Need Advice

January 8, 2000

Carol,

I hope it hasn't come to this. You both lose out if that is the case.

My dentist has just put in a claim for me for over $7,000. and they are

stalling and asking for more information. I would think you could fight

this if you could prove it.

Bev

rheumatic need advice

> From: HPUMOM1@...

>

> It appears that my husband has lost his job because his company did not

like

> the high expense of my medical claims last year. Of course they did not

> openly admit it - but it is obvious in other ways.

> Can anyone that has had experience with this type of situation -please

help

> me?

> Thanks,

> Carol*

>

> ---------------------------

January 8, 2000

Carol,

There aren't too many situations where I say this but, GET A LAWYER, GET

A LAWYER, GET A LAWYER. And do it quick so he can help to build a paper

trail to support your case. It is illegal to terminate someone because

of high medical bills so a good lawyer (I stress " good " ) can help you

prove it and get you compensation. You don't want to wait long, though,

because it gives the company more time to cover their tracks, which

makes it harder for you to gather evidence. Also, if your husband has

any record to document his good performance at the company, such as good

performance reviews, particularly if the good reviews date up to the

time prior to your medical bills starting to increase, make sure you get

copies of those to the lawyer and put a set of copies in safe-keeping.

If he doesn't have anything like that but thinks there might be

something positive in his personnel file, he should see if any friends

he has in the company would be willing to anonymously give him copies of

the documents. I know this sounds sneaky but companies are generally

sneaky in trying to cover their butts and employees are entitled to

copies of anything in their personnel files, you just want to get copies

from there before the company decides to " doctor " the file. Good luck

and I hope you manage to make this company sorry for what they've done.

Hugs,

a Peden

HPUMOM1@... wrote:

>

> From: HPUMOM1@...

>

> It appears that my husband has lost his job because his company did not like

> the high expense of my medical claims last year. Of course they did not

> openly admit it - but it is obvious in other ways.

> Can anyone that has had experience with this type of situation -please help

> me?

> Thanks,

> Carol*

>

December 12, 2001

>Hello Everyone:

>I am new to the group, I have 3 1/2 year old son,

>Will, who was diagnosed with ASD 7 months ago. These

>past few months have been hectic with trying to become

>knowledgable about everything I need to know. We have

>sent up a home-based ABA program with some good

>results. Will is non-verbal but has said some words

>on occasion.

>

>I have no idea where to start with testing for

>mecury/metals, etc. Could anyone please give me some

>advice as to which test is most accurate, hair, blood,

>urine . . . what lab did you do your testing at . . .

>what results has anyone seen with chelation?

>

>This is something I certainly would like to look into

>over the next couple of months.

>

>Thanks in advance.

> janowski

Dear ,

Welcome to the list. You have made this very easy by asking

questions that I can answer with URLs, as it happens.

Here are the answers. How to test for mercury:

/files/Counting%2BRules

PLEASE NOTE: The GSDL test has changed format of results, and can

no longer be used with this method.

If you have a cooperative doctor ask them to order a DDI hair

test for you. If you wish to order the test on your own, here

is how to do so. It is up to you how to do this--- many people

want to find a doctor first, which is fine.

/files/HOW_TO_hair_test

Here are some results from chelation:

/files/LOVE_LETTERS

This is NOT a " representative sample " and should not be taken as

that.

best regards,

Moria

[mercury toxic adult, no kids]

May 7, 2002

>>> I would really like to find a local (Philadelphia area) doctor

who understands the whole food reaction, digestion, yeast/bacteria,

enzyme thing.

Very few professionals will know about enzymes, just because it

isn't included much in their training. You may look for someone who

has an open mind and will to review information you bring in, and

will work with you. Looking at the personality and the attitude may

be more helpful than a profession. I found a neurologist who didn't

know much about digestion but she was great and looked at and

considered ANYTHING I brought in.

That said:

1. gastros usually don't know much about diet, focus on medical

2. pediatrician might, depends on person - not a big part of their

training, focus on medical

3. a nutritionist would - I talk sometimes to a nutritionist at our

church

4. a dietician would

.

