Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 Hi, I am new here and need some help. Myself and son have been exposed to Stachybotrys in my home for about 3 years. We have moved but still suffer with constant congestion, and my son is constantly on a inhaler for asthma( which he did not have before we lived in my home). We have been to allergist after allergist and no help, so now after reading some of these post I realize maybe its not the mold, but the mytoxins. How do we go about being tested for this? And what type of Doctor do I need to see? Does anyone know any doctors around NYC in this field? Thanks, Lance Queens, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 Lance, Your not allergic to Stachy. Its not an allergen, its a poison. No allergy test determines your susceptibility to the degree of sickness anyone will attain from stachy exposure. Remember its a POISON. Below is a link to find a Doctor with experience in treating toxic mold exposure. Please go down the list and call them BEFORE you go so you can find the right fit for your needs. Also for me, Cholestyramine drug saved my life after being exposed to stachy. You might want to ask your Doc about it. Also if you have any furniture in your new dwellings from the old sick building it will no doubt have the mold spores on them from the original mold source and the stachy mold spores will be just as poisonous as the original mold source. God Bless you guys!! Elias http://www.mold-survivor.com/DrLists/ From: Lance <lanceh423@...> Subject: [] Toxin help Date: Monday, November 1, 2010, 7:20 AM Hi, I am new here and need some help. Myself and son have been exposed to Stachybotrys in my home for about 3 years. We have moved but still suffer with constant congestion, and my son is constantly on a inhaler for asthma( which he did not have before we lived in my home). We have been to allergist after allergist and no help, so now after reading some of these post I realize maybe its not the mold, but the mytoxins. How do we go about being tested for this? And what type of Doctor do I need to see? Does anyone know any doctors around NYC in this field? Thanks, Lance Queens, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 Lance I live in Queens too and my daughter just recommended 2 great doctors in NYC. I am going to one, Dr. on, and so far so good. He understands the whole MCS thing. In fact that is what he does! It's so amazing to find a doctor who listens and doesn't think you are crazy. He spent over an hour with me initially and took many tests and recommended some supplements and LDA shots for my mold sensitivity. Everything he says is right on the ball. He has a website (TheonCenter.com). The other dr. was a Dr. Ali on the upper west side-also excellent. My Jin Shin therapist used him for her daughter with MCS. PS Jin Shin has practically saved my life thru all of this and if you want more info, please email me. I'd be so happy to give you whatever you need. Surella, from Queens! > > Hi, I am new here and need some help. Myself and son have been exposed to Stachybotrys in my home for about 3 years. We have moved but still suffer with constant congestion, and my son is constantly on a inhaler for asthma( which he did not have before we lived in my home). We have been to allergist after allergist and no help, so now after reading some of these post I realize maybe its not the mold, but the mytoxins. How do we go about being tested for this? And what type of Doctor do I need to see? Does anyone know any doctors around NYC in this field? > > Thanks, > Lance > Queens, NY > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 you can be allergic to stachy. > > Lance, > Your not allergic to Stachy. Its not an allergen, its a poison. No allergy test determines your susceptibility to the degree of sickness anyone will attain from stachy exposure. Remember its a POISON. Below is a link to find a Doctor with experience in treating toxic mold exposure. Please go down the list and call them BEFORE you go so you can find the right fit for your needs. Also for me, Cholestyramine drug saved my life after being exposed to stachy. You might want to ask your Doc about it. Also if you have any furniture in your new dwellings from the old sick building it will no doubt have the mold spores on them from the original mold source and the stachy mold spores will be just as poisonous as the original mold source. > God Bless you guys!! > Elias > http://www.mold-survivor.com/DrLists/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 you know, there may be some who suffer from mold allergies and not mycotoxin exposure. I dont think it's wise to tell anyone they do or do not suffer a mold allergy, you can suffer from both allergy and toxicity. eother/or. just because one person does not have allergies doesn't mean all do not. > > Lance, > Your not allergic to Stachy. Its not an allergen, its a poison. No allergy test determines your susceptibility to the degree of sickness anyone will attain from stachy exposure. Remember its a POISON. Below is a link to find a Doctor with experience in treating toxic mold exposure. Please go down the list and call them BEFORE you go so you can find the right fit for your needs. Also for me, Cholestyramine drug saved my life after being exposed to stachy. You might want to ask your Doc about it. Also if you have any furniture in your new dwellings from the old sick building it will no doubt have the mold spores on them from the original mold source and the stachy mold spores will be just as poisonous as the original mold source. > God Bless you guys!! > Elias > http://www.mold-survivor.com/DrLists/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 just like some can tolerate steroids, some not, some antibiotics,some not, I dont think we should be telling anybody what they have ,or what they should take, if your wrong, your hurting, not helping. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 I will continue to tell people what i took as far as drugs that saved my life (csm). And Stachy is a poison no matter how you phrase it. If someone is around stachy they will be poisoned unless they dont breath; even then who knows. And not telling people about CSM would be like negtating all the ground breaking work Dr Shoemaker has done over the last years in biotoxin illness/treatments. Such an impact this man has made in helping thousands of people. Anyway, lets not tell others what to say or what not to say. Its best to get all opinions out on this subject. It is still America:)  Hope everyone votes today on that point! Elias From: osisposis <jeaninem660@...> Subject: [] Re: Toxin help Date: Tuesday, November 2, 2010, 1:41 PM just like some can tolerate steroids, some not, some antibiotics,some not, I dont think we should be telling anybody what they have ,or what they should take, if your wrong, your hurting, not helping. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 I KNOW I am allergic to molds in my environment. It's a clear case, for me, of when testing helps--bc as I suspected, I am allergic to exactly the molds found in my WDB. And while I am also allergic to animals, I have lived elsewhere with my cat and never was sick like this--immediate eye weeping, nose running, when I come home. I suspect I am also suffering from the toxins...but anyway, I wanted to say that IMHO you are right. Sent from my iPhone On Nov 2, 2010, at 3:39 PM, " osisposis " <jeaninem660@...> wrote: you know, there may be some who suffer from mold allergies and not mycotoxin exposure. I dont think it's wise to tell anyone they do or do not suffer a mold allergy, you can suffer from both allergy and toxicity. eother/or. just because one person does not have allergies doesn't mean all do not. > > Lance, > Your not allergic to Stachy. Its not an allergen, its a poison. No allergy test determines your susceptibility to the degree of sickness anyone will attain from stachy exposure. Remember its a POISON. Below is a link to find a Doctor with experience in treating toxic mold exposure. Please go down the list and call them BEFORE you go so you can find the right fit for your needs. Also for me, Cholestyramine drug saved my life after being exposed to stachy. You might want to ask your Doc about it. Also if you have any furniture in your new dwellings from the old sick building it will no doubt have the mold spores on them from the original mold source and the stachy mold spores will be just as poisonous as the original mold source. > God Bless you guys!! > Elias > http://www.mold-survivor.com/DrLists/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 I am allergic to molds also and poisoned by the mycotoxins. My ENT did a mold panel allergy test on me and I was allergic to ALL of them. He said there is a mycotoxin blood test but insurance will not pay for it. I guess if they did, too much could be proven and lawsuits could be more proven. I am also allergic to most of all the common allergens. I do not recall reacting anything like I do now when younger. Once I started working in the toxic enviroment, I became the sinus queen and the headache queen that got worse as time went on. Then came all the other horrific symptoms once I moved in the toxic house. I was being posioned 24/7. My ENT said we become sensitize and react to just about anything and everything. I react horrible to the barometric pressure changes. My ENT said fungus reacts to pressure changes. How, I do not understand. Does that mean I still have fungus in me... I know if I'm seeing it in my mouth now, that it has to be other places. I do have CSM from years back and thought about taking it again for a while but it is medicine and has other affects on the body and will absorb nutrients if not taken spaced out. I still wonder about the time frame of taking it and can't recall how my ENT told me but seems like 2-3 hours apart from eating and vitamins/meds or an hour before eating. I just felt like it was probably taking away nutrients back when I took it. But, I just may try that since it may get this stuff out of my mouth and more if elsewhere. I know last visit last year my ENT said wouldn't hurt to take one a day for maintenance. I'm sure I get exposed to mycotoxins and the other tons of toxins out there so maybe I need to try the CSM again for a while. I also take low dose naltrexone. > > I KNOW I am allergic to molds in my environment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Thanks, does anyone else know anything about this mytoxin test? My son and I have been tested for allergies, and came up