new

[Guest guest]

Thank you so much Mark. This information has been very helpful. I'll keep you

posted!

Gretchen

[ ] Re: New

Hi Gretchen;

I can vouch for it. We just started TD DMPS. First two doses we did

using the every other day big dose like our doc said. But we changed

that upon new information.

Dr Cutler seems to say DMSA is the best chelator of Mercury.

The other doctor (whose name I won't mention here for obvious reasons)

says DMPS works " 10 times " better than DMSA. I'm not an expert but I

discern they both can work well (some work better for some kids, however).

But the one thing I have become convinced about is that Cutler is

absolutely correct in that frequent and smaller doses are much more

effective than the big dose at longer intervals.

I was reading one post from a parent who had been using DMPS for over

a year, doing the big single dose every other day, with no results.

He switched protocols (to Cutler's) and saw results immediately.

So in effect, I'm mixing protocols. We're almost done with the first

3-day " on " cycle. Harps and Halo so far. (I guess that's the

opposite of Horns & Tail). We are having great results on the outset

of chelation. I'll elaborate some...

We have noted small changes in Seth already. He is walking around

trying to use more language. Last night he woke up with diarrhea, and

the wife and I went in and cleaned it all up. I said " Good night

Seth. " He responded " Good night Daddy. Good night Mommy. " When we

left his room and closed his door, I just looked at the wife with one

eyebrow lifted up, and she gave me a smile and a nod. Looks like it's

working.

Today was even better. I left home for church. When I came back the

wife said that Seth was walking around the house looking for a couple

of toys which she accidentally left at her sister's yesterday.

" Where's Woody? Where's Buzz? " (from the movie Toy Story). This is a

sentence structure he's never used, and believe me, he only knows how

to properly use a few types (I want..., Seth like...). Then she told

me he grabbed the " drops " (TD-DMPS), and she told him daddy does the

drops. So then he says " Where is Daddy? Daddy is upstairs " , and goes

upstairs and looks all over for me, comes back down and says " Daddy is

in the garage " , and goes out the dog door to find me. He's carrying

the drops with him all over the house looking for me. He's not really

acting " strange " , either.

I guess it's just too bad that after today he goes on the " off " cycle

for 4 days. Not sure he's going to understand that. Luckily I taught

him the days of the week, so maybe with some luck he'll grasp it.

I'm sure there will be rough times ahead, though. Things don't

usually go this smoothly for many parents ( " Horns & Tail " ). (Does

anybody know where that phrase came from?).

Mark

>

> Hi everyone,

>

> I am new to this group, and am interested in other's thoughts. I

have an almost 6 year old boy that was diagnosed with mild autism at

age 2. We began aggresive ABA therapy right away which did wonders.

We later added the GFCF/low phenol diet which made the biggest

difference of all. He no longer has any diagnosis and his PDD trates

are almost indistinguishable provided we keep him firmly on the diet.

>

> Now for chelation. I had fillings put in shortly before becoming

pregnant and my son also had his vaccines. I believe both events

played a big role in his autism. My ultimate hope is that through

chelation and enzymes we will eventually be able to reintroduce

gluten/casein and phenols back into his diet.

>

> Questions:

> 1) I am seeing many people that have not had much success with

chelation. Are there any out there that can share some positive

outcomes using the transdermal DMPS?

>

> 2) Our DAN doctor follows the Buttar method to the tee. He,

therefore, is recommending that we provide the transdermal DMPS every

other day. I have seen that many people are doing the several days

on/several days off method. Has anyone used the one day on/one day

off method with any success?

>

> Thanks so much for any and all input!

> Gretchen

>

>

[Guest guest]

Hi Gretchen;

You're welcome - but since I've been corrected on the statement " Dr

Cutler seems to say DMSA is the best chelator of Mercury. " .

Dr Cutler says ALA is the best chelator of mercury according to those

who have been in this group longer. Please read the followup posts

with the subject What does Andy say about DMSA.

Good luck!

Mark

> >

> > Hi everyone,

> >

> > I am new to this group, and am interested in other's thoughts.

I

> have an almost 6 year old boy that was diagnosed with mild autism

at

> age 2. We began aggresive ABA therapy right away which did

wonders.

> We later added the GFCF/low phenol diet which made the biggest

> difference of all. He no longer has any diagnosis and his PDD

trates

> are almost indistinguishable provided we keep him firmly on the

diet.

