Hi everyone

[Guest guest]

This is Caroline Neil and here in B.C. Canada. I have

not posted much in the past month ,but we are still here. I want to

welcome the new members in the past month. I am a single parent of

12 year old identical twin boys who both have Down Syndrome. This

year so far has been great for them in all aspects of their lives.

This is the first year with very little colds and almost no

antibiotics. Hooray. WE are all going to see a new chiropractor who

has a new machine which scans the back and tells the doctor where

all the problems are. Right away the machine picked up the

Atlantoaxial instability in the boys necks and on Neils it showed a

possible problem where nerves are affected. We will find out

tomorrow.This could be why Neil is not able to bend his head back

very far and why he is so stiff sometimes. Neil also has headaches

sometimes and he also has stomach problems, which the machine also

picked up, just from scanning his back. All the familys with young

children with DS please make sure you have your childs neck xray at

three years of age then at 10 years and then I believe at 16 or 18

years of age for the instability in their necks. I have been

reading alot about lables on our kids and that is one of the hardest

I think all families have to deal with, no matter what part of the

world you live. One family also talked about an IQ test as well,

possibly if you are worried you son will do too well for this test

and lose services, have a talk with who ever is in charge at your

sons school and tell them your fears. If the school is not helpful

you should be able to go to the school board or higher if you have

too. I do not know how things are done in the states, but anything

is worth a try. I hope everyones 2006 is starting out well for you

and your families. Take Care Caroline Neil and Mavridis