Re: New - concerns about son

[Guest guest]

,

Not sure if ph has been tested, I can tell you he has tried lots of

special diets, lots of supplements, next step is Dr. Rea, we shall see.

Thanks, Sue

>God bless you and your Son, Sue. I can certainly relate. How about

>diet? Has ph level been tested? Just grasping at straws here.

>

> Barth

>

>www.presenting.net/sbs/sbs.html

>

>SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

>

>---

>

>s> Why?

>

>s> Because my son is slowly slowly declining in health w/each passing day,

>s> he has been nonfunctional for nearly 4 years, he obviously has mold

>s> problems, but he also has horrible allergies and just about every body

>s> system is out of whack.

>

>s> We tried the Dr. Gray protocol as best we could given that my son often

>s> is awake when I am asleep and I have to administer the protocol because

>s> he won't, and then we had to stop the CSM and several other meds because

>s> of elevated liver enzymes. We will go back to it, but one med at a time

>s> to find the offender.

>

>s> In the meantime, many people (including on this list) have told me that

>s> Dr. Rea is very thorough, he has a somewhat different approach (for

>s> example I think he uses sauna detox rather than CSM or in addition), and

>s> he is older, I believe he's seen 30,000 or more patients come thru his

>s> clinic over the years.

>

>s> We are not discounting Dr. Gray's diagnosis or protocol, I believe every

>s> word of it, just looking for additive diagnoses and therapies.

>

>s> My son does not " classically " present with any particular illness, for

>s> example he doesn't go into a chemically or moldy place and feel worse

>s> and then feel better when he gets out of it like so many of you do,

>s> although these substances are undoubtedly bothering him.

>

>s> I think he is not responding to treatment for one of the following

reasons:

>

>s> 1) doesn't adhere closely enuf to protocols although I doubt this

>

>s> 2) haven't given it enuf time although I would have expected some small

>s> improvement in some small way by now

>

>s> 3) have tried various protocols sequentially and that is not enuf, need

>s> to do them simultaneously (for example, allergy treatments back home

>s> didn't help, but he was in the unbeknownst to us then moldy house, maybe

>s> doing allergy treatments, detox, and living in Dr. Rea's environmental

>s> housing will be enuf to tip him back in the direction of healing)

>

>s> 4) just born w/funky immune system, maybe stem cell therapy will help,

>s> and if not he is just screwed for life

>

>s> 5) there is still some big missing piece of the puzzle, not yet

>s> diagnosed. If that is the case, I figure that Dr. Rea who has seen just

>s> about everything over the years, is more likely than anyone else to help

>s> us figure it out.

>

>

>s> Also, I have found that with every new doctor visit (docs in this space,

>s> not your average conventional doc) we learn something else that propels

>s> us forward on our quest to figure out this mess.

>

>s> Also, my rental was up in Sedona, he was not getting better there, I had

>s> terrible hay fever there in the last month, we have a toxicologist

>s> running studies on our indoor air quality at home in SF so can't take

>s> him home right now, have to go somewhere, may as well be somewhere where

>s> we might learn something new and where he might start to heal.

>

>s> His integrative medicine/primary care doc back home also considered

>s> having him try LDA w/Dr. Shrader in Santa Fe but he is on medication

>s> that conflicts with that therapy. He is also suggesting experimental

>s> stem cell therapy south of the border or in India but my son is not yet

>s> ready to try that.

>

>s> My son is not a very compliant or easy patient, he is tired,

>s> discouraged, fatigued, doesn't want to see doctors because they don't

>s> help (so far), if I take him back home now I will never get him out of

>s> the house again, he will curl up in his bed w/his computer and TV and

>s> slowly ever so slowly fade away.

>

>s> Bottom line, desperation!

>

>s> So, that's the story. Wish us luck!

>

>s> Sue

>

>>>I am curious why the visit to Dr. Rea if you are presently treating with

>>>Dr. Gray? Its my understanding that they have the same " ideas " . Does Dr.

>>>Rea offer something in addition to what Dr. Gray can do as far as

>>>treatment? Thanks~ D

>>>

>>>

>>>>

>>>> thanks, we just arrived in Dallas last night and will see Dr. Rea on

>>>> Monday, I am hopeful that he can help elucidate the total array of

>

[Guest guest]

i think you are right Barb on continuing the CSM it would help take out the

toxins and help bring down the enyzmes. Wonder if he is on milk thistle to help

protect the liver.

Lee

> >

> > Why?

> >

> > Because my son is slowly slowly declining in health w/each passing day,

> > he has been nonfunctional for nearly 4 years, he obviously has mold

> > problems, but he also has horrible allergies and just about every body

> > system is out of whack.

> >

> > We tried the Dr. Gray protocol as best we could given that my son often

> > is awake when I am asleep and I have to administer the protocol because

> > he won't, and then we had to stop the CSM and several other meds because

> > of elevated liver enzymes. We will go back to it, but one med at a time

> > to find the offender.