> >

> > Now for chelation. I had fillings put in shortly before

becoming

> pregnant and my son also had his vaccines. I believe both events

> played a big role in his autism. My ultimate hope is that through

> chelation and enzymes we will eventually be able to reintroduce

> gluten/casein and phenols back into his diet.

> >

> > Questions:

> > 1) I am seeing many people that have not had much success with

> chelation. Are there any out there that can share some positive

> outcomes using the transdermal DMPS?

> >

> > 2) Our DAN doctor follows the Buttar method to the tee. He,

> therefore, is recommending that we provide the transdermal DMPS

every

> other day. I have seen that many people are doing the several

days

> on/several days off method. Has anyone used the one day on/one

day

> off method with any success?

> >

> > Thanks so much for any and all input!

> > Gretchen

> >

> >

[Guest guest]

Hi Barb,

Welcome back to the group! :-) What's the name of the place you're

going to? We don't have it listed in our helmet/band database, I'd

like to add it. Do you know how much experience your orthotist has?

Experience is SUPER important when it comes to treating plagio babies

w/a band or helmet.

We have had many member's receive excellent results from their

STARband, when the orthotist was experienced.

If you get a chance please add the place you're going to into the

helmet/band database. If you don't know how to do that you can send it

to me and I'll add it. Keep us posted!

-- In Plagiocephaly , " Barbara " <oreonibbles@y...> wrote:

>

> Hello,

> I belonged to this group a few months ago, but things weren't going

> ahead with the band, so I stopped posting. Well, things are finally

> happening. I'll give you a little info about me and my daughter. My

> name is Barb and I'm 31 years old. I live in Minnesota with my husband

> (Chris) and daughter (). She is 7 months old (almost 8). At her

> 6 month check up I asked the ped about her head. He referred me to a

> clinic in Wisconsin. I had to wait for the insurance and everything.

> Today we had her casting. We found out she is a mixture of

> plagiocephaly and brachyephaly. The casting didn't go too bad. She did

> cry, but didn't scream or anything. She is getting the Starband. Anyone

> else have this one? How does your child like it? We go back on the 30th

> to get the band.

>

> Barb

>

[Guest guest]

Hi Barb,

Welcome back to the group! :-) What's the name of the place you're

going to? We don't have it listed in our helmet/band database, I'd

like to add it. Do you know how much experience your orthotist has?

Experience is SUPER important when it comes to treating plagio babies

w/a band or helmet.

We have had many member's receive excellent results from their

STARband, when the orthotist was experienced.

If you get a chance please add the place you're going to into the

helmet/band database. If you don't know how to do that you can send it

to me and I'll add it. Keep us posted!

-- In Plagiocephaly , " Barbara " <oreonibbles@y...> wrote:

>

> Hello,

> I belonged to this group a few months ago, but things weren't going

> ahead with the band, so I stopped posting. Well, things are finally

> happening. I'll give you a little info about me and my daughter. My

> name is Barb and I'm 31 years old. I live in Minnesota with my husband

> (Chris) and daughter (). She is 7 months old (almost 8). At her

> 6 month check up I asked the ped about her head. He referred me to a

> clinic in Wisconsin. I had to wait for the insurance and everything.

> Today we had her casting. We found out she is a mixture of

> plagiocephaly and brachyephaly. The casting didn't go too bad. She did

> cry, but didn't scream or anything. She is getting the Starband. Anyone

> else have this one? How does your child like it? We go back on the 30th

> to get the band.

>

> Barb

>

[Guest guest]

Barb,

Welcome! We have many Starband parents here who will share thier

stories with you. While waiting for the band to come, check out the

files section here and do some reading. Two important files will

be " Getting a good fit " and " Helping baby adjust to the band " . Most

babies adjust to the bands pretty quickly, within a week. The files

will help prepare you for how to help her. Keep a positive attitude

and ask all the questions you need to. Again Welcome.

CAROLG

--- In Plagiocephaly , " Barbara " <oreonibbles@y...>

wrote:

>

> Hello,

> I belonged to this group a few months ago, but things weren't

going

> ahead with the band, so I stopped posting. Well, things are finally

> happening. I'll give you a little info about me and my daughter. My

> name is Barb and I'm 31 years old. I live in Minnesota with my

husband

> (Chris) and daughter (). She is 7 months old (almost 8). At

her

> 6 month check up I asked the ped about her head. He referred me to

a

> clinic in Wisconsin. I had to wait for the insurance and

everything.

