Re: Moldies are Moldy-Was:LDA Therapy for mold

[Guest guest]

joe,

i was wondering if you wouldn't mind telling what all your sx were 3-4 years ago

and exactly what sx you experienced with this last situation.

i am so sorry you had this experience, hope you are better now.

thank you so much

denise

________________________________

From: Joe Salowitz <josephsalowitz@...>

< >

Sent: Thu, October 28, 2010 3:29:40 PM

Subject: [] Moldies are Moldy-Was: " LDA Therapy for mold "

Hi Surella,

When I read your statement: " ...my mold sensitivity has exploded lately " , an

alarm bell started ringing in my brain. I assumed that you had read the

following words which appear on Doctor Shrader's web site, and that you are no

longer living or working in a moldy environment.

The following words are copied from Doctor Shrader's Web Site:

" When I see a patient who has been exposed to molds, treatment will vary, often

depending on the magnitude of the problem. The first and foremost thing

patients must do is remove themselves from the moldy environment! Sometimes

this presents a difficult problem, especially if the environment is the

patient's home. "

http://www.drshrader.com/MoldExposure.htm

[Guest guest]

Joe, that is part of my problem, kve cross contaminated three cars of people i

see regularly, but how can we avoid all humans. Didnyou recover to your 'usual'

self after thosenfew days of worsening. I dont want to have to completely shut

myself off from the world. Also can just being around them contaminate you

andnyour things? Do you aleays shower and wash after going out in the world for

example?

>

>  Hi Surella,

>  

> When I read your statement: " ...my mold sensitivity has exploded lately " , an

alarm bell started ringing in my brain. I assumed that you had read the

following words which appear on Doctor Shrader's web site, and that you are no

longer living or working in a moldy environment.

>  

>  The following words are copied from Doctor Shrader's Web Site:

> " When I see a patient who has been exposed to molds, treatment will vary,

often depending on the magnitude of the problem.  The first and foremost thing

patients must do is remove themselves from the moldy environment!  Sometimes

this presents a difficult problem, especially if the environment is the

patient's home. "

>  

> http://www.drshrader.com/MoldExposure.htm

[Guest guest]

There was a woman who used to come here that accidentally cross contaminated her

friends house and to my knowledge because shes so hypersensitive she no longer

has contact with them.

Ive cross contaminated my sisters hours almost 10 months ago which is where Im

currently living. For the first week I felt pretty good than without warning I

walked in the front door after my sauna treatment and I became extremely

symptomatic. Now I have to start looking for another place to live. Since

January I will have moved 7 times due to mold.

Watch this video, at a 1:27 into the video it shows a guy living out of a tent

in the desert. This scares me to know end, if I cant find a safe place to live

this could very well be me

>

> Joe, that is part of my problem, kve cross contaminated three cars of people i

see regularly, but how can we avoid all humans. Didnyou recover to your 'usual'

self after thosenfew days of worsening. I dont want to have to completely shut

myself off from the world. Also can just being around them contaminate you

andnyour things? Do you aleays shower and wash after going out in the world for

example?

>

[Guest guest]

I totally agree.  I tried to speak to someone in a moldy envrionment, I could

not stay from  4-5 feet away possibly more I could feel the mold on them ad

left.  All I said was I am sorry you are full of mold.   Most commonly said

differently.  

 

God Bless !!

dragonflymcs

Mayleen

________________________________

From: Joe Salowitz <josephsalowitz@...>

< >

Sent: Thu, October 28, 2010 4:29:40 PM

Subject: [] Moldies are Moldy-Was: " LDA Therapy for mold "

 

 Hi Surella,

 

When I read your statement: " ...my mold sensitivity has exploded lately " , an

alarm bell started ringing in my brain. I assumed that you had read the

following words which appear on Doctor Shrader's web site, and that you are no

longer living or working in a moldy environment.

