Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Sorry to hear you are frustrated. Where are you going - clinic? What kind of band? Can you post pics? Is it shifting a lot? How big is gaping? Sometimes ear holes are odd because they have to accomodate the asymmetry now and the corrected later. Is it possible he was moving a lot during the scan? I've heard they can handle some movement but not a lot. Is it leaving red marks that don't fade in an hour? Hmm. I hope it gets better. mom to na, DOC Grad & Kiersten, preventative repo www.thefilyaws.commcheval6 <actionairhvac@...> wrote: I am new - just picked up my son's helmet yesterday - I am wondering if everyone else's helmet seems like it is not made right - I am so upset with the fact that it cost me a good amount and he is probably going to need two - but the ear part was way off and now there is a gaping hole - it is rubbing on his cheeks and the back seem very crooked - they did the head scan 4 times - I would think it would have fit a little better! Granted I will be going for adjustments quite often as he grows - he is 5.5 months old - he was 5 weeks premature and he has a twin sister. for a little history. My husband and I are ready to smash the thing!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Sorry to hear you are frustrated. Where are you going - clinic? What kind of band? Can you post pics? Is it shifting a lot? How big is gaping? Sometimes ear holes are odd because they have to accomodate the asymmetry now and the corrected later. Is it possible he was moving a lot during the scan? I've heard they can handle some movement but not a lot. Is it leaving red marks that don't fade in an hour? Hmm. I hope it gets better. mom to na, DOC Grad & Kiersten, preventative repo www.thefilyaws.commcheval6 <actionairhvac@...> wrote: I am new - just picked up my son's helmet yesterday - I am wondering if everyone else's helmet seems like it is not made right - I am so upset with the fact that it cost me a good amount and he is probably going to need two - but the ear part was way off and now there is a gaping hole - it is rubbing on his cheeks and the back seem very crooked - they did the head scan 4 times - I would think it would have fit a little better! Granted I will be going for adjustments quite often as he grows - he is 5.5 months old - he was 5 weeks premature and he has a twin sister. for a little history. My husband and I are ready to smash the thing!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 Welcome to the group. I'm sorry to hear that you are having so much trouble with the fit. I hope that you have spoken with your orthotist and that it can be fixed or antoerh helmet can be made. It sounds like you are having more problems than you should. Sue mom to Colin 21 mos. STARband grad --- In Plagiocephaly , " mcheval6 " <actionairhvac@m...> wrote: > I am new - just picked up my son's helmet yesterday - I am wondering > if everyone else's helmet seems like it is not made right - I am so > upset with the fact that it cost me a good amount and he is probably > going to need two - but the ear part was way off and now there is a > gaping hole - it is rubbing on his cheeks and the back seem very > crooked - they did the head scan 4 times - I would think it would have > fit a little better! Granted I will be going for adjustments quite > often as he grows - he is 5.5 months old - he was 5 weeks premature > and he has a twin sister. for a little history. My husband and I are > ready to smash the thing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2005 Report Share Posted July 8, 2005 Thank you - I am going back Tues and I will be airing my concerns for sure - also he sweats sooo bad I strip down his clothes - but he is only wearing it for and hour and his head is dripping when I take it off - He is quite the trooper! But this is very frustrating to put him through! > > I am new - just picked up my son's helmet yesterday - I am wondering > > if everyone else's helmet seems like it is not made right - I am so > > upset with the fact that it cost me a good amount and he is probably > > going to need two - but the ear part was way off and now there is a > > gaping hole - it is rubbing on his cheeks and the back seem very > > crooked - they did the head scan 4 times - I would think it would > have > > fit a little better! Granted I will be going for adjustments quite > > often as he grows - he is 5.5 months old - he was 5 weeks premature > > and he has a twin sister. for a little history. My husband and I are > > ready to smash the thing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2005 Report Share Posted July 8, 2005 Thank you - I am going back Tues and I will be airing my concerns for sure - also he sweats sooo bad I strip down his clothes - but he is only wearing it for and hour and his head is dripping when I take it off - He is quite the trooper! But this is very frustrating to put him through! > > I am new - just picked up my son's helmet yesterday - I am wondering > > if everyone else's helmet seems like it is not made right - I am so > > upset with the fact that it cost me a good amount and he is probably > > going to need two - but the ear part was way off and now there is a > > gaping hole - it is rubbing on his cheeks and the back seem very > > crooked - they did the head scan 4 times - I would think it would > have > > fit a little better! Granted I will be going for adjustments quite > > often as he grows - he is 5.5 months old - he was 5 weeks premature > > and he has a twin sister. for a little history. My husband and I are > > ready to smash the thing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2005 Report Share Posted July 8, 2005 it takes a couple of days for them to adjust to the heat factor. i would try taking it off at regular intervals in the beginning to wipe the head and inside of the helmet down. --- mcheval6 <actionairhvac@...