Re: Itch

[Guest guest]

Hi Jeanette!

I'm sorry to hear about what you are going through! I also have cirrhosis and right after I joined this group I started having unberable itching all over and Harper recommeded that I try Aveeno (liquid soap) to take baths and it has done wonders

for me. I still itch sometimes but definetly not at severe. Maybe it will work for you.

For been alone when I first got diagnosed that was one of my main concerns because I have no one to help me and it was frightening but I been blessed that God

has always made a way for me to be okay. Since you had a stroke I saw on TV a

medical emergency device that it looks like a remote control but only with one red

buttom than once pressed it calls police/ambulance for you. May be a good idea for

those days that you may have to be alone. If I was close you bet I would go and sit

with you but I'm in Atlanta and Uk is a bit far but I promise to keep you on my prayers! God Bless

tony

if this is av

[Guest guest]

In a message dated 2/22/02 2:03:30 PM Pacific Standard Time, jeanette_cuk@... writes:

I can't stop itching any ideas it's driving me mad also my eyes are going yellow and my urine has changed

You probably know that these are signs of bilirubin changes. You do need to talk to tell your doctor right away about this.

I think you're doing a great job; life isn't easy and our bodies aren't indestructible. You're not giving up. I admire your tougnness. Keep it up!

Harper

[Guest guest]

In a message dated 2/22/02 2:29:53 PM Pacific Standard Time, rmeeks3230@... writes:

Harper recommeded that I try Aveeno (liquid soap) to take baths and it has done wonders

Aveeno bath oil/soap only helps the surface (and be sure to avoid hot water, which will make you itch more.) Atarax (prescription) quells the itching more effectively while the liver is being treated.

Harper

[Guest guest]

You are precious! Thanks for jumping in! I knew I forgot to ask my md for something

and it was that med. I'm doing better as far as itching but I'll still talk to him. How is

San Francisco ? I went there in '87 for six months and fell in love with the city. It's so

pretty. I never forget my first day. A friend invited me for a ride on his motorcycle and

my trusting self said yes and my lord I thought I was going to die when his bike started jumping in the air on those hills and then there was that curvy road with flowers I don't think I have ever said so many Hail 's

tony

[Guest guest]

In a message dated 2/22/02 4:08:15 PM Pacific Standard Time, rmeeks3230@... writes:

I knew I forgot to ask my md for something

and it was that med. I'm doing better as far as itching but I'll still talk to him. How is

San Francisco ? I went there in '87 for six months and fell in love with the city. It's so

pretty. I never forget my first day. A friend invited me for a ride on his motorcycle and

my trusting self said yes and my lord I thought I was going to die when his bike started jumping in the air on those hills and then there was that curvy road with flowers I don't think I have ever said so many Hail 's

Be aware that the Atarax will make you sleepy until you get used to it. (Of course, that can be very desirable, when you itch.)

Yes, SF is wonderful. When I first moved here, ten years ago, my landlord offered to show me the town on his motorcycle. We lived at the peak of Russian Hill, which is very steep, indeed. Only later did I learn that he had medical problems that caused him to have an extremely poor sense of balance!

Harper

[Guest guest]

Jeanette,

I think that Tony gave you a good suggestion about the medicial

alert button. Do you have that program in the UK? I certainly hope

so because I think that it would give you and your husband

peace of mind, even if you are not alone.

The anxiety of waiting for " the call " is terrible, especially when

you are doubting your own body signs and your own actions.

Your memory lapses have got to be confusing and frightening to

you. From your message, it sounds like your doctor is aware of

some of the symptoms that you are having. Some of the

forgetfulness may be from your stroke, but it may also be a side

effect of your medication.

Hang in there Jeanette. Although we are miles apart, my heart is

with you today. I am sure that everyone here is sending thoughts

and prayers your way.