> Today we had her casting. We found out she is a mixture of

> plagiocephaly and brachyephaly. The casting didn't go too bad. She

did

> cry, but didn't scream or anything. She is getting the Starband.

Anyone

> else have this one? How does your child like it? We go back on the

30th

> to get the band.

>

> Barb

>

[Guest guest]

Barb,

Welcome! We have many Starband parents here who will share thier

stories with you. While waiting for the band to come, check out the

files section here and do some reading. Two important files will

be " Getting a good fit " and " Helping baby adjust to the band " . Most

babies adjust to the bands pretty quickly, within a week. The files

will help prepare you for how to help her. Keep a positive attitude

and ask all the questions you need to. Again Welcome.

CAROLG

--- In Plagiocephaly , " Barbara " <oreonibbles@y...>

wrote:

>

> Hello,

> I belonged to this group a few months ago, but things weren't

going

> ahead with the band, so I stopped posting. Well, things are finally

> happening. I'll give you a little info about me and my daughter. My

> name is Barb and I'm 31 years old. I live in Minnesota with my

husband

> (Chris) and daughter (). She is 7 months old (almost 8). At

her

> 6 month check up I asked the ped about her head. He referred me to

a

> clinic in Wisconsin. I had to wait for the insurance and

everything.

> Today we had her casting. We found out she is a mixture of

> plagiocephaly and brachyephaly. The casting didn't go too bad. She

did

> cry, but didn't scream or anything. She is getting the Starband.

Anyone

> else have this one? How does your child like it? We go back on the

30th

> to get the band.

>

> Barb

>

[Guest guest]

I would not put my child on all those poisons until I knew for sure

take them to a teaching hospital and see what they say.. don't tell them you

have been other places.

[ ] New

> Hi! My name is Amber, I was just wondering if anyone here has heard

> of Sjogerns Syndrome. Here's my story. My 8 year old son has

> complained of back pain for about two years. The doctor did several

> blood tests. and on the last one sent us to a rheumatolgist. The

> rhuemy said he has Sjogern's Syndrome. The doc asked if he had dry

> mouth or eyes. I said no, so he popped open my son's eye and said yes

> he does. Well, I had to take him to the eye doctor before he could

> start his meds of Plaquenil. Something I didn't want him to take

> after reading the website about it. (Relativly small doses are fatal

> to children) Well, the eye doctor asked how long my son's eyes have

> been dried, I said there not. And I went through the whole spill.

> Well, he did the dye test and my son did not have one single dry spot

> in his eye. Just allergies. I also know that it mostly affects women

> in there 40-50's. So, I'm thinking about starting all over and going

> to different doctors. I mean all I've heard and read about Sjogerns

> is dry mouth and eyes. He has none of it. Just a small pain in his

> lower back. Can anyone tell me anything. Thank-you so much.

>

>

>

>

>

>

>

>

>

[Guest guest]

Amber, I recently diagnosed myself with Sjogren's, but now realize I've had

it for a couple of years off and on. One other symptom I discovered is dry

sinuses along with dry eyes and mouth. I guess your son, if he has it, is

suffering only occasionally. That could explain why the docs have differing

opinions. I've also had back problems that are not constant. They are hard

to diagnose when the pain may not be there at exam time. I do hope the

source of that pain is discovered soon, it's not good to have something like

that with no explanation.

Your statement, " Relativly small doses ARE fatal to children " , tend to scare

me. Are you sure it said that or did it say, " Relatively small doses MAY BE

fatal to children " ? There's a big difference between the two words, and

certainly not something you should be publishing if it's not accurate.

Plaquenil wouldn't be prescribed for him if it were that dangerous.

Dennis

[ ] New

> Hi! My name is Amber, I was just wondering if anyone here has heard

> of Sjogerns Syndrome. Here's my story. My 8 year old son has

> complained of back pain for about two years. The doctor did several

> blood tests. and on the last one sent us to a rheumatolgist. The

> rhuemy said he has Sjogern's Syndrome. The doc asked if he had dry

> mouth or eyes. I said no, so he popped open my son's eye and said yes

> he does. Well, I had to take him to the eye doctor before he could

> start his meds of Plaquenil. Something I didn't want him to take

> after reading the website about it. (Relativly small doses are fatal

> to children) Well, the eye doctor asked how long my son's eyes have

> been dried, I said there not. And I went through the whole spill.

