Jump to content
RemedySpot.com

new

Rate this topic


Guest guest

Recommended Posts

Guest guest

Sorry to hear you are frustrated. Where are you going - clinic? What kind of band? Can you post pics? Is it shifting a lot? How big is gaping? Sometimes ear holes are odd because they have to accomodate the asymmetry now and the corrected later.

Is it possible he was moving a lot during the scan? I've heard they can handle some movement but not a lot. Is it leaving red marks that don't fade in an hour?

Hmm. I hope it gets better.

mom to na, DOC Grad & Kiersten, preventative repo

www.thefilyaws.commcheval6 <actionairhvac@...> wrote:

I am new - just picked up my son's helmet yesterday - I am wondering if everyone else's helmet seems like it is not made right - I am so upset with the fact that it cost me a good amount and he is probably going to need two - but the ear part was way off and now there is a gaping hole - it is rubbing on his cheeks and the back seem very crooked - they did the head scan 4 times - I would think it would have fit a little better! Granted I will be going for adjustments quite often as he grows - he is 5.5 months old - he was 5 weeks premature and he has a twin sister. for a little history. My husband and I are ready to smash the thing!For more plagio info

Link to comment
Share on other sites

Guest guest

Sorry to hear you are frustrated. Where are you going - clinic? What kind of band? Can you post pics? Is it shifting a lot? How big is gaping? Sometimes ear holes are odd because they have to accomodate the asymmetry now and the corrected later.

Is it possible he was moving a lot during the scan? I've heard they can handle some movement but not a lot. Is it leaving red marks that don't fade in an hour?

Hmm. I hope it gets better.

mom to na, DOC Grad & Kiersten, preventative repo

www.thefilyaws.commcheval6 <actionairhvac@...> wrote:

I am new - just picked up my son's helmet yesterday - I am wondering if everyone else's helmet seems like it is not made right - I am so upset with the fact that it cost me a good amount and he is probably going to need two - but the ear part was way off and now there is a gaping hole - it is rubbing on his cheeks and the back seem very crooked - they did the head scan 4 times - I would think it would have fit a little better! Granted I will be going for adjustments quite often as he grows - he is 5.5 months old - he was 5 weeks premature and he has a twin sister. for a little history. My husband and I are ready to smash the thing!For more plagio info

Link to comment
Share on other sites

Guest guest

Welcome to the group. I'm sorry to hear that you are having so much

trouble with the fit. I hope that you have spoken with your orthotist

and that it can be fixed or antoerh helmet can be made. It sounds like

you are having more problems than you should.

Sue

mom to Colin 21 mos.

STARband grad

--- In Plagiocephaly , " mcheval6 " <actionairhvac@m...>

wrote:

> I am new - just picked up my son's helmet yesterday - I am wondering

> if everyone else's helmet seems like it is not made right - I am so

> upset with the fact that it cost me a good amount and he is probably

> going to need two - but the ear part was way off and now there is a

> gaping hole - it is rubbing on his cheeks and the back seem very

> crooked - they did the head scan 4 times - I would think it would

have

> fit a little better! Granted I will be going for adjustments quite

> often as he grows - he is 5.5 months old - he was 5 weeks premature

> and he has a twin sister. for a little history. My husband and I are

> ready to smash the thing!

Link to comment
Share on other sites

Guest guest

Thank you - I am going back Tues and I will be airing my concerns

for sure - also he sweats sooo bad I strip down his clothes - but he

is only wearing it for and hour and his head is dripping when I take

it off - He is quite the trooper! But this is very frustrating to

put him through!

> > I am new - just picked up my son's helmet yesterday - I am

wondering

> > if everyone else's helmet seems like it is not made right - I am

so

> > upset with the fact that it cost me a good amount and he is

probably

> > going to need two - but the ear part was way off and now there

is a

> > gaping hole - it is rubbing on his cheeks and the back seem very

> > crooked - they did the head scan 4 times - I would think it

would

> have

> > fit a little better! Granted I will be going for adjustments

quite

> > often as he grows - he is 5.5 months old - he was 5 weeks

premature

> > and he has a twin sister. for a little history. My husband and

I are

> > ready to smash the thing!