God's peace to you,

[Guest guest]

Jeanette isn't there anyone that could stay with you while your husband is away. Maybe you could look into those medical alert bracelets. I'm so sorry that you aren't feeling well. I hope you are wrong and that your blood work is okay. Keep us informed and I'll say an extra prayer for you. Ann CT [ ] Itch Hi everyone and welcome to the newcomers. My name is Jeanette and was dx with AIH in 1998 and was told I had Cirrhosis in 2001. At the moment I am feeling very confused I am not sure if it is the AIH or because I had a rather large stroke a few months ago. This afternoon I thought I would make a cup of tea ( brits really can't do without tea) anyway I made the tea and for some reason put it in the fridge and the milk in the washing machine, I am always doing something like that I really can't trust myself to do anything. I know everyone tells me the stroke is going to take up to 2years before I am completly recovered but this is rediculous. I had my bloods done last week and I don't think it is going to be good news, I can't stop itching any ideas it's driving me mad also my eyes are going yellow and my urine has changed (is that to much information ). Really things do not look good I don't want to see my Dr next week, my heart misses a beat every time the phone rings in case it's bad news this has happened to many times before. To make matters worse I am on my own this weekend my husband has had to go away and I am feeling quite scared in case some thing happens it's worse at night because that is when I had the stroke I have really got to convince myself that it wont happen again. I am getting tired now I still can't do much but moan SORRY. (((( BIG BIG HUGS))) Jeanette UK AIH 1998 Cirrhosis 2001

[Guest guest]

Jeannette,

Although I do not email very often, I was touched by both your emails and the responses it received. I think the red alert button that tony suggested is an excellent idea and hope you are able to get in to your dr. and get your bilirubin checked. You are all so supportive it is good to be a part of such a community, even if I don't get a chance to chat much. I am getting my LFTs checked soon and have had quite a bit of pain in my upper right quadrant, under my ribcage and can relate to not wanting to know the news. Take care all...

Molly Faulkner

[Guest guest]

Jeanette,

I know this is late, you posted on Friday and it it Wednesday. I an very concerned about your post. The tea in the frig and milk in washing machine is disturbingly familiar. I put the iron in the frig one time and my ironed shirt in the drawer with the flatware. It sounds to me in my un MD impression that you have encepalopathy. This refers to toxins getting into the brain because the liver is not filtering the blood. The flow of blood gets backed up because the vessels become constricted due to the cirrohisis, fluids are absorbed into the abdomen and the rest of the body and bile that moves into the blood stream is an acid that causes the itching. You need to talk to your Dr. Lactolose will help toxins from accumulating and he may have other interventions for you. Be careful. This scares me. Let us know how you are.

Patty - Miami

[ J. ] -----Original Message-----From: Jeanette Carpenter [mailto:jeanette_cuk@...]Sent: Friday, February 22, 2002 5:02 PMLiversupport-L Subject: [ ] Itch

Hi everyone and welcome to the newcomers. My name is Jeanette and was dx with AIH in 1998 and was told I had Cirrhosis in 2001. At the moment I am feeling very confused I am not sure if it is the AIH or because I had a rather large stroke a few months ago. This afternoon I thought I would make a cup of tea ( brits really can't do without tea) anyway I made the tea and for some reason put it in the fridge and the milk in the washing machine, I am always doing something like that I really can't trust myself to do anything. I know everyone tells me the stroke is going to take up to 2years before I am completly recovered but this is rediculous. I had my bloods done last week and I don't think it is going to be good news, I can't stop itching any ideas it's driving me mad also my eyes are going yellow and my urine has changed (is that to much information ). Really things do not look good I don't want to see my Dr next week, my heart misses a beat every time the phone rings in case it's bad news this has happened to many times before. To make matters worse I am on my own this weekend my husband has had to go away and I am feeling quite scared in case some thing happens it's worse at night because that is when I had the stroke I have really got to convince myself that it wont happen again. I am getting tired now I still can't do much but moan SORRY. (((( BIG BIG HUGS))) Jeanette UK AIH 1998 Cirrhosis 2001

[Guest guest]

Hi Alyssa -- I know exactly what you are talking about !! I have experienced the same thing and have rubbed my neck and behind my ear as well trying to get the "itch" to go away ! I am not sure what causes it but it is very aggravating.