 

 The following words are copied from Doctor Shrader's Web Site:

" When I see a patient who has been exposed to molds, treatment will vary, often

depending on the magnitude of the problem.  The first and foremost thing

patients must do is remove themselves from the moldy environment!  Sometimes

this presents a difficult problem, especially if the environment is the

patient's home. "

 

http://www.drshrader.com/MoldExposure.htm

[Guest guest]

Tug,

This guy you are referring to is who is a member of this group,

and also started Fungal Disease Resource Center web site.

http://www.fdrcinc.org

KC

> >

> > Joe, that is part of my problem, kve cross contaminated three cars of people

i see regularly, but how can we avoid all humans. Didnyou recover to your

'usual' self after thosenfew days of worsening. I dont want to have to

completely shut myself off from the world. Also can just being around them

contaminate you andnyour things? Do you aleays shower and wash after going out

in the world for example?

> >

>

[Guest guest]

Thanks KC, the first time I saw the video and saw how he was living I thought to

myself, " that could be me " Thats when reality hit and I knew I had better get

rid of all my belongings regardless of their worth. I spoke to Noseff the

girl on the video on several occasions via email, she recovered after 5 years

and now has a successful clothing business.

>

> Tug,

>

> This guy you are referring to is who is a member of this

group, and also started Fungal Disease Resource Center web site.

> http://www.fdrcinc.org

>

[Guest guest]

Thats so scary Tug, so scary, when does the crazyness end? So you wont have

contact with your sister now?

>

> There was a woman who used to come here that accidentally cross contaminated

her friends house and to my knowledge because shes so hypersensitive she no

longer has contact with them.

>

> Ive cross contaminated my sisters hours almost 10 months ago which is where Im

currently living. For the first week I felt pretty good than without warning I

walked in the front door after my sauna treatment and I became extremely

symptomatic. Now I have to start looking for another place to live. Since

January I will have moved 7 times due to mold.

>

> Watch this video, at a 1:27 into the video it shows a guy living out of a tent

in the desert. This scares me to know end, if I cant find a safe place to live

this could very well be me

>

>

>

[Guest guest]

My neighbors cross contaminated everything I owned about 10 weeks ago, I am just

getting my head above water after 10 weeks of illness and cleaning. I will cut

myself off from everyone before I go through that again

> >

> >  Hi Surella,

> >  

> > When I read your statement: " ...my mold sensitivity has exploded lately " , an

alarm bell started ringing in my brain. I assumed that you had read the

following words which appear on Doctor Shrader's web site, and that you are no

longer living or working in a moldy environment.

> >  

> >  The following words are copied from Doctor Shrader's Web Site:

> > " When I see a patient who has been exposed to molds, treatment will vary,

often depending on the magnitude of the problem.  The first and foremost thing

patients must do is remove themselves from the moldy environment!  Sometimes

this presents a difficult problem, especially if the environment is the

patient's home. "

> >  

> > http://www.drshrader.com/MoldExposure.htm

>

[Guest guest]

I love when a post gets alot of responses but what about the LDA therapy!!!!

No one has any experience? It's alot of money for me. If it's a bogus treatment

I want to know now.

PS Joe I hear you-what I'm trying to do now is minimize the bad reaction to

occasional exposures. It's always going to happen so I thought LDA may make me a

little less reactive.

Also the gluten and dairy-free diet is making me feel really great! Just wanted

to pass it on.

Surella

>

> Hi Surella,

>> When I read your statement: " ...my mold sensitivity has exploded lately " , an

alarm bell started ringing in my brain. I assumed that you had read the

following words which appear on Doctor Shrader's web site, and that you are no

longer living or working in a moldy environment.

> �

> �The following words are copied from Doctor Shrader's Web Site:

> " When I see a patient who has been exposed to molds, treatment will vary,

often depending on the magnitude of the problem.� The first and foremost thing

patients must do is remove themselves from the moldy environment!� Sometimes

this presents a difficult problem, especially if the environment is the

patient's home. "

> �

> http://www.drshrader.com/MoldExposure.htm

>>>

> LDA Therapy for mold

> Posted by: " surellabaer " surellabaer@... � surellabaer

> Wed Oct�27,�2010 8:16�am (PDT)

>

>

> I am going to start Low Dose Antigen therapy next month to fight my mold

sensitivities. Anyone have any experience with this? It was created by a Dr.

Shrader (he has a good website) and my new doctor (whom I love so far-he's very

knowledgeable about MCS)thinks it would work for me.

