Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 CSM should be taken on an empty stomach. I always mixed mine in a small bottle the night before so it was ready to take early in the AM. Also mixed it when I when out so I had it if I didn't get home in time. d it in a insulated lunch bag. I took it as directed and NEVER missed a dose! First thing to improved was my brain fog and headaches. Other symptoms took longer but it worked for me!!! I had some heartburn at first that was not bad. I took Milk of Magnesea for constipation. Re: CSM Protocol 1. On an empty stomach, take one scoop of CSM (9 grams), mix with water, or juice, 4-6 oz 2. Stir well and swallow. Add more liquid, repeat 1 above until done. 3. Drink an extra 4-6 oz of liquid 4. After 30 minutes, you may eat or take meds (wait at least 2 hours before taking thyroxine, digitalis, theophylline, coumadin and others, ask your doctor for information) 5. Take CSM 4 times a day! 6. If you eat first, wait at least 60 minutes before taking your next CSM 7. Reflux, constipation, bloating and bowel distress are to be expected 8. Use acid blocking medications as needed 9. Use sorbitol, 70% solutions, 1 TBSP 3-4 times a day to relieve constipation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 This is a great question. Also, can I add that I wanted to know if CSM is part of a larger protocol and if so where is that protocol written up? Thanks. AN Sent from my iPhone On Oct 30, 2010, at 3:21 PM, " listspub " <listspub@...> wrote: Would you all share your experiences.. dosing: how much and how often how separeted from meds effect.. how long.. do you pulse.. do you add psyllium, charcoal, clay thanks, Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 I was prescribed the maximum dose by my understanding physician. It's 3 4gram packets twice a day. I tolerate it fine. I do have a tough time sticking to taking it due to chronic fatigue. One benefit to taking it is it lowers your cholesterol. My doc works with me and is very understanding re: mold. I don't take other meds, but I try to go an hour before and after taking CSM without eating. CSM will interfere with absorbing nutrients from food as well as interfere with meds. Dr. Ritchie Shoemaker was the individual who pioneered using CSM for mold exposure. A little Google searching should get u some info. I came up with my own protocol after thoroughly researching the subject both here and on the internet. I started my protocol with an antifungal (terbafine) and CSM. It definitely helped me. I'm not sure where I'd be today without these, but it wouldn't be pretty. Bob > > This is a great question. Also, can I add that I wanted to know if CSM is part of a larger protocol and if so where is that protocol written up? Thanks. AN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 Thank you! I keep hearing conflicting info from the pharmacy to othes using csm to possibly shoemaker.. the pharm told me (I think) meds or food one hour before and 2-3 hours after.. ?? When I asked him for more specifics regarding fat soluable vits.. he became patronizing, arrogant and didnt answer my question which I can assume means he doestn know. So thank you. Because I feel prety certain i have delaye gastric emptying Im going to separate with a wider margin. I do notice if I take supps eary in the am while still in bed, I dont sigest them so starting with csm first I hope will be helpful. Typing at an angle.. Thanks! The bottle is a great idea. I need a timer as well or I will forget. RObin > > CSM should be taken on an empty stomach. I always mixed mine in a small > bottle the night before so it was ready to take early in the AM. Also mixed it > when I when out so I had it if I didn't get home in time. d it in a > insulated lunch bag. I took it as directed and NEVER missed a dose! First > thing to improved was my brain fog and headaches. Other symptoms took longer > but it worked for me!!! > I had some heartburn at first that was not bad. I took Milk of Magnesea > for constipation. > > Re: CSM Protocol > > 1. On an empty stomach, take one scoop of CSM (9 grams), mix with > water, or juice, 4-6 oz > 2. Stir well and swallow. Add more liquid, repeat 1 above until done. > 3. Drink an extra 4-6 oz of liquid > 4. After 30 minutes, you may eat or take meds (wait at least 2 hours > before taking thyroxine, digitalis, theophylline, coumadin and > others, ask your doctor for information) > 5. Take CSM 4 times a day! > 6. If you eat first, wait at least 