> wrote: > Thank you - I am going back Tues and I will be > airing my concerns > for sure - also he sweats sooo bad I strip down his > clothes - but he > is only wearing it for and hour and his head is > dripping when I take > it off - He is quite the trooper! But this is very > frustrating to > put him through! > > > > > > I am new - just picked up my son's helmet > yesterday - I am > wondering > > > if everyone else's helmet seems like it is not > made right - I am > so > > > upset with the fact that it cost me a good > amount and he is > probably > > > going to need two - but the ear part was way off > and now there > is a > > > gaping hole - it is rubbing on his cheeks and > the back seem very > > > crooked - they did the head scan 4 times - I > would think it > would > > have > > > fit a little better! Granted I will be going > for adjustments > quite > > > often as he grows - he is 5.5 months old - he > was 5 weeks > premature > > > and he has a twin sister. for a little history. > My husband and > I are > > > ready to smash the thing! > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2005 Report Share Posted July 8, 2005 it takes a couple of days for them to adjust to the heat factor. i would try taking it off at regular intervals in the beginning to wipe the head and inside of the helmet down. --- mcheval6 <actionairhvac@...> wrote: > Thank you - I am going back Tues and I will be > airing my concerns > for sure - also he sweats sooo bad I strip down his > clothes - but he > is only wearing it for and hour and his head is > dripping when I take > it off - He is quite the trooper! But this is very > frustrating to > put him through! > > > > > > I am new - just picked up my son's helmet > yesterday - I am > wondering > > > if everyone else's helmet seems like it is not > made right - I am > so > > > upset with the fact that it cost me a good > amount and he is > probably > > > going to need two - but the ear part was way off > and now there > is a > > > gaping hole - it is rubbing on his cheeks and > the back seem very > > > crooked - they did the head scan 4 times - I > would think it > would > > have > > > fit a little better! Granted I will be going > for adjustments > quite > > > often as he grows - he is 5.5 months old - he > was 5 weeks > premature > > > and he has a twin sister. for a little history. > My husband and > I are > > > ready to smash the thing! > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2005 Report Share Posted July 8, 2005 Sweating is very normal. The body has to adjust to a hat on in the middle of sumer. They do adjust. His internal thermostat will adjust in a week or so. Keeping him dressed very lightly is key. Maybe a fan in the room would help too. Take it off about every hour and dry the band and his head. mom to na (2 yrs), DOC Grad & Kiersten (5 weeks) preventative repo www.thefilyaws.commcheval6 <actionairhvac@...> wrote: Thank you - I am going back Tues and I will be airing my concerns for sure - also he sweats sooo bad I strip down his clothes - but he is only wearing it for and hour and his head is dripping when I take it off - He is quite the trooper! But this is very frustrating to put him through! > Welcome to the group. I'm sorry to hear that you are having so much > trouble with the fit. I hope that you have spoken with your orthotist > and that it can be fixed or antoerh helmet can be made. It sounds like > you are having more problems than you should.> > Sue> mom to Colin 21 mos.> STARband grad > --- In Plagiocephaly , "mcheval6" <actionairhvac@m...> > wrote:> > I am new - just picked up my son's helmet yesterday - I am wondering > > if everyone else's helmet seems like it is not made right - I am so > > upset with the fact that it cost me a good amount and he is probably > > going to need two - but the ear part was way off and now there is a > > gaping hole - it is rubbing on his cheeks and the back seem very > > crooked - they did the head scan 4 times - I would think it would > have > > fit a little better! Granted I will be going for adjustments quite > > often as he grows - he is 5.5 months old - he was 5 weeks premature > > and he has a twin sister. for a little history. My husband and I are > > ready to smash the thing!