> I'm kind of desperate so I'm taking what might be a very expensive shot at it

but my mold sensitivity has exploded lately.

> Thanks, Surella

>

>

>

[Guest guest]

Surella and Others!

Although it's not much fun sometimes, I have to say my doctor's request to try a

gluten-free diet made a significant difference in my pain levels, especially in

the joint inflammation that made walking more painful than I can describe. 

I've

also given up dairy and sugar.  I haven't had any gluten, dairy, or refined

sugar since July.  Again, it takes diligence, but our the food we eat plays

such

a role in our body's functioning.

Good thoughts everyone...I've never heard of LDA therapy.  What is it?

sally

________________________________

From: surellabaer <surellabaer@...>

Sent: Fri, October 29, 2010 8:19:25 AM

Subject: [] Re: Moldies are Moldy-Was: " LDA Therapy for mold "

 

I love when a post gets alot of responses but what about the LDA therapy!!!!

No one has any experience? It's alot of money for me. If it's a bogus treatment

I want to know now.

PS Joe I hear you-what I'm trying to do now is minimize the bad reaction to

occasional exposures. It's always going to happen so I thought LDA may make me a

little less reactive.

Also the gluten and dairy-free diet is making me feel really great! Just wanted

to pass it on.

Surella

[Guest guest]

Hello, Everyone!  Whoosh!  I have had such illness after some of my attempts

to

" enter the real world. "   I am super careful and wear a mask (Yes, I

know...super-attractive!  Hee...) to lessen the impact, but there are times I

go

out and am just sick for days, without having an indication that something was

amiss. I know when an air freshener or cleaners used are flaring; my eyes burn,

etc.  Sometimes, though, even without these cues, I will come back home after

an

appointment or something and have a horrible sore throat.  I often feel as if

I've gone back to Square One in my treatment after seeing a friend or being

" out. "   I hadn't attributed my adverse reaction to mold but to other chemicals

and possible allergens.  MMMM...I continue to learn.  However, sad as it

is, however, I find the only times I can really " relax " are at my doctor's

office (air purifiers, etc.) and at home where my air purifiers operate 24/7,

and I've created a safe habitat.   I'm finding the hardest adjustment in " my

new

life post-exposure " remains the sheer lack of awareness of this disorder and

how

devastating exposures given the severity of my reactions to seemingly benign

objects/people/environments.  Just one example of the " invasion " of toxins into

the world.  I live near the beach on the Central Coast of California; everyone

in the world, it seems, adores the barbeque, even on the public beaches where I

go to walk and breathe in fresh air!  The smoke just knocks me out and

permeates

the entire environment--for hours sometimes.  ARGH!   Enough whining,

Sally...anyway, I hear you and am learning. 

Good thoughts...sally

________________________________

From: carondeen <kdeanstudios@...>

Sent: Fri, October 29, 2010 6:01:24 AM

Subject: [] Re: Moldies are Moldy-Was: " LDA Therapy for mold "

 

My neighbors cross contaminated everything I owned about 10 weeks ago, I am just

getting my head above water after 10 weeks of illness and cleaning. I will cut

myself off from everyone before I go through that again

[Guest guest]

Dave that's pretty much what I did only it was my vehicle... & in no set spot.

It was the best decision. I saw no other choice actually. I was laid-up so often

that I just started putting my stuff into storage when I had good moments. I

couldn't keep going downhill trying to make " normal " options (rentals) work. I

had to get more resilient before I could test any more waters.

> >

> > There was a woman who used to come here that accidentally cross contaminated

her friends house and to my knowledge because shes so hypersensitive she no

longer has contact with them.

> >

> > Ive cross contaminated my sisters hours almost 10 months ago which is where

Im currently living. For the first week I felt pretty good than without warning

I walked in the front door after my sauna treatment and I became extremely

symptomatic. Now I have to start looking for another place to live. Since

January I will have moved 7 times due to mold.

> >

> > Watch this video, at a 1:27 into the video it shows a guy living out of a

tent in the desert. This scares me to know end, if I cant find a safe place to

live this could very well be me

> >

> >

> >

>

[Guest guest]

For 10 months I had little or no contact with her, when we did talk it was via

text message now that my g/f's house had mold I needed somewhere temporary to go

and I was already sick I moved in with my sister.

