Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Hello, Welcome to the group. You will find such a great support here. I am 43 and since 1998 I have been diagnosed with Sjogrens, SLE, RA, Spinal Stenosis, Asthma and Fibromyalgia. I have taken Methotrexate off and on for about 6 years now. I was on for the past few weeks, but I got sick and ended up in the hospital. Be really careful not to get around anyone who is sick. The med will lower your immune system. Also, be careful not to cut your self, it could get infected quickly. The med will make you kind of tired at times. Just hang in there and know that you are not alone. I am here for you and there are so many others that understand what you are going through. Blessings and Prayers to you. Robin > > Hi, I am newly diagnosed with RA at the tender age of 41, just started > methotrexate last week. Don't really know what to talk about, just > glad to know I'm in a big boat with others. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 And we are glad that you are here. > > Hi, I am newly diagnosed with RA at the tender age of 41, just started > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Welcome to the group, I am still a newbie here to, I was diagnosed in Oct. of 2005,with RA,and DJD.Done had methotrexate and predisone,had to move on to Plaqunil, and Doxycycline,and Enbrel,been on Enbrel for a month. You will find alot of caring,loving people in this group.God Bless and have a painfree day. Rhonda [ ] New > Hi, I am newly diagnosed with RA at the tender age of 41, just started > methotrexate last week. Don't really know what to talk about, just > glad to know I'm in a big boat with others. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Welcome to the group! The people here are very caring and supportive, and there is always lots of great information. I was dx at 45 (seven years ago) with RA, and then Raynaud's, and then Fibromyalgia, and then OA. So, the dx just seem to keep coming - hope I'm done! Has your doctor started you on any medications for the RA? Aggressive and early treatment is the best way to fight this disease. I am currently on Methotrexate, Enbrel and Ultram ER. I also take medications for Fibro, asthma, and high blood pressure. Not exactly the way I thought my " golden years " would be, but I am doing fairly well with the medications I am on. My RA is under good control, but not the fibro, unfortunately. What would you like to know? You can ask anything here, and somebody is bound to have an answer for you. and a, our moderators, are always terrific at finding out information we need. If you have anything that you need help with right away - just say so in your subject line - like ASAP or HELP! - and that will be answered as fast as we can. This is a wonderful group, and I have learned so much here - I have been a member for about 4 years now - and I know you will enjoy being with us. By the way, what is your name? Kathe in CA --- wantstobeonvacation <wantstobeonvacation@...> wrote: > Hi, I am newly diagnosed with RA at the tender age > of 41, just started > methotrexate last week. Don't really know what to > talk about, just > glad to know I'm in a big boat with others. > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Dear Wantstobeonvacation, I have dx recently with RA at 31years old. I also take Methotrexate and Hydroxycloroquine. It took awhile to get used to the Mx but I'm doing good now. I have more good days than bad this summer, but I'm a little nervous about winter since last winter was not so good. Welcome to the group. Meredith in Canada Hi, I am newly diagnosed with RA at the tender age of 41, just started methotrexate last week. Don't really know what to talk about, just glad to know I'm in a big boat with others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Hi, sorry you have to be here, but happy to meet you. I've been on methotrexate, 20mg oral weekly, for coming up on two years now. I haven't had any real problems with it. But you do have to be careful, because it suppresses your immune system. I also take folic acid, 1mg daily, and leucovorin (which I think is folinic acid?) 8 hours after the methotrexate, to help with the side effect. Some fatigue, and I was losing hair until I started that. On 8/22/06, wantstobeonvacation <wantstobeonvacation@...> wrote: > > Hi, I am newly diagnosed with RA at the tender age of 41, just started > methotrexate last week. Don't really know what to talk about, just > glad to know I'm in a big boat with others. > > > -- South Pasadena, CA See my galleries! - http://www.pbase.com/arenared986 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 Most rheumatologists prescribe the two together because the MTX depletes the folic acid in your body. Adding folic replaces what is lost and reduces side effects from MTX. Many of us find that it helps with energy. In answer to your question: Yes, I believe people taking MTX should also take prescription strength folic acid--at least 1 mg. daily. Sierra > > Thanks for the welcome guys, looking at the times some of the messgaes > are posted, do you never sleep!!!!! I am curently on mtx 20 mg, but no > folic acid? should I be? I have noticed a few messages mention both? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 MTX sloughs off Folic Acid, so it does need to be replaced. Most Rheumies prescribe it along with MTX, or that's my impression. You must take Folic Acid to replace what your body is losing, it even helps stop hair loss. I'm taking 25 mg injectable MTX and as much as 5 mg (per day) of Folic Acid with it. Dennis in Eastexas " It's not Rocket Surgery " [ ] Re: new > Most rheumatologists prescribe the two together because the MTX > depletes the folic acid in your body. Adding folic replaces what is > lost and reduces side effects from MTX. Many of us find that it helps > with energy. In answer to your question: Yes, I believe people taking > MTX should also take prescription strength folic acid--at least 1 mg. > daily. > > Sierra > > >> >> Thanks for the welcome guys, looking at the times some of the > messgaes >> are posted, do you never sleep!!!!! I am curently on mtx 20 mg, but > no >> folic acid? should I be? I have noticed a few messages mention both? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 -TRudy, A lot of us have fibro as well as RA and with this sleep is very ellusive...a good night fo me is 2-3 straight hours of sleep without waking up. I often post at 3 or 4 am...of course my typing isn't that great at that hour...but we don't take off points for typos here!!! jenna -- In , " snowdrift52003 " <snowdrift52003@...> wrote: > > Most rheumatologists prescribe the two together because the MTX > depletes the folic acid in your body. Adding folic replaces what is > lost and reduces side effects from MTX. Many of us find that it helps > with energy. In answer to your question: Yes, I believe people taking > MTX should also take prescription strength folic acid--at least 1 mg. > daily. > > Sierra > > > > > > Thanks for the welcome guys, looking at the times some of the > messgaes > > are posted, do you never sleep!!!!! I am curently on mtx 20 mg, but > no > > folic acid? should I be? I have noticed a few messages mention both? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2006 Report Share Posted October 11, 2006 Hi and Welcome, ! This is a wonderful group with very friendly, supportive and informative people. I know that you will find a home here. I also have Fibromyalgia, so I can understand the pain that you must be going through, and the fatigue which can be absolutely relentlous. I take medication for my fibro which has proven helpful and includes Cymbalta, Lyrica, Ambien CR, Skelaxin, and Zanaflex. These meds have helped with the muscle spasms, peripheral neuropathy-like pains in my legs, and help me to sleep better. Are you on any meds for your fibro? I also have RA, OA and Raynauds. And take meds for asthma and high blood pressure too. My husband had to put up a cabinent in our bathrooom for just our medications and vitamins, etc! My side is much larger than his side, just like our closet! lol There is a lot of frustration and depression associated with these diseases, as they completely turn our lives upside down, and we never know where we will end up, what joint or body part will be painful, how the fatigue will be affecting us, can we talk right and our comprehension skills are the pitts anymore, not to mention the times I have put the leftovers in with the pots and the peanut butter in the diswasher - fibro fog strikes again! Ask any questions you like, vent, or just come here for support - we are here for you and truly do understand what you are going through - take care - Kathe in CA --- <nepwrite@...> wrote: > Hi, > > I'm new to the group. I need to be a part of a > community that > understands the frustrations of having Fibromyalgia > and other > autoamune diseases. Thank you for letting me in. I > will try to give as > much as I receive from the group. > > P > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 http://www.cranialtech.com/ they are who my son simon had his band through they are great and they only do the bands so they are used to babies and they are great with them. cranial tech does free evaluations so find the one nearest you and give them a call. simon had his band for 11 weeks http://birds.lemonyfresh.com/gallery/Simon/simon9_21_06_2 he graduated on 9-22-06. Aron Holwighttp://birds.lemonyfresh.com/gallery/http://b1.lilypie.com/2QXlm7.png On 11/4/06, bkbsfournier <bkbsfournier@...