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 My son noah is almost 5 and has alot in common with your daughter. He is a lot more hyper though. Noah does not really welcome contact with others, but with me he will go through the motions of hugs and kisses, but he hates it. He also has had many little " obsessions " and they are very different things. Last fall it was pumpkins and gords, now for the last 3 months it's been suitcases. He is very inflexible, and hates change. He was diagnosed with adhd about 8 months ago, and the specialist we saw 2 months ago called it asperger's and also pdd. ( ) New I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter, India, has AS and has referred us to a specialist who cannot see us until October 19th. If my daughter has AS, it is very, very mild. However, I could sure use some help in understanding her. She is an odd duck. I have wasted an entire afternoon at work looking up resources on the internet and talking to India's former teachers. Probably overreacting...but it would be so nice to understand her and get some guidance for where to go from here. India is pretty rigid/inflexible. She tends to have meltdowns when things don't go as expected and sometimes she has meltdowns for no apparent reason. Usually, counting money or focusing on some similar task will help her recoup from a meltdown. She has an obsession with researching and comparing dog breeds that has lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?) She doesn't respond normally in many social situations. She often avoids eye contact, does not respond warmly to hugs and kisses; she just doesn't seem to connect. But then sometimes she does. Not the hugs and kisses, but she does respond " normally " to people often enough that we've only thought of her as a bit different...not diagnosable. She has at least one good friend in her class at school, but India won't call her, invite her over or initiate contact ever. I'm afraid that if the other girl has to carry the friendship all the time, she will give it up. The reason I talked to the doctor about her mental health was because she seems to be anxious and have undue worries that she won't talk about. She's so " introverted " . Does anyone else have a similar child? I mean, she seems so normal in so many ways and yet... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 You did not waste an entire afternoon at work looking up resources on the internet and talking to India's former teachers. You were and are trying to understand! Toni Hoeppner <toni.hoeppner@...> wrote:I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter, India, has AS and has referred us to a specialist who cannot see us until October 19th. If my daughter has AS, it is very, very mild. However, I could sure use some help in understanding her. She is an odd duck. I have wasted an entire afternoon at work looking up resources on the internet and talking to India's former teachers. Probably overreacting...but it would be so nice to understand her and get some guidance for where to go from here. India is pretty rigid/inflexible. She tends to have meltdowns when things don't go as expected and sometimes she has meltdowns for no apparent reason. Usually, counting money or focusing on some similar task will help her recoup from a meltdown. She has an obsession with researching and comparing dog breeds that has lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?) She doesn't respond normally in many social situations. She often avoids eye contact, does not respond warmly to hugs and kisses; she just doesn't seem to connect. But then sometimes she does. Not the hugs and kisses, but she does respond " normally " to people often enough that we've only thought of her as a bit different...not diagnosable. She has at least one good friend in her class at school, but India won't call her, invite her over or initiate contact ever. I'm afraid that if the other girl has to carry the friendship all the time, she will give it up. The reason I talked to the doctor about her mental health was because she seems to be anxious and have undue worries that she won't talk about. She's so " introverted " . Does anyone else have a similar child? I mean, she seems so normal in so many ways and yet... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Yep, my 11 y.o. son is exactly the same - I was in your position 1 year ago - waiting to be seen by specialists... Toni Hoeppner <toni.hoeppner@...> wrote:I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter, India, has AS and has referred us to a specialist who cannot see us until October 19th. If my daughter has AS, it is very, very mild. However, I could sure use some help in understanding her. She is an odd duck. I have wasted an entire afternoon at work looking up resources on the internet and talking to India's former teachers. Probably overreacting...but it would be so nice to understand her and get some guidance for where to go from here. India is pretty rigid/inflexible. She tends to have meltdowns when things don't go as expected and sometimes she has meltdowns for no apparent reason. Usually, counting money or focusing on some similar task will help her recoup from a meltdown. She has an obsession with researching and comparing dog breeds that has lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?) She doesn't respond normally in many social situations. She often avoids eye contact, does not respond warmly to hugs and kisses; she just doesn't seem to connect. But then sometimes she does. Not the hugs and kisses, but she does respond " normally " to people often enough that we've only thought of her as a bit different...not diagnosable. She has at least one good friend in her class at school, but India won't call her, invite her over or initiate contact ever. I'm afraid that if the other girl has to carry the friendship all the time, she will give it up. The reason I talked to the doctor about her mental health was because she seems to be anxious and have undue worries that she won't talk about. She's so " introverted " . Does anyone else have a similar child? I mean, she seems so normal in so many ways and yet... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Mike: Do other people think that Noah is very different? Or just odd? I don't know what to think about my dd because she seem's VERY normal, just a little different and diffficult. When she was two, she would wake up in the middle of the night just about every night and chant " India wants a drink " (except it came out " Ee-yah ahnts a gink " ) over and over and over until someone got up and brought her a drink. I thought it was just cute and persistent...now I wonder.... ( ) New I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter, India, has AS and has referred us to a specialist who cannot see us until October 19th. If my daughter has AS, it is very, very mild. However, I could sure use some help in understanding her. She is an odd duck. I have wasted an entire afternoon at work looking up resources on the internet and talking to India's former teachers. Probably overreacting...but it would be so nice to understand her and get some guidance for where to go from here. India is pretty rigid/inflexible. She tends to have meltdowns when things don't go as expected and sometimes she has meltdowns for no apparent reason. Usually, counting money or focusing on some similar task will help her recoup from a meltdown. She has an obsession with researching and comparing dog breeds that has lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?) She doesn't respond normally in many social situations. She often avoids eye contact, does not respond warmly to hugs and kisses; she just doesn't seem to connect. But then sometimes she does. Not the hugs and kisses, but she does respond " normally " to people often enough that we've only thought of her as a bit different...not diagnosable. She has at least one good friend in her class at school, but India won't call her, invite her over or initiate contact ever. I'm afraid that if the other girl has to carry the friendship all the time, she will give it up. The reason I talked to the doctor about her mental health was because she seems to be anxious and have undue worries that she won't talk about. She's so " introverted " . Does anyone else have a similar child? I mean, she seems so normal in so many ways and yet... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Thanks, Dave. I know it wasn't a waste of time, but my boss is paying me to do it... However, I'll make it up somehow. Toni Re: ( ) New You did not waste an entire afternoon at work looking up resources on the internet and talking to India's former teachers. You were and are trying to understand! Toni Hoeppner <toni.hoeppner@...> wrote:I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter, India, has AS and has referred us to a specialist who cannot see us until October 19th. If my daughter has AS, it is very, very mild. However, I could sure use some help in understanding her. She is an odd duck. I have wasted an entire afternoon at work looking up resources on the internet and talking to India's former teachers. Probably overreacting...but it would be so nice to understand her and get some guidance for where to go from here. India is pretty rigid/inflexible. She tends to have meltdowns when things don't go as expected and sometimes she has meltdowns for no apparent reason. Usually, counting money or focusing on some similar task will help her recoup from a meltdown. She has an obsession with researching and comparing dog breeds that has lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?) She doesn't respond normally in many social situations. She often avoids eye contact, does not respond warmly to hugs and kisses; she just doesn't seem to connect. But then sometimes she does. Not the hugs and kisses, but she does respond " normally " to people often enough that we've only thought of her as a bit different...not diagnosable. She has at least one good friend in her class at school, but India won't call her, invite her over or initiate contact ever. I'm afraid that if the other girl has to carry the friendship all the time, she will give it up. The reason I talked to the doctor about her mental health was because she seems to be anxious and have undue worries that she won't talk about. She's so " introverted " . Does anyone else have a similar child? I mean, she seems so normal in so many ways and yet... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Ana: When you have time, could you tell me a little about your son? I guess I want to reassure myself that I'm on the right track. Thanks, Toni Re: ( ) New Yep, my 11 y.o. son is exactly the same - I was in your position 1 year ago - waiting to be seen by specialists... Toni Hoeppner <toni.hoeppner@...