> Well, he did the dye test and my son did not have one single dry spot

> in his eye. Just allergies. I also know that it mostly affects women

> in there 40-50's. So, I'm thinking about starting all over and going

> to different doctors. I mean all I've heard and read about Sjogerns

> is dry mouth and eyes. He has none of it. Just a small pain in his

> lower back. Can anyone tell me anything. Thank-you so much.

[Guest guest]

I've never heard of children getting S.S. I'd get a second opinion.

Trust your instincts!

Sierra

>

> > Hi! My name is Amber, I was just wondering if anyone here has

heard

> > of Sjogerns Syndrome. Here's my story. My 8 year old son has

> > complained of back pain for about two years. The doctor did

several

> > blood tests. and on the last one sent us to a rheumatolgist. The

> > rhuemy said he has Sjogern's Syndrome. The doc asked if he had

dry

> > mouth or eyes. I said no, so he popped open my son's eye and said

yes

> > he does. Well, I had to take him to the eye doctor before he

could

> > start his meds of Plaquenil. Something I didn't want him to take

> > after reading the website about it. (Relativly small doses are

fatal

> > to children) Well, the eye doctor asked how long my son's eyes

have

> > been dried, I said there not. And I went through the whole spill.

> > Well, he did the dye test and my son did not have one single dry

spot

> > in his eye. Just allergies. I also know that it mostly affects

women

> > in there 40-50's. So, I'm thinking about starting all over and

going

> > to different doctors. I mean all I've heard and read about

Sjogerns

> > is dry mouth and eyes. He has none of it. Just a small pain in

his

> > lower back. Can anyone tell me anything. Thank-you so much.

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Welcome Amber,

This is a wonderful group of people. I'm sure someone can help you

with your questions, Tawny

--- In , " Amber Ivey " <ambern0279@...>

wrote:

>

> Hi! My name is Amber, I was just wondering if anyone here has

heard

> of Sjogerns Syndrome. Here's my story. My 8 year old son has

> complained of back pain for about two years. The doctor did

several

> blood tests. and on the last one sent us to a rheumatolgist. The

> rhuemy said he has Sjogern's Syndrome. The doc asked if he had dry

> mouth or eyes. I said no, so he popped open my son's eye and said

yes

> he does. Well, I had to take him to the eye doctor before he could

> start his meds of Plaquenil. Something I didn't want him to take

> after reading the website about it. (Relativly small doses are

fatal

> to children) Well, the eye doctor asked how long my son's eyes

have

> been dried, I said there not. And I went through the whole spill.

> Well, he did the dye test and my son did not have one single dry

spot

> in his eye. Just allergies. I also know that it mostly affects

women

> in there 40-50's. So, I'm thinking about starting all over and

going

> to different doctors. I mean all I've heard and read about

Sjogerns

> is dry mouth and eyes. He has none of it. Just a small pain in

his

> lower back. Can anyone tell me anything. Thank-you so much.

>

[Guest guest]

thanks, i am. i am taking him to a new peditrician and starting all

over with his back hurts. all new tests and everything. we have a

dr. appointment on may 9th. i just read on another plaqunil website

that it is not safe to use to treat juvenile arthritis. i don't

like reading things like that. but thanks for responding and sorry

i am not using any capitol letters but my shift keys are not working

i think i need to chage my batteries in my keyboard. amber

>

> I've never heard of children getting S.S. I'd get a second

opinion.

> Trust your instincts!

>

> Sierra

> >

> > > Hi! My name is Amber, I was just wondering if anyone here has

> heard

> > > of Sjogerns Syndrome. Here's my story. My 8 year old son has

> > > complained of back pain for about two years. The doctor did

> several

> > > blood tests. and on the last one sent us to a rheumatolgist.