> >

> >

>

[Guest guest]

i think you are right Barb on continuing the CSM it would help take out the

toxins and help bring down the enyzmes. Wonder if he is on milk thistle to help

protect the liver.

Lee

> >

> > Why?

> >

> > Because my son is slowly slowly declining in health w/each passing day,

> > he has been nonfunctional for nearly 4 years, he obviously has mold

> > problems, but he also has horrible allergies and just about every body

> > system is out of whack.

> >

> > We tried the Dr. Gray protocol as best we could given that my son often

> > is awake when I am asleep and I have to administer the protocol because

> > he won't, and then we had to stop the CSM and several other meds because

> > of elevated liver enzymes. We will go back to it, but one med at a time

> > to find the offender.

> >

> >

>

[Guest guest]

I remember reading in PubMed where doctors turned to CSM in a last ditch effort

to save someone who was in liver failure, but perhaps child is switched to

something else instead.

> > >

> > > Why?

> > >

> > > Because my son is slowly slowly declining in health w/each passing day,

> > > he has been nonfunctional for nearly 4 years, he obviously has mold

> > > problems, but he also has horrible allergies and just about every body

> > > system is out of whack.

> > >

> > > We tried the Dr. Gray protocol as best we could given that my son often

> > > is awake when I am asleep and I have to administer the protocol because

> > > he won't, and then we had to stop the CSM and several other meds because

> > > of elevated liver enzymes. We will go back to it, but one med at a time

> > > to find the offender.

> > >

> > >

> >

>

[Guest guest]

he's not close to liver failure, the doctor took him off several meds/

supplements in an effort to figure out what was causing the problem and

ran a bunch of liver tests, discovered one new problem in this process,

but the liver enzymes are almost back to normal after taking him off csm

and a few other meds. Next step will be to add them back in one at a

time and monitor liver enzymes. This the right approach.

sue

>I remember reading in PubMed where doctors turned to CSM in a last ditch

>effort to save someone who was in liver failure, but perhaps child is

>switched to something else instead.

[Guest guest]

well i am listening to my son's doctor, he wants to find out what is

doing it, i did find info on the web saying it can raise liver

enzymes.....and a naturopath we saw also said the same thing, if it is

bothering him, he may not be able to take it, we are going to have to

start him back up on it and monitor and see, if that doesn't raise his

liver enzymes again, then it was one of the other meds...

I think CSM is a cholesterol lowering med that also just happens to bind

up mold toxins and pull them out of the body, don't think it is a med

for treating liver inflammation or disease.

Sue

>Wouldn't continuing CSM make sense if liver enzymes are elevated? I

>thought that was what CSM was for.

>

[Guest guest]

Hey Sue,

Have you tried a different CSM ?   It took 3 tries before we found the Parr

brand that we could tolerate.   just a thought.   how do you know the

elevated liver enzymes is from the CSM and not the toxins?  Aflatoxins love to

mess with the liver.

I keep you in my prayers

a

From: sue <svican@...>

Subject: Re: [] Re: New - concerns about son

Date: Saturday, March 13, 2010, 7:08 PM

 

well i am listening to my son's doctor, he wants to find out what is

doing it, i did find info on the web saying it can raise liver

enzymes..... and a naturopath we saw also said the same thing, if it is

bothering him, he may not be able to take it, we are going to have to

start him back up on it and monitor and see, if that doesn't raise his

liver enzymes again, then it was one of the other meds...

I think CSM is a cholesterol lowering med that also just happens to bind

up mold toxins and pull them out of the body, don't think it is a med

for treating liver inflammation or disease.

Sue

>Wouldn't continuing CSM make sense if liver enzymes are elevated? I

>thought that was what CSM was for.

>

[Guest guest]

Please forgive me if you have already seen this Dr but I must recommend Dr

Burton Berkson of Las Cruces, NM, and his therapy of ALA IV's and Low Dose

Naltrexone. He has written the book, The Alpha Lopeic Acid Revolution., and has

many you-toobs of his lectures at the NIH. In the 7 months that I sat ,one day

a week in the IV room, I heard and saw many miraculous cures. He is not an

environmental Dr per say. But has a PHD in mycology, has read Shoemaker, and is

a friend of Dr Lieberman, who is also now using ALA. The therapy takes time, but

with those who perserver, I have only seen success. It made me as healthy as I

have ever been, but unfortunately, did not stop my reactivity. I still get an IV

whenever I have the money, it never fails to make me feel better, and the LDN

therapy has lowered my RA factor to normal. Dr Berkson has a long wait for an

app, so I would recommend getting one, and then cancelling when you come up, if

something else has worked.

,

>

> Why?

>

> Because my son is slowly slowly declining in health w/each passing day,

> he has been nonfunctional for nearly 4 years, he obviously has mold

> problems, but he also has horrible allergies and just about every body

> system is out of whack.

>

>

[Guest guest]

Sue: My very best to you and your son. I understand the struggle that you are

going through and I am sure Dr. Rea will help your son in whatever way he can.

