Guest guest Posted January 16, 2011 Report Share Posted January 16, 2011 hi , Are your eyes dry ? Blurred ? or just sore ?  God Bless !! dragonflymcs Mayleen ________________________________ From: RUSTEE <rustee50@...> Sent: Sun, January 16, 2011 6:19:51 AM Subject: [] VERY SORE EYES  I have terribly sore/painful eyes. Can anyone explain what or how this is happening? Thanks, Ian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2011 Report Share Posted January 16, 2011 Same here! As I sit here in my goggles to protect and soothe my eyes I am in alot of pain. For me it's anything in the air-chemicals, dust, mold (of course), etc. Eye drops help but what helps most are the goggles. I drive with them on (my car is bad for me) and I wear them in the house when things are bad. My eyes are the most sensitive part of my MCS. They are my canary in the coal mine. I feel a bad thing in my eyes first and then they hurt more and more and then I get a migraine. I do not know what to do about this but I found the goggles to be a life saver. Just regular goggles from Home Depot. Sorry I can't help more-if you find anything that helps please let me know! Surella > > I have terribly sore/painful eyes. > > Can anyone explain what or how this is happening? > > Thanks, Ian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2011 Report Share Posted January 16, 2011 Well I am not alone.....so far I have found nothing to help relieve the eye pain....have tried all manner of eye drops......my eyes are severely dry so artificial tears are a fact of life for me and they help with soreness from dryness but not with the deep pain I live with which I think is unrelated to the dryness.... Ian > > > > I have terribly sore/painful eyes. > > > > Can anyone explain what or how this is happening? > > > > Thanks, Ian > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2011 Report Share Posted January 16, 2011 I have blurry vision that is unbearable. My eyes are extremely dry, especially when lying down/sleeping....then they dry like sand....I have to lubricate continuously through the night...my lids stick to my eyeballs and when I awaken it is impossible to open my eyes without lubing with tear drops...and then it takes a while of lubing before I can see anything.... Also, my eyes are always unbelievably sore and the soreness is different from the soreness from the dryness....it is a very deep paining sore...... And my vision has been deteriorating for last 2 years.....especially in the last couple of months....my eyesight has been getting dim and my contrast vision changing to the downside.. very disturbing.....thanks for asking.. Ian > > hi , Are your eyes dry ? Blurred ? or just sore ? >  > > God Bless !! > dragonflymcs > Mayleen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 Just in case, as you have not really described the pain, if it feels like an Ice pick sticking in your eye, or a hot coal held to your eye, that is called ice pick eye and is a form of migraine from inflammation from mold illness, usually only in one eye > > Well I am not alone.....so far I have found nothing to help relieve the eye pain....have tried all manner of eye drops......my eyes are severely dry so artificial tears are a fact of life for me and they help with soreness from dryness but not with the deep pain I live with which I think is unrelated to the dryness.... > > Ian > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I have very sore painful eyes almost always. With me it started w severe insomnia I had when I was 32. I became clinically depressed and could not sleep at all or barely. It lasted for 2 years, but really never cleared up entirely. Now I sleep about 5 hour nights. I've always thought mine was due to lack of sleep. My reading says state of eyes = state of brain which concerns me. I have memory problems but nothing that keeps me from functioning but studies on sleep deprevattion show that it has a dramatic effect on memory. Twenty-something sleep deprived study participants performed more poorly on memory tests than elderly participants w full night sleep. Other things could be at work now for me...don't know since I have never gotten relief from eye pain. In general I'd say it is due to inflamation of blood vessels going to the eyes for any reason that could cause the inflamation. How bad my eyes feel varies by days and I have some good days but in my case almost always assoc w a good nights sleep. Sometimes wonder if I could sleep really well ev night, if all this stuff would clear up for me, but..? > > I have blurry vision that is unbearable. > > My eyes are extremely dry, especially when lying down/sleeping....then they dry like sand....I have to lubricate continuously through the night...my lids stick to my eyeballs and when I awaken it is impossible to open my eyes without lubing with tear drops...and then it takes a while of lubing before I can see anything.... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 No, but both my nuerologist and eye dr made the diagnosis > > This is interesting. Do you have any medical references to this? I'd > like to add it to my list of symptoms on my website. > > Barth > > www.presenting.net/sbs/sbs.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 Ian: Do you ever notice that your mouth is dry along with your eyes? You may want to check out Sjogren's Syndrome. Dry, sore eyes is one of the first symptoms. D > > I have blurry vision that is unbearable. > > My eyes are extremely dry, especially when lying down/sleeping....then they dry like sand....I have to lubricate continuously through the night...my lids stick to my eyeballs and when I awaken it is impossible to open my eyes without lubing with tear drops...and then it takes a while of lubing before I can see anything.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 Dont forget optic neuritis, a inflammatory eye disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 optic neuritis http://www.myelitis.org/optic_neuritis.htm case study http://www.thescientificworld.co.uk/TSW/toc/TSWJ_ArticleLanding.asp?ArticleId=12\ 93 & toggleArticleCloud=1 Abstract Mycotic demyelinating optic neuritis is a neurological disorder of the visual system caused by mycotoxins released by indoor toxic molds. Although the health effect of indoor toxic mold on the population worldwide is now one of the " emerging diseases " , its involvement in chronic demyelinating optic neuritis has not been reported. Most of the neurological and immunologic abnormalities associated with toxic mold mycotoxins are very difficult to treat successfully, especially neural demyelination of the central and peripheral nervous systems. This paper presents the case of a 42-year-old white female, in whom chronic demyelinating optic neuritis with persistent visual defects due to chronic exposure to toxic molds was diagnosed at the age of 34 years. In spite of all the therapeutic services given to her for over 8 years, her illness persisted and was difficult to treat. However, we successfully treated her with a combination of intravenous immune globulin (IVIG) and itraconozole (Sporanox) when all other treatment modalities failed. This is probably the first report where persistent toxic mold-induced neurological and immunologic disorders were successfully treated with a combination of itraconozole and IVIG. The validity of the environmental neurotoxic effects of toxigenic molds and mycotoxins http://www.ispub.com/ostia/index.php?xmlFilePath=journals/ijto/vol5n2/mold.xml > > Dont forget optic neuritis, a inflammatory eye disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 Mold illness > >> > >> This is interesting. Do you have any medical references to this? I'd > >> like to add it to my list of symptoms on my website. > >> > >> Barth > >> > >> www.presenting.net/sbs/sbs.html > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 Diane, I am familiar with Sjogren's...... Yes, I have a very dry mouth as well unfortunately. Chronic in fact..... Apparently Sjogrens is a difficult diagnosis to confirm. An opthomologist told me dry eyes and dry mouth also can go 'hand in hand'..... An ENT I saw told me, after pressing on my neck told me that he thought that I was expressing saliva too easily for a person with sjogrens (with his manipulation). He also told me that an accurate diagnosis of sjogrens really would be immaterial because there is no cure or treatment available anyhow. Regardless, I DO BELIEVE I have sjogrens based on my symptoms......or something very closely related to it.. Believe me, I suffer.....dry mouth is horrid and I always have to have lozenges handy to suck on....and a bottle of water is my companion although water only gives me momentary relief (relieving only while drinking). I also have constant astringency, a foul taste mouth and throat, similar to eating choke cherries or eating a lemon.....dry and puckering sensation... Thanks, Ian > > > > I have blurry vision that is unbearable. > > > > My eyes are extremely dry, especially when lying down/sleeping....then they dry like sand....I have to lubricate continuously through the night...my lids stick to my eyeballs and when I awaken it is impossible to open my eyes without lubing with tear drops...and then it takes a while of lubing before I can see anything.... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I responded to Diane in my post #84944 this evening on sjogrens, thanks > > Have you been tested for  Sjogren's Syndrome : Sjögren’s syndrome is a chronic > autoimmune disease in which people’s white blood cells attack their > moisture-producing glands. > > God Bless !! > dragonflymcs > Mayleen > > ________________________________ > From: RUSTEE <rustee50@...