Re: Healing the Brain

[Guest guest]

that is what Im doing and its like living in a bubble but the alternative

is worse

Janet

In a message dated 2/12/2011 12:54:13 P.M. Eastern Standard Time,

jeaninem660@... writes:

I hope you are practicing advoidance, not just of mold and it's by

products,

[Guest guest]

So sorry to hear your story.

First thing is to get rid of the mold toxins in your body. Supplements are

useless until you do. What meds have you tried so far? For me i used

cholestyramine. Let us know,

thanks

E

[Guest guest]

Hi ,

According to the studies that Mt. Sinai Hospital did on toxic mold

victims 15 years ago, each victim had brain lesions in the same exact

spot. It does thankfully heal, though. Whether the neurological damage

heals is another matter. Brain fog for me cleared up (after I left

work) within 6 months. However, there was residual cognitive

functioning to some degree. I also still have partial neuropathy in my

feet. I'm making some incredible discoveries lately that I hope to be

able to share soon with more than just my family.

Please remember and pray for the 3 Rs this year:

RICO, RESEARCH, RECOVERY

Barth

www.presenting.net/sbs/sbs.html

SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

---

Copyright 2011. The content of this post is considered the property

of the author and shall not be reproduced, copied, or shared with

another e-mail list, public forum, or individual without the written

permission of the author. All rights reserved.

SO> Hey, I havn't really been able to find anything in any toxic mold site about

ways to heal the brain. It's been since November that I've been free of my

carpet that had mold in it and it's been a

SO> struggle every day. My brain's gone from complete devastation to inching

along in healing. The sense of self that I lost years ago is starting to heal

itself almost in little platelets one by one

SO> in the brain starting in the center and working outward. It's a very, very

strange and difficult place to be in because I know it won't be tomorrow or the

day after or next week that I'll be

SO> better. I don't know when it'll be. It only makes so much progress in a day

and I'm wondering who has or is going through the same thing. I know mold caused

this and I've seen the term " brain

SO> fog " all over the internet but with no real suggestions on how to heal it.

For me it wasn't just fog, it was total destruction of reality. But it can't be

that uncommon. Maybe those who have

SO> experienced this as well never made it out?

SO> So I looked up what may happen in the brain when its exposed to mold. One

place I saw said it causes the myelin sheeting in the nerves of the brain to

deteriorate. So I looked up ways to

SO> replenish the sheething. I am doing literally every way I looked up. I'm

taking a lot of lecithin, lots of calcium, magnesium, vitamin D3, B12, whey

protein powder, L carnitine,fish oil,

SO> phosphotidylserine, alpha lipoic acid. There's maybe one other thing I

havn't tried. Everything I'm doing seems to have helped a lot in the beginning

but then stopped. So can anyone help me? Has

SO> anything worked for anyone else? I can't stay here in this horrible state

for much longer.

[Guest guest]

Yeah, I'm pretty sure I've gotten rid of the toxins in the body. I was taking

diatomacaeous earth and zeolite powder up to 3 times a day along with 6 capsules

of brown seaweed in the morning. I feel clean of that finally. My body just

still hasn't healed. I havn't tried cholestyramine. I'm taking Lecithin,

calcium, phosphatidylSerine, alpha lipoic acid, fish oil, vitamin D3, B12, whey

protein powder, multi vitamins.

From: photoguys2003 <photoguys2003@...>

Subject: Re: [] Healing the Brain

Date: Saturday, February 12, 2011, 10:08 AM

So sorry to hear your story.

First thing is to get rid of the mold toxins in your body. Supplements are

useless until you do. What meds have you tried so far? For me i used

cholestyramine. Let us know,

thanks

E

[Guest guest]

I hope you are practicing advoidance, not just of mold and it's by products,

nothing much is going to help unless your are.

molds produce VOC's you can become reactive to these VOC'S that can be in many

things. just avoiding mold and not reaconizing other things that you have become

reactive to isn't going to help you much.

the more you reconize and advoid the more you can help the suffering

from brain reactions regardless of weither it's just brain fog or more than

that. you may now be reactive to many chemicals, like household cleaning

products, things like purfumes, scented candles,

scented shampoos, laundry deturgents, hand soaps,

you can be reactive to gasses, car pollution, BBQ grilling,

sewer gasses, and the list goes on.

fugureing out what you are reactive to now and advioding it is number one most

important. you cant get much of anywhere on the level of relief without first

realizing this and doing it.

the less in your environment that you are now reactive to, the better

your brain well fell and function, weither it well fix it all or not depends on

the level of injury you suffered.

ps, you also have to take a good look now at what your eating, because

reactiveness to many foods can also hinder brain function.