The

> > > rhuemy said he has Sjogern's Syndrome. The doc asked if he

had

> dry

> > > mouth or eyes. I said no, so he popped open my son's eye and

said

> yes

> > > he does. Well, I had to take him to the eye doctor before he

> could

> > > start his meds of Plaquenil. Something I didn't want him to

take

> > > after reading the website about it. (Relativly small doses are

> fatal

> > > to children) Well, the eye doctor asked how long my son's

eyes

> have

> > > been dried, I said there not. And I went through the whole

spill.

> > > Well, he did the dye test and my son did not have one single

dry

> spot

> > > in his eye. Just allergies. I also know that it mostly

affects

> women

> > > in there 40-50's. So, I'm thinking about starting all over and

> going

> > > to different doctors. I mean all I've heard and read about

> Sjogerns

> > > is dry mouth and eyes. He has none of it. Just a small pain

in

> his

> > > lower back. Can anyone tell me anything. Thank-you so much.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi ,

I used to be a photographer, so let me answer that question from a

different point of view. Some of the most beautiful pictures do not

have a person smiling into the camera, but looking off into the

distance. You might want to think about a picture in those terms.

The other thing you might want to do is just take the portrait

yourself, outside in a setting that your daughter is used to and

likes. She will respond to you better than a stranger anyway. That

will give you more of a chance to get the photo you want, and then

you can take it to a lab and get it cropped and blown up to whatever

size you want.

Good luck

>

> hi!

>

> my nearly two year old daughter, penelope, has been recently

diagnosed with

> pdd-nos and ive joined this list in an attmept to get advice, tips

and

> support from other parents going through something similar. i also

believe

> my husband (as does he and our developmetnal pediatrician) suffers

from

> 'aspergers light' and perhaps i could get more information on that

too.

>

> anyway, to get right into it, this morning i have been thinking

about her 2

> year birthday portraits. we have done some social training thanks

to the

> school she now attends along with ot and pt. this includes

attending school

> twice a week (in the fall in will be four days) and making

an 'action' book

> that has pictures of her doing every day things to help her with

transitions

> - and she really has blossomed witht the help of it, ot, and st.

but do

> any of you have any advice or tips about taking asd toddlers to a

portrait

> studio? ideally, id like her to smile and look at the camera. but

in

> reality, i realize thats a pretty big expectation so id just be

happy to

> have her not crying and completely freaked out.

>

> thanks for reading!

>

> meg

>

[Guest guest]

Now that I've been thinking of it; if you do go the studio route,

it's always good to bring a kids own toys, or blankets, or bear, or

whatever to calm them and maybe if YOU get a portrait done, or a

picture with her first, it might take the " scarey " out of it.

Just a couple of more thoughts.....

>

> hi!

>

> my nearly two year old daughter, penelope, has been recently

diagnosed with

> pdd-nos and ive joined this list in an attmept to get advice, tips

and

> support from other parents going through something similar. i also

believe

> my husband (as does he and our developmetnal pediatrician) suffers

from

> 'aspergers light' and perhaps i could get more information on that

too.

>

> anyway, to get right into it, this morning i have been thinking

about her 2

> year birthday portraits. we have done some social training thanks

to the

> school she now attends along with ot and pt. this includes

attending school

> twice a week (in the fall in will be four days) and making

an 'action' book

> that has pictures of her doing every day things to help her with

transitions

> - and she really has blossomed witht the help of it, ot, and st.

but do

> any of you have any advice or tips about taking asd toddlers to a

portrait

> studio? ideally, id like her to smile and look at the camera. but

in

> reality, i realize thats a pretty big expectation so id just be

happy to

> have her not crying and completely freaked out.

>

> thanks for reading!

>

> meg

>

[Guest guest]

hi bobby!

all the tips you shared are great ideas and i really do appreciate you

taking the time to write. now if i could just coordinate her toys with the

dress im putting her in...

thanks again!

meg

>From: " Bobby " <jaxx36us1@...>

>Reply-

>

>Subject: ( ) Re: new

>Date: Fri, 26 May 2006 16:28:20 -0000

>

>Now that I've been thinking of it; if you do go the studio route,

>it's always good to bring a kids own toys, or blankets, or bear, or

>whatever to calm them and maybe if YOU get a portrait done, or a

>picture with her first, it might take the " scarey " out of it.

>

>Just a couple of more thoughts.....

>

>

> >

> > hi!