May 7, 2002

-Let me just add to this that it might be worthwhile to check out

someone with a smaller more personalized practice because they tend

to have more time and interest in personal cases. This is our

experience anyway...I used to use the " big " pediatrician in my area-

BIG mistake lol. Now we use a family doctor who is more than willing

to look over anything-give input-but who doesn't try and give

advice/orders about things I know more about than him lol. When I

asked him for a dr's note for school so they could give the enzymes

he wrote on it for them to follow my directions on administering them

lol. I also like that this office hasn't given me any grief over

spreading out my infant son's vaccinations or the fact that he will

not be receiving the MMR.

--

In @y..., " jornmatt " <kjorn@t...> wrote:

> >>> I would really like to find a local (Philadelphia area) doctor

> who understands the whole food reaction, digestion, yeast/bacteria,

> enzyme thing.

>

> Very few professionals will know about enzymes, just because it

> isn't included much in their training. You may look for someone who

> has an open mind and will to review information you bring in, and

> will work with you. Looking at the personality and the attitude may

> be more helpful than a profession. I found a neurologist who didn't

> know much about digestion but she was great and looked at and

> considered ANYTHING I brought in.

>

> That said:

> 1. gastros usually don't know much about diet, focus on medical

> 2. pediatrician might, depends on person - not a big part of their

> training, focus on medical

> 3. a nutritionist would - I talk sometimes to a nutritionist at our

> church

> 4. a dietician would

>

> .

May 7, 2002

Make that two (and I'm sure more...)

Lillian (from Philly area)

[ ] Re: Need Advice

>>> I would really like to find a local (Philadelphia area) doctor

who understands the whole food reaction, digestion, yeast/bacteria,

enzyme thing.

Very few professionals will know about enzymes, just because it

isn't included much in their training. You may look for someone who

has an open mind and will to review information you bring in, and

will work with you. Looking at the personality and the attitude may

be more helpful than a profession. I found a neurologist who didn't

know much about digestion but she was great and looked at and

considered ANYTHING I brought in.

That said:

1. gastros usually don't know much about diet, focus on medical

2. pediatrician might, depends on person - not a big part of their

training, focus on medical

3. a nutritionist would - I talk sometimes to a nutritionist at our

church

4. a dietician would

.

May 7, 2002

I am seeing Dr. Greenburg at the Magaziner Center in Cherry Hill, NJ.

He is a DAN doctor but says he has helped lots of kids. We did the

initial visit, and sent in a urine and stool sample to the lab. Our next

visit is May 22. He seems very informed and I really liked him.

They're currently looking for yeast and metals. We haven't gotten to

the diet/enzymes yet, although my daughter has been off all milk

products for about two months now. She is very mild so it's hard to

tell when you are seeing improvements from the nystantin, the milk, or

is she just having a good day, or just improving from therapy. I am

also her new best friend and I follow her everywhere and try to turn

everthing into a learning/sensory/interactive experience.

If you have anymore questions, please feel free to email me privately.

How old is your child and what is their dx? nna don't have an

official dx yet. Our appt at Chop Seashore House is June 7. I'm sure

they'll give her PDD-NOS, because they seem to always do this when

they're only some traits exhibited. It's all so confusing!

I look forward to hearing from you.

PS-Where in the Phila area do you live? I live in Bensalem.

Maureen T. Humpl

[ ] Re: Need Advice

>>> I would really like to find a local (Philadelphia area) doctor

who understands the whole food reaction, digestion, yeast/bacteria,

enzyme thing.

Very few professionals will know about enzymes, just because it

isn't included much in their training. You may look for someone who

has an open mind and will to review information you bring in, and

will work with you. Looking at the personality and the attitude may

be more helpful than a profession. I found a neurologist who didn't

know much about digestion but she was great and looked at and

considered ANYTHING I brought in.

That said:

1. gastros usually don't know much about diet, focus on medical

2. pediatrician might, depends on person - not a big part of their

training, focus on medical

3. a nutritionist would - I talk sometimes to a nutritionist at our

church

4. a dietician would

.

May 7, 2002

My family is seeing a DO who specializes in nutritional and environmental

medicine. I don't know if your phone book gives you any info like that. I

found my doctor through ACAM (American College for Advancement in Medicine).

They have a doctor search at http://www.acam.org/doctorsearch.php .

Another route other people have tried is calling the labs, like Great Plains, to

find the doctors in your area that use their tests.

Hope this helps!