Ilonasxyitaliana24 <sxyitaliana24@...> wrote:

Hey everyone,I haven't posted much lately, so I do not know if this subject was already touched upon, but does anyone ever get an itch like inside their ear that you cannot scratch?? You can feel it but its almost like deep inside?? I have been getting this a few days this week. I was curious if anyone else gets it or knows what it is. It is SOOOO aggrivating! HA HAI rub behind my ear and neck to see if I can somehow stop it but it doesnt really work. I wish I had a HUGE Qtip I could stick in there and just scratch away! =)Alyssa

[Guest guest]

Ilona,

Isnt it the strangest thing???

I really wish I could stick somethiing in there and

stop it!! =)

Alyssa

--- Ilona Branum <ibranum@...> wrote:

> Hi Alyssa -- I know exactly what you are talking

> about !! I have experienced the same thing and have

> rubbed my neck and behind my ear as well trying to

> get the " itch " to go away ! I am not sure what

> causes it but it is very aggravating. Ilona

>

> sxyitaliana24 <sxyitaliana24@...> wrote:Hey

> everyone,

>

> I haven't posted much lately, so I do not know if

> this subject was

> already touched upon, but does anyone ever get an

> itch like inside

> their ear that you cannot scratch?? You can feel it

> but its almost

> like deep inside?? I have been getting this a few

> days this week. I

> was curious if anyone else gets it or knows what it

> is. It is SOOOO

> aggrivating! HA HA

> I rub behind my ear and neck to see if I can somehow

> stop it but it

> doesnt really work. I wish I had a HUGE Qtip I could

> stick in there

> and just scratch away! =)

>

> Alyssa

>

>

>

[Guest guest]

Hi, all,

That little itch could be telling you something - that your nerve

endings are growing back. I remember distinctly the itching, both

outside and in the ear canal, when I had my surgery long ago. It's one

of those things that, as a father of a child who was recently diagnosed

with c-toma, I'm worried about post-op: how to keep her from scratching

an itch that can't be scratched?

-Jeff.

Itch

Hey everyone,

I haven't posted much lately, so I do not know if this subject was

already touched upon, but does anyone ever get an itch like inside

their ear that you cannot scratch?? You can feel it but its almost

like deep inside?? I have been getting this a few days this week. I

was curious if anyone else gets it or knows what it is. It is SOOOO

aggrivating! HA HA

I rub behind my ear and neck to see if I can somehow stop it but it

doesnt really work. I wish I had a HUGE Qtip I could stick in there

and just scratch away! =)

Alyssa

[Guest guest]

Hi Alyssa,

Usually when my husband get the itch you describe, he needs to go in

for a cleaning a little earlier than normal. Sometimes he can

actually feel the " stuff " inside his ear, and like you, wishes he

could just stick his finger in there and scratch.

Going in for a cleaning might be helpful. Good luck.

Michele

> Hey everyone,

>

> I haven't posted much lately, so I do not know if this subject was

> already touched upon, but does anyone ever get an itch like inside

> their ear that you cannot scratch?? You can feel it but its almost

> like deep inside?? I have been getting this a few days this week.

I

> was curious if anyone else gets it or knows what it is. It is

SOOOO

> aggrivating! HA HA

> I rub behind my ear and neck to see if I can somehow stop it but

it

> doesnt really work. I wish I had a HUGE Qtip I could stick in

there

> and just scratch away! =)

>

> Alyssa

[Guest guest]

> Hey everyone,

>

> I haven't posted much lately, so I do not know if this subject was

> already touched upon, but does anyone ever get an itch like inside

> their ear that you cannot scratch?? You can feel it but its almost

> like deep inside?? I have been getting this a few days this week. I

> was curious if anyone else gets it or knows what it is. It is SOOOO

> aggrivating! HA HA

> I rub behind my ear and neck to see if I can somehow stop it but it

> doesnt really work. I wish I had a HUGE Qtip I could stick in there

> and just scratch away! =)

>

> Alyssa

I've had intense itchiness (?), down my ear also, though my post-op

packing is still down there (removed next week after four weeks of

nestling down there). Guess this is a different itching probably

associated with the healing process? I hear people with broken legs

in casts use knitting needles to get at that " itch " ! Think I'll just

bite my lip! It's odd, but I remember from having the packing out of

my other ear three years ago & reading somewhere (maybe here?), that

it could be a rather uncomfortable experience. On the contrary, it

was a most pleasant feeling as the soggy, warm material was coaxed

out of my ear canal. Itch, prepare to be itched!