60 minutes before taking your next > CSM > 7. Reflux, constipation, bloating and bowel distress are to be > expected > 8. Use acid blocking medications as needed > 9. Use sorbitol, 70% solutions, 1 TBSP 3-4 times a day to relieve > constipation > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 Thanks, Bob.. again getting time discrepancies.. I was once told 1-2 hours before and 4 hours after by one MD.. 2 hours each way another source.. etc.. :-) Ive also been told it might be wise to push the fats and to watch horomone levels since they need cholesterol, take extra fat soulable vitamins and I am assuming to space them the furtherest away. and watch for b12 .. something I would not think of and am not sure is accurate though since b12 can be difficult for some to absorb due to certain biological conditions.. cant remember some enzyme or such.. I have cfs as well and timing this is really difficult. Robin -- In , " Bob F " <dynobob@...> wrote: > > I was prescribed the maximum dose by my understanding physician. It's 3 4gram packets twice a day. I tolerate it fine. I do have a tough time sticking to taking it due to chronic fatigue. One benefit to taking it is it lowers your cholesterol. My doc works with me and is very understanding re: mold. I don't take other meds, but I try to go an hour before and after taking CSM without eating. CSM will interfere with absorbing nutrients from food as well as interfere with meds. > > Dr. Ritchie Shoemaker was the individual who pioneered using CSM for mold exposure. A little Google searching should get u some info. I came up with my own protocol after thoroughly researching the subject both here and on the internet. I started my protocol with an antifungal (terbafine) and CSM. It definitely helped me. I'm not sure where I'd be today without these, but it wouldn't be pretty. > > Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Follow Dr. Shoemaker's CSM protocol! Pharmacist will probably give you different directions. I followed his directions religiously(4X a day) and never had any problems. I always found it easier to take at least 1/2 hr. prior to eating and other meds. 6/7AM then breakfast, 11/11:30AM then lunch at 12 or 12:30, 4:40/5PM followed by dinner about 5:30 6:30PM, last dose between 10/10;30PM. Mixed the last one before bed to have by my bed in the AM. You can arrange the times to fit your schedule. Thank you! I keep hearing conflicting info from the pharmacy to othes using csm to possibly shoemaker.. the pharm told me (I think) meds or food one hour before and 2-3 hours after.. ?? When I asked him for more specifics regarding fat soluable vits.. he became patronizing, arrogant and didnt answer my question which I can assume means he doestn know. So thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Thanks for the information, Bob. I have heard different things about people taking CSM alone and sone with other meds. Is it true that once you are on antifungals it's near impossible to get off of them? Sent from my iPhone On Oct 30, 2010, at 10:38 PM, " Bob F " <dynobob@...> wrote: I was prescribed the maximum dose by my understanding physician. It's 3 4gram packets twice a day. I tolerate it fine. I do have a tough time sticking to taking it due to chronic fatigue. One benefit to taking it is it lowers your cholesterol. My doc works with me and is very understanding re: mold. I don't take other meds, but I try to go an hour before and after taking CSM without eating. CSM will interfere with absorbing nutrients from food as well as interfere with meds. Dr. Ritchie Shoemaker was the individual who pioneered using CSM for mold exposure. A little Google searching should get u some info. I came up with my own protocol after thoroughly researching the subject both here and on the internet. I started my protocol with an antifungal (terbafine) and CSM. It definitely helped me. I'm not sure where I'd be today without these, but it wouldn't be pretty. Bob > > This is a great question. Also, can I add that I wanted to know if CSM is part of a larger protocol and if so where is that protocol written up? Thanks. AN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 I'm not sure what you're referring to regarding getting off antifungals. I took Lamisil (Terbinafine) for the max duration (30 days IIRC). The docs were careful to monitor the liver. Dr. Marincovich (who is deceased) used this antifungal and he had no reservations for using it for an extended time. I don't think the