> >

> > my nearly two year old daughter, penelope, has been recently

>diagnosed with

> > pdd-nos and ive joined this list in an attmept to get advice, tips

>and

> > support from other parents going through something similar. i also

>believe

> > my husband (as does he and our developmetnal pediatrician) suffers

>from

> > 'aspergers light' and perhaps i could get more information on that

>too.

> >

> > anyway, to get right into it, this morning i have been thinking

>about her 2

> > year birthday portraits. we have done some social training thanks

>to the

> > school she now attends along with ot and pt. this includes

>attending school

> > twice a week (in the fall in will be four days) and making

>an 'action' book

> > that has pictures of her doing every day things to help her with

>transitions

> > - and she really has blossomed witht the help of it, ot, and st.

>but do

> > any of you have any advice or tips about taking asd toddlers to a

>portrait

> > studio? ideally, id like her to smile and look at the camera. but

>in

> > reality, i realize thats a pretty big expectation so id just be

>happy to

> > have her not crying and completely freaked out.

> >

> > thanks for reading!

> >

> > meg

> >

>

>

>

>

>

[Guest guest]

I take my own picture here and then have a " family " set made. It just is so

much less frustrating for me and scarey for them. Just a thought

( ) Re: new

Now that I've been thinking of it; if you do go the studio route,

it's always good to bring a kids own toys, or blankets, or bear, or

whatever to calm them and maybe if YOU get a portrait done, or a

picture with her first, it might take the " scarey " out of it.

Just a couple of more thoughts.....

>

> hi!

>

> my nearly two year old daughter, penelope, has been recently

diagnosed with

> pdd-nos and ive joined this list in an attmept to get advice, tips

and

> support from other parents going through something similar. i also

believe

> my husband (as does he and our developmetnal pediatrician) suffers

from

> 'aspergers light' and perhaps i could get more information on that

too.

>

> anyway, to get right into it, this morning i have been thinking

about her 2

> year birthday portraits. we have done some social training thanks

to the

> school she now attends along with ot and pt. this includes

attending school

> twice a week (in the fall in will be four days) and making

an 'action' book

> that has pictures of her doing every day things to help her with

transitions

> - and she really has blossomed witht the help of it, ot, and st.

but do

> any of you have any advice or tips about taking asd toddlers to a

portrait

> studio? ideally, id like her to smile and look at the camera. but

in

> reality, i realize thats a pretty big expectation so id just be

happy to

> have her not crying and completely freaked out.

>

> thanks for reading!

>

> meg

>

[Guest guest]

We have never had Isaac smile in a pictuire and he was five before he'd get one

taken without screaming and crying. A friend of mine had a photographer come to

her house and take pictures of her kids just playing in the garden, etc. Her

children are NT but I thought I might try that next time I want pictures taken.

Beck

( ) Re: new

Now that I've been thinking of it; if you do go the studio route,

it's always good to bring a kids own toys, or blankets, or bear, or

whatever to calm them and maybe if YOU get a portrait done, or a

picture with her first, it might take the " scarey " out of it.

Just a couple of more thoughts.....

>

> hi!

>

> my nearly two year old daughter, penelope, has been recently

diagnosed with

> pdd-nos and ive joined this list in an attmept to get advice, tips

and

> support from other parents going through something similar. i also

believe

> my husband (as does he and our developmetnal pediatrician) suffers

from

> 'aspergers light' and perhaps i could get more information on that

too.

>

> anyway, to get right into it, this morning i have been thinking

about her 2

> year birthday portraits. we have done some social training thanks

to the

> school she now attends along with ot and pt. this includes

attending school

> twice a week (in the fall in will be four days) and making

an 'action' book

> that has pictures of her doing every day things to help her with

transitions

> - and she really has blossomed witht the help of it, ot, and st.

but do

> any of you have any advice or tips about taking asd toddlers to a

portrait

> studio? ideally, id like her to smile and look at the camera. but

in

> reality, i realize thats a pretty big expectation so id just be

happy to

> have her not crying and completely freaked out.

>

> thanks for reading!

>

> meg

>

[Guest guest]

Hi ,

Did you get the portraits taken?

> >

> > hi!

> >

> > my nearly two year old daughter, penelope, has been recently

> diagnosed with

> > pdd-nos and ive joined this list in an attmept to get advice,

tips

> and

> > support from other parents going through something similar. i

also

> believe

> > my husband (as does he and our developmetnal pediatrician)

suffers

> from

> > 'aspergers light' and perhaps i could get more information on

that

> too.