[ ] Need Advice

I would really like to find a local (Philadelphia area) doctor who

understands the whole food reaction, digestion, yeast/bacteria, enzyme

thing. A DAN doctor is not a good idea due to the controversy as well

as the scarcity of good ones. What type of doctor would that be?

Allergist? Gastroenterologist? Who?

I don't know about the rest of you parents, but I am just worn out and

overwhelmed by trying to be GFCF cook, doctor, ABA specialist, as well

as plain old Mom. I've seen enough improvements on GFCF and

supplements to know that the food/nutrition thing is the answer.

No-Phenol sounds exciting but since we had one failed attempt at

enzymes, I'm reluctant to just start them up again without some

professional help in figuring it all out.

Any advice is appreciated.

Ruth (Matt's Mom)

May 7, 2002

Hi Maureen,

I responded to your personal email but I'm not sure if it went through - let

me know if you got it. Thanks, Lillian

mcdermott@... <mailto:mcdermott@...>

[ ] Re: Need Advice

>>> I would really like to find a local (Philadelphia area) doctor

who understands the whole food reaction, digestion, yeast/bacteria,

enzyme thing.

Very few professionals will know about enzymes, just because it

isn't included much in their training. You may look for someone who

has an open mind and will to review information you bring in, and

will work with you. Looking at the personality and the attitude may

be more helpful than a profession. I found a neurologist who didn't

know much about digestion but she was great and looked at and

considered ANYTHING I brought in.

That said:

1. gastros usually don't know much about diet, focus on medical

2. pediatrician might, depends on person - not a big part of their

training, focus on medical

3. a nutritionist would - I talk sometimes to a nutritionist at our

church

4. a dietician would

.

May 7, 2002

No, I didn't. Can you try again?

Maureen T. Humpl

[ ] Re: Need Advice

>>> I would really like to find a local (Philadelphia area) doctor

who understands the whole food reaction, digestion, yeast/bacteria,

enzyme thing.

Very few professionals will know about enzymes, just because it

isn't included much in their training. You may look for someone who

has an open mind and will to review information you bring in, and

will work with you. Looking at the personality and the attitude may

be more helpful than a profession. I found a neurologist who didn't

know much about digestion but she was great and looked at and

considered ANYTHING I brought in.

That said:

1. gastros usually don't know much about diet, focus on medical

2. pediatrician might, depends on person - not a big part of their

training, focus on medical

3. a nutritionist would - I talk sometimes to a nutritionist at our

church

4. a dietician would

.

May 7, 2002

(Maureen, here's my original message, sorry its so long - I tried your

personal email again but instead of playing tag I decided to go this route)

Sorry folks, I tried sending this behind the scenes but it wasn't making it.

This is all old hat to you pros...but hey, if anyone can help then better

for my kids. I thank you in advance!

Hi Maureen,

I hope this reaches you...I'm trying the private route because I have allot

of questions that I think have probably already been asked and answered.

I have a son, Shane 4 yo autistic and a daughter, 8 yo Downs. And

between the two of them keeping up with everything and working outside the

home full time is a nightmare. Please excuse me while I vent. I really want

to get this right but I don't know where to go next.

I'm going to focus on Shane for this email. He is GF/CF to the best of our

knowledge at this time (of course when he is not in our hands who the heck

knows...not everyone believes in this diet so since it holds no merit for

them they are not as cautious as I BEG them to be.) We started the Pep and

Zyme 5 weeks ago, 3 times a day, sometimes getting them before sometimes

meals and sometimes during. We started him right out on a full capsule

because we simply didn't know any better being so desperate for something to

help him.

He is NEVER still, in constant motion, has the good day/bad day syndrome

behavioral wise despite that fact that his diet is so limited that he eats

pretty much the same thing EVERY day. He doesn't exhibit too many physical

ailments, normal stools, no vomiting, no outward signs of yeast although I

don't know what else to look for but a rash...(question #1).

He does have the dark circles, giddy/silly moments, terrible sleeper

(sometimes melatonin helps sometimes it doesn't...)

As you can see I'm kind of chasing my tail. I really hope this isn't too

much...I feel desperate if I've overwhelmed you I'm sorry but I'll do

anything for my babies...

Thanks for much for listening...anything you can tell me would be a help.