[Guest guest]

To reiterate what Michele said...in my experience itchiness means

cleaning time. Ever since my first bout with ctoma 10 years ago I go

to the ENT every 4-6 months for a cleaning. When I let it go and go

past those 4-6 months I get REAL itchy and pay for it in the end.

There's more cleaning involved and sometimes more pain if there's a

retraction pocket forming.

Christa

[Guest guest]

>

> Has anybody heard of hand and feet itching being an OT sign that the

> body is " waking " up?

This is the typical symptom of B6 toxicity, do you give high doses of

B6? Otherwise, it can be the start of celiac DH, or intolerance to

certain supplements.

I suppose it can be " waking up " , but I don't think that would be a

very common reason.

Dana

[Guest guest]

> >

> > Has anybody heard of hand and feet itching being an OT sign that the

> > body is " waking " up?

On a-m forum yesterday, Andy Cutler posted that this is also a sign of

B12 deficiency.

Dana

[Guest guest]

I noticed you have been on the AP for a long time. I have scleraderma

(systemic) for 14 years. I was doing fine and off all meds two years ago

except

for the AP. Doctors said I probably didn't need the immunosuppressents at

that point any new developments would be unlikely. I was on just the AP alone

for nine months, 12 months altogether and I had a major flare with new skin

involvement (very highly unlikely after 12 years) my whole arm tight and two

other areas, fluid around my heart, and fibrosis in the lungs,(mild). I hadn't

had a PFT in like four years because my lungs sounded fine (my fault I

guess) so not sure when that happened. I of course blamed it on going off the

methotrexate. When I had the flare on went back on the methotrexate and

discontinued the AP because it scared me so bad and was dealing without a lot

at

that time. So after nine months back on methotrexate doctors encouraged me to

get off because i guess that can cause more lung problems. Anyway, I have

been stable now for a while and on a new study drug called bosantan (blind

study) for fibrosis I guess its been tested for raynaulds too. It is a FDA

approved drug for something else.

I always felt that when I was on the methotrexate, even though it did not

loosen my tightened skin, when I felt my skin tightening or a flare coming if I

increased the methotrexate for a few weeks it would go away. I feel like I

swimming in the deep end with no life jacket.

My question is if I should try the AP again. I am terrified of another

flare. I got a lot more damage to my fingers since the last flare. Doctor

doesn't want me to be on any prednisone either, never was on much just 5 mg. I

get numerous cellulitis in my fingers. Even on the AP I still got the

infections. If I started the AP it would be the third time. Any suggestions

would

be welcome.

Thank you,

Diane

[Guest guest]

Ready,

There a number of things that can help. First advoid any lotions or

products that contain alcohol, it dries the skin. Lukewarm

baths/showers vs hotones help lessen the loss of oils. Lotions like

Aveeno or Gold Bond medicated are good. I kept several bamboo back

scratchers handy, for my use only because of the chance of blood

contamination. Depending on you ribavirin dosage your dr. may reduce

the dosage by one pill a day.

Hope this helps, Glenn

>

> How do I stop this itchines that is driving nuts

>

[Guest guest]

I asked my doctor for that prescription

anti-allergen, I've forgotten the name of it, but I

found that helped the rashes. Also I washed everything

in hypoallergenic soap, especially my sheets, used

hypoallergenic shampoo and deoderant, everything I

could think of. And soaked in oatmeal baths, stuff

like that. I think it helped, but part of what

Interferon does is raise your immune system to the

point where it's reacting to everything. I had 3

different kind of rashes, and sometimes I'd just lose

it and take a wire brush to my lower legs and scratch

until they bled. Thank God they didn't scar up.

I use Cetaphil moisterize and soap now, they are nice

and bland for my skin.

I sure feel for you, it makes me itchy to think about

how bad it was - hope something helps!!