Link to comment
Share on other sites

Guest guest

Thank you - I am going back Tues and I will be airing my concerns

for sure - also he sweats sooo bad I strip down his clothes - but he

is only wearing it for and hour and his head is dripping when I take

it off - He is quite the trooper! But this is very frustrating to

put him through!

> > I am new - just picked up my son's helmet yesterday - I am

wondering

> > if everyone else's helmet seems like it is not made right - I am

so

> > upset with the fact that it cost me a good amount and he is

probably

> > going to need two - but the ear part was way off and now there

is a

> > gaping hole - it is rubbing on his cheeks and the back seem very

> > crooked - they did the head scan 4 times - I would think it

would

> have

> > fit a little better! Granted I will be going for adjustments

quite

> > often as he grows - he is 5.5 months old - he was 5 weeks

premature

> > and he has a twin sister. for a little history. My husband and

I are

> > ready to smash the thing!

Link to comment
Share on other sites

Guest guest

it takes a couple of days for them to adjust to the

heat factor. i would try taking it off at regular

intervals in the beginning to wipe the head and inside

of the helmet down.

--- mcheval6 <actionairhvac@...> wrote:

> Thank you - I am going back Tues and I will be

> airing my concerns

> for sure - also he sweats sooo bad I strip down his

> clothes - but he

> is only wearing it for and hour and his head is

> dripping when I take

> it off - He is quite the trooper! But this is very

> frustrating to

> put him through!

>

>

>

> > > I am new - just picked up my son's helmet

> yesterday - I am

> wondering

> > > if everyone else's helmet seems like it is not

> made right - I am

> so

> > > upset with the fact that it cost me a good

> amount and he is

> probably

> > > going to need two - but the ear part was way off

> and now there

> is a

> > > gaping hole - it is rubbing on his cheeks and

> the back seem very

> > > crooked - they did the head scan 4 times - I

> would think it

> would

> > have

> > > fit a little better! Granted I will be going

> for adjustments

> quite

> > > often as he grows - he is 5.5 months old - he

> was 5 weeks

> premature

> > > and he has a twin sister. for a little history.

> My husband and

> I are

> > > ready to smash the thing!

>

>

>

__________________________________________________

Link to comment
Share on other sites

Guest guest

it takes a couple of days for them to adjust to the

heat factor. i would try taking it off at regular

intervals in the beginning to wipe the head and inside

of the helmet down.

--- mcheval6 <actionairhvac@...> wrote:

> Thank you - I am going back Tues and I will be

> airing my concerns

> for sure - also he sweats sooo bad I strip down his

> clothes - but he

> is only wearing it for and hour and his head is

> dripping when I take

> it off - He is quite the trooper! But this is very

> frustrating to

> put him through!

>

>

>

> > > I am new - just picked up my son's helmet

> yesterday - I am

> wondering

> > > if everyone else's helmet seems like it is not

> made right - I am

> so

> > > upset with the fact that it cost me a good

> amount and he is

> probably

> > > going to need two - but the ear part was way off

> and now there

> is a

> > > gaping hole - it is rubbing on his cheeks and

> the back seem very

> > > crooked - they did the head scan 4 times - I

> would think it

> would

> > have

> > > fit a little better! Granted I will be going

> for adjustments

> quite

> > > often as he grows - he is 5.5 months old - he

> was 5 weeks

> premature

> > > and he has a twin sister. for a little history.

> My husband and

> I are

> > > ready to smash the thing!