By the way, we live in Springfield, which is in Delaware County

Pennsylvania. Thanks again!!! Lillian

[ ] Re: Need Advice

>>> I would really like to find a local (Philadelphia area) doctor

who understands the whole food reaction, digestion, yeast/bacteria,

enzyme thing.

Very few professionals will know about enzymes, just because it

isn't included much in their training. You may look for someone who

has an open mind and will to review information you bring in, and

will work with you. Looking at the personality and the attitude may

be more helpful than a profession. I found a neurologist who didn't

know much about digestion but she was great and looked at and

considered ANYTHING I brought in.

That said:

1. gastros usually don't know much about diet, focus on medical

2. pediatrician might, depends on person - not a big part of their

training, focus on medical

3. a nutritionist would - I talk sometimes to a nutritionist at our

church

4. a dietician would

.

May 8, 2002

I dont think that every doctor who is familiar with the DAN protocol, or who

attends DAN workshops is necessarily involved with the controversy or has

financial interest in some company. You need to find a doctor that feels

right for you. Speak to other parents who have tried some doctor and get

their opinion. If you hear of a doctor and it sparks your interest, post a

message on this list, or other lists you may be on and ask if anyone has

heard of this doctor and what do they think. In general do your homework. It

doesnt have to be a DAN doctor or not a DAN doctor- just a good doctor.

rivky

[ ] Need Advice

> I would really like to find a local (Philadelphia area) doctor who

> understands the whole food reaction, digestion, yeast/bacteria, enzyme

> thing. A DAN doctor is not a good idea due to the controversy as well

> as the scarcity of good ones. What type of doctor would that be?

> Allergist? Gastroenterologist? Who?

>

> I don't know about the rest of you parents, but I am just worn out and

> overwhelmed by trying to be GFCF cook, doctor, ABA specialist, as well

> as plain old Mom. I've seen enough improvements on GFCF and

> supplements to know that the food/nutrition thing is the answer.

> No-Phenol sounds exciting but since we had one failed attempt at

> enzymes, I'm reluctant to just start them up again without some

> professional help in figuring it all out.

>

> Any advice is appreciated.

>

> Ruth (Matt's Mom)

>

August 11, 2002

on 11/8/02 4:34 PM, abby borg at abby_borg@... wrote:

> Hi guys

>

> I had put my son (25 mos/SID/GERD/Language

> delays)

> on a phenol reduced diet which he responded to and

> then onto enzymes. My other son Oliver is 5 and has

> always had allergy symptoms. I have taken him off

> dairy for 3 weeks now and he has gotten very

> aggressive- would anyone know why? I decided to put

> him on enzymes as well to see if they'd make a

> difference. Both boys have a TREMENDOUS appetite now.

> My youngest has been diagnosed with failure to thrive

> for over a year!! My older boy has always been at the

> low end of thechart too-always saying he is too full

> when he's eaten about 5 bites! I would like to know

> about the aggression- I am tempted to put dairy back

> in because his dark circles are there and this new

> behavior of blowing up for small causes and lashing

> out is appalling. I will stick with it if in most

> experiences it will go away!

>

> Thanks

>

> Abby (Mother to 3 SID kids)

>

> =====

> Abby Borg

>

> __________________________________________________

>

August 11, 2002

Yes, it definitely sounds like Oliver is having

withdrawal symptoms from the opiod effect. Someone

can correct me if I'm wrong here, but allergies are

independent in their effect on behavior so if his

allergy isn't milk then exposures to the irritants

will aggravate the withdrawal. The adjustment period

for opiod effect can be much longer then 3 weeks in my

experience.

I found it useful in my daughter to put her on a

simple diet of protein (chicken, turkey and especially

wild meat) and potatoes for the withdrawal. If I gave

her food without dye, flavoring or other additives

then it meant all the work her digestive tract was

doing was simple food. Protein isn't easy to digest,

but it does contain lots of good building blocks for

healing.

If you are seeing improvements in other areas, then I

would stick to it. 5 is still young enough to cope

with rage, much older and it's like fighting

elephants. Good luck and let us know how it goes!

HTH,

--- abby borg <abby_borg@...> wrote:

> Hi guys

>

> I had put my son (25 mos/SID/GERD/Language

> delays)

> on a phenol reduced diet which he responded to and

> then onto enzymes. My other son Oliver is 5 and has

> always had allergy symptoms. I have taken him off

> dairy for 3 weeks now and he has gotten very

> aggressive- would anyone know why? I decided to put

> him on enzymes as well to see if they'd make a

> difference. Both boys have a TREMENDOUS appetite

> now.