> wrote: Upon referral from our peditrician my husband took our son in for an evaluation on Friday. The man we were referred to showed my husband these nearly barbaric excercises to do, which consist of holding my son's head down for one minute at a time 10-12 times a day. He told my husband we should have caught this when my son was a week old and had we done that we wouldn't have the problem we do now, is now considered an extreme case at 3 months old. We did the excercises and changed his posistion when eating and sleeping (it was suggested that we have him sleep on his tummy, but we opted for his side) my poor little man screamed and hollered all day long. We spoke to our Pastor and his wife and they recomended Crainal Technologies. Has anyone ever heard of them, do they have a better bedside manner than the man we saw, how do they interact with children? -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 The starband that we will be getting from Orthotic Union here in Pittsburgh Pa and the band cost 3,000 and they do accept insurance if your insurance covers them. The site for the starband is http://www.orthomerica.com/products/cranial/cranialindex.htm is I'v talked to over 10 people who got the starband and saw great results and that each kids head improved treamendously. My daughter was scanned this past friday on a machine called the " starscanner " and gave how asymmetry she was. It showed exactly what severity her plagiocephaly was at, which was moderate and she was a candidate for the starband. I meet 4 parrents at this site that had there kids in the starband and said they see wonderful results and that their kids liked the starband. You can get a prescription from a neurosurgery dr. or an orthopedics or plastic surgeon, and once you have the prescription then you can go for the appointment at a cranial facitily. My daughter will be getting her starband very soon and I'm happy I made the decision, cause between 5-16 months is the only time you will get the best results. My place will not take kids after 18 months cause the starband will not work, the growth spurt is best when they are infants to get banded...so that is why I'm not waiting cause I did all the aggressive therapy keeping her off the flat spot and it worked a little but the starband will give better results. Mom to daugther w/ plagiocepahly at 9 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Cranial Technologies is fantastic. I think you'll find them to be very helpful. Unfortunately, I must say that if your son has torticollis, the barbaric exercises are neccessary. :-( My ds has tort, as well, and really fought with the exercises in the beginning, but as his neck muscles loosened up a bit, they became MUCH easier to do. I'm sorry that you had a bad experience with the (therapist ?). It's horrible that he was so short with you. My son wasn't dx'd until he was two months old, and even then I didn't really see what they were talking about until we went to pt for the first time at 3 mos. It would be incredibly difficult to catch it at one week old. Don't blame yourselves. I think you'll find the people on this group to be an incredible source of info and support. HTH. Candace, AZ mommy to Tiernan, 6 mos tort, plagiobkbsfournier <bkbsfournier@...> wrote: Upon referral from our peditrician my husband took our son in for an evaluation on Friday. The man we were referred to showed my husband these nearly barbaric excercises to do, which consist of holding my son's head down for one minute at a time 10-12 times a day. He told my husband we should have caught this when my son was a week old and had we done that we wouldn't have the problem we do now, is now considered an extreme case at 3 months old. We did the excercises and changed his posistion when eating and sleeping (it was suggested that we have him sleep on his tummy, but we opted for his side) my poor little man screamed and hollered all day long. We spoke to our Pastor and his wife and they recomended Crainal Technologies. Has anyone ever heard of them, do they have a better bedside manner than the man we saw, how do they interact with children? Get your email and see which of your friends are online - Right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Hello and welcome! I think that the man your husband spoke with should not be working with people. Shame on him for saying you should've caught it at 1 week. That's nearly impossible when you're not even educated on what it is! We didn't notice it in my son until he was 2 months. The exercises don't have to be barbaric. I mean, sometimes they will seem that way, however, there are ways to do them without your child screaming. I'm assuming that your son has torticollis and plagio (mine too). Well, the trick with stretching is to try to distract your son. Either hold a toy or try to make a game out of the stretches. You can also try doing them when he is asleep. Just gently and slowly tilt or turn his head whichever way you need to while holding him in your arms. My son was fitted with a DOCband by Cranial Technologies at 8 months old, so I can tell you from personal experience that they are a very well run company. The orthotists that I have seen have been compassionate and nice. They also seem very experienced and knowledgable. Where are you from? Maybe someone in your area can reccommend and location or specific orthotist. Good luck and if you have any more questions don't hesitate to ask! , mom to Tyson (DOCband) Chicago, IL > > Upon referral from our peditrician my husband took our son in > for an evaluation on Friday. The man we were