None of this makes any sense, there's days when Im here and I feel I have no

choice but to move than there's days like today when I dont feel to bad, my

worst symptom today is a foggy brain. I keep thinking, do I stay and see if

it'll get better or do I move, leave everything behind where I know I'll get

better? I know one things for sure, ever since I moved out of my g/f's house my

health has definitely improved.

>

> Thats so scary Tug, so scary, when does the crazyness end? So you wont have

contact with your sister now?

[Guest guest]

Don't you think you could have gotten sic from inital exposure and now you are

just sic and have 'good day's and 'bad days' that have nothing to do with where

you are now as a possibility?

> >

> > Thats so scary Tug, so scary, when does the crazyness end? So you wont have

contact with your sister now?

>

[Guest guest]

Barb that constantly crosses my mind. After my initial exposure I moved 3 times

thinking I may have cross contaminated my surroundings but in retrospect I think

that I may have just been sick from the initial exposure and needed time to

detox. Once I detoxed and started to feel better and moving again wasnt

necessary. Glad to see you got your keyboard working :-)

>

> Don't you think you could have gotten sic from inital exposure and now you are

just sic and have 'good day's and 'bad days' that have nothing to do with where

you are now as a possibility?

[Guest guest]

What is LDA therapy?

I had " hit " .. brain swelled.. it can be three things..

halloween party.. I could smell the gas from the commercial stove immediately..

it was strong..

stopped by my parents house for the first time since their remediation..

something smelled off but it could have been my dad (lol) since he was smoking

sausage in his factory.. he goes in and does this work at night.. or it could

have been all the plastic containers my mother bought to replace the basket

ones.. or the new furniture to replce the old sporey stuff.

ate a lot of candy.. candida bloom..

So which one? MY brain is fine today. Made the kids take baths.. always wash

their clothes and mine when I feel funny about a plce but dont make them take

baths if we come home late and usually thsts ok.. but this time..

Lesson for me.. dont experiment with too many variables at the same time. Now I

have to do them all over again.. good part.. Im afraid of candy now. haha

Not to make light.. I felt awful yesterday.. it was very scary and took me out

physically as well but I am also up to 2 TBS of csm twice a day with 1 diflucan

a day as well.

So could also have been an intensitifation response to csm or a die off with the

diflucan.. " mold mysteries " I laugh today but yesterday again was NOT funny.

I am adding in an infrared sauna. I dont know if this csm is doing a thing and

would love to hear experiences and wil post a sep thread for that.

Robin

[Guest guest]

Sally - your doctor sounds great! And woohoo to you for giving up sugar too. I

should, I am using only honey now, but I haven't made that commitment yet. The

gluten and dairy free are a revelation though! I hope this feeling lasts because

I feel great. I am also taking licorice extract to raise my cortisol levels-I

don;t deal with stress well at all, I end up getting sick, and it's because my

cortisol is super low.

Here is the LDA site: http://www.drshrader.com/lda_therapy.htm

It's basically a low dose of whatever you are sensitive too. Most people use it

for food allergies but mold sensitivities respond well to it too. I'm hopeful.

Surella

>

> Surella and Others!

>

> Although it's not much fun sometimes, I have to say my doctor's request to try

a

> gluten-free diet made a significant difference in my pain levels, especially

in

> the joint inflammation that made walking more painful than I can describe. 

I've

> also given up dairy and sugar.  I haven't had any gluten, dairy, or refined

> sugar since July.  Again, it takes diligence, but our the food we eat plays

such

> a role in our body's functioning.

>

> Good thoughts everyone...I've never heard of LDA therapy.  What is it?

>

> sally

[Guest guest]

Its funny, im the same, some days i seem to get symptoms from the house and some

nights i dont seem to, however the days i do have effects seem to get more

frequent rather than less, and they do seem to get more severe, a sign i need to

move. Also exposure symptoms used to only occur at night and now i occasionally

get them during the day but they are always worse at night. The other day i even

considered sleeping all day and spening all night outside somewhere just so i

could actually sleep and not get inflammation symptoms. Mind you due to

worsening mcs there are only two rooms i can stand to be in here..