>

>

>

__________________________________________________

Link to comment
Share on other sites

Guest guest

Sweating is very normal. The body has to adjust to a hat on in the middle of sumer. They do adjust. His internal thermostat will adjust in a week or so. Keeping him dressed very lightly is key. Maybe a fan in the room would help too. Take it off about every hour and dry the band and his head.

mom to na (2 yrs), DOC Grad & Kiersten (5 weeks) preventative repo

www.thefilyaws.commcheval6 <actionairhvac@...> wrote:

Thank you - I am going back Tues and I will be airing my concerns for sure - also he sweats sooo bad I strip down his clothes - but he is only wearing it for and hour and his head is dripping when I take it off - He is quite the trooper! But this is very frustrating to put him through! > Welcome to the group. I'm sorry to hear that you are having so much > trouble with the fit. I hope that you have spoken with your orthotist > and that it can be fixed or antoerh helmet can be made. It sounds like > you are having more problems than you should.> > Sue> mom to Colin 21 mos.> STARband grad > --- In Plagiocephaly , "mcheval6" <actionairhvac@m...> >

wrote:> > I am new - just picked up my son's helmet yesterday - I am wondering > > if everyone else's helmet seems like it is not made right - I am so > > upset with the fact that it cost me a good amount and he is probably > > going to need two - but the ear part was way off and now there is a > > gaping hole - it is rubbing on his cheeks and the back seem very > > crooked - they did the head scan 4 times - I would think it would > have > > fit a little better! Granted I will be going for adjustments quite > > often as he grows - he is 5.5 months old - he was 5 weeks premature > > and he has a twin sister. for a little history. My husband and I are > > ready to smash the thing!For more plagio info

Link to comment
Share on other sites

Guest guest

My son noah is almost 5 and has alot in common with your daughter. He is a lot

more hyper though. Noah does not really welcome contact with others, but with

me he will go through the motions of hugs and kisses, but he hates it. He also

has had many little " obsessions " and they are very different things. Last fall

it was pumpkins and gords, now for the last 3 months it's been suitcases. He is

very inflexible, and hates change. He was diagnosed with adhd about 8 months

ago, and the specialist we saw 2 months ago called it asperger's and also pdd.

( ) New

I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician

suspects that our 3rd daughter, India, has AS and has referred us to a

specialist who cannot see us until October 19th. If my daughter has AS, it is

very, very mild. However, I could sure use some help in understanding her. She

is an odd duck.

I have wasted an entire afternoon at work looking up resources on the internet

and talking to India's former teachers. Probably overreacting...but it would be

so nice to understand her and get some guidance for where to go from here.

India is pretty rigid/inflexible. She tends to have meltdowns when things

don't go as expected and sometimes she has meltdowns for no apparent reason.

Usually, counting money or focusing on some similar task will help her recoup

from a meltdown.

She has an obsession with researching and comparing dog breeds that has lasted

2 years. (Did I mention that she's 9 1/2 yrs. old?)

She doesn't respond normally in many social situations. She often avoids eye

contact, does not respond warmly to hugs and kisses; she just doesn't seem to

connect. But then sometimes she does. Not the hugs and kisses, but she does

respond " normally " to people often enough that we've only thought of her as a

bit different...not diagnosable.

She has at least one good friend in her class at school, but India won't call

her, invite her over or initiate contact ever. I'm afraid that if the other

girl has to carry the friendship all the time, she will give it up.

The reason I talked to the doctor about her mental health was because she

seems to be anxious and have undue worries that she won't talk about. She's so

" introverted " .

Does anyone else have a similar child? I mean, she seems so normal in so many

ways and yet...

Toni

Link to comment
Share on other sites

Guest guest

You did not waste an entire afternoon at work looking up resources on the

internet and talking to India's former teachers. You were and are trying to

understand!

Toni Hoeppner <toni.hoeppner@...> wrote:I'm so new, we don't even

have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter,

India, has AS and has referred us to a specialist who cannot see us until

October 19th. If my daughter has AS, it is very, very mild. However, I could

sure use some help in understanding her. She is an odd duck.

I have wasted an entire afternoon at work looking up resources on the internet

and talking to India's former teachers. Probably overreacting...but it would be

so nice to understand her and get some guidance for where to go from here.

India is pretty rigid/inflexible. She tends to have meltdowns when things don't

go as expected and sometimes she has meltdowns for no apparent reason. Usually,

counting money or focusing on some similar task will help her recoup from a

meltdown.

She has an obsession with researching and comparing dog breeds that has lasted 2

years. (Did I mention that she's 9 1/2 yrs. old?)