> wrote:I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter, India, has AS and has referred us to a specialist who cannot see us until October 19th. If my daughter has AS, it is very, very mild. However, I could sure use some help in understanding her. She is an odd duck. I have wasted an entire afternoon at work looking up resources on the internet and talking to India's former teachers. Probably overreacting...but it would be so nice to understand her and get some guidance for where to go from here. India is pretty rigid/inflexible. She tends to have meltdowns when things don't go as expected and sometimes she has meltdowns for no apparent reason. Usually, counting money or focusing on some similar task will help her recoup from a meltdown. She has an obsession with researching and comparing dog breeds that has lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?) She doesn't respond normally in many social situations. She often avoids eye contact, does not respond warmly to hugs and kisses; she just doesn't seem to connect. But then sometimes she does. Not the hugs and kisses, but she does respond " normally " to people often enough that we've only thought of her as a bit different...not diagnosable. She has at least one good friend in her class at school, but India won't call her, invite her over or initiate contact ever. I'm afraid that if the other girl has to carry the friendship all the time, she will give it up. The reason I talked to the doctor about her mental health was because she seems to be anxious and have undue worries that she won't talk about. She's so " introverted " . Does anyone else have a similar child? I mean, she seems so normal in so many ways and yet... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Mike, After thinking more about this and reading your email, I made it a point to hug India last night. She was very stiff and held herself away from me. However, when I told her that wasn't a real hug (in a laughing way) she let herself relax against me in real hug. But it was short. I guess I can't complain too much, though. Maybe with some extra attention to her " quirky ways " and extra time teaching and encouraging her she will develop her ability to relate to others. Toni ( ) New I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter, India, has AS and has referred us to a specialist who cannot see us until October 19th. If my daughter has AS, it is very, very mild. However, I could sure use some help in understanding her. She is an odd duck. I have wasted an entire afternoon at work looking up resources on the internet and talking to India's former teachers. Probably overreacting...but it would be so nice to understand her and get some guidance for where to go from here. India is pretty rigid/inflexible. She tends to have meltdowns when things don't go as expected and sometimes she has meltdowns for no apparent reason. Usually, counting money or focusing on some similar task will help her recoup from a meltdown. She has an obsession with researching and comparing dog breeds that has lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?) She doesn't respond normally in many social situations. She often avoids eye contact, does not respond warmly to hugs and kisses; she just doesn't seem to connect. But then sometimes she does. Not the hugs and kisses, but she does respond " normally " to people often enough that we've only thought of her as a bit different...not diagnosable. She has at least one good friend in her class at school, but India won't call her, invite her over or initiate contact ever. I'm afraid that if the other girl has to carry the friendship all the time, she will give it up. The reason I talked to the doctor about her mental health was because she seems to be anxious and have undue worries that she won't talk about. She's so " introverted " . Does anyone else have a similar child? I mean, she seems so normal in so many ways and yet... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 I think people think he is a handful, b/c he is. I don't let a lot of people know about his obsessive qualities, I think that would be hard to explain. Noah is VERY difficult, we have him on Adderall for behavior, helps a little. The letdown when it wears out is awful though. He is very persistant!! Sheri ( ) New I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter, India, has AS and has referred us to a specialist who cannot see us until October 19th. If my daughter has AS, it is very, very mild. However, I could sure use some help in understanding her. She is an odd duck. I have wasted an entire afternoon at work looking up resources on the internet and talking to India's former teachers. Probably overreacting...but it would be so nice to understand her and get some guidance for where to go from here. India is pretty rigid/inflexible. She tends to have meltdowns when things don't go as expected and sometimes she has meltdowns for no apparent reason. Usually, counting money or focusing on some similar task will help her recoup from a meltdown. She has an obsession with researching and comparing dog breeds that has lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?) She doesn't respond normally in many social situations. She often avoids eye contact, does not respond warmly to hugs and kisses; she just doesn't seem to connect. But then sometimes she does. Not the hugs and kisses, but she does respond " normally " to people often enough that we've only thought of her as a bit different...not diagnosable. She has at least one good friend in her class at school, but India won't call her, invite her over or initiate contact ever. I'm afraid that if the other girl has to carry the friendship all the time, she will give it up. The reason I talked to the doctor about her mental health was because she seems to be anxious and have undue worries that she won't talk about. She's so " introverted " . Does anyone else have a similar child? I mean, she seems so normal in so many ways and yet... Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 momct1 <snoopfish1@...> wrote: My ds - 18 and a junior (we started him " late " in school because of his poor social skills) - has not been dxd w/AS, but as a pdoc was discussing symptoms re my dd, I saw so much of my ds when he was young. He had/has his tics, played with his back to the room, had a friend over and read his animal books while his friend played on the computer, solely interested in animals, ignored friends greetings, can't understand feelings, etc. He now has a large group of friends and is very bright, but continues to have an problem with essays or research papers that he can not seem to overcome. He totally blew off a major college-in-the-school assignment to take a C in the course because he just couldn't start the assignment (and he had a semester to try). This is the only time he falls below an A in a subject and he dislikes getting lower grades. I've read in other posts bits and pieces about inability to complete some school pieces attributed to Asperger's, but can't find anything official. As usual, I'm looking for causes and solutions for a problem we've never been able to understand! Hi , try looking up " Executive Dysfunction " and that should help find some ideas for helping. Most kids I know who can't start an assignment - especially a large one - need specific help to break the assignment down into manageable pieces. They need someone who can set deadlines, help them stay focused and give them ideas when they get stuck. My 16 yo is this way and he just is so overwhelmed that he often will give up before he starts. Or he will throw anything down on paper to just say it was done. Roxanna ô¿ô Don't take life too seriously; No one gets out alive. --------------------------------- Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 > How do I learn more about enzymes and ways to treat a toddler? This site is good http://www.enzymestuff.com/ > Will he out grow any of his food allergies? My son lost all his food issues with ALA chelation. http://www.danasview.net/chelate.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 Many on this list use Houston (HNI) enzymes and some have found they can go off the gfcf diet. Many on this list use oral DMSA and/or ALA for chelation, some without a doctor. S S Hi everyone, My ultimate hope is that through chelation and enzymes we will eventually be able to reintroduce gluten/casein and phenols back into his diet. Thanks so much for any and all input! Gretchen ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 Hi Gretchen; I can vouch for it. We just started TD DMPS. First two doses we did using the every other day big dose like our doc said. But we changed that upon new information. Dr Cutler seems to say DMSA is the best chelator of Mercury. The other doctor (whose name I won't mention here for obvious reasons) says DMPS works " 10 times " better than DMSA. I'm not an expert but I discern they both can work well (some work better for some kids, however). But the one thing I have become convinced about is that Cutler is absolutely correct in that frequent and smaller doses are much more effective than the big dose at longer intervals. I was reading one post from a parent who had been using DMPS for over a year, doing the big single dose every other day, with no results. He switched protocols (to Cutler's) and saw results immediately. So in effect, I'm mixing protocols. We're almost done with the first 3-day " on " cycle. Harps and Halo so far. (I guess that's the opposite of Horns & Tail). We are having great results on the outset of chelation. I'll elaborate some... We have noted small changes in Seth already. He is walking around trying to use more language. Last night he woke up with diarrhea, and the wife and I went in and cleaned it all up. I said " Good night Seth. " He responded " Good night Daddy. Good night Mommy. " When we left his room and closed his door, I just looked at the wife with one eyebrow lifted up, and she gave me a smile and a nod. Looks like it's working. Today was even better. I left home for church. When I came back the wife said that Seth was walking around the house looking for a couple of toys which she accidentally left at her sister's yesterday. " Where's Woody? Where's Buzz? " (from the movie Toy Story). This is a sentence structure he's never used, and believe me, he only knows how to properly use a few types (I want..., Seth like...). Then she told me he grabbed the " drops " (TD-DMPS), and she told him daddy does the drops. So then he says " Where is Daddy? Daddy is upstairs " , and goes upstairs and looks all over for me, comes back down and says " Daddy is in the garage " , and goes out the dog door to find me. He's carrying the drops with him all over the house looking for me. He's not really acting " strange " , either. I guess it's just too bad that after today he goes on the " off " cycle for 4 days. Not sure he's going to understand that. Luckily I taught him the days of the week, so maybe with some luck he'll grasp it. I'm sure there will be rough times ahead, though. Things don't usually go this smoothly for many parents ( " Horns & Tail " ). (Does anybody know where that phrase came from?). Mark > > Hi everyone, > > I am new to this group, and am interested in