Michele

--- Ready <ready12344@...> wrote:

> How do I stop this itchines that is driving nuts

>

>

>

>

__________________________________________________

[Guest guest]

Interesting, I itch as well but it's only when my body core temperature rises.

When I first started itching there was no doubt in my mind it was mold related

but now that I think about it I've had this problem since I was 17 and it always

happens the same time of year which is winter time. I feel safe in saying that

I'm itching not from mold but from my dry skin I always endure during the winter

months.

>

> Here is something I haven't seen discussed here yet. I don't know whether it

is unique to England.

>

> My family escaped a WDB in London last September. We bounced around London

for awhile, then I went to the US, Seattle, with the kids for a few months, and

returned to London 10 days ago.

>

> In the last days, I am experiencing incredible itchiness. When we were in

London before, itchiness was one of my mould symptoms, which would be relieved

by a vinegar bath. In the US, I rarely experienced the itchiness, except on a

friend's sofa. Now, after walking into a friend's house for five minutes, I

have been itchy for most of the last four days.

>

> A neighbour who also had a bad mold problem in her house which they've tried

to remediate, complains that, while in most respects they are feeling better,

feeling itchy is now her worst problem.

>

> I find that I can feeling fine, but if I sit on some pieces of furniture, the

itchiness starts. The other day, I felt itchy inside but fine outside.

Sometimes, if I shift furniture the itchiness goes away. But sometimes, once it

starts, even if it lessens, it gradually builds back up again.

>

> I've gone to bed fine and woken up itchy. But the next night, stayed

itch-free all night, and most of the day. Felt fine on a certain chair all day.

Til evening, when sitting there made me go itchy.

>

> I don't know if it's mold, actually I think it is something else, but I think

that the mold exposure caused me to be reactive in this way. It seemed to come

from a friend's 100 year old house -- in the autumn, they tore through their

attic to make an extension to their house. My daughter had a sleepover there.

The morning after she returned to our hotel, all five of us felt really ill --

red eyes, tired, depressed, unwell. When I picked up her suitcase, I threw up.

I think all of our health declined from that episode. A mould test in the house

did not show any mould. Now, 3 months later, I walked into the house for less

than 5 minutes, didn't sit on anything, felt ok there (but they had just put in

new carpet -- difficult odor), and I'm left with wretched itchiness. Which I've

heard at least one other in the UK suffers from.

>

> Any experience with or thoughts about The Itch?

>

> Betsy

>

[Guest guest]

Might consider dust mite allergy too.

>

> Here is something I haven't seen discussed here yet. I don't know whether it

is unique to England.

>

> My family escaped a WDB in London last September. We bounced around London

for awhile, then I went to the US, Seattle, with the kids for a few months, and

returned to London 10 days ago.

>

> In the last days, I am experiencing incredible itchiness.

[Guest guest]

Seattle area, for some reason, has a problem with fleas which is often treated

with flea bombs. Another possibility for irritation and itching.

Carl Grimes

Healthy Habitats LLC

(fm my Blackberry)

[] Re: Itch

Might consider dust mite allergy too.

>

> Here is something I haven't seen discussed here yet. I don't know whether it

is unique to England.

>

> My family escaped a WDB in London last September. We bounced around London

for awhile, then I went to the US, Seattle, with the kids for a few months, and

returned to London 10 days ago.

>

> In the last days, I am experiencing incredible itchiness.

[Guest guest]

I had HORRIBLE itchy crawly skin when I was in my moldy environment.It

honestly felt like thousands of ants crawling all over me. When I left and

took the CSM it all vanished. Haven't had any problems since.

Sue R.

Here is something I haven't seen discussed here yet. I don't know whether

it is unique to England.

My family escaped a WDB in London last September. We bounced around London

for awhile, then I went to the US, Seattle, with the kids for a few

months, and returned to London 10 days ago.

[Guest guest]

I used to itch before I got hives

Janet

In a message dated 2/22/2011 1:33:16 P.M. Eastern Standard Time,

jeaninem660@... writes:

Sensory nerves. These nerves relay information from your skin and muscles

back to your spinal cord and brain. The information is then processed to let

you feel pain and other sensations