She doesn't respond normally in many social situations. She often avoids eye

contact, does not respond warmly to hugs and kisses; she just doesn't seem to

connect. But then sometimes she does. Not the hugs and kisses, but she does

respond " normally " to people often enough that we've only thought of her as a

bit different...not diagnosable.

She has at least one good friend in her class at school, but India won't call

her, invite her over or initiate contact ever. I'm afraid that if the other

girl has to carry the friendship all the time, she will give it up.

The reason I talked to the doctor about her mental health was because she seems

to be anxious and have undue worries that she won't talk about. She's so

" introverted " .

Does anyone else have a similar child? I mean, she seems so normal in so many

ways and yet...

Toni

Link to comment
Share on other sites

Guest guest

Yep, my 11 y.o. son is exactly the same - I was in your position 1 year ago -

waiting to be seen by specialists...

Toni Hoeppner <toni.hoeppner@...> wrote:I'm so new, we don't even

have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter,

India, has AS and has referred us to a specialist who cannot see us until

October 19th. If my daughter has AS, it is very, very mild. However, I could

sure use some help in understanding her. She is an odd duck.

I have wasted an entire afternoon at work looking up resources on the internet

and talking to India's former teachers. Probably overreacting...but it would be

so nice to understand her and get some guidance for where to go from here.

India is pretty rigid/inflexible. She tends to have meltdowns when things don't

go as expected and sometimes she has meltdowns for no apparent reason. Usually,

counting money or focusing on some similar task will help her recoup from a

meltdown.

She has an obsession with researching and comparing dog breeds that has lasted 2

years. (Did I mention that she's 9 1/2 yrs. old?)

She doesn't respond normally in many social situations. She often avoids eye

contact, does not respond warmly to hugs and kisses; she just doesn't seem to

connect. But then sometimes she does. Not the hugs and kisses, but she does

respond " normally " to people often enough that we've only thought of her as a

bit different...not diagnosable.

She has at least one good friend in her class at school, but India won't call

her, invite her over or initiate contact ever. I'm afraid that if the other

girl has to carry the friendship all the time, she will give it up.

The reason I talked to the doctor about her mental health was because she seems

to be anxious and have undue worries that she won't talk about. She's so

" introverted " .

Does anyone else have a similar child? I mean, she seems so normal in so many

ways and yet...

Toni

Link to comment
Share on other sites

Guest guest

Mike: Do other people think that Noah is very different? Or just odd? I don't

know what to think about my dd because she seem's VERY normal, just a little

different and diffficult.

When she was two, she would wake up in the middle of the night just about every

night and chant " India wants a drink " (except it came out " Ee-yah ahnts a gink "

) over and over and over until someone got up and brought her a drink. I

thought it was just cute and persistent...now I wonder....

( ) New

I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician

suspects that our 3rd daughter, India, has AS and has referred us to a

specialist who cannot see us until October 19th. If my daughter has AS, it is

very, very mild. However, I could sure use some help in understanding her. She

is an odd duck.

I have wasted an entire afternoon at work looking up resources on the

internet and talking to India's former teachers. Probably overreacting...but it

would be so nice to understand her and get some guidance for where to go from

here.

India is pretty rigid/inflexible. She tends to have meltdowns when things

don't go as expected and sometimes she has meltdowns for no apparent reason.

Usually, counting money or focusing on some similar task will help her recoup

from a meltdown.

She has an obsession with researching and comparing dog breeds that has

lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?)

She doesn't respond normally in many social situations. She often avoids

eye contact, does not respond warmly to hugs and kisses; she just doesn't seem

to connect. But then sometimes she does. Not the hugs and kisses, but she does

respond " normally " to people often enough that we've only thought of her as a

bit different...not diagnosable.

She has at least one good friend in her class at school, but India won't

call her, invite her over or initiate contact ever. I'm afraid that if the

other girl has to carry the friendship all the time, she will give it up.

The reason I talked to the doctor about her mental health was because she

seems to be anxious and have undue worries that she won't talk about. She's so

" introverted " .

Does anyone else have a similar child? I mean, she seems so normal in so

many ways and yet...