referred to showed my > husband these nearly barbaric excercises to do, which consist of holding > my son's head down for one minute at a time 10-12 times a day. He told > my husband we should have caught this when my son was a week old and had > we done that we wouldn't have the problem we do now, is now > considered an extreme case at 3 months old. We did the excercises and > changed his posistion when eating and sleeping (it was suggested that we > have him sleep on his tummy, but we opted for his side) my poor little > man screamed and hollered all day long. We spoke to our Pastor and his > wife and they recomended Crainal Technologies. Has anyone ever heard of > them, do they have a better bedside manner than the man we saw, how do > they interact with children? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 HI my name is . My son is Chadwick he is 8 Months old with plagio. We went to Cranial Tech in Dallas Texas for a consultation. Everybody we dealt with was super nice...I have dealt with some pretty bad doctors also..Don't give up...I will keep ya'll in our prayers.....bkbsfournier <bkbsfournier@...> wrote: Upon referral from our peditrician my husband took our son in for an evaluation on Friday. The man we were referred to showed my husband these nearly barbaric excercises to do, which consist of holding my son's head down for one minute at a time 10-12 times a day. He told my husband we should have caught this when my son was a week old and had we done that we wouldn't have the problem we do now, is now considered an extreme case at 3 months old. We did the excercises and changed his posistion when eating and sleeping (it was suggested that we have him sleep on his tummy, but we opted for his side) my poor little man screamed and hollered all day long. We spoke to our Pastor and his wife and they recomended Crainal Technologies. Has anyone ever heard of them, do they have a better bedside manner than the man we saw, how do they interact with children? Mommy to Chadwick 7.5 Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 Thank you so much everyone for the kind words of encouragement. Please allow me to introcduce myself which I should have done in the first place. My name is Krissy I live in Arizona, I have a nearly 3 year old son Brycen and our newest addition is , who is 3 months old and has seemed to have a bit of a rough start. The place we were referred to was Hanger, after a couple days of thought I may have overreacted, I like any mommy does not want to hear that there is something wrong with their child, although this person didn't seem like the right choice for us so I'll call Cranial Technologies tomorrow for an appointment. Any suggestions on explaining all this to a 3 year old? > > > > Upon referral from our peditrician my husband took our son > in > > for an evaluation on Friday. The man we were referred to showed my > > husband these nearly barbaric excercises to do, which consist of > holding > > my son's head down for one minute at a time 10-12 times a day. He > told > > my husband we should have caught this when my son was a week old > and had > > we done that we wouldn't have the problem we do now, is now > > considered an extreme case at 3 months old. We did the excercises > and > > changed his posistion when eating and sleeping (it was suggested > that we > > have him sleep on his tummy, but we opted for his side) my poor > little > > man screamed and hollered all day long. We spoke to our Pastor > and his > > wife and they recomended Crainal Technologies. Has anyone ever > heard of > > them, do they have a better bedside manner than the man we saw, > how do > > they interact with children? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2006 Report Share Posted November 5, 2006 im in az to so you would be going to the same ct that we went to we had wendy for almost all of our appointments. simon is an only child but from what i have read most older siblings want one to so some ppl buy them bike helmets hehe. Aron Holwighttp://birds.lemonyfresh.com/gallery/http://b1.lilypie.com/2QXlm7.png On 11/5/06, bkbsfournier <bkbsfournier@...> wrote: Thank you so much everyone for the kind words of encouragement. Please allow me to introcduce myself which I should have done in the first place. My name is Krissy I live in Arizona, I have a nearly 3 year old son Brycen and our newest addition is , who is 3 months old and has seemed to have a bit of a rough start. The place we were referred to was Hanger, after a couple days of thought I may have overreacted, I like any mommy does not want to hear that there is something wrong with their child, although this person didn't seem like the right choice for us so I'll call Cranial Technologies tomorrow for an appointment. Any suggestions on explaining all this to a 3 year old? > >> > Upon referral from our peditrician my husband took our son > in> > for an evaluation on Friday. The man we were referred to showed my> > husband these nearly barbaric excercises to do, which consist of > holding> > my son's head down for one minute at a time 10-12 times a day. He > told> > my husband we should have caught this when my son was a week old > and had> > we done that we wouldn't have the problem we do now, is now> > considered an extreme case at 3 months old. We did the excercises > and> > changed his posistion when eating and sleeping (it was suggested > that we> > have him sleep on his tummy, but we opted for his side) my poor > little> > man screamed and hollered all day long. We spoke to our Pastor > and his> > wife and they recomended Crainal Technologies. Has anyone ever > heard of> > them, do they have a better bedside manner than the man we saw, > how do> > they interact with children?