE right-sided

> plagiocephaly. Because of his age we have been told that we may not

> get total correction with the helmet. Has anyone else had

experience

> with starting helmet therapy at this age and what kind of results

did

> you see??

>

> Thanks,

[Guest guest]

,

My 8 1/2 month old has only been in his Star band 3 weeks. We have

already seen some improvment. THe ortho told us that it might take a

bit longer because of his age but it all depends on how much growth

happens. OUr little guy is doing great with his star band and even if

it takes a couple more months- i am so glad we decided to band him.

GOod luck and hang in there!

emily

west michigan

mommy to Elijah, tort, star banded 3/23

--- In Plagiocephaly , " s_rad1 " <s_radlinski@h...>

wrote:

>

> Hello. Today my 8 1/2 month old son was evaluated for a STARband.

He

> will get his helmet in 2 weeks. He has SEVERE right-sided

> plagiocephaly. Because of his age we have been told that we may not

> get total correction with the helmet. Has anyone else had

experience

> with starting helmet therapy at this age and what kind of results

did

> you see??

>

> Thanks,

[Guest guest]

Hi ,

Welcome to the group. At 8 1/2 months he should see good correction. He is still plenty young enough with lots of growth left. He may not see 100% correction but you will notice a big difference. At his age you should start to see improvement in 2-3 weeks, though he may be in his band for 4 months.

mom to na

DOC Grad

South Carolina

www.thefilyaws.coms_rad1 <s_radlinski@...> wrote:

Hello. Today my 8 1/2 month old son was evaluated for a STARband. He will get his helmet in 2 weeks. He has SEVERE right-sided plagiocephaly. Because of his age we have been told that we may not get total correction with the helmet. Has anyone else had experience with starting helmet therapy at this age and what kind of results did you see??Thanks, For more plagio info

[Guest guest]

Hi ,

Welcome to the group. At 8 1/2 months he should see good correction. He is still plenty young enough with lots of growth left. He may not see 100% correction but you will notice a big difference. At his age you should start to see improvement in 2-3 weeks, though he may be in his band for 4 months.

mom to na

DOC Grad

South Carolina

www.thefilyaws.coms_rad1 <s_radlinski@...> wrote:

Hello. Today my 8 1/2 month old son was evaluated for a STARband. He will get his helmet in 2 weeks. He has SEVERE right-sided plagiocephaly. Because of his age we have been told that we may not get total correction with the helmet. Has anyone else had experience with starting helmet therapy at this age and what kind of results did you see??Thanks, For more plagio info

[Guest guest]

,

Many people on here were told the same thing that it would correct on its own. Also this is not true in evey case, I was told it could take 4-6 months or longer because of being older with my daughter. And she graduated after three months. We happened to catch a major growth spurt just as she got into the band.

Johanna, Tatijana, and lyse

>From: "s_rad1" <s_radlinski@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: Re: new

>Date: Tue, 12 Apr 2005 00:23:18 -0000

>

>

>

>

> >

>Thank you. That is encouraging news that your daughter significantly

>improved starting at 19 months! We are not expecting total

>correction, but are hoping to see much improvement over the next 4-6

>months! I'm still quite upset that we did not start treatment

>sooner. For months we were told by our pediatrician that it would

>self-correct!

>

>

>Michigan

>plagio (STARband)

>

>

>

>

>

>

[Guest guest]

,

Many people on here were told the same thing that it would correct on its own. Also this is not true in evey case, I was told it could take 4-6 months or longer because of being older with my daughter. And she graduated after three months. We happened to catch a major growth spurt just as she got into the band.

Johanna, Tatijana, and lyse

>From: "s_rad1" <s_radlinski@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: Re: new

>Date: Tue, 12 Apr 2005 00:23:18 -0000

>

>

>

>

> >

>Thank you. That is encouraging news that your daughter significantly

>improved starting at 19 months! We are not expecting total

>correction, but are hoping to see much improvement over the next 4-6

>months! I'm still quite upset that we did not start treatment

>sooner. For months we were told by our pediatrician that it would

>self-correct!

>

>

>Michigan

>plagio (STARband)

>

>

>

>

>

>

[Guest guest]

welcome to the group :-)

Sue

mom of Colin F.,18 mos.

STARband grad

brachy

--- In Plagiocephaly , " s_rad1 " <s_radlinski@h...>

wrote:

>

> Hello. Today my 8 1/2 month old son was evaluated for a STARband.

He

> will get his helmet in 2 weeks. He has SEVERE right-sided

> plagiocephaly. Because of his age we have been told that we may not

> get total correction with the helmet. Has anyone else had

experience

> with starting helmet therapy at this age and what kind of results

did

> you see??

>

> Thanks,

[Guest guest]

welcome to the group :-)

Sue

mom of Colin F.,18 mos.

STARband grad

brachy

--- In Plagiocephaly , " s_rad1 " <s_radlinski@h...>

wrote:

>

> Hello. Today my 8 1/2 month old son was evaluated for a STARband.

He

> will get his helmet in 2 weeks. He has SEVERE right-sided

> plagiocephaly. Because of his age we have been told that we may not

> get total correction with the helmet. Has anyone else had

experience

> with starting helmet therapy at this age and what kind of results

did

> you see??

>

> Thanks,