Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 Tug, I have had several mold exposures with the last one lasting 9 months with the dreaded gene & I am getting better after 2 1/2 mos of CMS. ________________________________ From: Tug <tug_slug@...> Sent: Sat, November 6, 2010 11:38:51 AM Subject: [] Re: CSM - Dr Shoemaker  I was told in order to get CSM without aspertame it had to be compounded by a pharmacist also someone sent me an email yesterday stating that if you've been exposed to mold more than 6 months CSM wouldn't have much of an effect. I don't know how true any of this is as I only scanned through the email > > > I've know that the LIGHT CSM that comes in the small individual packs has > aspertame but I don't think Welchol does. > > > Be careful. Welchol has aspartame. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 Regular CSM doesn't have aspartame, just the lite version. I have the regular version and it is not very sweet at all, although don't like the other ingredients either. QUESTRAN powder contains the following inactive ingredients:acacia, citric acid, D & C Yellow No. 10, FD & C Yellow No.6, flavor (natural and artificial Orange), polysorbate 80, propylene glycol alginate and sucrose. QUESTRAN LIGHT contains the following inactive ingredients: aspartame, citric acid, colloidal silicon dioxide, D & C Yellow No. 10, FD & C Red No.40, flavor (natural and artificial Orange), maltodextrin, propylene glycol alginate and xanthan gum. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 the compounded does taste like plastic. Robin > > > > > > http://www.rxlist.com/questran-drug.html > > > > Is this the same as CSM?. > > > > Yes Questran is CSM. They probably add aspartame to make it more palatable. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 Tug, well it looks like Im doomed then and Im not buying that part yet, today. I may have been exposed for 3 plus years as the WBD brew was brewing. The stachy had made its way into the wood studs from the drywall. I too think I am feeling some shifts from the csm but am leary of saying that too soon. I'll take 75% at this point. Im not looking for perfect health yet.. ability to work out, etc.. just want top be able to keep pace with life and be able to feel good feelings more often than not.. some peace. Then I'll go from there with my goals. Im sharing a cold with my son. Some say thats a good sign. I used to get sick alot then for a while there I didnt get sick at all. So maybe my immune system is shifting. Robin > > Tug, > I have had several mold exposures with the last one lasting 9 months with the > dreaded gene & I am getting better after 2 1/2 mos of CMS. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 Robin, I'm guessing you take the compounded? I'll have to try it, I can't handle aspartame in the regular. <listspub@...>  [] Re:CSM - Dr Shoemaker the compounded does taste like plastic. Robin http://www.rxlist.com/questran-drug.html  > Yes Questran is CSM. They probably add aspartame to make it more palatable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 Barb, Thanks for clarifying the differences. Maybe I'll try it, since I have the regular one. What's the best way to take it? I tend to take most supps. after eating to prevent stomach upset. I like ginger to help if any upset mine. We have to take probiotics on an empty stomach. Kathy  <barb1283@...> wrote: [] Re: CSM - Dr Shoemaker Regular CSM doesn't have aspartame, just the lite version. I have the regular version and it is not very sweet at all, although don't like the other ingredients either. QUESTRAN powder contains the following inactive ingredients:acacia, citric acid, D & C Yellow No. 10, FD & C Yellow No.6, flavor (natural and artificial Orange), polysorbate 80, propylene glycol alginate and sucrose. QUESTRAN LIGHT contains the following inactive ingredients: aspartame, citric acid, colloidal silicon dioxide, D & C Yellow No. 10, FD & C Red No.40, flavor (natural and artificial Orange), maltodextrin, propylene glycol alginate and xanthan gum. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2010 Report Share Posted November 6, 2010 SSR is group expert on how to take as a patient of Dr Shoes. She recently posted it. I can send a copy I saved. Perhaps we should save this to files. I don't have high cholesterol problem and need to absorb nutrients and supplements as I spend alot of money on them, so this is how I take it: I take it first thing in the morning because I'm not hungry anyway. Later in the day I take take supplements or food first and then an hour or more later will take CSM. That is not per directions from Dr Shoemaker but I want to get food, supplements, medicine in first. You are supposed to eat something fatty about a half hour after you take it to cause liver to secrete bile. I have trouble w timing of it actually. Things interrupt. I set a timer if I'm at home. > >Thanks for clarifying the differences. > Maybe I'll try it, since I have the regular one. What's the best way to take it? > > I tend to take most supps. after eating to prevent stomach upset. I like ginger to help if any upset mine. > > We have to take probiotics on an empty stomach. > > Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 I use the regular CSM as well. I know it has ingredients in it that we may not like but I'm willing to take it to feel better. You can always mix it with juice or tea. >>> Regular CSM doesn't have aspartame, just the lite version. I have the regular version and it is not very sweet at all, although don't like the other ingredients either. QUESTRAN powder contains the following inactive ingredients:acacia, citric acid, D & C Yellow No. 10, FD & C Yellow No.6, flavor (natural and artificial Orange), polysorbate 80, propylene glycol alginate and sucrose. QUESTRAN LIGHT contains the following inactive ingredients: aspartame, citric acid, colloidal silicon dioxide, D & C Yellow No. 10, FD & C Red No.40, flavor (natural and artificial Orange), maltodextrin, propylene glycol alginate and xanthan gum. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 I was exposed for years at work. ANd six years later I am still sick. My immune system doesn't work very well and my central nervous system is off. When I first got sick. I could hardly breathe from the terrible asthma and my muscles hurt so bad I couldn't hardly walk. In a message dated 11/7/2010 12:06:52 P.M. Eastern Standard Time, tug_slug@... writes: Robin please don't say that, your going to recover but because you were exposed for such a long time its not going to happen as quick as you want it to. Everyone I have talked to and I've talked to allot of people all said the same " your going to get better " I just got over that cold, it seems to be hitting everyone. Wednesday morning I was so sick that I thought I was going to have to go the emergency room. I didnt know if I had the flu/cold or if it was the mold either way I felt like I was going to die. Twenty four hours later I felt fine. > > Tug, well it looks like Im doomed then and Im not buying that part yet, today. I may have been exposed for 3 plus years as the WBD brew was brewing. The stachy had made its way into the wood studs from the drywall. > Im sharing a cold with my son. Some say thats a good sign. I used to get sick alot then for a while there I didnt get sick at all. So maybe my immune system is shifting. > > Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 If you take the CSM following the protocol below it will work!!! I took mine early in the AM, then wait a half hr. to an hr. before eating or taking any other meds. Next dose about 11AM, then eat & take other meds, 4PM next dose, dinner & other meds. last dose about 9 or 10 PM. I usually spaced them out about 4 hrs. apart and it worked for me. I followed HIS directions and never missed a dose EVER!!!! Using a timer is a good idea. You can also mix it in a small jar ahead of time to take with you when you go out and also the night before and keep by your bedside or bathroom for the AM dose. I took mine early and then went back to sleep! I don't have high cholesterol problem and need to absorb nutrients and supplements as I spend a lot of money on them, so this is how I take it: I take it first thing in the morning because I'm not hungry anyway. Later in the day I take take supplements or food first and then an hour or more later will take CSM. That is Re: CSM Protocol Posted by: Sun Jan 20, 2008 3:34 pm (PST) Here is the CSM protocol I received from Dr. Shoemaker in April 2007: 1. On an empty stomach, take one scoop of CSM (9 grams), mix with water, or juice, 4-6 oz 2. Stir well and swallow. Add more liquid, repeat 1 above until done. 3. Drink an extra 4-6 oz of liquid 4. After 30 minutes, you may eat or take meds (wait at least 2 hours before taking thyroxine, digitalis, theophylline, coumadin and others, ask your doctor for information) 5. Take CSM 4 times a day! 6. If you eat first, wait at least 60 minutes before taking your next CSM 7. Reflux, constipation, bloating and bowel distress are to be expected 8. Use acid blocking medications as needed 9. Use sorbitol, 70% solutions, 1 TBSP 3-4 times a day to relieve constipation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 -- In , KathyB <calicocat477@...> wrote: > > Maybe I'll try it, since I have the regular one. What's the best way to take it? What I believe is that my system releases toxins mostly at night. Like many people with CFS and/or mold illness, I wake up in the morning feeling very toxic and groggy. It's always felt intuitively like taking more of it before bed, during the night (if I wake up) and in the morning rather than spaced out evenly throughout the day is a better idea for me. It also makes some sense that this would be the best time to absorb whatever is released at night. This is not what Dr. Shoemaker recommends though. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Wow, does not sound like something I would want to drink. Interesting that citric acid is in there. Wouldn't it be ironic if that were the mold-derived citric acid. Anyone know?? D > > Regular CSM doesn't have aspartame, just the lite version. I have the regular version and it is not very sweet at all, although don't like the other ingredients either. > > QUESTRAN powder contains the following inactive ingredients:acacia, citric acid, D & C Yellow No. 10, FD & C Yellow No.6, flavor (natural and artificial Orange), polysorbate 80, propylene glycol alginate and sucrose. QUESTRAN LIGHT contains the following inactive ingredients: aspartame, citric acid, colloidal silicon dioxide, D & C Yellow No. 10, FD & C Red No.40, flavor (natural and artificial Orange), maltodextrin, propylene glycol alginate and xanthan gum. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Robin please don't say that, your going to recover but because you were exposed for such a long time its not going to happen as quick as you want it to. Everyone I have talked to and I've talked to allot of people all said the same " your going to get better " I just got over that cold, it seems to be hitting everyone. Wednesday morning I was so sick that I thought I was going to have to go the emergency room. I didnt know if I had the flu/cold or if it was the mold either way I felt like I was going to die. Twenty four hours later I felt fine. > > Tug, well it looks like Im doomed then and Im not buying that part yet, today. I may have been exposed for 3 plus years as the WBD brew was brewing. The stachy had made its way into the wood studs from the drywall. > Im sharing a cold with my son. Some say thats a good sign. I used to get sick alot then for a while there I didnt get sick at all. So maybe my immune system is shifting. > > Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 I know. Drinking plastic resins doesn't sound good to me either. I take it when I think I need something strong but think other detoxifiers for regular use might be healthier and sauna. Intend to try the pyllium mix you mentioned. Getting a lot of green leafy vegetables is a good detoxifier. > > > > Regular CSM doesn't have aspartame, just the lite version. I have the regular version and it is not very sweet at all, although don't like the other ingredients either. > > > > QUESTRAN powder contains the following inactive ingredients:acacia, citric acid, D & C Yellow No. 10, FD & C Yellow No.6, flavor (natural and artificial Orange), polysorbate 80, propylene glycol alginate and sucrose. QUESTRAN LIGHT contains the following inactive ingredients: aspartame, citric acid, colloidal silicon dioxide, D & C Yellow No. 10, FD & C Red No.40, flavor (natural and artificial Orange), maltodextrin, propylene glycol alginate and xanthan gum. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 ssr, do you have the dreaded genes? just wondering. > > If you take the CSM following the protocol below it will work!!! I took > mine early in the AM, then wait a half hr. to an hr. before eating or taking > any other meds. Next dose about 11AM, then eat & take other meds, 4PM next > dose, dinner & other meds. last dose about 9 or 10 PM. I usually spaced > them out about 4 hrs. apart and it worked for me. I followed HIS directions > and never missed a dose EVER!!!! Using a timer is a good idea. You can also > mix it in a small jar ahead of time to take with you when you go out and > also the night before and keep by your bedside or bathroom for the AM dose. I > took mine early and then went back to sleep! > > I don't have high cholesterol problem and need to absorb nutrients and > supplements as I spend a lot of money on them, so this is how I take it: I take > it first thing in the morning because I'm not hungry anyway. Later in the > day I take take supplements or food first and then an hour or more later > will take CSM. That is > > > Re: CSM Protocol > Posted by: > Sun Jan 20, 2008 3:34 pm (PST) > Here is the CSM protocol I received from Dr. Shoemaker in April 2007: > > 1. On an empty stomach, take one scoop of CSM (9 grams), mix with > water, or juice, 4-6 oz > 2. Stir well and swallow. Add more liquid, repeat 1 above until done. > 3. Drink an extra 4-6 oz of liquid > 4. After 30 minutes, you may eat or take meds (wait at least 2 hours > before taking thyroxine, digitalis, theophylline, coumadin and > others, ask your doctor for information) > 5. Take CSM 4 times a day! > 6. If you eat first, wait at least 60 minutes before taking your next > CSM > 7. Reflux, constipation, bloating and bowel distress are to be > expected > 8. Use acid blocking medications as needed > 9. Use sorbitol, 70% solutions, 1 TBSP 3-4 times a day to relieve > constipation > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 yes from hopkington pharmacy where you also get the BEG spray for macrons and the VIP spray. Robin > > Robin, > > I'm guessing you take the compounded? I'll have to try it, I can't handle aspartame in the regular. > > <listspub@...> > Â [] Re:CSM - Dr Shoemaker > > the compounded does taste like plastic. > > Robin > > http://www.rxlist.com/questran-drug.html > Â > > > Yes Questran is CSM. They probably add aspartame to make it more palatable. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 I honestly don't know. I was so sick when I got to him I just don't recall. If he told me I don't remember. I still take CSM 2X a day along with Trental and Procrit. Sue R. ssr, do you have the dreaded genes? just wondering. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 There is no aspartame in the regular CSM on the light. yes from hopkington pharmacy where you also get the BEG spray for macrons and the VIP spray. Robin > Robin, > > I'm guessing you take the compounded? I'll have to try it, I can't handle aspartame in the regular. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Thanks for the csm instructions. Yes, it needs to go in a file. I don't have high cholesterol. I'll start soon. What do most take if causes gas or stomach upset? Would ginger or Enzymetic Acid Ease be enough? Whats' the usual length of taking it? I know it depends if there's a current exposure or past. Kathy From: ssr3351@... <ssr3351@...> : [] Re: CSM - Dr Shoemaker If you take the CSM following the protocol below it will work!!! I took mine early in the AM, then wait a half hr. to an hr. before eating or taking any other meds. Next dose about 11AM, then eat & take other meds, 4PM next dose, dinner & other meds. last dose about 9 or 10 PM. I usually spaced them out about 4 hrs. apart and it worked for me. I followed HIS directions and never missed a dose EVER!!!! Using a timer is a good idea. You can also mix it in a small jar ahead of time to take with you when you go out and also the night before and keep by your bedside or bathroom for the AM dose. I took mine early and then went back to sleep! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Robin, The body has an incredible ability to heal. We were exposed for 4 .5 years. My kids are better, I'm a work in progress. Maybe some of us won't be 100% but can make real progress. Getting a cold is a good sign the immune system is reacting. I think we need to steer away from reg. processed food if possible. If I eat some by accident I get a scratchy throat & feel like somethings coming on but doesn't b/c I go back to organic. Pesticide & high fructose corn syrup reaction?? Kathy > > Tug, well it looks like Im doomed then and Im not buying that part yet, today. I may have been exposed for 3 plus years as the WBD brew was brewing. The stachy had made its way into the wood studs from the drywall. > Im sharing a cold with my son. Some say thats a good sign. I used to get sick alot then for a while there I didnt get sick at all. So maybe my immune system is shifting. > Robin this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 I'm still taking it but only 2x a day. Antacids help with the heartburn but I'm not sure about the bloating. I had some for about the first 3 weeks but it gradually went away. I take Milk of Magnesa for the consipation which works very well. Sue R. Thanks for the csm instructions. Yes, it needs to go in a file. I don't have high cholesterol. I'll start soon. What do most take if causes gas or stomach upset? Would ginger or Enzymetic Acid Ease be enough? Whats' the usual length of taking it? I know it depends if there's a current exposure or past. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2010 Report Share Posted December 5, 2010 > > Following up on the recent comment, I am one that did not do well on CSM. > Within 2 or 3 days, I was at the Dr (and then the ER) bc my stomach was so > inflamed from the CSM. I felt horrible on it and have not attempted it again. > He does prescribe something else for people who don't handle CSM well...I cannot > recall what it is though. So does this meanif you have had hepatitis you should avoid CSM? I thought maybe I had found something t ohelp me recover. I have never had any signs of hep except a test that showed it was positive. Meredith > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2010 Report Share Posted December 6, 2010 I think the other medication you are thinking about is called Welchol. It is a tablet form of CSM but I don't think it is as effective as the CSM but better than nothing. >> Following up on the recent comment, I am one that did not do well on CSM. > Within 2 or 3 days, I was at the Dr (and then the ER) bc my stomach was so > inflamed from the CSM. I felt horrible on it and have not attempted it again. > He does prescribe something else for people who don't handle CSM well...I cannot > recall what it is though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2010 Report Share Posted December 6, 2010 Do you know anything about Hep C with no symptoms? My husband had a blood test for an insurance company & he tested positive. He has absolutely NO symptoms at all and rarely drinks. When he does it would be a beer. We went to one Dr. who after talking to him said he didn't treat Hep C anymore and there really wasn't much he could do. He said that my husband had been exposed at one time (probably while in the military) but had antibodies against the virus. The next one wanted him to start the interfuron but said he would probably have some adverse reactions. We haven't done anything more but plan to see another Dr. after the first of the yr. Forgot to mention that sonogram was all normal & emzymes were just a little over the normal limit. catching hep early is very good. The Dr I see treats liver and hep people all the time-highly successfully. They come from all over the US. Google- The Integrative Medical Center, Las Cruces, NM . Dr Berkson. He pioneered the use of IV Alfa Lopeic Acid and Low Dose Naltrexone. The ALA IV's re-grow the liver, I see them go from dead to alive in a couple of weeks in the IV room. People do not have to be sick from hep c. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2010 Report Share Posted December 6, 2010 catching hep early is very good. The Dr I see treats liver and hep people all the time-highly successfully. They come from all over the US. Google- The Integrative Medical Center, Las Cruces, NM . Dr Berkson. He pioneered the use of IV Alfa Lopeic Acid and Low Dose Naltrexone. The ALA IV's re-grow the liver, I see them go from dead to alive in a couple of weeks in the IV room. People do not have to be sick from hep c. > > > > Following up on the recent comment, I am one that did not do well on CSM. > > Within 2 or 3 days, I was at the Dr (and then the ER) bc my stomach was so > > inflamed from the CSM. I felt horrible on it and have not attempted it again. > > He does prescribe something else for people who don't handle CSM well...I cannot > > recall what it is though. > > So does this meanif you have had hepatitis you should avoid CSM? I thought maybe I had found something t ohelp me recover. I have never had any signs of hep except a test that showed it was positive. > Meredith > > > Quote Link to comment Share on other sites More sharing options...
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