[Guest guest]

Thats good news tug, very good news.

Im wondering why my reactions are so very different toeveryone elses.... I get

immediate effects not delayed ones. Immediately i get itchy nose, inner ears,

eyes, bags under eyes, feeling of weakness, tremors in the morning i will often

have swollen fingers and arm, i also get disconnected weird thoguht, brain fog,

and strange dreams. The chronic health problems i have are classic mould

symptoms, bruising all over, fingerprints smoothing, damage to most of my

organs, mcs, low wbc, low nk, recurrent infections and viruses, When i removed

clothes from contaminated house from a plastic bag i got instant nauseous, bags

under eyes and weakness, I do not get these immediare symptoms ANYWHERE outside

of the wdb or the cc house or 3 cc cars but i still get very severe mcs symptons

elsewhere which are completly different to the mould.

Maybe it is not mould but some sort of bacteria in which case my efforts to

avoid cross contamination may need to be reexamined. Does anyone else get these

immediate reactions? I think ive read of people who do. my reactions never used

to be this immediate so it cou,d also be a sign of lowering tolerance after 3

years in the wdb. The tremors, neuro symptoms Swollen fingers and arm, bruising

and even nausea are very recent reactions.

[Guest guest]

How immediate is immediate? Hard to imagine immediate bags under eyes and

bruises all over. Do you mean by immediate within 24 hours? Also what is 'cc

house' and 'cc cars'? Thanks

>

> Im wondering why my reactions are so very different toeveryone elses.... I get

immediate effects not delayed ones. Immediately i get itchy nose, inner ears,

eyes, bags under eyes, feeling of weakness, tremors in the morning i will often

have swollen fingers and arm, i also get disconnected weird thoguht, brain fog,

and strange dreams. The chronic health problems i have are classic mould

symptoms, bruising all over, fingerprints smoothing, damage to most of my

organs, mcs, low wbc, low nk, recurrent infections and viruses, When i removed

clothes from contaminated house from a plastic bag i got instant nauseous, bags

under eyes and weakness, I do not get these immediare symptoms ANYWHERE outside

of the wdb or the cc house or 3 cc cars but i still get very severe mcs symptons

elsewhere which are completly different to the mould.

>

> Maybe it is not mould but some sort of bacteria in which case my efforts to

avoid cross contamination may need to be reexamined. Does anyone else get these

immediate reactions? I think ive read of people who do. my reactions never used

to be this immediate so it cou,d also be a sign of lowering tolerance after 3

years in the wdb. The tremors, neuro symptoms Swollen fingers and arm, bruising

and even nausea are very recent reactions.

>

[Guest guest]

Hi,     It is my understanding that honey is not a good substitute according

to

the EI I briefly had.  He says it is related to mold.  I used it and got sick,

I

called then and that was what I was told. 

God Bless !!

dragonflymcs

Mayleen

________________________________

From: surellabaer <surellabaer@...>

Sent: Sat, October 30, 2010 7:09:10 PM

Subject: [] Re: Moldies are Moldy-Was: " LDA Therapy for mold "

 

Sally - your doctor sounds great! And woohoo to you for giving up sugar too. I

should, I am using only honey now, but I haven't made that commitment yet. The

gluten and dairy free are a revelation though! I hope this feeling lasts because

I feel great. I am also taking licorice extract to raise my cortisol levels-I

don;t deal with stress well at all, I end up getting sick, and it's because my

cortisol is super low.

Here is the LDA site: http://www.drshrader.com/lda_therapy.htm

It's basically a low dose of whatever you are sensitive too. Most people use it

for food allergies but mold sensitivities respond well to it too. I'm hopeful.

Surella

[Guest guest]

I feel awful after sugar. Dont eat it often but occasionally forget how little

i can handle. Figure it is fungus Candida or i'm pre diabetic. Have

experienced it for a long time.

>

> What is LDA therapy?

>

> I had " hit " .. brain swelled.. it can be three things..

>

> halloween party.. I could smell the gas from the commercial stove

immediately.. it was strong..