negative on all molds but we still have symptoms. All of our symptoms started with mold exposure in my home and now we desperately need help. On Wed Nov 3rd, 2010 1:13 AM EDT Bunny wrote: >I am allergic to molds also and poisoned by the mycotoxins. My ENT did a mold panel allergy test on me and I was allergic to ALL of them. >He said there is a mycotoxin blood test but insurance will not pay for it. I guess if they did, too much could be proven and lawsuits could be more proven. I am also allergic to most of all the common allergens. I do not recall reacting anything like I do now when younger. Once I started working in the toxic enviroment, I became the sinus queen and the headache queen that got worse as time went on. Then came all the other horrific symptoms once I moved in the toxic house. I was being posioned 24/7. My ENT said we become sensitize and react to just about anything and everything. > >I react horrible to the barometric pressure changes. My ENT said fungus reacts to pressure changes. How, I do not understand. Does that mean I still have fungus in me... I know if I'm seeing it in my mouth now, that it has to be other places. I do have CSM from years back and thought about taking it again for a while but it is medicine and has other affects on the body and will absorb nutrients if not taken spaced out. I still wonder about the time frame of taking it and can't recall how my ENT told me but seems like 2-3 hours apart from eating and vitamins/meds or an hour before eating. I just felt like it was probably taking away nutrients back when I took it. But, I just may try that since it may get this stuff out of my mouth and more if elsewhere. I know last visit last year my ENT said wouldn't hurt to take one a day for maintenance. I'm sure I get exposed to mycotoxins and the other tons of toxins out there so maybe I need to try the CSM again for a while. I also take low dose naltrexone. > > >> >> I KNOW I am allergic to molds in my environment. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 i think i am def having asthma like-RADS responses to some " musty " smelling objects.. Its a blur of symptoms and sorting them out is something else. Robin > > > > Lance, > > Your not allergic to Stachy. Its not an allergen, its a poison. No allergy test determines your susceptibility to the degree of sickness anyone will attain from stachy exposure. Remember its a POISON. Below is a link to find a Doctor with experience in treating toxic mold exposure. Please go down the list and call them BEFORE you go so you can find the right fit for your needs. Also for me, Cholestyramine drug saved my life after being exposed to stachy. You might want to ask your Doc about it. Also if you have any furniture in your new dwellings from the old sick building it will no doubt have the mold spores on them from the original mold source and the stachy mold spores will be just as poisonous as the original mold source. > > God Bless you guys!! > > Elias > > http://www.mold-survivor.com/DrLists/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 agree.. its important to share expriences and info on csm.. Im not sure the alternatives are as potentially effective for those who can handle the csm. stachy and other toxic molds and the brew as per Dr. T are poisons but not all reactions may be to toxins.. this is the part thats driving me nuts though honestly, probably less so than thinking its always mold toxins causing my symptoms... not to rule that out either. Robin > > From: osisposis <jeaninem660@...> > Subject: [] Re: Toxin help > > Date: Tuesday, November 2, 2010, 1:41 PM > > just like some can tolerate steroids, some not, some antibiotics,some not, I dont think we should be telling anybody what they have ,or what they should take, if your wrong, your hurting, not helping. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010   My first " Toxic " mold reaction occurred many years ago. I was " lucky? " enough to have it occur at a new job, and NOT my home, so after seeing the mold, with my own eyes, I quit the job after 6 weeks. I was more dead than alive, by that point.When this " Toxic " mold exposure occurred, I had already had asthma and allergies for 40 years, so my body was able to do a comparison between what it was used to feeling, with allergies and asthma, and what it was feeling from the " Toxic " exposure. But my brain kept telling me that what I was feeling must be a " new type " of allergy and asthma, because my brain had never read anything about " toxic mold " , and like ALL brains, including most doctor's brains, it refused to accept that something that was " NOT LEARNED " could possibly be the cause of the suffering.  It was not until I convinced my boss to take me on a tour of the " abandoned building " we were working in, and my brain saw the massive mold infestation, did my brain agree with my body that the both of them [body and brain] should " RUN AWAY BEFORE WE BOTH DIED " . I advise that ALL of us listen to our body, and NOT listen to our brain, when there is a difference of opinion between the two.  