>

> Hey, I havn't really been able to find anything in any toxic mold site about

ways to heal the brain.

[Guest guest]

All right. Were the lesions all on the right side of the brain? Going like a

cylinder down to the center? That's how it feels for me. I don't really get

tingling anywhere but what do you mean by cognitive functioning? Do you know

what I mean by loss of sense of self and if so did that come back for you?

According to the studies that Mt. Sinai Hospital did on toxic mold

victims 15 years ago, each victim had brain lesions in the same exact

spot. It does thankfully heal, though. Whether the neurological damage

heals is another matter. Brain fog for me cleared up (after I left

work) within 6 months. However, there was residual cognitive

functioning to some degree. I also still have partial neuropathy in my

feet. I'm making some incredible discoveries lately that I hope to be

able to share soon with more than just my family.

[Guest guest]

 Yeah, my house is completely safe. I can walk every square foot of it

without getting a reaction and believe me I would notice if there was

anything causing a reaction. I noticed a black mold in a friends

bathroom no one else noticed was there by just being in there. I am

sensitive to things now and I can recognize that. How can I know the

extent of the damage to the brain though? It started healing itself the

moment I got out of the moldy environment. I just need a way to really

help it along though. It was extensive damage I can say that much

though. Very bad place I've been taken to. But surely, I can't be

screwed. I can't be.

I hope you are practicing advoidance, not just of mold and it's by products,

nothing much is going to help unless your are.

[Guest guest]

So, was there any kind of treatment given to the people who were affected or

were just told by the hospital " Yep, you're pretty messed up. Well, thanks for

participating in the study. " And then kinda nudge them out the door.

According to the studies that Mt. Sinai Hospital did on toxic mold

victims 15 years ago, each victim had brain lesions in the same exact

spot.

[Guest guest]

humm, personally I think that study has it's problems.

did any of the patients suffer actuall olfactory damage, olfactory tract damage,

spinal cord damage or was a chunck of there frontal lobes missing. brain fog is

just the beganning of what these exposures can do. my myelin sleath was damaged

to, I suffered

nerve demyelination.

these levels of damage might not happen to everybody but they do happen. this

study fails to reconize brain damage beyond brain fog effects. and no, not all

brain damage that can accure can heal.

frankly I'm getting tired of here that because it's just not true.

while luckly for most it may be, I still dont like it that these types of

studies basicly put a cap on damages and it's not factual.

that leaves people that have suffered like I have, out of the picture.

>

> Hi ,

>

> According to the studies that Mt. Sinai Hospital did on toxic mold

> victims 15 years ago, each victim had brain lesions in the same exact

> spot. It does thankfully heal, though. Whether the neurological damage

> heals is another matter. Brain fog for me cleared up (after I left

> work) within 6 months. However, there was residual cognitive

> functioning to some degree. I also still have partial neuropathy in my

> feet. I'm making some incredible discoveries lately that I hope to be

> able to share soon with more than just my family.

>

> Please remember and pray for the 3 Rs this year:

>

> RICO, RESEARCH, RECOVERY

>

> Barth

>

> www.presenting.net/sbs/sbs.html

>

> SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

[Guest guest]

That's what we try to do, despite the exposure. Avoid anything else as much as

possible.

________________________________

From: " Gingersnap1964@... " <Gingersnap1964@...>

Sent: Sat, February 12, 2011 1:40:29 PM

Subject: Re: [] Re: Healing the Brain

that is what Im doing and its like living in a bubble but the alternative

is worse

Janet

[Guest guest]

Hi ,

I have read what you use and sorry you are gong threw this. Have you done any

detox at all?? Ridding the body of the offending agents ??