> >> -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi, Krissy. What part of AZ are you in? I am in Tucson. I have a three year old, as well, and he's actually been handeling everything very well. My ds has tort, as well as plagio, so we've been taking him to pt every week for the last three months. I told my three year old, Ethan, that Tiernan (the baby) has to see an "exercise doctor" to help make his neck nice and strong. We haven't put Tiernan in a helmet yet, although we are in the process, and I think the best way to explain it to my three year old was this: I gave him a mirror and let him see and feel his head and how nice and round it is. Then he got to feel my head and how round it is. Then, I let him look at and feel Tiernan's head and the flatness. I told him his brother might get to wear a special hat that is going to make his head nice and round just like his. I don't know how much he understood, and I won't know how effective it was until we get the helmet, but for now he's happy with that explaination. HTH. Candace, AZ mommy to Tiernan, 6 mos tort, plagiobkbsfournier <bkbsfournier@...> wrote: Thank you so much everyone for the kind words of encouragement. Please allow me to introcduce myself which I should have done in the first place. My name is Krissy I live in Arizona, I have a nearly 3 year old son Brycen and our newest addition is , who is 3 months old and has seemed to have a bit of a rough start. The place we were referred to was Hanger, after a couple days of thought I may have overreacted, I like any mommy does not want to hear that there is something wrong with their child, although this person didn't seem like the right choice for us so I'll call Cranial Technologies tomorrow for an appointment. Any suggestions on explaining all this to a 3 year old?> >> > Upon referral from our peditrician my husband took our son > in> > for an evaluation on Friday. The man we were referred to showed my> > husband these nearly barbaric excercises to do, which consist of > holding> > my son's head down for one minute at a time 10-12 times a day. He > told> > my husband we should have caught this when my son was a week old > and had> > we done that we wouldn't have the problem we do now, is now> > considered an extreme case at 3 months old. We did the excercises > and> > changed his posistion when eating and sleeping (it was suggested > that we> > have him sleep on his tummy, but we opted for his side) my poor > little> > man screamed and hollered all day long. We spoke to our Pastor > and his> > wife and they recomended Crainal Technologies. Has anyone ever > heard of> > them, do they have a better bedside manner than the man we saw, > how do> > they interact with children?> >> Sponsored Link Free Uniden 5.8GHz Phone System with Packet8 Internet Phone Service Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi Kelle, Welcome to the list. What test did you do to ascertain your levels? Do you two have ANY mercury amalgam dental fillings? They have to be removed by a mercury-free dentist using proper protocol before you can safely chelate. Have you identified and reduced/removed sources of exposure? www.danasview.net/metals has a comoprehensive list of sources of exposure. IMO there are no acceptable levels of arsenic, cadmium or mercury. S S <p>Hi folks,<br> <br> I am looking into chelation methods for myself and my partner. He is<br> very poisoned with mercury, lead and silver in articular and I am only<br> mildly toxic: with Aluminium, Lead and silver being my main ones,<br> Arsenic, Cadmium, Mercury, Platinum and Tin all being just below the<br> 'acceptable level'.<br> <br> I am thinking about Zeolite<br> <a href= " http://my.waiora.com/products/item26000-NCD.php " >http://my.waiora.<wbr>com\ /products/<wbr>item26000-<wbr>NCD.php</a> <br> and Metal-X <a href= " http://www.herbalremedies.com/metal-x.html " >http://www.herbalre<wbr>medies\ ..com/<wbr>metal-x.html</a><br> <br> Has anyone any observations to share in the difference/ effectivity of<br> these in comparison to DMSA/Lipoic Acid?