After " running away " , my " allergy-asthma " reaction to the mold went away after a few days. Any allergy-asthma DOCTOR will confirm that once the patient leaves the " triggering " environment, the allergic-asthmatic symptoms disappear in a few hours or days. Contrary to this, we all know that the " TOXIC " mold reaction is capable of lasting for months and years, and even for the rest of our life, if we delayed leaving the moldy environment FOR TOO LONG, while we were listening to our brain, and not our body. Remember this warning, the next time your brain tells you that it is getting " really close " to discovering and remediating the cause of your suffering.  I have BOTH, an " allergic-asthmatic " reaction to mold, and also a " TOXIC " reaction to mold, and based on my 58 years of experience with allergies and asthma, I can confirm that, if you are REALLY still getting an allergic-asthmatic reaction to mold, more than a week after YOU THINK you have left the moldy environment, then your brain is lying to you. Your brain is telling you that you are no longer living or working in a " mold-free " environment. The reality is [your doctor will confirm this] if your symptoms are PURELY asthmatic-allergic, then they would have stopped within a week of leaving your mold-exposure environment. That is why, since 99.9% of all doctors believe that ALL MOLD REACTIONS are purely allergic-asthmatic, they think that we have all lost our sanity in believing that we are still getting symptoms AFTER having left the moldy " triggering " environment.  Conclusion: If you are REALLY living and working in a " mold-free " environment, and you are still getting mold-related symptoms, then what you are suffering from, is a " TOXIC " mold reaction. [iMHO]  God Bless, Joe ............................................................................ Re: Toxin help Posted by: " osisposis " jeaninem660@...  osisposis Tue Nov 2, 2010 3:28 pm (PDT) you know, there may be some who suffer from mold allergies and not mycotoxin exposure. I dont think it's wise to tell anyone they do or do not suffer a mold allergy, you can suffer from both allergy and toxicity. eother/or. just because one person does not have allergies doesn't mean all do not. --- In , photoguys2003 <photoguys2003@ ...> wrote: > > Lance, > Your not allergic to Stachy. Its not an allergen, its a poison. No allergy test determines your susceptibility to the degree of sickness anyone will attain from stachy exposure. Remember its a POISON. Below is a link to find a Doctor with experience in treating toxic mold exposure. Please go down the list and call them BEFORE you go so you can find the right fit for your needs. Also for me, Cholestyramine drug saved my life after being exposed to stachy. You might want to ask your Doc about it. Also if you have any furniture in your new dwellings from the old sick building it will no doubt have the mold spores on them from the original mold source and the stachy mold spores will be just as poisonous as the original mold source. > God Bless you guys!! > Elias > http://www.mold- survivor. com/DrLists/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 I just noticed that I made a mistake in paragraph #4, below.  Instead of saying: " I can confirm that, if you are REALLY still getting an allergic-asthmatic reaction to mold, more than a week after YOU THINK you have left the moldy environment, then your brain is lying to you. Your brain is telling you that you are no longer living or working in a 'mold-free' environment. "  The last 3 words of that sentence SHOULD read: " moldy environment " , NOT " mold-free " environment.  Sorry for not proof-reading my posting, before sending it. It must have been very confusing to read.  God Bless, Joe .................................................................................\ ............ From: Joe Salowitz <josephsalowitz@...> Subject: Re: Toxin Help " " < > Date: Wednesday, November 3, 2010, 2:35 PM My first " Toxic " mold reaction occurred many years ago. I was " lucky? " enough to have it occur at a new job, and NOT my home, so after seeing the mold, with my own eyes, I quit the job after 6 weeks. I was more dead than alive, by that point.When this " Toxic " mold exposure occurred, I had already had asthma and allergies for 40 years, so my body was able to do a comparison between what it was used to feeling, with allergies and asthma, and what it was feeling from the " Toxic " exposure. But my brain kept telling me that what I was feeling must be a " new type " of allergy and asthma, because my brain had never read anything about " toxic mold " , and like ALL brains, including most doctor's brains, it refused to accept that something that was " NOT LEARNED " could possibly be the cause of the suffering.  It was not until I convinced my boss to take me on a tour of the " abandoned building " we were working in, and my brain saw the massive mold infestation, did my brain agree with my body that the Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Allergy tests do not mean much as far as mold exposure WDB  goes. Real Time Labs does tests for mycotoxins and mold exposure.  You do not have to test positive to allergies to mold.  God Bless !! dragonflymcs Mayleen ________________________________ From: Lance <lanceh423@...