God Bless !!

dragonflymcs

Mayleen

________________________________

From: O <tristessa771@...>

Sent: Sat, February 12, 2011 9:09:21 AM

Subject: [] Healing the Brain

Hey, I havn't really been able to find anything in any toxic mold site about

ways to heal the brain. It's been since November that I've been free of my

carpet that had mold in it and it's been a struggle every day. My brain's gone

from complete devastation to inching along in healing. The sense of self that I

lost years ago is starting to heal itself almost in little platelets one by one

in the brain starting in the center and working outward. It's a very, very

strange and difficult place to be in because I know it won't be tomorrow or the

day after or next week that I'll be better. I don't know when it'll be. It only

makes so much progress in a day and I'm wondering who has or is going through

the same thing. I know mold caused this and I've seen the term " brain fog " all

over the internet but with no real suggestions on how to heal it. For me it

wasn't just fog, it was total destruction of reality. But it can't be that

uncommon. Maybe those who have experienced this as well never made it out?

So I looked up what may happen in the brain when its exposed to mold. One place

I saw said it causes the myelin sheeting in the nerves of the brain to

deteriorate. So I looked up ways to replenish the sheething. I am doing

literally every way I looked up. I'm taking a lot of lecithin, lots of calcium,

magnesium, vitamin D3, B12, whey protein powder, L carnitine,fish oil,

phosphotidylserine, alpha lipoic acid. There's maybe one other thing I havn't

tried. Everything I'm doing seems to have helped a lot in the beginning but then

stopped. So can anyone help me? Has anything worked for anyone else? I can't

stay here in this horrible state for much longer.

[Guest guest]

Hello,

I have had lots of Brain fog since my original exposures. Avoidance , and I

agree now you may have to watch out for chems from shampoo to cleaning products

at home and pesticides and fungicides outdoors as they became a big problem for

me. I was tested and found that my food allergies and delayed food allergies

also were keeping my total load at a max which was causing brain fog. I also

agree to make sure the molds out of you. I have used liquid probiotics and

oregano oil p73 i liked best which has seemed to help me feel better. Make sure

your staying alkaline as well.It seemed for me that everything together was a

factor that effected my total load and how I felt overall including my brain

which was a big issue.I tried other things but found it was hard to notice if

they were helping.

>

> Hey, I havn't really been able to find anything in any toxic mold site about

ways to heal the brain.

[Guest guest]

Yes, yes I have. Lots. Diatomacaeous eath with zeolite and brown seaweed. I'm

just afraid this is going to be permanent in some ways like some people have

expressed on here. I can't handle t hat. I don't really believe it though.

From: dragonflymcs <dragonflymcs@...>

Subject: Re: [] Healing the Brain

Date: Saturday, February 12, 2011, 5:40 PM

Hi ,

I have read what you use and sorry you are gong threw this. Have you done any

detox at all?? Ridding the body of the offending agents ??

God Bless !!

dragonflymcs

Mayleen

[Guest guest]

So what happened to you?

From: osisposis <jeaninem660@...>

Subject: [] Re: Healing the Brain

Date: Saturday, February 12, 2011, 1:08 PM

humm, personally I think that study has it's problems.

did any of the patients suffer actuall olfactory damage, olfactory tract damage,

spinal cord damage or was a chunck of there frontal lobes missing. brain fog is

just the beganning of what these exposures can do. my myelin sleath was damaged

to, I suffered

nerve demyelination.

these levels of damage might not happen to everybody but they do happen. this

study fails to reconize brain damage beyond brain fog effects. and no, not all

brain damage that can accure can heal.

frankly I'm getting tired of here that because it's just not true.

while luckly for most it may be, I still dont like it that these types of

studies basicly put a cap on damages and it's not factual.

that leaves people that have suffered like I have, out of the picture.

[Guest guest]

I just started reading Ritchie Shoemaker's new book and believe it

references how mold affects the whole body including brain thru a whole

cascade of physiological dysregulations. You might want to google and

look at his website, then get the book Surviving Mold.