<br> <br> Regards, Kelle<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 Hi AZ people - I am in Tempe! Mom to Olive 7 1/2 months plagio & tort Doc Band for 2 weeks Cyndi http://www.laboratory5.com/ >From: " bkbsfournier " <bkbsfournier@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: Re: New >Date: Mon, 06 Nov 2006 21:02:56 -0000 > > >I'm actually in Coolidge, AZ but I work in Awathukee (I can NEVER spell >that right!). I made s appointment for CT on Friday, the were >SUPER nice on the phone and helped calm me down from our experience on >Friday. That's a wonderful way to explain it to an older sibling!! > > > > > > > > > > > Upon referral from our peditrician my husband took our son > > > > > in > > > > for an evaluation on Friday. The man we were referred to showed > > my > > > > husband these nearly barbaric excercises to do, which consist of > > > holding > > > > my son's head down for one minute at a time 10-12 times a day. > > He > > > told > > > > my husband we should have caught this when my son was a week old > > > and had > > > > we done that we wouldn't have the problem we do now, is > > now > > > > considered an extreme case at 3 months old. We did the > > excercises > > > and > > > > changed his posistion when eating and sleeping (it was suggested > > > that we > > > > have him sleep on his tummy, but we opted for his side) my poor > > > little > > > > man screamed and hollered all day long. We spoke to our Pastor > > > and his > > > > wife and they recomended Crainal Technologies. Has anyone ever > > > heard of > > > > them, do they have a better bedside manner than the man we saw, > > > how do > > > > they interact with children? > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Sponsored Link > > > > Free Uniden 5.8GHz Phone System with Packet8 Internet Phone Service > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2006 Report Share Posted November 6, 2006 im in ahwatukee but moving to laveen really really soon =) Aron Holwighttp://birds.lemonyfresh.com/gallery/http://b1.lilypie.com/2QXlm7.png On 11/6/06, CYNTHIA COON <cnjlab5@...> wrote: Hi AZ people -I am in Tempe!Mom to Olive 7 1/2 months plagio & tort Doc Band for 2 weeksCyndi http://www.laboratory5.com/>From: " bkbsfournier " <bkbsfournier@...> >Reply-Plagiocephaly > Plagiocephaly >Subject: Re: New>Date: Mon, 06 Nov 2006 21:02:56 -0000 >>>I'm actually in Coolidge, AZ but I work in Awathukee (I can NEVER spell>that right!). I made s appointment for CT on Friday, the were >SUPER nice on the phone and helped calm me down from our experience on>Friday. That's a wonderful way to explain it to an older sibling!!>>> > > > >> > > > Upon referral from our peditrician my husband took our son> > > > > in> > > > for an evaluation on Friday. The man we were referred to showed > > my> > > > husband these nearly barbaric excercises to do, which consist of> > > holding> > > > my son's head down for one minute at a time 10-12 times a day.> > He > > > told> > > > my husband we should have caught this when my son was a week old> > > and had> > > > we done that we wouldn't have the problem we do now, is > > now> > > > considered an extreme case at 3 months old. We did the> > excercises> > > and> > > > changed his posistion when eating and sleeping (it was suggested > > > that we> > > > have him sleep on his tummy, but we opted for his side) my poor> > > little> > > > man screamed and hollered all day long. We spoke to our Pastor > > > and his> > > > wife and they recomended Crainal Technologies. Has anyone ever> > > heard of> > > > them, do they have a better bedside manner than the man we saw, > > > how do> > > > they interact with children?> > > >> > >> >> >> >> >> >> >> > --------------------------------- > > Sponsored Link> >> > Free Uniden 5.8GHz Phone System with Packet8 Internet Phone Service> >>>>>> -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 > > Hi folks, > > I am looking into chelation methods for myself and my partner. He is > very poisoned with mercury, lead and silver in articular and I am only > mildly toxic: with Aluminium, Lead and silver being my main ones, > Arsenic, Cadmium, Mercury, Platinum and Tin all being just below the > 'acceptable level'. > > I am thinking about Zeolite > http://my.waiora.com/products/item26000-NCD.php > and Metal-X http://www.herbalremedies.com/metal-x.html > The above products are not true chelators, are not expected to remove metals from the human body, and have not been researched enough to know what they will do in the body. There are very few reports of their use in chelation group archives. > Has anyone any observations to share in the difference/ effectivity of > these in comparison to DMSA/Lipoic Acid? > DMSA/ALA are true chelators, do remove metals from the human body and there are lots of reports in chelation group archives of recovery using these chelators. J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Welcome to the list. Comments interspersed.<br> S S<br><br><br> <br><br> <p>Hi all, I joined up a few days ago, along with a few other groups so I can't<br><br>remember if I introduced myself yet, but I'm here reading with interest and<br><br>having my last three amalgams out this Friday. My problem's more with<br><br>Aluminium, Silver, Lead, Cadmium, Arsenic, Tin then Mercury, in that order,<br><br>*Based upon what? Did you do a hair test? Did you apply counting rules? REad about them in the FAQs of this list.