> Sent: Wed, November 3, 2010 12:05:40 PM Subject: Re: [] Re: Toxin help  Thanks, does anyone else know anything about this mytoxin test? My son and I have been tested for allergies, and came up negative on all molds but we still have symptoms. All of our symptoms started with mold exposure in my home and now we desperately need help. On Wed Nov 3rd, 2010 1:13 AM EDT Bunny wrote: >I am allergic to molds also and poisoned by the mycotoxins. My ENT did a mold >panel allergy test on me and I was allergic to ALL of them. > >He said there is a mycotoxin blood test but insurance will not pay for it. I >guess if they did, too much could be proven and lawsuits could be more proven. I >am also allergic to most of all the common allergens. I do not recall reacting >anything like I do now when younger. Once I started working in the toxic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 really though, if you were close to loseing your life, CSM is not going to save you. getting out of the WDB and practiceing advoidance might. > > From: osisposis <jeaninem660@...> > Subject: [] Re: Toxin help > > Date: Tuesday, November 2, 2010, 1:41 PM > > just like some can tolerate steroids, some not, some antibiotics,some not, I dont think we should be telling anybody what they have ,or what they should take, if your wrong, your hurting, not helping. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 I respect Dr. Shoemaker and his work, but no, CSM is not for everyone and can do more damage than good for some. I was one of those people who came to this group a long time ago and heard about CSM, basicly it was a not a good experience at all, had I known my body was to damaged to tolerate it, I wouldn't have bothered to drag my behind all the way to MD. but glad I had his testing done so that was good. thing is, I had read and heard things like if CSM doesn't cure you your not sick from toxic mold exposure, CSM saved my life, ect. WRONG!!! can you see how thinking this and haveing such a terriable reaction to CSM made me fell, yes, somewhat confused and than very pissed off. pissed off because no one, not even Shoemaker himself, thaught, or considered that I may have been damaged by my exposure a little more than most he might see and that damage was going to make his protocal not work for me, so basicly, I was very let down. thing is, the more help you need, the less you well probably get. so yes, I dont like people makeing statements that anything saved their life, exspecially when it's not true. now if I can get better without basicly any long lasting use of any drugs and by mainly just practiceing advoidance, that speaks for itself. I'm not saying that for some CSM and getting out of the WDB well not greatly help them, and if it works for you, more power to you, just please consider that it may not be a " life saver " for everyone. now we can give our opinions, say this worked for me, might help you,or not, or ask more questions first to try to get a better felling of just how badly a person is injured, ect. but to make such bold statements about any protocal or what damages a person does or does not have,allergies,no allergies, toxicity, no toxicity, can be harmful, not helpful. > > > > From: osisposis <jeaninem660@> > > Subject: [] Re: Toxin help > > > > Date: Tuesday, November 2, 2010, 1:41 PM > > > > just like some can tolerate steroids, some not, some antibiotics,some not, I dont think we should be telling anybody what they have ,or what they should take, if your wrong, your hurting, not helping. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Joe, did you have allergy testing to molds or mold mixes? did you have specific IgE testing to certain molds? were you anaphylatic with your mold allergies? did you have intradermal allergy testing? do you have allergies to anything else besides mold? you do know that you can be hypersensitive in a allergic or non-allergic way dont you? or both. are you saying that although you have allergies to molds they left 2 or 3 days after your exposure and you dont have allergies anymore? what about re-exposure to mold growth? another day or 2? kindof like re-exposure to toxins after initial exposure, lasting a few days, are you saying if now, when you have a reaction it is only to toxic mold and no other toxins? or are you saying that your still in a constant reactive state do to toxic mold from your exposure? and it's went on for years and years? > > > From: Joe Salowitz <josephsalowitz@...> > Subject: Re: Toxin Help > " " < > > Date: Wednesday, November 3, 2010, 2:35 PM > My first " Toxic " mold reaction occurred many years ago. I was " lucky? " enough to have it occur at a new job, and NOT my home, so after seeing the mold, with my own eyes, I quit the job after 6 weeks. I was more dead than alive, by that point.When this " Toxic " mold exposure occurred, I had already had asthma and allergies for 40 years, so my body was able to do a comparison between what it was used to feeling, with allergies and asthma, and what it was feeling from the " Toxic " exposure. But my brain kept telling me that what I was feeling must be a " new type " of allergy and asthma, because my brain had never read anything about " toxic mold " , and like ALL brains, including most doctor's brains, it refused to accept that something that was " NOT LEARNED " could possibly be the cause of the suffering. >  > > It was not until I convinced my boss to take me on a tour of the " abandoned building " we were working