Best of luck to you both... D

>

> Why?

>

> Because my son is slowly slowly declining in health w/each passing day,

> he has been nonfunctional for nearly 4 years, he obviously has mold

> problems, but he also has horrible allergies and just about every body

> system is out of whack.

>

> We tried the Dr. Gray protocol as best we could given that my son often

> is awake when I am asleep and I have to administer the protocol because

> he won't, and then we had to stop the CSM and several other meds because

> of elevated liver enzymes. We will go back to it, but one med at a time

> to find the offender.

>

> In the meantime, many people (including on this list) have told me that

> Dr. Rea is very thorough, he has a somewhat different approach (for

> example I think he uses sauna detox rather than CSM or in addition), and

> he is older, I believe he's seen 30,000 or more patients come thru his

> clinic over the years.

>

> We are not discounting Dr. Gray's diagnosis or protocol, I believe every

> word of it, just looking for additive diagnoses and therapies.

>

>

[Guest guest]

HI a,

I don't know that the csm elevated the liver enzymes, he was also on

guafenisen, aloe vera juice and really unlikely cause 2% ketaconazole

nasal spray, any of these could have caused the elevation, or a combo of

these, none of them usually do, but something did, I doubt that it's the

csm, I think it is more likely the guafenisen and/or aloe vera juice. I

just have to go get his liver enzymes checked one more time off of these

meds, and then I will start him back up on the CSM only and monitor,

that is the plan.

Thanks, Sue

>Hey Sue,

>Have you tried a different CSM ?   It took 3 tries before we found the

>Parr brand that we could tolerate.   just a thought.   how do you know

>the elevated liver enzymes is from the CSM and not the toxins? 

>Aflatoxins love to mess with the liver.

>

>I keep you in my prayers

>a

>

>

>

[Guest guest]

Can I suggest something that worked for me? A few years ago, when I was really

ill, someone suggested I go to a Jin Shin Jitsu practitioner. I was desperate so

I went. I think she saved my life-she has made me feel more normal with each day

and I wonder if this could help your son?

Jin Shin is classic energy work, kind of like Chinese accupuncture without the

needles. (my therapist) touches specific parts on my body to make the

energy flow better and it helped me detox from the mold poisoning.

The first treatment was like a revelation! I went in practically crawling out of

my bed and she worked on me for over an hour and I went home and collapsed. But

the next day! I felt better than I had felt in years-it reminded me what it felt

like not to be sick! I was hooked and now, 3 years later keeps me

relatively healthy. (I also have to avoid mold at all costs but if I get

exposed, her work helps me recover faster.)

I live in New York City and there are practitioners here. I don;t know if you

find one by you but there are excellent websites with lists of therapists.

Please consider this-it so helped me!

Surella

>

> Why?

>

> Because my son is slowly slowly declining in health w/each passing day,

> he has been nonfunctional for nearly 4 years, he obviously has mold

> problems, but he also has horrible allergies and just about every body

> system is out of whack.

>

> We tried the Dr. Gray protocol as best we could given that my son often

> is awake when I am asleep and I have to administer the protocol because

> he won't, and then we had to stop the CSM and several other meds because

> of elevated liver enzymes. We will go back to it, but one med at a time

> to find the offender.

>

> In the meantime, many people (including on this list) have told me that

> Dr. Rea is very thorough, he has a somewhat different approach (for

> example I think he uses sauna detox rather than CSM or in addition), and

> he is older, I believe he's seen 30,000 or more patients come thru his

> clinic over the years.

>

[Guest guest]

,

Thank you for the recommendation, I will add him to my list of potential

future things to try....hopefully won't need it, but...

>

>Please forgive me if you have already seen this Dr but I must recommend

>Dr Burton Berkson of Las Cruces, NM, and his therapy of ALA IV's and Low

>Dose Naltrexone. He has written the book, The Alpha Lopeic Acid

>Revolution., and has many you-toobs of his lectures at the NIH. In the

>7 months that I sat ,one day a week in the IV room, I heard and saw many

>miraculous cures. He is not an environmental Dr per say. But has a PHD

>in mycology, has read Shoemaker, and is a friend of Dr Lieberman, who is

>also now using ALA. The therapy takes time, but with those who

>perserver, I have only seen success. It made me as healthy as I have

>ever been, but unfortunately, did not stop my reactivity. I still get an

>IV whenever I have the money, it never fails to make me feel better, and

>the LDN therapy has lowered my RA factor to normal. Dr Berkson has a

>long wait for an app, so I would recommend getting one, and then

>cancelling when you come up, if something else has worked.

> ,

[Guest guest]

thank you for this idea, I do know a Jin Shin Jitsu practitioner back

home so will add this to my list of future things to try...

sue

>Can I suggest something that worked for me? A few years ago, when I was

>really ill, someone suggested I go to a Jin Shin Jitsu practitioner. I

>was desperate so I went. I think she saved my life-she has made me feel