dangers in print are all that much to be concerned about. This is only my opinion based on what I've read on the net from Dr. Marincovich. I'm just now debating with myself on taking it for another 30 days. I can still see a small amount of black colored fungus in my fingernails still growing out. It's likely dead but remains in the fingernail until it grows out. I also try to use grapefruit seed extract nasal spray. After lurking on the board for several years it's good to give something back. Bob > > Thanks for the information, Bob. I have heard different things about people taking CSM alone and sone with other meds. Is it true that once you are on antifungals it's near impossible to get off of them? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 That would make sense.:-) Thank you! I found this as well describing how to take fats after taking csm.. good idea. It looks like a low amylose diet will also make taking csm easier even without the actos.. http://www.ei-resource.org/articles/chronic-fatigue-syndrome-articles/neurotoxin\ s-%11-treatment-information-sheet/ Robin > > Follow Dr. Shoemaker's CSM protocol! Pharmacist will probably give you > different directions. I followed his directions religiously(4X a day) and > never had any problems. I always found it easier to take at least 1/2 hr. > prior to eating and other meds. 6/7AM then breakfast, 11/11:30AM then lunch at > 12 or 12:30, 4:40/5PM followed by dinner about 5:30 6:30PM, last dose > between 10/10;30PM. Mixed the last one before bed to have by my bed in the AM. > You can arrange the times to fit your schedule. > > Thank you! > > I keep hearing conflicting info from the pharmacy to othes using csm to > possibly shoemaker.. the pharm told me (I think) meds or food one hour before > and 2-3 hours after.. ?? When I asked him for more specifics regarding fat > soluable vits.. he became patronizing, arrogant and didnt answer my > question which I can assume means he doestn know. > > So thank you. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Has anyone had physical, psychological experiences with CSM.. for example, my sinuses and brain are inflamming.. eyes feel some pressure.. possibly some blurring.. could this be toxins moving? Brain inflammation makes me feel unstable.. a little drifty psychologically speaking.. memory blanking out, brain fog, .. do not feel safe to drive a car or be alone.. lose in the head feeling. I dropped the diflucan and kept in the csm. Could DOG DANDER cause this? Our dog is shedding skin like mad since we washed her so much. I just dont think this is lyme and I cleared pretty fast when we left my mold house.. so I dont see how an exposure could still be effecting me if I had one. Thanks.. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Toxins from the Difflucan treatment? > > Has anyone had physical, psychological experiences with CSM.. for example, my sinuses and brain are inflamming.. eyes feel some pressure.. possibly some blurring.. could this be toxins moving? Brain inflammation makes me feel unstable.. a little drifty psychologically speaking.. memory blanking out, brain fog, .. do not feel safe to drive a car or be alone.. lose in the head feeling. > > I dropped the diflucan and kept in the csm. > > Could DOG DANDER cause this? > > Our dog is shedding skin like mad since we washed her so much. > > I just dont think this is lyme and I cleared pretty fast when we left my mold house.. so I dont see how an exposure could still be effecting me if I had one. > > Thanks.. > > Robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 I hasve trouble with yeast. Right now I have white patches in my mouth. Its yeast In a message dated 11/1/2010 12:40:51 P.M. Eastern Daylight Time, listspub@... writes: If it takes them days to go away after you stop.. does candida produce a biotoxin? Then it doesnt ahve to be limited to candida does it and anyother toxin will cause problems as well.. and csm might not touch those. robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 In my opinion, these are all symptoms of mycotoxins in your body...nothing to do with the CSM. An antifungal (terbinafine) along with CSM cured almost all my vision problems. The rest of your symptoms are either mycotoxins in your system and/or a herxhiemer reaction from die-off of fungus (diflucan). The CSM should reduce your symptoms. It will flush the toxins from your system. Are you still in a moldy environment? Have you been tested for Lyme Disease? http://en.wikipedia.org/wiki/Herxheimer_reaction Bob > > Has anyone had physical, psychological experiences with CSM.. for example, my sinuses and brain are inflamming.. eyes feel some pressure.. possibly some blurring.. could this be toxins moving? Brain inflammation makes me feel unstable.. a little drifty psychologically speaking.. memory blanking out, brain fog, .. do not feel safe to drive a car or be alone.. lose in the head feeling. > > I dropped the diflucan and kept in the csm. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 If it takes them days to go away after you stop.. does candida produce a biotoxin? Then it doesnt ahve to be limited to candida does it and anyother toxin will cause problems as well.. and csm might not touch those. robin > > > > Has anyone had physical, psychological experiences with CSM.. for example, my sinuses and brain are inflamming.. eyes feel some pressure.. possibly some blurring.. could this be toxins moving? Brain inflammation makes me feel unstable.. a little drifty psychologically speaking.. memory blanking out, brain fog, .. do not feel safe to drive a car or be alone.. lose in the head feeling. > > > > I dropped the diflucan and kept in the csm. > > > > Could DOG DANDER cause this? > > > > Our dog is shedding skin like mad since we washed her so much. > > > > I just dont think this is lyme and I cleared pretty fast when we left my mold house.. so I dont see how an exposure could still be effecting me if I had one. > > > > Thanks.. > > > > Robin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 Toxins will stay in your body a long time. It can be hard to get them out. I had toxic skin reacton to nystatn so in my experence yes. I had burning rash whole six months I was on Nystatn. I thought I had poison ivy but couldnt fgure out where I gotten it from, then shortly after I came to end of 6 month Nystatn Rx, rash cleared up and I realzed it was that. CSM should help clear out any toxins that get in liver. You could also try sauna and see if that helps or do both. > > > > > > Has anyone had physical, psychological experiences with CSM.. for example, my sinuses and brain are inflamming.. eyes feel some pressure.. possibly some blurring.. could this be toxins moving? Brain inflammation makes me feel unstable.. a little drifty psychologically speaking.. memory blanking out, brain fog, .. do not feel safe to drive a car or be alone.. lose in the head feeling. > > > > > > I dropped the diflucan and kept in the csm. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010    I am on CMS for mold toxicity prescribed by Dr. Shoemaker. On 10th day noticed extreme fatigue which has lasted 7 weeks. I also had pressure in my eyes. blurring, headaches, etc which increased after starting the drug. The pain in my eyes is gone and so is the blurriness. The cough is gone, too. My geneotype was not what I was hoping for, I have the 4-3-53 which is multi suseptible and another one for lyme. Dr. Shoemaker calls this geneotype the " dreaded gene " b/c it is very difficult to get well. I will be on the CMS for another month and then a VIP drug. I did not test positive for lyme so please keep in mind that there are some mold patients that have a great difficulty with detox with CMS. I kept on it but sometimes I was so tired and fell asleep before I took the 4th dose. I also take chorella which seems to help. I am seeing an improvement but it is rather slow. I have moved out of our moldy motor home and living for the time being in our 19 ft motor home. I found a RV that is Green certified, no VOC chemicals and vacumn bonded to prevent leaks. That is our next RV I believe which we need b/c we live on the road with my husband's job. Dr. Shoemaker and other Drs are working diligently to find ways to help us. I think we can look forward to tomorrow with a SMILE. Blessings on your journey. Diane ________________________________ From: listspub <listspub@...> Sent: Mon, November 1, 2010 12:38:00 AM Subject: [] Re: Experiences with CSM  Has anyone had physical, psychological experiences with CSM.. for example, my sinuses and brain are inflamming.. eyes feel some pressure.. possibly some blurring.. could this be toxins moving? Brain inflammation makes me feel unstable.. a little drifty psychologically speaking.. memory blanking out, brain fog, .. do not feel safe to drive a car or be alone.. lose in the head feeling. I dropped the diflucan and kept in the csm. Could DOG DANDER cause this? Our dog is shedding skin like mad since we washed her so much. I just dont think this is lyme and I cleared pretty fast when we left my mold house.. so I dont see how an exposure could still be effecting me if I had one. Thanks.. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 Couple questions please. What is a VIP drug? What does it mean to get an RV which is 'vacuum bonded' and what are the advantages? > >I am on CMS for mold toxicity prescribed by Dr. Shoemaker. On 10th day noticed > extreme fatigue which has lasted 7 weeks. I also had pressure in my eyes. > blurring, headaches, etc which increased after starting the drug. The pain in my > eyes is gone and so is the blurriness. The cough is gone, too. My geneotype > was not what I was hoping for, I have the 4-3-53 which is multi suseptible and > another one for lyme. Dr. Shoemaker calls this geneotype the " dreaded gene " b/c > it is very difficult to get well. I will be on the CMS for another month and > then a VIP drug. I did not test positive for lyme so please keep in mind that > there are some mold patients that have a great difficulty with detox with CMS. > I kept on it but sometimes I was so tired and fell asleep before I took the 4th > dose. I also take chorella which seems to help. I am seeing an improvement but > it is rather slow. I have moved out of our moldy motor home and living for the > time being in our 19 ft motor home. I found a RV that is Green certified, no > VOC chemicals and vacumn bonded to prevent leaks. That is our next RV I believe > which we need b/c we live on the road with my husband's job. Dr. Shoemaker and > other Drs are working diligently to find ways to help us. I think we can look > forward to tomorrow with a SMILE. Blessings on your journey. Diane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 Barb, I need to get a name for the VIP drug & replay later......you can go to www.evergreen.com and look at the trailer for they explain better than I can. But the roof is stronger and less likely to leak. At the manuacturing plant they test the RV's under water equivlent to 6 hrs of rain to make sure they seal it properly. The problem with RVs is they have a tendency to leak and create mold.  This company started in 2008 with the desire to make a Green RV and one healthier, without so many chemicals. I was not able to purchase a new RV b/c of the chemicals but last month I went into a Coachmen Freedom Express 2011 model and for the 1st time did not react. They do not use formaldehyde. The do use a glue with vocs but it did not bother me. My experiences with new RV only allowed me a few minutes before i got severely affected. There are 3 companies now with Green certified RVs 1-COACHMAN 2-STARCRAFT  3-EVERGREEN. We have owned 3 RVs and two of them had mold. We bought one with mold and then the other had a major flood from a pipe and consequently - mold! So I am so hesitant in buying an used one. Trailers are a bit cheaper so this new Evergreen cost anywhere between $23,000-38,000 depending on the model. ________________________________ From: barb b w <barb1283@...> Sent: Mon, November 1, 2010 1:23:22 PM Subject: [] Re: Experiences with CSM  Couple questions please. What is a VIP drug? What does it mean to get an RV which is 'vacuum bonded' and what are the advantages? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 I originally started on diflucan after my first exposure and it actually cleared up the brain fog. The ENT that was prescribing it wouldnt give it to me for more than 2 weeks so I switched Dr's which meant switching antifungals. I'd really rethink dropping the diflucan, it was a god send for me. > > > > Has anyone had physical, psychological experiences with CSM.. for example, my sinuses and brain are inflamming.. eyes feel some pressure.. possibly some blurring.. could this be toxins moving? Brain inflammation makes me feel unstable.. a little drifty psychologically speaking.. memory blanking out, brain fog, .. do not feel safe to drive a car or be alone.. lose in the head feeling. > > > > I dropped the diflucan and kept in the csm. > > > > Could DOG DANDER cause this? > > > > Our dog is shedding skin like mad since we washed her so much. > > > > I just dont think this is lyme and I cleared pretty fast when we left my mold house.. so I dont see how an exposure could still be effecting me if I had one. > > > > Thanks.. > > > > Robin > > > Quote Link to comment Share on other sites More sharing options...
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