in, and my brain saw the massive mold infestation, did my brain agree with my body that the > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Im sorry to hear that it made things worse. In wjat way was your body too damaged to tolerate it? My body is very damaged in multiple organs and my kcs worsens daily > > I respect Dr. Shoemaker and his work, but no, CSM is not for everyone and can do more damage than good for some. I was one of those people who came to this group a long time ago and heard about CSM, basicly it was a not a good experience at all, had I known my body was to damaged to tolerate it, I wouldn't have bothered to drag my behind all the way to MD. but glad I had his testing done so that was good. > thing is, I had read and heard things like if CSM doesn't cure you your not sick from toxic mold exposure, CSM saved my life, ect. WRONG!!! > can you see how thinking this and haveing such a terriable reaction to CSM made me fell, yes, somewhat confused and than very pissed off. > pissed off because no one, not even Shoemaker himself, thaught, or considered that I may have been damaged by my exposure a little more than most he might see and that damage was going to make his protocal not work for me, so basicly, I was very let down. > thing is, the more help you need, the less you well probably get. > so yes, I dont like people makeing statements that anything saved their life, exspecially when it's not true. > now if I can get better without basicly any long lasting use of any > drugs and by mainly just practiceing advoidance, that speaks for itself. I'm not saying that for some CSM and getting out of the WDB well not greatly help them, and if it works for you, more power to you, just please consider that it may not be a " life saver " for everyone. > > now we can give our opinions, say this worked for me, might help you,or not, or ask more questions first to try to get a better felling of just how badly a person is injured, ect. but to make such bold statements about any protocal or what damages a person does or does not have,allergies,no allergies, toxicity, no toxicity, can be harmful, not helpful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2010 Report Share Posted November 4, 2010 Jeanne.. I am really curious about this because I have one of Shoe's " dreaded genes " that he repeats does not get better most of the time.. and you know he repeats that csm is the best answer for those that it can help and implies that those that it cant help are basically lost causes.. as much as I appreciate him... this part had really effected me badly in a psychological way and i resent him for these statement. so Im wondering.. do you have one of his " dreaded genes " and still improved without the csm? My daughter also has a " dreaded " and we jsut had a rough night.. to say Im worried for her is an understatement and I would have to be desparate to give this to her.. and though I hope to complete a month and see how it goes, I dont want to stay on it/ Thanks.. Robin > > I respect Dr. Shoemaker and his work, but no, CSM is not for everyone and can do more damage than good for some. I was one of those people who came to this group a long time ago and heard about CSM, basicly it was a not a good experience at all, had I known my body was to damaged to tolerate it, I wouldn't have bothered to drag my behind all the way to MD. but glad I had his testing done so that was good. > thing is, I had read and heard things like if CSM doesn't cure you your not sick from toxic mold exposure, CSM saved my life, ect. WRONG!!! > can you see how thinking this and haveing such a terriable reaction to CSM made me fell, yes, somewhat confused and than very pissed off. > pissed off because no one, not even Shoemaker himself, thaught, or considered that I may have been damaged by my exposure a little more than most he might see and that damage was going to make his protocal not work for me, so basicly, I was very let down. > thing is, the more help you need, the less you well probably get. > so yes, I dont like people makeing statements that anything saved their life, exspecially when it's not true. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2010 Report Share Posted November 4, 2010 I have never tested positive for any allergenic molds, yet I was poisoned and have developed a hypersensitivity to it that does not allow me to lead a normal life. This stuff will kill you and you need to remove your child from the toxic environment before his immune system is screwed forever. If you have moved, you need to see a dr who is a mold Dr. Like Dr Shoemaker in MD, get the app now, if you tell him a child is involved , he might be able to get you in sooner. Read his book and web site, and you will know what you are up against. Most people have to travel to see a mold Dr. Maybe you can find one near you, but it is better to have the app ready. Have you started CSM? that is the first thing to do.The first test for mold is a VCS eye test You do not need expensive tests that will prove what you allready know, that you are sick from mold > > Thanks, does anyone else know anything about this mytoxin test? My son and I have been tested for allergies, and came up negative on all molds but we still have symptoms. All of our symptoms started with mold exposure in my home and now we desperately need help. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2010 Report Share Posted November 4, 2010 It is unusual for an ENT to even know about CSM, Bunny are you seeing Dr. Dennis by any chance? Thanks~ D > > > > I KNOW I am allergic to molds in my environment. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2010 Report Share Posted November 4, 2010 I began my first, of many allergy testings, for mold, foods, dust, and pollen in the year 1952, at the age of 9. At that time " specific IgE testing for certain molds " had not yet been invented. Yes, I was anaphylactic to almost anything, and everything, including mold. I spent a few days in a full-body oxygen " tent " in the hospital [like the " bubble boy " ], as nasal canulas and oxygen masks had not yet been invented. All blood tests were taken from the heel of my foot, as that was the only part of my body sticking out from the tent. Yes, I had intradermal allergy testing, both skin scratches [slits made with a razor] and subcutaneous injections.  As I have aged, and the efficiency of my immune system has diminished, I have lost my " reactivity " to many things which were " killers " in my past. I am no longer allergic to chocolate, and my desire to make up for years of lost chocolate-eating time, has caused me to overindulge and get fat. My primary remaining allergies are to mold, dust, insect bites, cat hair [on and off the cat], dog saliva, peanuts, nuts [except cashews], fur, melons, lemon, inhaled powders and volitile chemical fumes [such as perfume and ammonia]. Seasonal pollen is still an allergy; but at at " nuisance " level, and not a deathly level.  Yes, I know that you can be hypersensitive in an allergic or non-allergic way, or both. I am hypersensitive, in a non-allergic way, to the chemical off-gassing [chemical sensitivity] from new computers, new T.V. sets, new DVD/DVR players, and other new electronic consumer products. This non-allergic hypersensitivity reaction is just as intense as my non-allergic toxic mold/mycotoxin reaction.  I am saying, and ANY allergy doctor in the world will confirm, that a few hours or days after leaving a moldy environment, an allergic person's " allergic " reaction will totally stop, so long as they do not enter any other moldy environment. [please, no " fan " mail until you speak with an allergy doctor]. I have allergies every minute of my life, for the rest of my life. But, these " allergies " remain a " potential " reaction, until a re-exposure to an allergen [like mold] " triggers " an allergic response in my body. My recent one (1) hour exposure to two people living in a toxic mold environment, did NOT trigger an " allergic " reaction in my body [most allergic responses are " immediate " responses]. But, this same exposure triggered a " toxic " reaction in my body. The " toxic " reaction began about three hours after my exposure, and peaked twelve hours later, and ended three days [72 hours] later. Remember, I am talking about a one hour exposure.  You can visualize what I am saying, by substituting the word " fire " for the word " mold " . In an allergic-type  reaction, your hand stops " burning " , the second you pull it out of the fire. While a burn will take a few days, or weeks, to heal; an " allergic " reaction to mold will take only a few hours, or days, to heal [stop happening].  Again, I am only in a " reactive state " , for allergic AND toxic exposures, ONLY when I am actually being exposed [in the present-not the past] to mold. The only difference is the intensity of suffering, and the length of the recovery period from the exposure. An allergic mold exposure reaction vanishes in hours or days after the exposure ends. A toxic mold exposure reaction [non-allergic] vanishes in weeks or months or years or never, after the exposure to the toxic mold [this is a " toxic " (poisonous) reaction to a " toxic mold " exposure.  In the time between toxic mold exposures, I remain, AS YOU DO, FOR THE REST OF MY LIFE, a " potential " reactor to " toxic molds " , with both an " allergic " reaction, and " non-allergic toxic " reaction. The same holds true for my Multiple Chemical Sensitivities (MCS). Until my recent one hour exposure, I had gone 3 or 4 years without EITHER type of reaction. So, I assume I did not have any mold exposures, during that time.  I hope that I have answered your questions adequately.  God Bless, Joe .................................................................................\ ...  Re: Toxin Help Posted by: " osisposis " jeaninem660@...  osisposis Thu Nov 4, 2010 4:58 am (PDT) Joe, did you have allergy testing to molds or mold mixes? did you have specific IgE testing to certain molds? were you anaphylatic with your mold allergies? did you have intradermal allergy testing? do you have allergies to anything else besides mold? you do know that you can be hypersensitive in a allergic or non-allergic way dont you? or both. are you saying that although you have allergies to molds they left 2 or 3 days after your exposure and you dont have allergies anymore? what about re-exposure to mold growth? another day or 2? kindof like re-exposure to toxins after initial exposure, lasting a few days, are you saying if now, when you have a reaction it is only to toxic mold and no other toxins? or are you saying that your still in a constant reactive state do to toxic mold from your exposure? and it's went on for years and years? 