Toni

Link to comment
Share on other sites

Guest guest

Thanks, Dave. I know it wasn't a waste of time, but my boss is paying me to do

it...

However, I'll make it up somehow.

Toni

Re: ( ) New

You did not waste an entire afternoon at work looking up resources on the

internet and talking to India's former teachers. You were and are trying to

understand!

Toni Hoeppner <toni.hoeppner@...> wrote:I'm so new, we don't even

have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter,

India, has AS and has referred us to a specialist who cannot see us until

October 19th. If my daughter has AS, it is very, very mild. However, I could

sure use some help in understanding her. She is an odd duck.

I have wasted an entire afternoon at work looking up resources on the internet

and talking to India's former teachers. Probably overreacting...but it would be

so nice to understand her and get some guidance for where to go from here.

India is pretty rigid/inflexible. She tends to have meltdowns when things

don't go as expected and sometimes she has meltdowns for no apparent reason.

Usually, counting money or focusing on some similar task will help her recoup

from a meltdown.

She has an obsession with researching and comparing dog breeds that has lasted

2 years. (Did I mention that she's 9 1/2 yrs. old?)

She doesn't respond normally in many social situations. She often avoids eye

contact, does not respond warmly to hugs and kisses; she just doesn't seem to

connect. But then sometimes she does. Not the hugs and kisses, but she does

respond " normally " to people often enough that we've only thought of her as a

bit different...not diagnosable.

She has at least one good friend in her class at school, but India won't call

her, invite her over or initiate contact ever. I'm afraid that if the other

girl has to carry the friendship all the time, she will give it up.

The reason I talked to the doctor about her mental health was because she

seems to be anxious and have undue worries that she won't talk about. She's so

" introverted " .

Does anyone else have a similar child? I mean, she seems so normal in so many

ways and yet...

Toni

Link to comment
Share on other sites

Guest guest

Ana:

When you have time, could you tell me a little about your son? I guess I want

to reassure myself that I'm on the right track. Thanks,

Toni

Re: ( ) New

Yep, my 11 y.o. son is exactly the same - I was in your position 1 year ago -

waiting to be seen by specialists...

Toni Hoeppner <toni.hoeppner@...> wrote:I'm so new, we don't even

have a diagnosis of AS yet. Our pediatrician suspects that our 3rd daughter,

India, has AS and has referred us to a specialist who cannot see us until

October 19th. If my daughter has AS, it is very, very mild. However, I could

sure use some help in understanding her. She is an odd duck.

I have wasted an entire afternoon at work looking up resources on the internet

and talking to India's former teachers. Probably overreacting...but it would be

so nice to understand her and get some guidance for where to go from here.

India is pretty rigid/inflexible. She tends to have meltdowns when things

don't go as expected and sometimes she has meltdowns for no apparent reason.

Usually, counting money or focusing on some similar task will help her recoup

from a meltdown.

She has an obsession with researching and comparing dog breeds that has lasted

2 years. (Did I mention that she's 9 1/2 yrs. old?)

She doesn't respond normally in many social situations. She often avoids eye

contact, does not respond warmly to hugs and kisses; she just doesn't seem to

connect. But then sometimes she does. Not the hugs and kisses, but she does

respond " normally " to people often enough that we've only thought of her as a

bit different...not diagnosable.

She has at least one good friend in her class at school, but India won't call

her, invite her over or initiate contact ever. I'm afraid that if the other

girl has to carry the friendship all the time, she will give it up.

The reason I talked to the doctor about her mental health was because she

seems to be anxious and have undue worries that she won't talk about. She's so

" introverted " .

Does anyone else have a similar child? I mean, she seems so normal in so many

ways and yet...

Toni

Link to comment
Share on other sites

Guest guest

Mike,

After thinking more about this and reading your email, I made it a point to hug

India last night. She was very stiff and held herself away from me. However,

when I told her that wasn't a real hug (in a laughing way) she let herself relax

against me in real hug. But it was short. I guess I can't complain too much,

though. Maybe with some extra attention to her " quirky ways " and extra time

teaching and encouraging her she will develop her ability to relate to others.