> >

> > anyway, to get right into it, this morning i have been thinking

> about her 2

> > year birthday portraits. we have done some social training

thanks

> to the

> > school she now attends along with ot and pt. this includes

> attending school

> > twice a week (in the fall in will be four days) and making

> an 'action' book

> > that has pictures of her doing every day things to help her with

> transitions

> > - and she really has blossomed witht the help of it, ot, and

st.

> but do

> > any of you have any advice or tips about taking asd toddlers to a

> portrait

> > studio? ideally, id like her to smile and look at the camera.

but

> in

> > reality, i realize thats a pretty big expectation so id just be

> happy to

> > have her not crying and completely freaked out.

> >

> > thanks for reading!

> >

> > meg

> >

>

[Guest guest]

hi! no we have not, yet. she turns two at the end of june and im hoping

for just a tiny bit more hair (for her anyway) so i can do something cute

with it for the portrait. we are going to the national chain, 'the picture

people' and have already been there twice. the first time we went in to see

it and i explained that its where people get their pictures taken and this

last time they let her play with the props the store provides.

so the hair issue i fear will be another disaster. its quite an ordeal for

her to let me comb what little hair she has (shes 23 months old) and anytime

i try for barrettes or hair ties to put it up in a pony tail, she completely

melts down. in a sarcastic way i try to explain that sometimes there is

pain with beauty but she fails to find the humor in that...

meg

>From: " Bobby " <jaxx36us1@...>

>Reply-

>

>Subject: ( ) Re: new

>Date: Tue, 30 May 2006 14:41:44 -0000

>

>Hi ,

>

>Did you get the portraits taken?

>

>

>

> > >

> > > hi!

> > >

> > > my nearly two year old daughter, penelope, has been recently

> > diagnosed with

> > > pdd-nos and ive joined this list in an attmept to get advice,

>tips

> > and

> > > support from other parents going through something similar. i

>also

> > believe

> > > my husband (as does he and our developmetnal pediatrician)

>suffers

> > from

> > > 'aspergers light' and perhaps i could get more information on

>that

> > too.

> > >

> > > anyway, to get right into it, this morning i have been thinking

> > about her 2

> > > year birthday portraits. we have done some social training

>thanks

> > to the

> > > school she now attends along with ot and pt. this includes

> > attending school

> > > twice a week (in the fall in will be four days) and making

> > an 'action' book

> > > that has pictures of her doing every day things to help her with

> > transitions

> > > - and she really has blossomed witht the help of it, ot, and

>st.

> > but do

> > > any of you have any advice or tips about taking asd toddlers to a

> > portrait

> > > studio? ideally, id like her to smile and look at the camera.

>but

> > in

> > > reality, i realize thats a pretty big expectation so id just be

> > happy to

> > > have her not crying and completely freaked out.

> > >

> > > thanks for reading!

> > >

> > > meg

> > >

> >

>

>

>

>

[Guest guest]

Sounds exactly like your implants, and you are describing an early

onset problem with your body rejecting the foreign objects.

Lynda

At 11:14 AM 7/19/2006, you wrote:

>Hello everyone I am new to the group. I have been experiencing some

>problems.. i want to see what everyone thinks.

>Okay so here it goes. I was implanted in March 2005. I felt great

>very happy and energetic until the end of October 2005. I just got

>very fatigued... I didn't really like feel like doing anything after

>I got off work, just wanted to come home. I just never had the

>energy to socialize. My boyriend lived in California and I would go

>see him often and it really lifted my mood. However just still

>never had the enrgy i had before. November I had an abcess tooth

>and had a root canal. The fatigue contiued... no joint pains just

>fatigue. Fast foward to April 2006 my boyfriend moved in with me

>and I noiteced I just didn't have the energy to do much for him. He

>doesn't get home unitl 1030 pm at night so I started to atribute the

>fatigue to that. However in mid May I awoke one night with a sharp

>pain in my chest when i took a deep breath .... went to er and got

>an anti inlamatory that made it go away. In May I ha another abcess

>tooth and had trouble sleeping. To this day July 19 Things have

>just gotten worse... I can't sleep through the night because i

>awaken with my hands asleep and my heart jummping... I have also

>had the strage thing with my chest happen one more time. Everyday I

>have shortness of breath my lungs just feel very cold... I am all

>messed up because of the lack of sleep.

