Re: s Syndrome/Toxic Epidermal Necrolysis

[Guest guest]

Thank you. I can say that the road to recovery hasn't been easy but we are at

least there. No one can say what the long term effects will be but we do know

that my daughter will deal with eye issues for the rest of her life because the

damage done during the blistering and burning affected her eyesight.

She may be an extreme case but this is serious stuff when given the right

conditions with the wrong person. I am starting to believe that this is our case

as nothing else seems to fit.

Sue Bell

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> Hi,

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> I just looked at the description of this disorder and I have to say that this

is very similar to what I get from moldy environments. The only thing that I

found to help it was a & d ointment. I have become quite aware when this is

beginning as it starts for me as a burning sensation. If I immediately treat it

with the ointment then it doesn't progress to the peeling level. When I had

shown it to my docs in the past they had no clue what it was or what to do for

it. My niece has recently moved into a moldy environment and she has been having

this as well. She was amazed that when she began describing her problem I

already knew exactly what was happening. Her docs don't know what to do either.

I told her to get the a & d ointment but she is stubborn so I don't know if she

did get it. Lovely to see that it can become life threatening.

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> I am so sorry your precious daughters are having these problems. I hope that

everything can be cleared up and they regain their health.

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> Take care,

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