> > > Sent: Mon, January 17, 2011 1:46:05 AM > Subject: [] Re: VERY SORE EYES > >  > I have blurry vision that is unbearable. > > My eyes are extremely dry, especially when lying down/sleeping....then they dry > like sand > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 Am wondering how the neurologist and eye doctors made their diagnosis? Were some form of actual tests conducted and if so how and what did they consist of? > > > > What was the dx? The cause? > > > > Barth > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 it's not just about what contacts with the exterior of the eye, damage can accure inside the brain, behing the eye, the blood vessels to the eyes, and sinus related damage can also affect the eyes. > > > > > > I have terribly sore/painful eyes. > > > > > > Can anyone explain what or how this is happening? > > > > > > Thanks, Ian > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 Great find Jeannine. I am going to print this article and send it to my opthamologist in New Hampshire. She diagnosed my optic neuritis in 2005 but then told me there was no way mold could have caused it. Seems to me that the UK is way ahead of the USA in mold research. Thanks~ Diane > > > > Dont forget optic neuritis, a inflammatory eye disease. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Your welcome D. ssr, yes, I have to say that I have no patients left to deal with going to doctors these days that dont specialize in this, or aren't open minded (or have conflicts of interest) to learning. what a nightmare some of us have been through by trying to get medical help. cant help but be discusted over it. I tried getting in to one of the " top " medical centers in ST.L,MO. to get my eyes and cataracts looked at and when I mentioned mold exposure the top MD who I was on the phone with went off on me. oh, I know why now, a defence expert, but he was just a drop in the hat. and even now, after going to our experts I try to follow up with a doctor around here and they question everything and want to put me through a bunch of their testing that well prove nothing and on top of that just about every doctors office waiting room usually affects me so bad I cant stand dragging myself there knowing I probably wont get nowwhere as far as getting a doctor to work with the experts report and diagnoses, but I well pay for my re-exposure from going there to try. it has truely been a battle every step of the way ,on every part of this venture. I'm tired. I think I must live in the worst state that you could possably live in with this illness. not to mention legal BS. to many big time greeneyed monsters here and it all follows the money trail. in other words, when something looks rotten,smells rotten, you can bet it rotten, and I'm not talking about mold. > > Diane, After I had a confirmed diagnosis from mold in my school I returned > to a few of the Drs. that I had been seeing. All but one said that mold > couldn't cause my problems!!!! They didn't even want to see the information > and research that I had. Said they it wasn't their specialty or that they > didn't have the time to read it!!!! VERY frustrating that most of the medical > community can't take the time to think outside their little box!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Most doctors are adverse to considerating mold I imagine they must be taught in medical school that there is alot of hype out there over mold and it's a bunch of malarky, bec in our group experience, they are ALL the same except for those who have actually experienced trouble themselves or the rare doctor that has a scientific mind and an open mind. > > Your welcome D. ssr, yes, I have to say that I have no patients left to deal with going to doctors these days that dont specialize in this, or aren't open minded (or have conflicts of interest) to learning. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 osisposis wrote: ........I have to say that I have no patients left to deal with going to doctors these days that dont specialize in this, or aren't open minded (or have conflicts of interest) to learning. what a nightmare some of us have been through by trying to get medical help. cant help but be discusted over it. ---- I second that. One day I read in a book on fibromyalgia that since we pay doctors that means we are hiring them, and we wouldn't hire just anybody, we'd look for someone to hire that respects us, treats us well, listens and is qualified. So it said if you don't like your doctor fire him and find another. Don't settle. Don't be treated bad. I have followed that advice ever since. A doctor gets to treat me bad once, but not a second time. Last time I went to see my MD he was moved by my trial and was open to getting reports from the health professionals I've seen. Now I want to put a packet together for him from the resources I've learned here so he will understand my condition and be able to run appropriate tests. Not that I want them, I still prefer my natural doctors (even if they are a 3 hour drive away), but it will lend weight and credibility to my situation in the eyes of those around me. Quote Link to comment Share on other sites More sharing options...
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