<br><br><br><br>so I'm still tossing up between rounds of DMSA/EDTA/DMPS with ALA or zeolite<br><br>as far as chelation goes.<br><br>*DMSA chelates mercury from the body and lead. ALA chelates mercury from the body and brain and chelates arsenic. After amalgam removal or other new exposure you should wait about 3 months before beginning chelation with ALA. Have you identified and reduced/removed sources of exposure to the other toxic metals you mentioned? www.danasview.net/metals has a comprehensive list of sources of exposure. <br><br> I control mood and behavioural symptoms by a<br><br>salicylate/amine/<wbr>additive/<wbr>GF/SG/mostly starch and Casein free diet with as<br><br>many fermented foods and probiotics (missing the two largest groups of gut<br><br>flora) as I can handle and high dose vitamins/minerals/<wbr>antioxidants per<br><br>Pfeiffer protocol for 'overmethylators'<wbr>. <br><br><br><br>My partner's a pyroluric overmethylator and very poisoned with Lead, Mercury<br><br>and Silver, according to a CDSA he has no beneficial bacteria at all and is<br><br>also on a similar protocol, waiting for his zinc levels to increase to a<br><br>stage where he can commence chelation with DMSA.<br><br><br><br>Our interest in Autism is that we are trying to sort these issues out before<br><br>having a child.<br><br><br><br>Anyone with any information on the genetic potential of this, please<br><br>comment, especially if there is information regarding in-utero testing for<br><br>autism.<br><br><br>*There's a book by Sam & Ziff entitled " Infertility and Birth Defects: Is Mercury from Silver Dental Fillings an Unsuspected Cause " which might interest you. Mercury passes the placenta and the blood-brain " barrier " . Difficulty in detoxing toxic metals may run in families. <br><br><br>Thanks<br><br><br><br>Kelle in Australia<br><br><br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2006 Report Share Posted November 13, 2006 Wow, Kelle, good job being proactive here. I think the biggest concern is you passing on your toxic metal level to the baby in utero. Also, mercury can damage genes and I'm sure that is as individual as the person. Yasko does have a genetic test that looks for mutations that might predispose kids to having difficulty with mercury. It's about $750. I've heard through the years that a mom should chelate herself and wait for six months after testing " clean " before conceiving. Of course, that's a best case scenario. You might also check out the program that Dr. Cousins did for preparing new mothers. Barb [ ] New Hi all, I joined up a few days ago, along with a few other groups so I can't remember if I introduced myself yet, but I'm here reading with interest and having my last three amalgams out this Friday. My problem's more with Aluminium, Silver, Lead, Cadmium, Arsenic, Tin then Mercury, in that order, so I'm still tossing up between rounds of DMSA/EDTA/DMPS with ALA or zeolite as far as chelation goes. I control mood and behavioural symptoms by a salicylate/amine/additive/GF/SG/mostly starch and Casein free diet with as many fermented foods and probiotics (missing the two largest groups of gut flora) as I can handle and high dose vitamins/minerals/antioxidants per Pfeiffer protocol for 'overmethylators'. My partner's a pyroluric overmethylator and very poisoned with Lead, Mercury and Silver, according to a CDSA he has no beneficial bacteria at all and is also on a similar protocol, waiting for his zinc levels to increase to a stage where he can commence chelation with DMSA. Our interest in Autism is that we are trying to sort these issues out before having a child. Anyone with any information on the genetic potential of this, please comment, especially if there is information regarding in-utero testing for autism. Thanks Kelle in Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2006 Report Share Posted November 15, 2006 Hi my name is Alisha. I am new to this too. My son is 10 and was recently rediagnosed from ADHD to Asperger's. I also did research on it because someone told me about it and as I did I thought this is my boy. We got him diagnosed and are working on his new IEP. I have 2 other kids and am starting to wonder if maybe I should have them tested too. I don't know how much help I can be. But sometimes just talking to someone who can relate to you helps. skye333@... wrote: Hi, I am new, my daughter who is 11 was diagnosed today with Aspergers and I had already learned about it from a TV show, actually Dr. Phil and Im so glad I saw it, once I saw it, I realized that is what my daughter had and I took her to be checked and we went through a lot of testing and that is what she has. I broke down crying, I just want to be the best parent I can be to her, thus I joined this group to find support and ideas and just learn. My name is , I have 2 other children and my daughter with Aspergers is . thanks Quote Link to comment Share on other sites More sharing options...
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