> My youngest has been diagnosed with failure to

> thrive

> for over a year!! My older boy has always been at

> the

> low end of thechart too-always saying he is too full

> when he's eaten about 5 bites! I would like to know

> about the aggression- I am tempted to put dairy back

> in because his dark circles are there and this new

> behavior of blowing up for small causes and lashing

> out is appalling. I will stick with it if in most

> experiences it will go away!

>

> Thanks

>

> Abby (Mother to 3 SID kids)

>

> =====

> Abby Borg

>

> __________________________________________________

>

August 11, 2002

> Hi guys

>

> I had put my son (25 mos/SID/GERD/Language

> delays)

> on a phenol reduced diet which he responded to and

> then onto enzymes. My other son Oliver is 5 and has

> always had allergy symptoms. I have taken him off

> dairy for 3 weeks now and he has gotten very

> aggressive- would anyone know why?

Might be what you substituted for the milk. If you started giving

more high-phenol juices, for example, that can cause this problem,

either from phenols or from yeast.

http://www.autismchannel.net/dana/phenol.htm

http://www.autismchannel.net/dana/yeast.htm

Also, if you substituted with something that contains artificial

colors/flavors, that can be a problem.

Consider removing artificial colors/flavors, and nitrites/nitrates

[like found in many hot dogs and deli meats]. See if that helps the

aggression.

Dana

January 19, 2003

EDTA would not be your best choice to remove mercury, cadmium and lead. DMSA

is the best choice for lead and will also remove the other two. DMPS tends

to remove mercury better and will remove lead as well -- not sure about

cadmium. DMSA is only done orally while DMPS can be done either orally or by

IV.

Gaylen

January 19, 2003

Thank you Galylen,

I was currently doing IV chelation with EDTA and then taking just 2

captomeres a day. I knew this was no good, but could suffice untill I get to

another doc. I bought the dmsa myself from my chiro. he said to take 6 a

day and muscle tested me. Im kinda scared to start this by myself, but i am

so ill. is major fatigue common with these metals? Im so tired. i used to

run 60-70 miles a weeka nd now all ic an do is walk. im so ready to get

well!

misty

January 19, 2003

In a message dated 1/19/03 2:43:26 PM Central Standard Time,

seabluedolphin16@... writes:

> I was currently doing IV chelation with EDTA and then taking just 2

> captomeres a day. I knew this was no good, but could suffice untill I get

> to

> another doc.

Sometimes with mercury poisoning, the EDTA bound with the mercury can form a

more toxic compound and make you worse. I did one round of IV EDTA and a

round of oral EDTA before I knew this. The IV seemed fine but I got much

worse on the oral (strange since you don't absorb as much of oral EDTA but I

imagine timing had something to do with it.) Since you have DMSA now, you

might consider putting off any more EDTA until mercury levels are low.

>I bought the dmsa myself from my chiro. he said to take 6 a

> day and muscle tested me.

I am a firm believer in the accuracy of muscle testing IF the doc is good at

it. I've had some good successes with some and failures with others. Not

knowing the amount DMSA in each capsule, I don't know the total mg per day

this would be. But I can tell you that starting very slowly (very low dose)

for the first few rounds might be better. Like 100mg three times a day or

50mg six times a day for the first few rounds 3 days on 5-11 days off. When

you reduce the dosage, you do not significantly reduce output with DMSA and

if your detox organs (liver, kidneys, spleen) are weak, it will not be as

difficult for you to release the metals. As you find you tolerate chelation,

you can increase the dosage.

> is major fatigue common with these metals? Im so tired.

>

YES YES YES! You might also consider taking some liquid magnesium in between

rounds of chelation and high doses 500-1000mg of Vitamin C several times a

day continously. These did wonders for boosting my energy levels when I was

very toxic.

Gaylen

January 19, 2003

Thank yo Gaylen. I will keep up the vitamin c.

misty

January 19, 2003

I have been tested very high Andy. I do have a diagnosis. Im very high

almost triple in lead, cadmium, mercury and aluminum.

Misty

January 19, 2003

> Thank you Galylen,

> I was currently doing IV chelation with EDTA and then taking just 2

> captomeres a day. I knew this was no good, but could suffice untill

I get to

> another doc.