Toni

( ) New

I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician

suspects that our 3rd daughter, India, has AS and has referred us to a

specialist who cannot see us until October 19th. If my daughter has AS, it is

very, very mild. However, I could sure use some help in understanding her. She

is an odd duck.

I have wasted an entire afternoon at work looking up resources on the

internet and talking to India's former teachers. Probably overreacting...but it

would be so nice to understand her and get some guidance for where to go from

here.

India is pretty rigid/inflexible. She tends to have meltdowns when things

don't go as expected and sometimes she has meltdowns for no apparent reason.

Usually, counting money or focusing on some similar task will help her recoup

from a meltdown.

She has an obsession with researching and comparing dog breeds that has

lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?)

She doesn't respond normally in many social situations. She often avoids

eye contact, does not respond warmly to hugs and kisses; she just doesn't seem

to connect. But then sometimes she does. Not the hugs and kisses, but she does

respond " normally " to people often enough that we've only thought of her as a

bit different...not diagnosable.

She has at least one good friend in her class at school, but India won't

call her, invite her over or initiate contact ever. I'm afraid that if the

other girl has to carry the friendship all the time, she will give it up.

The reason I talked to the doctor about her mental health was because she

seems to be anxious and have undue worries that she won't talk about. She's so

" introverted " .

Does anyone else have a similar child? I mean, she seems so normal in so

many ways and yet...

Toni

Link to comment
Share on other sites

Guest guest

I think people think he is a handful, b/c he is. I don't let a lot of people

know about his obsessive qualities, I think that would be hard to explain. Noah

is VERY difficult, we have him on Adderall for behavior, helps a little. The

letdown when it wears out is awful though. He is very persistant!! Sheri

( ) New

I'm so new, we don't even have a diagnosis of AS yet. Our pediatrician

suspects that our 3rd daughter, India, has AS and has referred us to a

specialist who cannot see us until October 19th. If my daughter has AS, it is

very, very mild. However, I could sure use some help in understanding her. She

is an odd duck.

I have wasted an entire afternoon at work looking up resources on the

internet and talking to India's former teachers. Probably overreacting...but it

would be so nice to understand her and get some guidance for where to go from

here.

India is pretty rigid/inflexible. She tends to have meltdowns when things

don't go as expected and sometimes she has meltdowns for no apparent reason.

Usually, counting money or focusing on some similar task will help her recoup

from a meltdown.

She has an obsession with researching and comparing dog breeds that has

lasted 2 years. (Did I mention that she's 9 1/2 yrs. old?)

She doesn't respond normally in many social situations. She often avoids

eye contact, does not respond warmly to hugs and kisses; she just doesn't seem

to connect. But then sometimes she does. Not the hugs and kisses, but she does

respond " normally " to people often enough that we've only thought of her as a

bit different...not diagnosable.

She has at least one good friend in her class at school, but India won't

call her, invite her over or initiate contact ever. I'm afraid that if the

other girl has to carry the friendship all the time, she will give it up.

The reason I talked to the doctor about her mental health was because she

seems to be anxious and have undue worries that she won't talk about. She's so

" introverted " .

Does anyone else have a similar child? I mean, she seems so normal in so

many ways and yet...

Toni

Link to comment
Share on other sites

Guest guest

momct1 <snoopfish1@...> wrote:

My ds - 18 and a junior (we started him " late " in school because of

his poor social skills) - has not been dxd w/AS, but as a pdoc was

discussing symptoms re my dd, I saw so much of my ds when he was

young. He had/has his tics, played with his back to the room, had a

friend over and read his animal books while his friend played on the

computer, solely interested in animals, ignored friends greetings,

can't understand feelings, etc.

He now has a large group of friends and is very bright, but continues

to have an problem with essays or research papers that he can not

seem to overcome. He totally blew off a major college-in-the-school

assignment to take a C in the course because he just couldn't start

the assignment (and he had a semester to try). This is the only time

he falls below an A in a subject and he dislikes getting lower

grades.

I've read in other posts bits and pieces about inability to complete

some school pieces attributed to Asperger's, but can't find anything

official. As usual, I'm looking for causes and solutions for a problem

we've never been able to understand!