other's thoughts. I have an almost 6 year old boy that was diagnosed with mild autism at age 2. We began aggresive ABA therapy right away which did wonders. We later added the GFCF/low phenol diet which made the biggest difference of all. He no longer has any diagnosis and his PDD trates are almost indistinguishable provided we keep him firmly on the diet. > > Now for chelation. I had fillings put in shortly before becoming pregnant and my son also had his vaccines. I believe both events played a big role in his autism. My ultimate hope is that through chelation and enzymes we will eventually be able to reintroduce gluten/casein and phenols back into his diet. > > Questions: > 1) I am seeing many people that have not had much success with chelation. Are there any out there that can share some positive outcomes using the transdermal DMPS? > > 2) Our DAN doctor follows the Buttar method to the tee. He, therefore, is recommending that we provide the transdermal DMPS every other day. I have seen that many people are doing the several days on/several days off method. Has anyone used the one day on/one day off method with any success? > > Thanks so much for any and all input! > Gretchen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 Hello Gretchen, > Now for chelation. I had fillings put in shortly before becoming pregnant and my son also had his vaccines. I believe both events played a big role in his autism. My ultimate hope is that through chelation and enzymes we will eventually be able to reintroduce gluten/casein and phenols back into his diet. yes, let's hope for that! > 2) Our DAN doctor follows the Buttar method to the tee. He, therefore, is recommending that we provide the transdermal DMPS every other day. I have seen that many people are doing the several days on/several days off method. Has anyone used the one day on/one day off method with any success? I have to believe there are some people who are having sucess with this. I think there are a FEW reports of good results on this list, but a lot of the reports here are from people using the every-8-hour dosing. I think you will find more people who are using every-other-day dosing on the list chelatingkids2. I don't know how many have good vs bad results reported there, since I am not allowed to join that list. good wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 >... on the list chelatingkids2. I don't know how many have good vs bad > results reported there, since I am not allowed to join that > list. > good wishes, > Moria > I benefit from both lists. Are they mad because you expressed non-DAN viewpoints? I find that sad, if they are not allowing the free flow of information. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 > >... on the list chelatingkids2. I don't know how many have good vs bad > > results reported there, since I am not allowed to join that > > list. > > > good wishes, > > Moria > > > > I benefit from both lists. Are they mad because you expressed non- DAN > viewpoints? I find that sad, if they are not allowing the free flow > of information. > > Mark chelatingkids2 has requirements to join. I am not certain PRECISELY what the requirements are-- but it is something LIKE that you are a parent or grandparent of a child that is chelating (or planning for chelating) and under the care of a doctor. NOTE: if any of the moderators for that list wishes to correct the above, feel free. Since I am not a parent or grandparent, I am unlikely to meet these requirements any time soon. (I suppose I could adopt an ASD child?) Also, I chelated mySELF without being under the care of a doctor. There are a number of people who don't qualify to join because of these requirements -- Dana, and Andy come to mind. I believe S would not qualify. A number of people read both lists though, so it is sometimes possible to get general impressions of what is discussed. I read other lists, and, actually, I don't read nearly as many lists as I used to. Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 >>My ultimate hope is that through chelation and enzymes we will eventually be able to reintroduce gluten/casein and phenols back into his diet. ALA chelation, HNI enzymes, and B vitamins allowed my son to eat anything he wanted, and no more gut yeast issues. > 1) I am seeing many people that have not had much success with chelation. Are there any out there that can share some positive outcomes using the transdermal DMPS? Just about the only thing that ALA chelation did for my son was eliminate food and supplement intolerance and gut yeast issues. All the rest of his improvement came from the supplements that he was then able to tolerate. I did not use DMPS tho, I used oral ALA. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 In a message dated 29/11/2005 00:09:12 GMT Standard Time, redrackem@... writes: You're welcome - but since I've been corrected on the statement " Dr Cutler seems to say DMSA is the best chelator of Mercury. " . Dr Cutler says ALA is the best chelator of mercury according to those who have been in this group longer. Please read the followup posts with the subject What does Andy say about DMSA. >>>>And Dr Cutler doesn't like being called Dr (Wink) He doesn't mind what else you call him................... Mandi in UK Quote Link to comment Share on other sites More sharing options...
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