No, this will not " suffice, " it will make you worse, not better, and

make it harder for you to get better later.

>I bought the dmsa myself from my chiro. he said to take 6 a

> day and muscle tested me. Im kinda scared to start this by myself,

but i am

> so ill. is major fatigue common with these metals?

Yes.

Dietary control often helps with it.

>Im so tired. i used to

> run 60-70 miles a weeka nd now all ic an do is walk. im so ready to

get

> well!

> m

January 19, 2003

From what you are saying you don't have a legitimate diagnosis yet.

You need to get one of those first, THEN decide what you want to do

about it. See

/files/HOW_TO_hair_test

Andy . . . .. . . . . . . .

> HI. I dont have any fillings but I am a young college student (was

a runner)

> and I came down with this hellacious fatgiue, and numerous symtpms.

I was

> diagnosed with lyme,a nd have been treated for 1 year. They are

just now

> fiding large amounts of mercury, cadmium and lead, and aluminum in

me.

> I am thinking of going to see klingheardt. What type of chealtion

do you

> sugeest and what would be the quicikest? Is there such thing as IV

all the

> time besides EDTA??

> Misty

>

> [Non-text portions of this message have been

January 22, 2003

Andy - why do you not believe in cavitations? I would have a hard time

explaining my symptoms - tired all the time - feels like my muscles are very

tight, my jaw is out of socket , constant ringing in my ears and sometimes

terrible body aches. Plus my facial muscles have changed over the years. I

live just outside of DC . Plus I had surgery last Sept to remove a Harrington

rod from my spine - it was stainless steel and tests in the hospital showed I

was highly reactive to it - duh. My gut tells me Huggins knows his stuff but

my wallet says something else.

Thanks,

[ ] Re: need advice

I am not such a believer in cavitations.

Talk more about what is going on with you. It is not clear if you

want to go ahead or wait.

If you can get some doc to fill a vein up with a lot of vitamin C it

may be quite helpful. This will be a lot cheaper than the dental

work, and if you feel better from it you might be able to make a

better decision on what to do dentally.

Andy . . . .. . . . . . . . . . .

> I'm at my wits end with my dental problems. I don't seem to be

doing too well since I've had the 8 amalgams removed. It's like I'm

stuck and not getting better. I just saw another dentist for a second

opinion and he gave me a whole treatment plan with cost. I have 4

root canals plus 4 more visible amalgams, there are amalgams under

crowns, I appear to have at least 2 cavitations and some other

mercury hiding under white fillings. Jeez - no wonder I feel like

#$%@. Anyway, the grand total was $11,700 to clean up my mouth. I

don't think that included bridge work.

>

> I just called my friends at Huggins - they're so helpful with free

advice- and they recommend getting all the work done within a 30 day

period. The reason being that it is better than the constant

disruption of the immune system if you stretch it out. They have a

clinic up in Montreal that is pretty intensive and they would do all

my dental work during a 9 day stay - I think they only work on your

mouth for 2 days and the rest is info on detoxing and testing and

treatment. So far, I am very unhappy with the dentists I have in that

I feel I am abandoned once they take out the mercury. I need more

help and guidance through the detox. Huggins people are going to fax

me an estimate of what they would charge given my situation - I faxed

them what the other dentist wrote up. They thought his estimate was

high.

>

> Question - I'm leaning towards going to Montreal in March and

having it all done at once. My health is awful and it is difficult to

work - can anyone offer me some input into this decision?

The dental work there is great. The detox protocol is nuts. . ..

>

> Thanks so much - God Bless,

>

> [Non-text portions of this

January 22, 2003

Thanks for your input -

Yuk, but couldn't the fungus overgrowth be a result of all the dental toxins in

my mouth? My hunch says clean up the source and the resulting symptoms will go

away.

RE: [ ] Re: need advice

>Andy - why do you not believe in cavitations? I would have a hard time

explaining my symptoms - tired all the time - feels like my muscles are

very tight, my jaw is out of socket , constant ringing in my ears and

sometimes terrible body aches. Plus my facial muscles have changed over

the years

Many of your symptoms could be from fungus overgrowth, in sinuses and

middle and inner ear

Another area to explore is bruxing..

Dolphi

January 22, 2003