Hi ,

try looking up " Executive Dysfunction " and that should help find some ideas for

helping. Most kids I know who can't start an assignment - especially a large

one - need specific help to break the assignment down into manageable pieces.

They need someone who can set deadlines, help them stay focused and give them

ideas when they get stuck. My 16 yo is this way and he just is so overwhelmed

that he often will give up before he starts. Or he will throw anything down on

paper to just say it was done.

Roxanna ô¿ô

Don't take life too seriously; No one gets out alive.

---------------------------------

Start your day with - make it your home page

Link to comment
Share on other sites

  • 3 months later...
  • 4 weeks later...

Many on this list use Houston (HNI) enzymes and some have found they can go off

the gfcf diet. Many on this list use oral DMSA and/or ALA for chelation, some

without a doctor.

S S

Hi everyone,

My ultimate hope is that through chelation and enzymes we will eventually be

able to reintroduce gluten/casein and phenols back into his diet. 

Thanks so much for any and all input!

Gretchen

=======================================================

Link to comment
Share on other sites

Hi Gretchen;

I can vouch for it. We just started TD DMPS. First two doses we did

using the every other day big dose like our doc said. But we changed

that upon new information.

Dr Cutler seems to say DMSA is the best chelator of Mercury.

The other doctor (whose name I won't mention here for obvious reasons)

says DMPS works " 10 times " better than DMSA. I'm not an expert but I

discern they both can work well (some work better for some kids, however).

But the one thing I have become convinced about is that Cutler is

absolutely correct in that frequent and smaller doses are much more

effective than the big dose at longer intervals.

I was reading one post from a parent who had been using DMPS for over

a year, doing the big single dose every other day, with no results.

He switched protocols (to Cutler's) and saw results immediately.

So in effect, I'm mixing protocols. We're almost done with the first

3-day " on " cycle. Harps and Halo so far. (I guess that's the

opposite of Horns & Tail). We are having great results on the outset

of chelation. I'll elaborate some...

We have noted small changes in Seth already. He is walking around

trying to use more language. Last night he woke up with diarrhea, and

the wife and I went in and cleaned it all up. I said " Good night

Seth. " He responded " Good night Daddy. Good night Mommy. " When we

left his room and closed his door, I just looked at the wife with one

eyebrow lifted up, and she gave me a smile and a nod. Looks like it's

working.

Today was even better. I left home for church. When I came back the

wife said that Seth was walking around the house looking for a couple

of toys which she accidentally left at her sister's yesterday.

" Where's Woody? Where's Buzz? " (from the movie Toy Story). This is a

sentence structure he's never used, and believe me, he only knows how

to properly use a few types (I want..., Seth like...). Then she told

me he grabbed the " drops " (TD-DMPS), and she told him daddy does the

drops. So then he says " Where is Daddy? Daddy is upstairs " , and goes

upstairs and looks all over for me, comes back down and says " Daddy is

in the garage " , and goes out the dog door to find me. He's carrying

the drops with him all over the house looking for me. He's not really

acting " strange " , either.

I guess it's just too bad that after today he goes on the " off " cycle

for 4 days. Not sure he's going to understand that. Luckily I taught

him the days of the week, so maybe with some luck he'll grasp it.

I'm sure there will be rough times ahead, though. Things don't

usually go this smoothly for many parents ( " Horns & Tail " ). (Does

anybody know where that phrase came from?).

Mark

>

> Hi everyone,

>

> I am new to this group, and am interested in other's thoughts. I

have an almost 6 year old boy that was diagnosed with mild autism at

age 2. We began aggresive ABA therapy right away which did wonders.

We later added the GFCF/low phenol diet which made the biggest

difference of all. He no longer has any diagnosis and his PDD trates

are almost indistinguishable provided we keep him firmly on the diet.

>

> Now for chelation. I had fillings put in shortly before becoming

pregnant and my son also had his vaccines. I believe both events

played a big role in his autism. My ultimate hope is that through

chelation and enzymes we will eventually be able to reintroduce

gluten/casein and phenols back into his diet.