Has anyone had great success with his protocol?

Has anyone been helped by the VIP nasal spray?

Someone posted something a while back about how the VIP could damage the

pancreas in certain situations, but I don't remember the details, can

whoever posted refresh my memory? My sick son tried VIP but it didn't

help, however, it sounds like such a great thing I would like him to try

it again now that we are out of the sick house, and hopefully in a

healthier one...but I don't want to risk his pancreas, so....

anyone done the XMRV test? anyone have XMRV and what are you doing

about it??

thanks, sue v.

[Guest guest]

I do not know if I would use DE, that is the first time I have ever heard of

that. Can you explain where you got this from ??

Is the brown seaweed fermented ??

God Bless !!

dragonflymcs

Mayleen

________________________________

From: Ocampo <tristessa771@...>

Sent: Sat, February 12, 2011 10:15:09 PM

Subject: Re: [] Healing the Brain

Yes, yes I have. Lots. Diatomacaeous eath with zeolite and brown seaweed. I'm

just afraid this is going to be permanent in some ways like some people have

expressed on here. I can't handle t hat. I don't really believe it though.

[Guest guest]

I went to talk to the owner of a cost plus where I live and not knowing what was

causing all this to me, he said in the case that a parasite was causing this, I

should take diatamacaeous earth mixed with zeolite everyday to cleanse the body

and remove heavy metals. It really helped in the beginning. I was taking A LOT

of DE everyday. I haven't for about a month. I do not know if the brown seaweed

is fermented. It's a product called Modifilan. You can look it up yourself and

check it out if you want.

I don't know if I would use DE. This is first I have heard of it.

dragonflymcs

Mayleen

[Guest guest]

I don't know about seaweed. How do you know if it's clean or toxic?

A relative who doesn't have the food allergies I have,

had reactions to rice chips w seaweed.

Zeolite is a toxin, volcanic ash. I read on a chelation list that it

puts aluminum in your body. 

A toxicologist, Dr. Boyd Haley tested it. Click on more from the link.

http://www.markschauss.com/health/zeolites-cancer-cure-i-dont-think-so/

Common FDA, start doing your job and get rid of all of those Waiora MLM

distributors who are making outrageous claims about how their product,

which is volcanic ash made up primarily out of aluminum silicate, cures

cancer. They go on to cite a study, which no one has any details about

or any way of verifying the claim, which makes a ridiculous statement

telling us that the product cured cancer in a number of late-stage patients.

Kathy

>

From: dragonflymcs <dragonflymcs@...>

I do not know if I would use DE, that is the first time I have ever heard of

that. Can you explain where you got this from ??

Is the brown seaweed fermented ??

God Bless !!

dragonflymcs

Mayleen

[Guest guest]

Sue,

This is from Dr. Shoe's book.  You can only use it if out of a WDB .

He found VIP deficiency may go w low MSH. VIP helped MSH in some patients.

It's a hormone made by the posterior pituitary, had regulatory effect in the

suprachiasmatic nucleus of the hypothalamus. He found most VIP def. had MCS. VIP

controls inputs of olfactory nerves in master gland of brain, hypothalamus. Says

have to do all the 1st steps Marcans, CSM, etc.

to correct inflammatory issues before trying it.

He does say it lowers C4a, TGF Beta-1, raises VEGF, & MSH.

I don't know if helps XMRV. 

Kathy

From: sue <svican@...>

 Re: Healing the Brain

Has anyone been helped by the VIP nasal spray?

[Guest guest]

" O "

>

>Sounds like you have done a good job of healing yourself. I know whey is

really good because of the amino acids. I had muscle wasting for a long time

before I noticed it and whey stopped it. I wonder if the brain was wasting away

too????

I have slow brain still sometimes. I also feel like I have dissociation. I

don't respond qppropriately to people and it

makes me feel awkward.

I have slow response while driving sometimes so I am afraid I will need to quit

driving someday. I had three parking lot accidients, never on the freeway for

some reason. Maybe adrenalin kicks in?

Do you get tired of taking all the supplements? Thorne makes on that is very

complete but it costs $100 a month and you take 8 a day. Might be worth it in

the long run.