>

>Could this be the implants...

>No joint pain

>

>Thanks

>Tara

>

>

[Guest guest]

Tara, welcome to the support site! I am being explanted next week

after 20 yrs. of hell because of implants...I just pieced things

together last year that I have been seriously ill for the longest

time due to the implants...toxic poisoning of 35 chemicals floating

around in my body! Your onset of complaints is something I've heard

from alot of ladies on this site. In my opinion, the answer is " yes "

according to my experience and those on this site.

Prayers & Healing to you,

Sunny

>

> Hello everyone I am new to the group. I have been experiencing

some

> problems.. i want to see what everyone thinks.

> Okay so here it goes. I was implanted in March 2005. I felt great

> very happy and energetic until the end of October 2005. I just got

> very fatigued... I didn't really like feel like doing anything

after

> I got off work, just wanted to come home. I just never had the

> energy to socialize. My boyriend lived in California and I would

go

> see him often and it really lifted my mood. However just still

> never had the enrgy i had before. November I had an abcess tooth

> and had a root canal. The fatigue contiued... no joint pains

just

> fatigue. Fast foward to April 2006 my boyfriend moved in with me

> and I noiteced I just didn't have the energy to do much for him.

He

> doesn't get home unitl 1030 pm at night so I started to atribute

the

> fatigue to that. However in mid May I awoke one night with a sharp

> pain in my chest when i took a deep breath .... went to er and

got

> an anti inlamatory that made it go away. In May I ha another

abcess

> tooth and had trouble sleeping. To this day July 19 Things have

> just gotten worse... I can't sleep through the night because i

> awaken with my hands asleep and my heart jummping... I have also

> had the strage thing with my chest happen one more time. Everyday

I

> have shortness of breath my lungs just feel very cold... I am all

> messed up because of the lack of sleep.

>

> Could this be the implants...

> No joint pain

>

> Thanks

> Tara

>

[Guest guest]

Hi and welcome

My name is , I'm a native but live here in Kansas. I have a 4 year old

with PDD-NOS. So just wanted to say hi as one Brit to another

wendy <wendy@...> wrote:

Hi

I am new to this list. I live in the United Kingdom and I have a 13 year old

daughter with Aspergers.

[Guest guest]

Hey ,

What part of Kansas?? That's where we're from originally and hoping to get

to Oklahoma in the next year to be closer to family in southern Kansas.

Re: ( ) New

Hi and welcome

My name is , I'm a native but live here in Kansas. I have a 4 year old

with PDD-NOS. So just wanted to say hi as one Brit to another

wendy <wendy@...<mailto:wendy@...>> wrote:

Hi

I am new to this list. I live in the United Kingdom and I have a 13 year old

daughter with Aspergers.

[Guest guest]

Hi !

We are in Olathe. I moved here from London, then NYC, to be close to family

here too!

Email me if you'd like to chat off list: uklisa1@...

& <aviationgod@...> wrote:

Hey ,

What part of Kansas?? That's where we're from originally and hoping to get to

Oklahoma in the next year to be closer to family in southern Kansas.

Re: ( ) New

Hi and welcome

My name is , I'm a native but live here in Kansas. I have a 4 year old with

PDD-NOS. So just wanted to say hi as one Brit to another

wendy <wendy@...<mailto:wendy@...>> wrote:

Hi

I am new to this list. I live in the United Kingdom and I have a 13 year old

daughter with Aspergers.

[Guest guest]

Welcome to a great group. Many of us are in your age group and younger. I

myself was 45 when first dx. People here are great about answering questions.

And you are aloud to whine and vent all you want. Something we can't always

do with our families. in WI

[Guest guest]

Hello wantstobeonvacation,

Welcome to the group! First off, is there a name we can call you? This

is such a nice group and we all feel like friends. There is much

valuable information to be found here also.

I have had fibro for over 14yrs, also DDD and OA. So far no RA. Tell us

what kind of symptoms you are having and what bothers you most.

Feel free to ask questions first if you need to.

warm hugs,

Debbie L

>

> Hi, I am newly diagnosed with RA at the tender age of 41, just

started

> methotrexate last week. Don't really know what to talk about, just

> glad to know I'm in a big boat with others.

>