>

> Questions:

> 1) I am seeing many people that have not had much success with

chelation. Are there any out there that can share some positive

outcomes using the transdermal DMPS?

>

> 2) Our DAN doctor follows the Buttar method to the tee. He,

therefore, is recommending that we provide the transdermal DMPS every

other day. I have seen that many people are doing the several days

on/several days off method. Has anyone used the one day on/one day

off method with any success?

>

> Thanks so much for any and all input!

> Gretchen

>

>

Link to comment
Share on other sites

Hello Gretchen,

> Now for chelation. I had fillings put in shortly before becoming

pregnant and my son also had his vaccines. I believe both events

played a big role in his autism. My ultimate hope is that through

chelation and enzymes we will eventually be able to reintroduce

gluten/casein and phenols back into his diet.

yes, let's hope for that!

> 2) Our DAN doctor follows the Buttar method to the tee. He,

therefore, is recommending that we provide the transdermal DMPS

every other day. I have seen that many people are doing the several

days on/several days off method. Has anyone used the one day on/one

day off method with any success?

I have to believe there are some people who are having sucess

with this. I think there are a FEW reports of good results on

this list, but a lot of the reports here are from people using

the every-8-hour dosing. I think you will find more people

who are using every-other-day dosing on the list

chelatingkids2. I don't know how many have good vs bad

results reported there, since I am not allowed to join that

list.

good wishes,

Moria

Link to comment
Share on other sites

>... on the list chelatingkids2. I don't know how many have good vs bad

> results reported there, since I am not allowed to join that

> list.

> good wishes,

> Moria

>

I benefit from both lists. Are they mad because you expressed non-DAN

viewpoints? I find that sad, if they are not allowing the free flow

of information.

Mark

Link to comment
Share on other sites

> >... on the list chelatingkids2. I don't know how many have good

vs bad

> > results reported there, since I am not allowed to join that

> > list.

>

> > good wishes,

> > Moria

> >

>

> I benefit from both lists. Are they mad because you expressed non-

DAN

> viewpoints? I find that sad, if they are not allowing the free

flow

> of information.

>

> Mark

chelatingkids2 has requirements to join.

I am not certain PRECISELY what the requirements are-- but

it is something LIKE that you are a parent or grandparent of

a child that is chelating (or planning for chelating) and

under the care of a doctor.

NOTE: if any of the moderators for that list wishes to correct

the above, feel free.

Since I am not a parent or grandparent, I am unlikely to

meet these requirements any time soon. (I suppose I could

adopt an ASD child?) Also, I chelated mySELF without being

under the care of a doctor.

There are a number of people who don't qualify to join because

of these requirements -- Dana, and Andy come to mind. I believe

S would not qualify.

A number of people read both lists though, so it is sometimes

possible to get general impressions of what is discussed.

I read other lists, and, actually, I don't read nearly as

many lists as I used to.

Moria

Link to comment
Share on other sites

>>My ultimate hope is that through chelation and enzymes we will

eventually be able to reintroduce gluten/casein and phenols back into

his diet.

ALA chelation, HNI enzymes, and B vitamins allowed my son to eat

anything he wanted, and no more gut yeast issues.

> 1) I am seeing many people that have not had much success with

chelation. Are there any out there that can share some positive

outcomes using the transdermal DMPS?

Just about the only thing that ALA chelation did for my son was

eliminate food and supplement intolerance and gut yeast issues. All

the rest of his improvement came from the supplements that he was then

able to tolerate. I did not use DMPS tho, I used oral ALA.

Dana

Link to comment
Share on other sites

In a message dated 29/11/2005 00:09:12 GMT Standard Time,

redrackem@... writes:

You're welcome - but since I've been corrected on the statement " Dr

Cutler seems to say DMSA is the best chelator of Mercury. " .

Dr Cutler says ALA is the best chelator of mercury according to those

who have been in this group longer. Please read the followup posts

with the subject What does Andy say about DMSA.

>>>>And Dr Cutler doesn't like being called Dr :) (Wink)

He doesn't mind what else you call him...................:)

Mandi in UK

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...