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Guest guest Posted November 4, 2010 Report Share Posted November 4, 2010 a few more questions?, do you have allergic sinusesitis, or allergic lung disease, are you colonized with mold? do you have autoimmune disorders, just wondering. > > > I began my first, of many allergy testings, for mold, foods, dust, and pollen in the year 1952, at the age of 9. At that time " specific IgE testing for certain molds " had not yet been invented. Yes, I was anaphylactic to almost anything, and everything, including mold. I spent a few days in a full-body oxygen " tent " in the hospital [like the " bubble boy " ], as nasal canulas and oxygen masks had not yet been invented. All blood tests were taken from the heel of my foot, as that was the only part of my body sticking out from the tent. Yes, I had intradermal allergy testing, both skin scratches [slits made with a razor] and subcutaneous injections. >  > As I have aged, and the efficiency of my immune system has diminished, I have lost my " reactivity " to many things which were " killers " in my past. I am no longer allergic to chocolate, and my desire to make up for years of lost chocolate-eating time, has caused me to overindulge and get fat. My primary remaining allergies are to mold, dust, insect bites, cat hair [on and off the cat], dog saliva, peanuts, nuts [except cashews], fur, melons, lemon, inhaled powders and volitile chemical fumes [such as perfume and ammonia]. Seasonal pollen is still an allergy; but at at " nuisance " level, and not a deathly level. >  > Yes, I know that you can be hypersensitive in an allergic or non-allergic way, or both. I am hypersensitive, in a non-allergic way, to the chemical off-gassing [chemical sensitivity] from new computers, new T.V. sets, new DVD/DVR players, and other new electronic consumer products. This non-allergic hypersensitivity reaction is just as intense as my non-allergic toxic mold/mycotoxin reaction. >  > I am saying, and ANY allergy doctor in the world will confirm, that a few hours or days after leaving a moldy environment, an allergic person's " allergic " reaction will totally stop, so long as they do not enter any other moldy environment. [please, no " fan " mail until you speak with an allergy doctor]. I have allergies every minute of my life, for the rest of my life. But, these " allergies " remain a " potential " reaction, until a re-exposure to an allergen [like mold] " triggers " an allergic response in my body. My recent one (1) hour exposure to two people living in a toxic mold environment, did NOT trigger an " allergic " reaction in my body [most allergic responses are " immediate " responses]. But, this same exposure triggered a " toxic " reaction in my body. The " toxic " reaction began about three hours after my exposure, and peaked twelve hours later, and ended three days [72 hours] later. Remember, I am talking about a one hour exposure. >  > You can visualize what I am saying, by substituting the word " fire " for the word " mold " . In an allergic-type  reaction, your hand stops " burning " , the second you pull it out of the fire. While a burn will take a few days, or weeks, to heal; an " allergic " reaction to mold will take only a few hours, or days, to heal [stop happening]. >  > Again, I am only in a " reactive state " , for allergic AND toxic exposures, ONLY when I am actually being exposed [in the present-not the past] to mold. The only difference is the intensity of suffering, and the length of the recovery period from the exposure. An allergic mold exposure reaction vanishes in hours or days after the exposure ends. A toxic mold exposure reaction [non-allergic] vanishes in weeks or months or years or never, after the exposure to the toxic mold [this is a " toxic " (poisonous) reaction to a " toxic mold " exposure. >  > In the time between toxic mold exposures, I remain, AS YOU DO, FOR THE REST OF MY LIFE, a " potential " reactor to " toxic molds " , with both an " allergic " reaction, and " non-allergic toxic " reaction. The same holds true for my Multiple Chemical Sensitivities (MCS). Until my recent one hour exposure, I had gone 3 or 4 years without EITHER type of reaction. So, I assume I did not have any mold exposures, during that time. >  > I hope that I have answered your questions adequately. >  > God Bless, Joe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2010 Report Share Posted November 4, 2010 No. The ENT I saw was very familiar with Dr. Shoemaker and I believe has talked to him on the phone before. My ENT wanted me to go to Dr. Shoemaker and told me to over and over but my insurance doesn't cross state lines and pay so I could not do that. I took CSM for a year and a half. I got out of toxic work place and spent $$$$$$ to remediate house etc. Is it safe in my house now, I'll never know but it is better than it was. > > It is unusual for an ENT to even know about CSM, Bunny are you seeing Dr. Dennis by any chance? Thanks~ D > > Quote Link to comment Share on other sites More sharing options...
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