Have you ever done a heavy metals test to see if you also have that proproblem?

I am high in aluminum and arsenic, uranium, thorium, and silver. Don't know

where it comes from either.

I am taking humifulvate now.

I think you will find you are better soon, you are on the right track. It did

seem like I got lost on the way and it still feels like it but not as bad.

Somedays I almost feel normal!

Meredith

[Guest guest]

Since it has been difficult to find a good dr. Could you direct me to any

studies that you know of on toxic mold?

>

>

> SO> So, was there any kind of treatment given to the people who were

> SO> affected or were just told by the hospital " Yep, you're pretty

> SO> messed up. Well, thanks for participating in the study. " And then

> SO> kinda nudge them out the door.

>

> Since I was unable to fork out the out-of-pocket up front expenses, I

> can't answer that. This was just one part of their protocol. Some of

> it included pulmonary function and lung biopsy. The purpose was

> twofold - for research and for claims. It was a comprehensive study.

>

[Guest guest]

I didn't write the first paragraph. Please get your quotes right.

Barth

www.presenting.net/sbs/sbs.html

SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

---

Copyright 2011. The content of this post is considered the property

of the author and shall not be reproduced, copied, or shared with

another e-mail list, public forum, or individual without the written

permission of the author. All rights reserved.

j> Since it has been difficult to find a good dr. Could you direct me to any

studies that you know of on toxic mold?

j>

>>

>>

>> SO> So, was there any kind of treatment given to the people who were

>> SO> affected or were just told by the hospital " Yep, you're pretty

>> SO> messed up. Well, thanks for participating in the study. " And then

>> SO> kinda nudge them out the door.

>>

>> Since I was unable to fork out the out-of-pocket up front expenses, I

>> can't answer that. This was just one part of their protocol. Some of

>> it included pulmonary function and lung biopsy. The purpose was

>> twofold - for research and for claims. It was a comprehensive study.

>>

[Guest guest]

>

> Zeolite is a toxin, volcanic ash. I read on a chelation list that it

>

> puts aluminum in your body.

>

Yes, possibly cadmium also. There is a local distributor who says that if your

testing for metals cadmium will start going up once other metals are removed

since you will begin 'unmasking' the cadmium stored in your body. Which of

course is a load of rubbish and means that there is cadmium in the product.

Regards,

D

[Guest guest]

thanks kathy, my sick son tried vip, but while we were still in the sick

house, now we are out i am going to ask the doctor about trying vip

again...also he did some csm after the vip, vip easier than csm, now he

has done some csm, i am going to try and restart the whole protocol

although i know we won't get csm in as frequently as dr shoe probably

does it..and see it it helps..

[Guest guest]

How long has it been for you since you removed yourself from the toxic

environment? How long have you been healing? I found phosphatidyl serine started

helping me out more. Yeah, I hate the dissocation. Hate it. I just want that to

go away. And the slowness. It's like a nightmare. Like an existential nightmare.

From: fontanafool <productionking04@...>

Subject: [] Re: Healing the Brain

Date: Sunday, February 13, 2011, 10:06 AM

" O "

>

>Sounds like you have done a good job of healing yourself. I know whey is

really good because of the amino acids. I had muscle wasting for a long time

before I noticed it and whey stopped it. I wonder if the brain was wasting away

too????

I have slow brain still sometimes. I also feel like I have dissociation. I

don't respond qppropriately to people and it

makes me feel awkward.

I have slow response while driving sometimes so I am afraid I will need to quit

driving someday. I had three parking lot accidients, never on the freeway for

some reason. Maybe adrenalin kicks in?

Do you get tired of taking all the supplements? Thorne makes on that is very

complete but it costs $100 a month and you take 8 a day. Might be worth it in

the long run.

Have you ever done a heavy metals test to see if you also have that proproblem?

I am high in aluminum and arsenic, uranium, thorium, and silver. Don't know

where it comes from either.

I am taking humifulvate now.

I think you will find you are better soon, you are on the right track. It did

seem like I got lost on the way and it still feels like it but not as bad.

Somedays I almost feel normal!

Meredith