>

> stopped by my parents house for the first time since their remediation..

something smelled off but it could have been my dad (lol) since he was smoking

sausage in his factory.. he goes in and does this work at night.. or it could

have been all the plastic containers my mother bought to replace the basket

ones.. or the new furniture to replce the old sporey stuff.

>

> ate a lot of candy.. candida bloom..

>

> So which one?

[Guest guest]

Not at all to challenge Tug, but at least in my case, Im wondering the same

thing Barb and trying to figure out connections, possible triggers (mold?

chemical? what I eat?). Its not easy to sort this out..

Die off? Flare of bacteria, fungal infection? ????? The recycling of toxins

still in the body?

I have to stay here a year.. at least. I cannot move my family again and we are

OUT of the house where the mold stew/wbd stew was growing. So anything else mold

like is from getting " hits " from places we visit and we can do our best to

" decontaminate " and choose the places we frequent wisely.. or " cross

contamination " and honestly I have a problems with this idea. I dont see how NOT

to cross contaminate without living in a bubble or as a nomad.. and I truly

truly admire anyone who has to and manages to live that life.. but I CANT with

two kids.

I dont see how someone lives in a car or a tent and does not " cross contaminate "

unless you never go anywhere or see anyone.

Trick or treating tonight.. older couple, older house.. door open.. i reaked of

wet building damage smell to me.. its EVERYWHERE!

I was taken out a week by a halloween costume someone must have returned to

walmart of this store has storage issues.. I know to AVOID the camper isles..

that smell is there constantly.. a new friend here told me she got a panic

attack in that area and she never gets panic attacks. So something is there..

I have brain inflammation yet again.. gas reaking rec center room? parents house

that was remdiated but we know how that can potentially go? A CSM

intensitifcation effect or die off from diflucan with candy on top?

?????????????????????????????

Not going back to parents house until brain settles down then I have to try it

out again.. not going back to rec center if can help it.. that place reasked of

gas and the tables were sticky from it.. and no more candy binges for me.

All I can do is try to sort this out and like with lyme when everyone was

telling me every symptom I had was Lyme.. well they were WRONG! It sure is true

that this is a very personal journey and each person has to do the sniff test

alone.. no one can do it for you.

At this point I have to be thank ful that I have not had the drop dead

depression that I had in the mold house.. yet.. the brain inflammation is making

me feel insane and like Im losing my marbles but at least its not as bad.

Im adding an air bear to the air systems and duct filters.

The dog ahs been washed so much she had dander or scales or flakes of dry skin?

all over her back. its pretty bad, so we need another solution for her.. she

smells really strong within a few days after her bath and that gets to me too..

ugh. We are going to hep vac her back lol.. and not bath her for a while.. maybe

some essential oil spray? Ive got to research that one.. baking soda???

Robin

>

> Don't you think you could have gotten sic from inital exposure and now you are

just sic and have 'good day's and 'bad days' that have nothing to do with where

you are now as a possibility?

[Guest guest]

yeah.. ive been indulging in endangerd species brand dark choc.. half the sugar

of a candy bar and even that is too much.. then I go nuts with the halloween

candy.. ugh.. I dont know how the heck people around here eat and drink so much

sugar and are well or seemingly well.. frustrating.

Once we are better settled in its back to limited to no grains and sugar.

Robin

>

> I feel awful after sugar. Dont eat it often but occasionally forget how

little i can handle. Figure it is fungus Candida or i'm pre diabetic. Have

experienced it for a long time.

[Guest guest]

I get sick really fast too.  bags next day, face swells one side immediately,

weakness immediately, respiratory immediate, pain usually gradual onset, but if

chemical immediately, 

  

God Bless !!

dragonflymcs

Mayleen

________________________________

From: barb b w <barb1283@...>

Sent: Sat, October 30, 2010 11:18:00 PM

Subject: [] Re: Moldies are Moldy-Was: " LDA Therapy for mold "

 

How immediate is immediate? Hard to imagine immediate bags under eyes and

bruises all over. Do you mean by immediate within 24 hours? Also what is 'cc

house' and 'cc cars'? Thanks